September 2023 Chemo Starters


It looks something like that. Very soft vibration. Got one on eBay. Connection a bit dodgy at times but works once I shake it :see_no_evil:

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So sorry to hear you had a reaction but glad you had help at hand- hope youā€™re feeling much better today? X

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Much better thank you and better every hours that passes, even managed a little workout this evening. Thank you Plum! Hope youā€™re having a good week? xxx

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I still canā€™t decide about a wig, Iā€™m cold capping and while Iā€™ve lost a lot this past week, I still have a thin covering, maybe some patchiness where my parting usually isā€¦ All the wigs I tried were so voluminous or so bloody expensive, and at the moment I donā€™t want to risk the bit Iā€™ve still got by wrestling a wig onto it!
Im getting quite good at the Rosie the Riveter headscarf look- although I had a silkier one on today and kept noticing it was on the slide during a call, took some gentle adjustment, I doubt I was as subtle as I thought I was :rofl: Iā€™m so glad itā€™s actually getting wintery now and we can plonk a beanie on. (I honestly think I am more annoyed at having to pick hair off everything I touch than I am about the hair loss. Itā€™s tedious!)

3rd EC tomorrow, letā€™s see if I can preserve what Iā€™ve got left! :crossed_fingers:t3:

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Oh wow, well done!
I definitely overdid it with four days out in a row, was absolutely shattered yesterday. My parents are staying for the weekend so I will be dragged out on a daily route march! Itā€™s nice to have company as I live alone too but I know Iā€™m perking up when my patience runs low and itā€™s time to put them back on a train for a bit of peace Monday morning :wink: x

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@naughty_boob Good news that you are halfway. Had oral thrush too. It cleared up within the week with the treatment. Also love a jigsaw. Good idea for an alternative to mainlining streaming services.

@Louise07 congrats on last EC. Onwards and upwards.

@pinklilli3s and @naughty_boob. Thanks for the scar recommendations. My partner has been using airroyi scar tape for keloid i.e. raised scars since an appendectomy in May. He has three scars and it has been working really well. You donā€™t start using them until your scars have healed for quite a few weeks.

@Camy_Radika glad your tests came back clear. Itā€™s always worrying when you get new symptoms isnā€™t it.

@plum agree about voluminous wigs. I did add a hair clip to my one to tame it down which seemed to work but still preferring scarves and hats. Good luck on the EC tomorrow. Iā€™ll be with you in spirit as I am off for my second cycle tomorrow (on a three week schedule). Hoping this one I can avoid the A&E stay part way through. Hair well and truly on its way out. Think I might go down to a grade 1 cut tomorrow and then energy and time permitting post a photo with my new hat which is woolly and lined with fake fur so should be super warm in the depth of winter and doesnā€™t look quite so chemo hatty compared to some of my scarves.

Hope everyone has a good day tomorrow. Much love.

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I know what you mean!!! My mum comes over in November on a week of 3 infusions and in a way I canā€™t wait to have her but also bracing myself for the comments of dos/donā€™t :see_no_evil:
I hope you get some peaceful rest when they leave and have a wonderful time and great memories when theyā€™re there :smiling_face_with_three_hearts: good luck w the treatment šŸ©·

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Thank you annemanc, really helpful to know. Yes Iā€™m due to have EC after the paclixatel and carbo. I had to go in for an extra set of bloods yesterday as they were wanting to check some things. Hope chemo goes ahead as normal today.

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Hi Louise, hope your cough eases soon. What is the CA level in bloods? Iā€™ve not seen thoseā€¦

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Good idea re jigsaw puzzle!
Hope everyone manages their next chemo infusions and that none of us feels too awful. My next infusion is due at 10 today. Fingers crossed it still happens. Itā€™s the double whammy of paclixatel and carboplatin.
Totally agree re weirdly voluminous wigs. Mine just looks wiggy!!!
Really good to hear youā€™re through treatment for triple negative Donna. Would you mind me asking if it was just in the breast or in nodes too? I had one of seven nodes removed positive too, which still freaks me out.
Totally agree re walking being a good therapy. Itā€™s the best. I feel much more down if I donā€™t get out for my daily walk, no matter how short.
Much love to you all
xxx

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Ok beauties, it seems most of us are approaching halfway point (Iā€™ll be there this arvo if my chemo goes ahead). So Iā€™ll do us another playlist on Spotify.

Any requests for amazing songs that are getting you through this weird time? Ladies who are out the other sideā€¦. Any bangers that got you through?

Lots of love to you all, Anne :mirror_ball::kiss::walking_woman: xxxx

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Hi all, i havent posted in a while. Sometimes I want to read everything and anything related to bc and chemo and then sometimes I want to bury my head in the sand and pretend it isnt happening.

I was due to have my 3rd round of EC today but had pre chemo bloods on Tuesday and nurse called to say my white cell count is dangerously low so its been postponed for a week. Partly, i felt relieved to have an extra week of being ok, but also frustrated that i cant just get on with it.

I was meant to have my covid and flu jabs on Tues too but they told me it was too risky to have them.

