September 2023 Chemo Starters

Thank you dear, if you have a picture will be more helpful :hugs::blush:
All my best, big hugšŸ¤—

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I would Google it loads on YouTube. After the comments I found several different ones for coughs. I been using the nausea pressure point I shared before and it can give some short relief before taking next tablet.

This is about a finger point, maybe what is being referred to above 11 Acupressure Points for Cold Symptoms Relief ā€“ Kanjo

Hope they help @Camy_Radika

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This was on my June Chemo starters. Thought Iā€™d share here Iā€™d anyone wants to use the discount for silicone bra fillers to even out your breasts

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:heart: I use evenly bra balancer and Kate is amazing :heart: and will help :heart: and wonderful product :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

Thank you, I started to practice.
Hopefully you are doing well.
Friday and Saturday I felt like all my bones were breaking, I was in a lot of pain, and Iā€™m starting to feel tingling in my fingers. Wednesday was my first infusion with paclitaxel, but I felt well Wednesday and Thursday.
Hopefully will be better next days.
All my best, big hug :hugs:

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My infusions are every Thursday, I start feeling rough after lunch Friday and the weekend is a right off. Had my kids visit yesterday which was great but I really struggled to keep awake. The weekend is the only time they can visit and itā€™s my bad days. My body just aches and Iā€™m having more issues with my fingers (peripheral neuropathy) I dropped my Clinique eye cream all over the bathroom floor! Normally Iā€™d scrap it up and keep using it but being immune compromised I didnā€™t think I could chance there not being any germs in it! The fingers are either cold, tingly or numb, not all the time but enough to be causing problems. I drink loads but still get terrible headaches. Stomach issues ongoing, bought the slippery elm but not used long enough to know if itā€™s helping.

I hope the cough acupressure give you some relief. :smiling_face_with_three_hearts:

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Iā€™m sorry youā€™re not feeling well. Especially when you have your loved ones visiting, I canā€™t sit with anyone to tell stories just for them to leave me alonešŸ˜©In the same way, I also feel that I am very cold and then I feel that I am melting from the heat, but my feet still feel cold.
I hope you feel better soon too,
The cough hasnā€™t gone away, it really bothers me and I start to feel dizzy when I cough When I walk Iā€™m very tired after a few steps I have to rest, this Paclitaxel infusion really affects me very badly. With EC I had strength and was very active, now I can barely move in bed.
Tomorrow I will call my oncology team to know about all this and we will see. Day by day :sparkling_heart::two_hearts:

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Camy_radika :heart:yes always check with your team :heart: do let us know how you get on :heart: I was always ringing my unit during chemo just to check with them :heart: they stumped it into us, anything then ring them, they are there to get you safely through :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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They had cold ice pack sleeves and feet at the hospital I would slide my hands and feet. Itā€™s fairly new but maybe the hospital have them or you bring ice packs???

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Iā€™ve just bought extra ice packs and some rapid relief ice slippers you can use hot and cold. Iā€™ve been using after chemo as with the travel and premeds etc they are not very cold when having treatment.

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Hi Cami
Really hoping the oncology team can help you very soon. Sounds like paclixatel is a struggle. Are you having it weekly? Iā€™m on 75% dose for past three weeks and itā€™s eased symptoms. The ongoing cough must be exhausting you too.
Hope all of you are keeping your spirits up.
Iā€™m feeling a bit terrified of finishing chemo at present.
Have any of you been told how quickly radiotherapy will start after chemo?
Love and hugs to you all
xxx

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Hi Naughtyboob, yes I was given a blue steroid card to carryā€¦

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Hi Pinklili
I agree about steroids. Iā€™ve put in weight too, though tbh I have been eating naughty things.
I feel very fine the day after I stop them.
Team not keen to remove them from regimen though as they think they make chemo easier to tolerate, and help control sickness ā€¦

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Iā€™m a little nervous about the steroids too, moving onto docetaxel on Thurs after EC. The dose is twice as high as on EC (2 x 2mg tabs twice a day for 3 days). I sort of love steroids but hate them too, worried about not sleeping! Xxxx

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Hi everyone.

Not had a great weekend. Thursday was 8/12 Paclitaxel felt rough Saturday/Sunday as normal but woke up on Monday with a very sore throat, called helpline and submitted online for GP as I thought theyā€™d say let them have a look. I thought itā€™s probably just thrush, however at GP at 11:40 am temp was 37.9 in both ears. Told I need to call helpline again, very lucky that the GP had worked in oncology and was concerned about neutropenia/neutropenia sepsis, its harder to know your riskier days on weekly. Itā€™s seems to be documented for 3 weekly, I found this.

Helpline told time to come straight in with an overnight bag for assessment. Did temperature at home before leaving now 38.2! Before attending they asked if I had a Covid test before attending. It was negative and Iā€™ve been careful masking in shops etc. Off we went, they told me to strip down to just a tShirt and my temp decreased, did bloods from PICC line and other arm to see if infection in PICC. Hadnā€™t slept well all night and the light and noise was horrendous, my head hurt and I just wanted to sleep but too many people talking and beeping etc. no privacy. Heard about about bowel movements and no drinking any tea and wondering why they are constipated. Heard doctor ask an elderly lady if sheā€™d thought about what happened is her heart stops. Do Not Resuscitate! Everyone could hear the discussion, I felt for her and her daughter being on the spot there and then and with everyone overhearing.

Temp back to normal, sat in a chair for 5 hours of observation. In the end they said it was UTI, throat looked red but not infected so they gave me oral antibiotics and said I could go home. Bloods showed neutrophils weā€™re ok so that was a relief. Ended up doing a PCR test aswell but as it was after 6 they didnā€™t expect results very quickly if at all that night. I pushed to go home knowing I would rest better in my own bed.

