Felt not bad today and ate a lot - after steroids after lunch - I only have one more metoclopramide to take today but started being sick again an hour ago- think am going to have to get a review of meds tomorrow as am wasted. Hope you all have good evenings x
Sort to hear you are still vomiting mrs meiow. My nausea is a lot better today, not managed any proper food just toast, avocado and cucumber
Im rather in awe of you Fairydust going to work. I’ve been in bed all day, have a slight temp (37.7) , headache and palpitations but all easier than nausea.
Thought chemo gradually got worse as you go through the rounds- hope that’s not tru"
By the way, my posh private clinic was NHS funded as ran out of beds. I will be back with the NHS next time.
Think I need to get some fairy lights too.
Love
jo
So I had my wig fitted (such a kind lady!) and PICC in. She took one look at the xray and said it was too long and was I getting palpitations…i was a bit, but sometimes do. She asked a consultant and then said it’s fine but feel my hearts been racing all night. Anyone else had this?
Chemo at 10.30 assuming PICC OK. Glad the sickness is beginning to subside for some if you, hope eases for everyone soon. The “only 3002 hours to go” made me smile Jo…I’m sure we are all counting too xx
Thank you rhonaboat x I’m sure that all the symptoms from all the things happening to us get mixed together so we probably can’t always say what is doing what I’ll see what they say today too! But looks like I’ll need to get used to it with the chemo too x good luck with the prunes!!!
Mrs meow - I’m sure they can give you more antinausea.
I’ve heard ondansetron and emend are two of the strongest and they can combine a few to get the nausea to stop. Fingers crossed for you - nausea is awful.
I feel like maybe I’m emerging from the post chemo fog today - it’s a week since the chemo and I feel like my head is back in the real world now, even though the nausea is still present I feel brighter and more connected again. My mouth feels like it’s lining has died and my nose bleeds spontaneously but I’m going to try leaving the house to meet a friend for lunch. Can’t wait!
Fairy - I’ve felt snotty too and my throat has been sore - didn’t know if it was a side effect or a cold. Keep checking temp and look out for yucky tonsils.
Jow - I was told to call the help line if temp was higher than 37.5 so might to worth ringing in and getting checked. Hope the headache settles.
Take care all, Cath x
Good luck today Michelle. Hope the chemo goes smoothly x
Thank you Cath. It was alright…the PICC worked fine too and CT scan. Just starting to feel weird now lol x I didn’t expect to get so many meds either, I’m worried I’m going to take them all in the wrong order! Xx hope your lunch out was a success!! X
How is everybody this evening? I got my meds changed for over the weekend it’s nice to feel have some more back up as was pretty yuk earlier. I have same as you Cathysid in terms of antisick meds.Managed a shower and feel and smell more normal! Hoping to manage a proper tea! Take care all
Glad your feeling better Mrs meow. And glad the chemo went in ok, Michelle.
I went out for lunch…eggs benedict, yummy! But as soon as I left the cafe the stomach cramps started. I ended up stuck in a public loo for over an hour - on the loo waiting for the Imodium to kick in!!! Rang my partner and he couldn’t stop laughing!!! I eventually made it home and back to my bed.
What a day! Glad I have my sense of humour back x
Oh Cathysid what an eventful afternoon - I hope you are comfortable now we do all get into some scrapes don’t we?! Have a good night you Michelle and all x
Hi Everybody,
I’m new to the group. I had my first chemo on 1st Sept. and am lying awake now as I can’t sleep. I’m having some late side effects kicking in and although I’m putting on a brave face in front of everybody else, today in my room I just broke down on my own until I came across this forum. I’ve had terrible back pain to the extent that I haven’t been able to sit or bend down, have had to stay lying down, for the past three days until I was prescribed Cocodomol today. I have got terrible itching and redness on my neck and chest that even with a Hydrocortisone Cream it is not shifting it and I can’t sleep as a result. I’m still very weak and my appetite is non existent. It’s strange to think how a few weeks ago I was living a normal life before everything changed. But reading the threads on this forum has made me realise that I am not alone.
