Best advice for TN diagnosis is keep away from Google!! I am TN too. Just trust the professionals and keep positive!! Kxx
Hi ladies.
Iām from the Oct 2017 thread and finished FEC-T in January 2018 followed by a single mx and anc and radiotherapy. I am now on zoladex injections and tamoxifen.
Please feel free to pop into the Oct 2017 thread any time you like and ask questions.
I see posts about hair loss. I jadshort hair anyway. It started to go just before my 2nd FEC. I didnāt get chance to shave as it disappeared within a couple of days. It did start to grow back on T and other people were notificing it on Christmas eve. Now I have a long pixie cut type style and no one would ever know. Some ladies chose to shave their heads before chemo. Itās totally up to you. You will get fed up of hair everywhere when it does start to fall out.
All the best for those starting this week. Xx
Hi Millie, hope today went well. 1 down ā¦ , 
Xx
Ā Ā Hi everyone, first time writting on this thread and I already feel supported by reading your messages.
Ā Ā I have started chemo and my hair is beginning to fall out and I must admit I am stressing out over it. BeingĀ
Ā Ā bold seems to be the main thing I am concerned about. I have tried telling myself to pull myself together &Ā
Ā Ā stop being silly. There are more things to worry about like cancer!!Ā Maybe I am using the hair loss as aĀ
Ā Ā distraction from the real issue or perhaps I am just being vain. I keep thinking what if my wig or headwearĀ
Ā Ā falls off my head when I am out but really so what if it does. I imagine people will be looking at me when IĀ
Ā Ā have not got my hair but again so what if they do. I am fine with the cancer, treatment etc. Itās just this hairĀ
Ā Ā loss/boldness that is getting to me. Is it just me or is anyone else over reacting like me?
Ā Ā Sunbean xĀ Ā Ā Ā
Ā Ā Ā ā
Hope everything went ok today millie ? x
I am so stressed about the hair loss but think is only natural. Trying the cold cap but accepting that whatever hair I keep I likely wonāt want to show as will badly need dyed and canāt style it.
To cheer myself up have bought new jammies and slippers and picking out hats and scarfs.
Trying to fill myself full of water for Thursday but not a big drinker so struggling but hope will be worth it.
Roll on Thursday to get the treatment started, I have waited 2 months so bring it on!!!
Best wishes everyone??
Totally understand about your hair loss concerns Sunbean ā¦ it is something I am dreading too! Iāve not told many people (only close friends and family) so for me itās also about everyone finding out. However Iām seeing it as a way to get my life back and although itās going to be hard it will be so worth it Big hugs xx
Also filling up on the water MamaTony ā¦ bring it on ?? Xx
Hi ladies, stressing anout the hair loss is so common.Ā I felt like it turned me into a cancer patient and i was worried about people looking etc but it didnt really happen .my hats and wignhave never fallen off and i think if they did i i would feel the people have the problem not me.Ā Once the hair had been shaved i slowly got used to, i still miss it but by cycle 4 (i have had 3 fec and 2 T now) it is growingĀ back, fuzzy little chick hair but itās mine!Ā Youll get there just allow yourself to feel the emotions but actually nearly everyone ive chatted with in these forums has embraced the baldnessā¦ Saves hours of styling!Ā Ā
Big hugs Kip
Hi ladies. Totally understand your hair anxiety. As someone who chose to embrace the bald rock chick look (I wish!!!?), the way I deal with the stares is to stare back and smile. If it is children I quite often talk to them and see if they want to ask me anything. Most of the time people just ignore it. I forget I am bald, except when my head gets cold!! I think I will be in more hard and scarves now that the weather is changing!! Lots of love and good luck to those of you having your first treatment. Kxx
Hi Sunbeam,Ā I think the water drinking helps (a) to flush the toxins through and (b) to help veins keep hydrated and easy to insert cannuala etc.Ā Ā If you are having FEC one of the drugs makes your wee red so it also helps to get that through quicklyā¦so donāt panic if you see red!!
Kip is right! Drink loads! Be near a loo!!
Hi sunbean, with regard to drinking lots of water.
As someone has already said it makes it easier for the nurses to find a vein & less painful if your veins are nice and plump. I had a portacath so that didnāt matter for me.