Thanks for the info about treating scars. I had 36 lymph nodes removed and 27 were cancerous. I still have swelling under my arm and around my reconstructed breast. They told me one lymph node is still there and cancerous but they couldnt get it coz itā€™s too near to blood vessels in my neck. Also that it had already spread to the fatty tissue around my nodes. Im still having scans to find out if the cancer has spread anywhere else.
So trying to stay positive and imagine life after chemo.

I got 2 wigs. One was a cheaper one i bought off the Internet that i thought i can wesr while im still losing my hair. But the colour isnt right for me and the style is too spiky. I cant wesr it any more coz i cant even bear my shadow when im wearing it. It makes me a different shape to normal!!

Wore a hat with scarf tied around to last bloods appointment and nurses said it looked lovely. Found when i wear a scarf or turban it sort of says ā€˜cancerā€™ but thats ok coz others with cancer say hello and ask about treatment.

Hope you all do ok today. Thursday seems to be the main day for treatment. Im so impressed with how you are all coping.

Sending virtual love and hugs xx

Ps, im also still not sure im using this forum correctly but doing my best x

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Hi @milly156 youā€™re doing brilliantly. So sorry to hear your chemo has been delayed, it must be very hard psychologically. Part relieved and then also wanting to get it over with. Sending you the biggest virtual hug xxxx

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Sorry itā€™s been delayed but it sounds like itā€™s the right decision for now and you can go ahead next week. Sending you massive huge hugs :hugs:

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hello dear At first I was also reading all the posts and trying to find answers and similarities with my diagnosis. I accepted what I have, and I talked a lot with the oncology team, but here on the forum I found a lot of information and support and itā€™s much easier to write here among people with the same problems.Thank you very much everyone :hibiscus::gift_heart::cherry_blossom:Be strong and think that BC is treatable, with better and worse days, but all for the better All my best with your treatment, good luck with your next chemotherapy, think positive, here we are for hugs and support :hugs::hibiscus::gift_heart:

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Hi Milly
Really understand what you mean between wavering between wanting to read everything and nothing.
Sorry to hear your treatment is postponed. A real mix of feelings in response to that. Sounds like EC really hammers neutrophils etc. Hope you can enjoy a week of feeling a little better before the next treatment.
Are you watching Strictly? I like the escapism.
Much love to you all. We are all just trying to find our own way through this very difficult situation.
xxx

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Just home from my weekly chemo.

Be thinking of you this afternoon. :smiling_face_with_three_hearts:

@milly156 nice to hear from you. Hope you are doing ok. I agree wigs are more voluminous than my own hair and I have a lot of it. Slowing shedding with cold cap so hardly noticeable. I know itā€™s horrible to have a delay in treatment we all probably dread the blood tests but itā€™s for the best. You need to be as fit as you can for each treatment. :smiling_face_with_three_hearts:

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Just back too. Today was super fast 3 hours and out. First session was 5 hours! So far so good. Was up at 5 because of the steroids so powered through some housework before i left. My partner has gone a bit crazy because I had to go to A&E last time. He is providing a lot of ā€˜adviceā€™ and driving me a bit mental. Its a good job I love him and know it comes from a good place. I am currently enjoying a chocolate biscuit (against his avoid sugar advice) and his latest it to avoid accidental cuts to avoid infection. I think the clue is in the name ā€˜accidentalā€™. Anywhoo, Another cycle started - I think i might be the last one standing on this thread as I am due to go to February.

As ever thanks to everyone for the support. It means such a lot.

@daffodil1 - yes to strictly - a bit of pure escapism. I live text a friend on the weekends I am avoiding people (aka the next two) and watch with my mum on the social weekend if i am not out. Today in Chemo I watched the David Beckham documentary. Could pretend it was serious programme but really was more escapism. Did bring back a lot of memories of my twenties as started in the 90ā€™s.

@milly156 - so sorry to hear you are having a delay that must be really tough. But hopefully youā€™ll be back on the chemo next week and full steam ahead. My nurse said eat lots of spinach if your bloods are low. I have been adding to salads in week before bloods when I have less digestive issues and tomorrow Tesco takeaway of Saag Aloo. Hope you can find something to help. I hope you can stay optimistic about treatments too. They are improving all the time so what isnā€™t possible this month/year might be possible next month/year.

@annemanc - Hope today went well. Not sure I can recommend any bangers individually but have been listening to Miley Cyrusā€™ new album and singing along in the car. I have a terrible singing voice so lone journeys are when i let rip at high volume - and on several memorable occasions when waiting for cancer test results had a proper good scream.

Hope everyone has a good day and is getting through whichever cycle and side effects come their way. Much love. S

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Rightā€¦. Miles Cyrus is on the list! :heart_eyes: Xxxx

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Hi @frazzledmcsazza
I was watching Jamie Oliver earlier this week and he was saying spinach is full of iron so will put it on my list.
I watched some of the David Beckham doc. It brought back a lot of memories of him and Victoria being the golden couple.

Iā€™ll be having chemo til early Jan, then radiotherapy, then possibly hormone treatment of some kind.

Its lovely to hear all you words of encouragement.

@annemanc I think Iā€™ll follow your lead and try to do more walking.

Take care all xx :kissing_heart: :heart:

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