Hi CK, yes there was also police and a drug addict at mine lol routine Saturday night I guess! My temp keeps going under 36 at night but they’ve told me it’s OK, must just be me. Must be strange feeling your head tingling, knowing what’s going to happen, I hope to collect my wig next week, hopefully in time!
Thanks Vee, the injection was OK, although quite alarmed how quickly the needle retracts! I was told to hold it in for 10sec, but it’s not possible. Such a massive learning curve xx
Hi Ipengee01 and thank you, I wasn’t offered the port and I forgot to ask. I booked for the PICC line inserted but it’s only one person doing it in my hospital and she is fully booked until 26th Sept. So I will have canulla for my 2nd chemo this Thursday, hopefully there won’t be problem with my vein, I read about some people had to do 3 times trying to find the good vein, I will probably pass out if they do that to me :-)) I had my blood test today and it bruise. X
Vee78
My chemo nurse gave me a heat pad to wrap around the hand so the veins would stick out more and easier to see. Why not ask them to try this with you? My cannula went in first time.xx
Michelle
Head been tingling all night! Oh well, it’s going to fall out sooner or later. I was told not below 35.5 is good. Xx
SueC
I’m prepared for it to fall out. Wigs, hats, satin night cap, coconut oil to hand.xx
Thanks CK, the nurse found the vein Ok in my 1st chemo, it’s only the vein around it is very tender now and I can see it’s swollen a bit, she checked and said not to worry but she thinks my vein is sensitive and it maybe more difficult over time as the chemo is starting damaging my vein and considering this wad only the 1st chemo I don’t want to have that 2-3 times trying to find my vein for my next chemo 
I will ask for the heat pad if it’s happen, thanks for suggestion. When is you next chemo ?
Just had phone call from hospital and they can fit me in for PICC line tomorrow afternoon… I’m so scared :-(((
Hi Everyone,
My first post! I started chemo (FEC) on 4th Sept - my best thoughts to all you folks going through this. All went well during the session which was a relief, started to feel ‘off’ the next day. Nausea has been horrible, and tiredness overwhelming - I pretty much slept for three days! Had one or two brighter days but today (day 9) have felt horrible again, still nauseous. Last night I had the last of my Filgrastim injections and had a real throbbing back pain all night - it has eased a bit today, but still aching. Has anyone else experienced this?
Welcome to all the new starters and hello again to everyone else! Sorry I’ve gone quiet for a few days but I’ve been attempting Operation Pretend-things-are-normal after feeling like the chemo fog lifted. It’s Day 13 after chemo 1 now and I feel more like myself than at any time since my surgery in July as I didn’t have much gap between the two so I’ve been making the most of it. I’ve been working from home which has made me feel more useful and today I ventured out to a Haven welcome day for my first go at some support - glad I did as it was a great session and I learned loads of really useful nutrition information.
I still have hair and no tingling yet so hoping that the cold cap worked although no sign of any hairloss from any other part of my body either so maybe not the best indication!
Vee78 - hi! - there was a discussion on page 8 of this thread about PICC lines that you might find helpful. I am so pleased I had mine put in and it wasn’t a painful procedure. Have a look at page 8 as it might help.
Jow - didn’t make it out on the town but definitely trying to live it up a bit more! Think I’ve finally got my head around the fact that we can try and do some nice things when we’re feeling up to it in the next few months and our lives don’t have to be completely on hold 
Fairydust14 - hope your constipation has gone - I can relate to this one as it was so bad in the first few days post chemo that I did some damage and had to go to the GP yesterday to find out that I now have a ‘thrombosed heamorrhoid’ as a result. My husband seems to find the fact that I now have piles, on top of everything else, very amusing and keeps asking me if anything’s fallen out when I go to the loo! Think I’m going to double up on the laxatives for a few days before next chemo to prevent it happening again but I’m counting myself lucky that I’ve not had the sickness issues others have.
MrsMeow - symptom bingo proper made me laugh - think there needs to be a ‘booby prize’ for a full house? lol
Good to hear from you Geordie and give us all something to look forward to. And welcome Glen.
Im pretty sure I’m close to getting that full Bingo card. I’ve not found this easy at all. Ended up on oncology ward yesterday as I’ve been intermittently short of breath for a couple of weeks (i.e post op but before my chemo). Have been trying to convince myself that it is psychosomatic but GP at Penny Brohn (Cancer wellbeing centre) insisted i get it checked out. Anyway it turns out I have a pulmonary embolus (lung clot). I’ve been allowed home but with anticoagulant injections every day for 6 months. Good it was detected but not really what I wanted on top of all this. It was my youngest child’s first morning at school and his 5th birthday. I’ve promised to make his 6th more fun!
Anyway, chemo wise I do feel a bit better today - at last!
Jo
Glen
I started on the same day as you! I also had pain down from back of my head, through my neck to my back. Ibuprofen and Parecomol helped. I also ached lower back and belly where I had the injections. For the last one I went for a walk after doing it which helped.
Were you given an extra anti sickness pil Amend? I was and it helped me. I took the two days of drugs at home and didn’t need any. For nausea I found rhat Murray mints, ginger drops and pear drops helped. When my stomach felt empty milk helped.
I also wore a pair off travel sickness bands which may have helped. I too was very fatigued and napped a lot which doesnt do any harm. Since day 7 I have been feeling me again and have been doing normal everyday things.