I suffered awful nausea (was never actually sick) on FEC even though I was on the wonder drug Emend as well as granesetron and metoclopromide*, one of the ladies in my group had the same chemo but sailed through with barely any nausea, she swore it was due to all the water she drank. On the 2nd cycle I made sure I drank at least 2lts the day before the day of and the day after and pleased to say itĀ made a huge difference, many of the other girls did the same with the same result.
*was switched for cyclizine as it turned out I was allergic to metoclopromide.
I found out from the girls on this forum so just incase you havenāt been advised by your teamā¦ you are entitled to free prescriptions for at least 5 years. Ā I got a form from my gp.
Afternoon everyone!
I took myself off to the hairdressers on Tuesday, armed with a picture of the shortest pixie hair cut ever. I told my hairdresser why I was doing itā¦a halfway to being bald once treatment starts on 17th. She did it for me and didnāt charge me. How lovely some people are eh? Anyways, my husband and daughter (sheās 10 this month) really love it and I actually like it now. Itās given me a sense of empowerment over this that weāre all going through. The school run was funnyā¦walking through the carpark now looking like G.I. Jane. We live in a very small village, so everyone knows everyone. Iāve only told close friends and family, so the locals looked a bit shocked ?
Now Iāve got my date through for 17th Iām feeling a bit weepy. Makes it more real somehow. Thanks for all the advice re drinking loads of water.
Lots of love x
Hi all!
One down five to go!!
I had nurse led ec chemo, she was really lovely. A couple of strange sensations i must say lol.
Arm just felt abit sore and heavy.Was there about an hour, Im at home now snuggled up as feeling abit cold. Abit sickly but manageable. Hope i have an ok night, will let you know x
Hugs & love bee ?Ā
Ā
Ā
Ā
Ā
Ā
Hi everyone. First time on here today. I start EC on 18th September. Think Iām going to try the cold cap as Iām so scared of loosing my hair. Iām having my eyebrows done on Sunday with brush strokes micropigmentation. My Oncologist was happy for me to do this although he said I may not loose my brows. Iād rather have them done though just in case. I want to try and look as normal as possible as Iām sure it will make me feel better. None of my friends have been through anything like this before so I feel very alone at the moment, even though everyone is being supportive I feel they donāt really understand.
Good luck to everyone on this journey xx
Well done for getting thru the first round Bee. Hope you have a good nights sleep if you can.
Hi Xxxx, welcome to the group ?
Hi All,
Well done getting through your first one Bee ā¦ one ticked off the list Hope you have a good night tonight. x
I had my first session yesterday ā¦ all went ok it was more the thought of what was happening rather than being painful. Last night I felt really sick and ached all over. Today i have just felt sick but itās been manageable.
Tested out my new wig in public today ? ā¦very self conscious about it but all went well and no stares (or that I saw anyway!).
Well done on getting your haircut today ALittlePixie ? bet it looks fab x
Welcome to the group Xxxx this forum is amazing as everyone understands ā¦I hope it gives you lots of reassurance and support. xx
Hello ladies,
Itās my first time on here. Iām 33 years old- I was diagnosed with breast cancer May 2017, had lumpectomy (margins werenāt clear) then had Mastectomy and was put on Tamoxifen. Oncotype score was low therefore no radiotherapy or chemotherapy given.
During my 1 year check up in June this year I asked my consultant to check an area on the Mastectomy scar that felt quite firm. After a biopsy it was confirmed that I had a recurrence in the chest wall ? I had surgery end of July to remove that area.
I saw my oncologist today and was told I will be starting chemotherapy in the next few weeks. I will be having 8 cycles (4 x AC and 4 x Docetaxel) anyone else been given this treatment plan? It seems such a long time to be having chemotherapy until March next year ? I will be trying the Cold Cap.
Best wishes to everyone ? xxxx
Hi Rhi32. Iām so sorry to hear your news that it came back. That just sucks after youāve been through all that a year earlier. Iām starting a different chemo to yours but Iām sure someone on here will be able to advise on yours. A few people on here are trying the coldcap. I really hope it helps. Just wanted to welcome you on here and say hi and good luck xxx