Woke up still feeling a bit rough, temp back to normal feel very achy but managed a short walk at lunch. Maybe itā€™s the cumulative effect of weekly chemotherapy hitting me harder week by week. Hopefully will feel better tomorrow and have one good day before chemo again on Thursday, they hope the antibiotics will kick in and bloods will be ok.

My radiotherapy is for 18 Dec for 5 days just 2 1/2 weeks after finishing chemo as I was due 3 weeks on 21 Dec but would be affected by Xmas bank holidays with a 4 day break. They have said I will be tired but not fatigued. But if next week is anything like this I could do with a break for Xmas and have it in the New Year. Planning CT 22 Nov, so will ask then.

Hope everyone else is having a better week than me. :smiling_face_with_three_hearts:

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Hi All just back from weekly chemo and today was my on Abraxane. COLD CAP is needed!!! The nurses said no last week but after I checked again, the oncologist said yes, same goes for cold sleeves. They donā€™t give Abraxane often, as paclitaxel work for 90% of people, so Doctor had to educate them he said and left my room to have a chat w them lol am glad I asked again
The upshot w Abraxane, no steroids, no anti allergic, so I should sleep tonight.
Do not stay w Paclitaxel if you had a reaction or really struggle. The studies obviously shows it works for breast cancer but there is an alternative. The cost is x12 more which is why itā€™s only given when there is a reaction and only 10%, would have one!!! Letā€™s see how my week is impacted but I feel tired, and so feel grateful for not being hyped this week :pray: big 3 next week and my mum is coming, steroids back on due to carbo :frowning:

@naughty_boob sorry your temperature spiked up. So annoying you had to go to emergency but I hope youā€™re out of the woods now and feeling better?

I asked if I could have a break at Christmas and doc said yes so am buzzing. Iā€™ll start EC in new year.
@annemanc am currently on steroids 2mg twice a day for 3 days the week of 3 infusions and gcsf injection. It does constipated me but clearly must be protocol and itā€™s supposed to help w sickness too. I make sure I take them 8am and no later than 11am. By day day 3 am so pain from injection that I donā€™t sleep from pain not steroids.
@daffodil1 the week am not on them I do loose the weight 1 to 2kg variation (which lets be honest is mainly :poop: from being constipated) Iā€™ll only have them at beginning of cycle now so hopefully should be feel better in between.

Btw am half way through that crazy weekly cycle thank goodness :tada: EC I hear is tougher, thatā€™s for 2024. Am gonna watch bake off and enjoy not feeling sick at watching food :sob: :joy:
Big hugs to all xxx

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Hi all.
Cami, hope the oncology team were helpful.
Naughtyboob, sounds like a rough time, hope you feel better now youā€™re home and hope you can catch up on some rest in your own bed. Amazing that your radiotherapy appt is already sorted. Do you get to see the clinical oncologist first?
Pinklili, great you had no reaction to abraxane.
Annemanc, let us know how you get on with steroids and doclataxel.
I saw the oncologist yesterday and will carry on with 75 per cent paclitaxel for remaining three infusions but he has also removed my last (4th) carboplatin as it was affecting my hearing and he was concerned it would be exacerbated and might become irreversible. Bit nervous about that but also have to take their advice. Has anyone else had their carboplatin stopped? I have to say it made me feel so sick last time.
Pinklili, how big will your gap be till start of EC? Iā€™m due an EC (2nd) on 21 December and suspect that timing would not be great for Christmas Day.
Much love to all
xxxx

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@naughty_boob sorry you are in this situation, hopefully you will be better soon.
Canā€™t believe how much we have to suffer :pensive:. I am with my soul :two_hearts: along you dear, recovery :sparkling_heart:
Unfortunately @daffodil1 I am in hospital too from yesterday, but now they did blood test, X Ray, and CT scan. I am waiting the results. My problem is the cough I canā€™t stop the cough, :sob: and thatā€™s make me week, I canā€™t walk as I am tired after 2 steps, and my heart became so weak too.
Paclixatel last Wednesday gave me more weakness from Friday I thought someone broke my bones :sob:, all together is so bad.
But look I am in the emergency department soon they have to find, hopefully, the results and reason of coughing.
I also ask them to reduce my infusion chemotherapy.
We talk soon.
Take care :kissing_heart:
To the girls I didnā€™t mention, I am reading all the posts, I hug everyone and wish all my best.
Big hug :hugs:

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Sending you huge hugs Cami, Iā€™m glad they are doing all those tests for you. Relentless coughing is awful. Itā€™s so knackering it makes you weak even when not on chemo. You must be shattered. I hope you can get home to your own bed tonight.
Lots of love and hugs
xxxx

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Hi Camy! About the coughā€¦I stubble across something on This Morning show on an Instagram clip saying that cough could be caused reflux which is not surprising in our case given that the meds affect all our digestive system. So maybe thats the root cause!
@daffodil1 hi! I am due to finish on 19th December w weekly chemo, 2 more cycle, big one coming up next week. Was due to start EC on 27th chemo nurse I should consider a break and clinically it would help have some time off. Also donā€™t want to start during Xmas period just in case and a week break was great :pray:
Today on abraxane I felt a bit slow and lethargic, a bit achy and under the weather, massive loss of appetite (but hungry go figure) I rested and just went to Dulnem to find some Christmas sheets to cheer me up which they didnā€™t have :see_no_evil: guess Iā€™ll order on line :woman_shrugging: I did manage some work but w loads of typo cause am tired and this will make you chuckle: I was talking about reward scheme at work (HR) , and I said a night out the totem, that would be fantastic, and I meant night out in town :joy:

Hugs xxx

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