Vee
My next chemo is Weds 27th Sept when I will also see the oncologist. Glad you have Picc sorted.xx
Geordie
Glad you are feeling better and can work from home to keep your sanity. I’m day 9 and feeling good. I just take a day at a time. Every morning when I wake up I see how I feel and plan the day then.xx
A cautionary note on painkillers - for those of us who have to take the anti-coagulant injections, ibuprofen is listed in the leaflet with my clexane as something that could be dangerous if taken in conjunction. Please check with your GP/oncologist before taking ibuprofen if you’re on these type of drugs.
Hi Geordie
I was glad I didn’t have any sickness which I think may be due to the extra Amend they gave me so I definitely recommend this.
I did have a kind of empty hungry feeling though from day 3 to 6 so I just smacked and sucked on anything which helped.
It has been easier not having to stress too much about work because I have staff, so the 18 years I’ve put into my small business has paid off and now to sit back a bit and sort myself out. I used to hate not been able to work but this most certainly has put things into perspective.
Children adapt easier than we think. Never feel guilty, but explain to them in a way they won’t worry and when it might affect them going to school, etc.
My daughter is 20 and the first thing after diagnosis is how do I tell her without her getting anxious. She wasn’t too good at the beginning but when she saw I was coping well, she did. She said I need to tell her everything and be honest with her but sometimes if I’m not too good I’ll just say I’m tired and need to rest to avoid her worrying as she goes back to Uni next week.
As parents we will always protect our children.xxx
Hi Glenn
Oh my god! Last filgrastim today by 8pm paramedics were here. Phoned 111 saying about muscle spasms and of course being upper back chest neck they sent abulance. Still it was nice to have some company for the evening. Ecg done all fine but my god the pain. Throbbing chest all the way down to tailbone. Excrutiating. I no longer care about masking a temp or anything else for that matter. Paracetamol will ensue. Went off for now but back 4am with a vengeance hence this post…is this just another torture we have to suffer. Why the last day? We are not alone…two ladies on my support group have the same. Sarah xxxx
Hi love
I too got myself to A&E on the 5th day if injections and all checked and alright. But next day didn’t chance it and took Paracetomol and Ibuprofen. My chemo nurses say not to listen when they say Paracetomol masks temp, contolling the pain is much more important and taking temp frequently helps anyway. Glad you are home and ok now. It’s a scare but good to have peace of mind.
I’ve just woken up hungry so having jam and toast and a decaff brew b4 I nod off again.x
Morning everyone and hello to those joining recently
Sorry I’ve been missing in action recently. I started getting some nausea on day four and five and just felt like lying in bed doing nothing. My friend took me to get some food shopping on Sunday, but I came straight home to bed as I was getting motion sickness and felt very spaced out. However, I was also getting heartburn and think the nausea was possibly more related to this. I’ve now been commenced on pantoprazole and this has helped greatly. It still didn’t affect my appetite though!
I’ve been reading that a few people are getting back pain and it’s hitting me too! I started getting lower back pain last night (day eight) and had to get up around 6am as had been awake since 4am with the pain which has now spread to both hips. I know the GCSF can contribute to this, but I only had one subcutaneous injection to do 24 hours after chemo and it’s 7 days since I did mine. I’m going to check with my nurse as joint pain has also been reported in people taking pantoprazole.
Hope everyone has a good day.
Rhona x
Hi Rohona
It’s good to see you again and hopefully you will start to feel better now. I started to feel 'human 'again on day 7 after a blip at A&E on the 6th but all was well. Panic attack! Day 11 now & since then I have been as good as can be wirh a huge appetite.
The injections caused me severe aches and pains so I was happy when the 7 were done til next time. Next time I’m going to take both Ibroprofen and
Paracetomol. Hopefully number 2 will go easy on us.xxx
Hi everyone - I too have beeen out of action on here for a while, but have been reading your posts. Well done to those of you who’ve had your PICCs put in - you do get used to it, very quickly. Glad to hear that for most, we are all getting through it! It’s reassuring to listen to others who have panicked - makes me feel normal! After Day 6 I felt quite ‘well’ once the anti sickness was sorted and an infection dealt with, but I must say, I am dreading my second cycle next Wed. They have assured me that te IV anti sickness should prevent what I went through ast time, but still full of trepidation!
Got my wig yesterday - Maria! She was chopped a little more as she was soooo full! Felt like an 80’s soap star! I must say though, I took it off soon after becuse it fely so weird - amd I’m getting used to mr cropped look! My scalp is tingling today and my lady garden (!) has statred to shed in the shower today! Silver lining eh?!!
Onwards and upwards!
Jacqui
Ladies, rather personal but I wondered if anyone has had a period or been told what to expect? Mine are generally heavy but they told me to see what happens because they might “Dry up” (lovely terminology!). It’s due now, day 7 FEC. I’m utterly shattered and wondered if that was contributing too. Thank you x
Hi Michelle
I had a really long one cycle 2, which lasted 2 weeks and then nothing. I think we all react differently, but chemo effects so many things, it’s not surprising that periods can be irregular.
Sue xx
Hi everyone,
Sorry to hear so many of you are having aches and pains with the injections. I think I was very lucky as I was ok with mine even on day 7. I did preemptively soak for a good hour in a bath with 2 cups of Epsom salts every day for the week just in case!
Well, it’s day 13 now and I’m feeling pretty good, almost back to normal. I’ve been to Zumba on Tuesday, yoga on Wednesday, and today had reiki and a gong shower!!! Trying to enjoy the time before next Thursday comes and it’s back to bed for a week. I’m really enjoying walking the dogs, taking kids to and from school and cooking nice meals - though I do wonder if I will ever be able to taste food the same…my tongue is kind of numb and fruit tastes vile still!
Remember to snatch those good times when they come, lots of fresh air, healthy food, movement and laughter,
Cath x