Hi Pulapula,
I also found another lump a few weeks ago and it turned out to be breast tissue that had hardened!
It’s the waiting for results that’s the worst bit and you feel like you are going back to the start again. Hope you don’t have to wait too long for your mri results. Stay positive 
Big hugs. Lisa xx
Thanks Lisa-T, I hope it is something similar - I’m feeling a bit better about it now. Maybe some retail therapy tomorrow will help. Need to get organised for Christmas anyway.
Hope you get to see wicked on Saturday x
Hi Pulapula,
I really hope they can work out quickly what that lump is. Waiting for results is so nerve-wracking. Christmas shopping sounds like an excellent idea for taking your mind off things. Enjoy yourself 
.
Thanks for getting back to me about your genetic test. That’s amazing they got back to you so promptly. I had my test 10 weeks ago and am still waiting ?. I’m waiting to see my oncologist in 30 minutes so will ask her if she can chase it.
Lovely sunny day here in London, so I walked to hospital. It’s good getting some fresh air, sunshine and gentle exercise.
Last Paclitaxel tomorrow, then 4 rounds of EC. Feels like a good milestone.
Have a good day everyone.
Gx
I skipped out of my oncologist’office with a big smile this morning: she can’t feel my tumour anymore!! ? ? Of course I know it’s still there, but somehow the fact that neither of us can now locate it seems so much more exciting than the rather more scientific MRI.
Tried getting hold of someone at Guy’s to find out about my genetic test, but ended up just leaving a message for some admin person. Frustrating! ?
Gx
Just an update.
Chemo has had to be cancelled for this week and I’ve spent the afternoon at dentist.
Had to have 3 big fillings. Am in pain tonight.
Thank you all for asking about me.
Hope you are all coping and had a good day.
Love
Kath xx
Morning all,
Big hugs for today Pulapula for your results Will be thinking of you xx
Sorry you had to cancel your treatment this week Kath - it’s really frustrating but probably for the best as it needed doing asap! Hope your tooth pain has eased today
Fantastic news about your lump GabyF ? Hope all goes well with your last Paclitaxel today - a great milestone to reach - feels like we are actually getting through this nightmare Xx
Hope everyone has a good day xx
Hi Everyone,
Not posted for a wee while.
So happy for you Gaby that is great news. My tumour shrunk by 1/3 after one docetaximol which I was delighted about, however, have had 2 more and doesn’t seem to have changed which is disappointing☹️ They do say can be scar tissue and not all tumour as a result of the biopsies so hoping it’s that ? Just one more docetaximol for me on Dec 20th and will be ringing that bell ? and bubbling like a 2 year old ???
Hope your mouth feels better soon Kath.
Next stage for me is meeting with plastic surgeon on Monday re operation in jan. Need to try and persuade them I want a double mastectomy and not a single one as they are recommending. Should get result of genetics testing any day now and they said if was positive they would do the double but I want it either way. I’m triple negative so want to lesson the risk of reoccurrance.
Researching the DIEP flap reconstruction which is a scary thought both the op and the recovery, however it has been referred to as the gold standard for reconstruction, anyone have any experience of it?
Hope everyone is catching up with their missed sleep ? and SEs are calming down. Lots of love ?
Hi all. Just an update from today. Feel so relieved that the lumps I found in my good breast were cysts. Phew.
I’m a bit disappointed that the chemo hadn’t shrunk my tumour as much as I and my oncologist thought as it can’t be felt anymore. It was about 30-35mm before and was still 24mm in length (although in 2 bits and flatter than before). I have the option of breast conserving surgery (lumpectomy) or skin and nipple sparing mx with reconstruction. I’m thinking the latter as I’m triple neg and worried about recurrence. But recovery is longer. Surgery booked for 21 Dec so I need to get organised about xmas!!!
Ahh that’s such a relief Pulapula so pleased for you. Good luck with your decision about surgery … you get bombarded with info and it’s hard to know what to do for the best.
Fantastic to be ringing that bell before Christmas MamaTony … I’ve got my last T on 27th December so will also be celebrating and bubbling ? Not seen a bell at my unit tho (it’s only a small unit) so might have to take my own bell ?. I think I am also leaning towards DIEP flap reconstruction, when I’m ready for reconstruction (can’t face it yet). It’s amazing what they can do … can even get my other boob made a bit bigger … every cloud ? xx
Hi everyone,
Finally had the result through from my genetic test: I’m all clear, no genetic link just bloody bad luck! I’m so happy for my children, as they won’t have this cloud hanging over them. ? ? ? ?
