Hi Laura….I had the very same thing that started about 3-4 days after my first treatment. I agree, the bone pain is the worst. Advil and Tylenol did not help at all. I ended up calling my oncologist and they called in a script for Tramadol. I haven’t needed to try it yet as the pain subsided the day after I called. But I’m glad I have it on hand as I go in for round #2 next week. I hope you have a nice holiday weekend 
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Sounds like we are “ship mates” on this cruise. I have similar dx (DCIS, HER2++ (not progesterone receptive), negative margins and negative lymph nodes). I’ll be on the same protocol of paclitaxel 1x/week x 12 weeks, and Herceptin (trastuzumab - the monocolonalantibody that targets the HER2 protein) 1x/3weeks x 12 mos and I get to go through menopause again (I’m 64)! My first infusion is this Wed. 9/9. I’ll get radiation following chemo. I am not cold-capping as it was too much of a fight with my insurance company (Blue Shield of CA, who cover this treatment, but only under certain business models…) and I need to save my fight for things other than my hair. Nobody talks about the emotional roller coaster that cancer is. I feel like “a wave of the sea driven and tossed by the wind.” I’m looking for solid ground, so I can get back on my feet. Think I’ll get one of those “bad a$$” haircuts for pre chemo. You know, shaved on one side and a bob on the other? And, maybe add some purple low lights… Now that is taking control! Good sailing, and grab a life vest!!
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Just came back from my breast cancer clinic, my chemo has moved to 2 weeks due to my wound still won’t heal.
Gutted it moved 2 weeks as had 15th in my head.
Any tips how to heal faster ? Eating more protein, drinking water.
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ello Sunflower …. I’m sorry you are dealing with a healing delay. I’m not too familiar with that, but I would assume your oncologist would provide you with any tips/changes needed. One thing I have gained in my chemo journey is lots and lots of electrolights. I drink a lot of Powerade and LiquidIV (Watermelon is my favorite flavor thus far LOL). I hope you feel better and are on to a speedy recovery
Healing from Surgery is taking its time. 8 weeks post op.
Il give electrolytes a go. No harm trying plus I have some in the house.
Just have very stubborn spot that is refusing to heal and come together. But sure il get there.
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How’s everyone getting on? I had my first EC chemo on Monday and, after feeling terrible on Monday evening/Tuesday morning, I feel a lot brighter today. I fasted for 24 hours before and after chemo so could also have been the lack of food making me feel so grotty, particularly given the symptoms seemed to ease once I was eating again. Managed the school run (children’s first day back!) Not looking forward to any more potential side effects though.
Would love to hear how everyone else is getting on x
Hi Rosie
Congrats on getting the first one done and on feeling ok today! That’s good to hear. I had my first dose-dense EC chemo last Friday and have to say I’m struggling! I was ok for the first couple of days - probably thanks to the steroids apparently, but I’m feeling really low today. Tired and headachey and just down in the dumps! I hate not having any energy, but am trying to be as normal as possible while my seven year old is around and then resting when she’s at school. Really hoping to feel better tomorrow. Hope everyone else is doing ok x
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Oh no!! I’m worried about this too, I have a tiny spot on my scar that keeps leaking seroma. It’s driving me nuts! It heals over night then leaks after a shower. Maybe I shouldn’t shower 
I have tried everything my nurse have said, I had 3 weeks of pico dressing aswell and nothing.
But nothing is closing it.
Have your nurses advised you on anything to help it heal? Hoping it heals for you in time.
I’m about to start the same regime of weekly paclitaxel/trastuzumab on the 22nd September. It’s a bit of a shock as initially my surgeon told me that my oncologist had said I didnt need any more treatment..but when I finally had a meeting with her, just to understand why she thought that, to underline what I thought was the end of treatment, she said that actually it was pretty grey 
And as my figures on Predict weren’t that cheery I decided it was best to give it a go
Really not sure what to expect and feel like i haven’t really had time to prepare at all as I’m at the end of my 3 month window after mastectomy/lymph node for a dcis/5mm idc! How are you doing? 
Is fluid leaking out? I find when im wearing a bra mine leaks, overnight it has scabbed up because I didn’t wear my bra with the softie insert. It’s so frustrating isn’t it? I really feel for you. I have a couple of like bubbles of skin that are filled with seroma but thankfully haven’t burst! Can you air it out during the night at all? I know it sucks feeling exposed but it definitely helped me
Hi ladies. I’ m a May 26 Chemo Starter and just popping in to wish you all the best, and to suggest that you take a look at some of the previous month’s threads on this topic, because you’ ll find loads of advice, suggestions, help and ideas from women who have already dealt with - or who are in the process of dealing with - exactly the same frets and worries as you are now starting to experience. Honestly, it’ s well worthwhile.
My treatment began in December with breast surgery for Invasive Pleomorphic Lobular BC - that’s a very scary rare one - and I’ m now on my 4th month of chemo, due to finish by the end of Septemer. Then onto Radiotherapy and back to the oral drugs…..
I gather some of you are in the US, whereas most of us in the May thread are UK based, so the names of some of the drugs and medical terminology may be slightly different, but BC is BC wherever it pops up in the world, so we’ re all on this rocky road together.
Sending you all my very good wishes,
Bea4
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Leaking fluid and blood. We done the airer over night but didn’t work. I now have aquagel and dressing on so not option.
Back to breast clinic tomorrow for dressing changes so hopefully it’s smaller.
hope your date for chemo still going ahead though.
Hey, Rosie! I had my first infusions yesterday. First, trastuzumab (Herceptin for HER2), followed by paclitaxel. It wasn’t as scary as I imagined, but I was there 5 hours! I had worse side effects from the steroids I took the day prior - major headache for 28hrs, jittery, no sleep. I took anti nausea meds last night at bed time because everyone told me to “stay ahead of the nausea.” I feel great today. I slept like a rock last night and did an upper body workout (only 10min and light weights) and my hubz (dx with Alzheimer’s 2 wks before my DCIS/HER2 dx) and I did our daily Chi Gong (also only 10 min - but I’m just trying to get/keep him moving and building in routines). I hope I feel this good tomorrow because I have an event to attend - it’s a Guilded Age dress show and all dresses are designed using fresh flowers. Sounds cheery, right? I guess I have another week before hair loss starts, so I don’t have to worry about that! Best to all.
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Just found out today my chemo starts next Friday 18th, feel totally unprepared (though I knew it was coming so also feel silly)
I am having 3 cycles of EC and 3 cycles of Docetaxol with more to follow if I can cope.
I am rather overwhelmed. I only had my mastectomy just over 4 weeks ago and still coping with some after effects of that so it feels a lot.
Hoping to connect with people going through the same mixture of hope and fear xxx
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This is a feeling I have too, yes x
I start 3 cycles of EC next week followed by 3 of docetaxol, maybe more if I can tolerate it. I feel a bit numb, I had a very large lobular cancer with all the lymph nodes they removed involved so it’s basically ‘Nuke it from space’ time with radiotherapy and kisquali to follow.
I am trying the cold cap but not sure I will be able to cope with it either
hang in there xxxx
I have long thick hair and was advised to get it cut shorter first, is this not a good idea?
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I am in between cycles
4-5 and have been on the same
Course you are due to start on. Any questions please reach out to me I am always here xxxx
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I start on the 18th, just 5 and half weeks since mastectomy and reconstruction, it feels soon! I am still getting my head around the surgery a bit but they are keen to push on, went through the predict tool and sort of wished I hadn’t but I know I need to be realistic as well as hopeful
Thank you so much
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Thank you so much! I wrote a reply but it just posted as a comment ( still getting the hang of this forum)
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