September 2024 chemo starters

Everything I read didn’t seem to say it would happen but my oncologist blurted out “you may lose some more hair, or it’ll thin”.
Good luck with your results.
I’m kind of glad I don’t have to go on phesgo (just had a nerve conduction studies test this morning due to a dose being administered incorrectly and causing nerve damage, and that bloody hurts) but the thought of hair loss AGAIN has given me the willies.

1 Like

I think Kadcyla is better tbh but I was told at the start only if I have cancer remaining otherwise Phesgo. I restart Phesgo tomorrow no.9. I know some people are on it on a trial on the HNS. I did ask but was told no unless live cancer is found after op and I am private.

2 Likes

There was 2mm live cancer in the lump they removed otherwise I would have stayed on phesgo.
I would have been fine staying on that but I think I have PTSD from the one that caused me nerve damage (especially today after my NCS test).

2 Likes

Hi ladies, i hope you are all doing well navigating your treatments. Im about to start Abemaciclib alongside my Anastrozole in a few weeks. Who else is taking it? How have you found the side effects? Im feeling stressed about the diarrhoea aspect as im back at work. Any tips? Diet changes that have helped?

2 Likes

Hi, I’ve started Abemaciclib 10 days ago. I’m also taking Letrozole with it. So far I only had 1 bout of the dreaded D on Saturday on my way home. It was not a nice experience as I couldn’t hold it. The Imodium worked really well - too well as I’m now constipated. I’m working full time and I’m trying to plan ahead strategies for when I return to work on Tuesday.

2 Likes

Try pure rosemary oil, Sainsbury’s have a really good one which comes up well on the Yuka App. It’s definitely improved my hair growth. Good luck x