Gx
Fantastic news GabyF … such a relief for you and your children xx I’ve not been offered a genetic test … does everyone get offered the test? xx
Jacqs - my fingernails have white horizontal lines on them too although the ends aren’t brown. Hoping mine last too. My little toenail has gone brown tho ? xx
Thanks, Lisa. I was offered the test because I’m triple negative which has a higher chance of a genetic link. I don’t think it’s offered as standard for other types of BC at King’s, but it’s worth asking your hospital as they may have a different policy.
Gx
Thanks GabyF - will mention to my oncologist next week xx
I am aged 48, ER/PR- HER2+. 3cm lump removed in lumpectomy, one sentinal node with 3mm calls but other 20 nodes clear.
I have been perscribed 3 x FEC and 3 xTax plus Herceptin and Pertuzemab.
I have just had 1st of the Tax/Her/Per and am 8 days on.
Distended stomach, aches and pains, metallic taste, diarrhoea. But thankfully no nausea, which i struggled with on the FEC.
Trying Aloe Vera juice for gut, as well as gaviscone and Omeprozole, but it still feels like i am passing acid marbles (sorry if you are having your tea). Im avoiding fruit and acidic or spicy foods but it is still bad, what is going on inside to produce the chemical reaction? I don’t feel the stomach is actually acidy.
Gaby - so pleased to hear your genetic test came back negative.
Lisa-T, unless you’re triple negative, I don’t think they offer genetic testing unless you are very young and/or have a history of BC in the family.
My cysts were aspirated yesterday so no further treatment needed. That’s 3 I’ve had aspirated since diagnosis. I have a feeling I’ll be back there again and again every time I find another lump as I’m always checking now! And I am very cysty…
I finally slept like a log last night. So much so I was woken by my 9 year old at 8:58. He should have been at school by 8:50!!! I quickly got dressed and delivered him. Oops!
Yes in frequent communication with nurses, which recommended the gaviscon and constant omeprezole, but its not making much of a difference yet.
Hi jacqus, ive not had any acid reflex ir acid in upper part. Its what passes out!!
Like a curry from the underworld!
Reflux!
Hello all haven’t been on for a while after having a terrible 1st cycle of docetaxel, anyway got it all sorted with a reduced dose of steroids halved actually, sleeping tablets for 5/6 days and paracetamol and codeine at night. I have done 3 only have 1 left now on 27th woop woop! ?
Been reading posts and a few little hinters and positive comments i hope.
Re indigestion I gave up on any meds and have ginger ale/biscuits lemon and ginger cordial seems to help get all the gas out! Never had so much gas inside!?
I had recon b4 surgery and then suffered a recurrence in skin on new breast…great news the little lumps have all but gone having changed to docetaxel i only have minor surgery now in Jan! ? re recon for those considering its looking real good now after 4 months takes a while but i now feel worth it. I had implant btw.
Re nasty nails a v good nurse told me to get my nails painted black/dark i have gel night b4 chemo and all my nails bar 1 are in good nic the one that looks like it might lift was damaged beforehand I’d recommend some nice dark sparkly nails for xmas!
Finally hair!!! My hair didn’t get any worse after started docetaxel still look like prince william and its attempting to grow back but not on top!!! ??my eyebrows thinned as soon as changed to doxe and eyelashes I’m hoping what i have left lasts through next cycle as I’m filling them in well and some good eyeliner work means no ones noticing my sparce eyelashes! Finally i have a great wig and on my good week before chemo week.I’ve been out for lunch nearly every day will be feeling good for Xmas before last round…hang in there all nearly there…???xxx
Hi everyone,
Had my first EC session today and am feeling ok. I was half expecting to be throwing up by now, as I spoke to a couple of lovely ladies on the ward last week, who were feeling dreadful after their first EC. I had a barrage of anti-nausea drugs this morning and have been given a large bag with more goddies for taking at home :smileyvery-happy:- so far they seem to be doing the trick, fingers crossed! I am feeling a bit more dopey than usual, but my kids would probably say that they can’t notice any difference :smileywink:
It’s my husband’s birthday today, so will bake him a cake in a moment. Wasn’t sure I’d be up to it, but am very relieved that I can go ahead. He was a little low last night - combination of getting older :smileylol:and the ongoing worry of my treatment. He is not one for letting on much if he’s stressed or sad, tends to bottle things up a bit, and the last few months have of course not been easy. Hopefully a bit of yummy cake and presents will cheer him up.
Hope everyone is having a reasonable week.
Gx