Reabsci - I am so sorry you are having such a rough night - I can’t offer any help with your actual symptoms am so sorry but just wanted to say I hope you get help and relief soon. The wee small hours are the worst for being overwhelmed and am so sorry you are in pain. Do you have an on call number you can ring? In Scotland there is a 24 helpline for chemo - was wondering if you have similar. Sending hugs and hope someone with more experience than just me at day 3 will be along soon xx this journey we are on is so tough and like you I am pleased to have others to share with take care xx
Hi Reabcsi, I only started yesterday and am just suffering the effects of the initial chemo. Do you think you are at the stage where you blood count is lowest and it’s side effects from that? I’ve been told 7-10 days. I really hope that’s the case and you’re body will pull through soon. We all cry I’m sure…i do, I sobbed in the hospital because it took me an hour to park and then I got lost on my way to the wig room!! Felt pathetic as I’m usually so independent. Hope they can help you xx
Cathy - you made me smile, I hope you are sorted now X
Welcome to the group reabcsi,
The middle of the night is often when you feel most alone and no one around us at home really knows how we feel. It’s crazy to think how well we were at diagnosis only to be committed to a few months of side effects and bed rest! But it greatly improves our chance of getting rid of the big C for good so we board the rollercoaster.
I’ve heard the back aches are due to the immune injections - forums say claritin(a hay fever tablet) may help - worth a google, or type it into the search on this forum.
Sound like you have had an allergic reaction too, to something so maybe Claritin would help with that too - just check with your team that you are allowed to take it!
I think it’s worth contacting your chemo helpline as often as you need or they will assume you are doing well, not struggling.
Lots of love and be kind to yourself,
C x
Morning ladies
I’m on day 6 of first chemo now. My worry is not eating as my taste buds have gone crazy and if I don’t eat it could lead to indigestion but at least milk is going down and managed a small home made shepherds pie last night. Tummy been rumbling a lot lately probably because it’s empty. Mouth is dry and a funny taste still and the Biotene mouthwash has been food. The taste acceptable.
I’m also suffering the aches and pains of GCSF injections. Had 4 now, 3 more to go. Daren’t take Ibroprofen as could make my tummy worse so just paracetomol. I also heard about Clarytyn so may be worth trying them. Will give them a ring today to see if ok to take. I’m feeling very tired so napping whenever I can. Catch up time! Body needs it.
Ladies, I also booked my Flu jab in yesterday so make sure you get that in.
Just waiting for hair to fall out now. I’ve had it cut really short so won’t fall out in strands. Hats and wig sorted.
XXX
Hi any1 had or having Herceptin? X
Ok thanks so what does this mean having herceptin? I’m abit worried as not sure if any1 else is having this x
Rhona Boat and Sam
Herceptin for me too but been told you just live life normally on it.xx
That’s good to know,is this a tablet we take after chemo? I have my oncologist appointment the 26th September! Seems so far away! It’s a long waiting game it’s been 4weks now since finding the lump…1st doctors then referred to breast clinic,then waiting for results then being told you have breast cancer is very scary being 34 u think it would never happen,I’m seeing my sergoen next Friday 15th as I was having the op 1st now he wants to change to chemo 1st then op xx
Day 4 FEC
Hi Sam,
Yes I was told would be chemo first if her2 pos. (my final results on tumour still awaited as biopsies were borderline)- in the end I had mastectomy 1 Aug then chemo 6 Sept
Yes the waits are very hard. I found lump mid June and it felt like it was growing but needed to have CT, PET scan etc as had so many tumours in breast which took some time.
Im day 4 now and still a lot of side effects- asked about palpitations- apparently common but have to go in if severe/chest pain/short of breath. Have been to hospital today as PICC niggling so they have padded underneath it which has helped. Also have had fleeting bone pains but will try loratidine
Temp has settled at 37.3 and throat a bit better (our threshold is 38).
Enjoyed the toilet story Cathy- glad you could laugh or was it just your husband laughing?
Geordie did you go out on the town?
Jo x