Shopping List for Chemo - any recommendations?

Hi Guys

am getting ready for my chemo and thought I’d share my list with you as you might be able to help if you don’t mind … any additions gratefully received … also thought it might be of use to others if we could all share …

can’t help but plan - and need to be sure I’m ready for this one …

~ thermometer - in case worried about having a temperature
~ new toothbrushes / toothbrush heads
~ make sure toothpaste and floss don’t run out
~ mouthwash supplies - normal
~ pineapple juice - read on a thread this is a good extra mouthswill with chemo
~ rubber gloves for household chores (meant to get these after op but forgot!)
~ baby wipes - in case no soap in public loos
~ wig! (did this one)
~ “good food” supplies majoring on fresh fruit and veg with some protein and not too many naughties
~ good book/ armchair entertainment

~ anything else ladies ??? … especially the “odd things” that you’ve discovered/ invented yourself …

thanks as usual
love
FizBix xxx

Hi FizBix

Here’s my list:

A good supply of music whilst having chemo - Ipod is very good for this.
A soft toothbrush (note you said you’ve got toothbrush but they must be soft).
A PH neutral shampoo for your hair (not sure if you are using a cold cap or not but if you are then Dove is PH neutral).
When I started Taxotere I found that I could do nothing on the day of chemo except go straight home to bed so I learned that I needed to eat dinner at the hospital so that I could go straight home to bed.
I also found that sleeping pills got me through the first 3 days when I was on Taxotere. The FEC wasn’t nearly as bad in terms of exhaustion.
Moisturiser - my skin became very dry all over my body.
Bottles of water so that you can drink loads and maybe squash as well.

Can’t think of anything else right but but wishing you the best of luck.
Rxxx

Good planning -I’m very impressed!

I spent a fortune on lots of books thinking I’d have loads of time to read, but soon realised that due to ‘chemo brain’ I couldn’t read anything other than hello magazine as just couldn’t concentrate. So, my husband bought me an ipod and that was my best chemo buy! I lay back on a recliner chair and put my music on and pretended I was somewhere else altogether … and also had a snooze …

Also, check out (edited by Moderator) hats -I bought a fleecey one just to wear about the house and at night as you get very cold without hair.

Oh, and check with your oncologist about vitamin supplements.

Hope all goes well

hx

Travel bands bought mine from boots about 7 pounds realy help with neausea,

all the best
Lindiloo x

I found that a lip moisturiser for night was really useful (can’t brand name!!) - usually wear lipstick in the day. Also was given from the hospital some dry mouth gel, you can buy this. And something for mouth ulcers that I used at the first hint of any appearing. Best to get an alcohol free mouthwash. As the others have said - loads of moisturiser - body and face. I found ginger really helpful for nausea - ginger marmalade for breakfast, and ginger beer became my drink of choice for a few days! Good luck. Sarah x

Hello FizBiz

Rose’s Lime Juice cordial for if you get ‘strange taste syndrome’ - where everything you eat/drink tastes dreadful. Also sharp lemon sweets for the same problem.

Extra pillows on the bed for the first evening/night so you can sleep in a more upright position in case you feel really nauseous (you probably won’t) but just in case.

Lots of luck with chemo.
Anthi x

Hi Fizbix

Can’t add much to list but would agree with comment on toothbrushes - you need a baby one with realy soft bristles.

Anything I have needed in the way of mouthwash, or cream for dry skin has been provided by my chemo unit. Just before starting each chemo (fec at present) I have to go through a check list with the chemo nurse re the symptoms from the last one - anything that requires treatment - they provide. This last one on wednesday I commented on how dry my skin was and that I had been using my daughters E45 cream (she has ecxema) and this seemed to help.

When I came to leave, as well as the bag of anti-sickness and heartburn goodies, I was given a massive tub of E45 as well! - I have been so impressed with the service and care received from them.

Only other thing I would agree with is the iPod - I managed to get one half price just before xmas (49.50 for 4gb iod nano!) - I have music and audio books on it and find it so relaxing - so much so that I never heard the end of an audio book yet cos I fall asleep !

Take care

margaret x

Hi Fizbix

Ginger biscuits are very good if you suffer nausea.

also if you are given dexamethasone (a steroid) which you probably will be given to take 3 times per day - take the last one no later than 2pm as they can make you hyper and awake all night - i used to take 2 in the morning and 1 at lunch.

Also buy a toothbrush that has a tongue brushing bit as well as my tongue became very coated and horrible.

Eat before chemo too even tho you dont feel like it - and try to drink at least 2 litres water during/after.

Good luck
Fiona
x

Hi Fizbix

I also could not concentrate on books, or even the daily newspaper. My sister, who lives 600 miles away, sent me some funny DVD’s - East is East, Bend it Like Beckham, My Big Fat Greek Wedding,etc which made me laugh and sometimes cry! I watched some of them twice - not a bit like me!

I was on Fortijuice for the 4 months of FEC chemo, as my Crohn’s flared and I couldn’t eat any solid food. I did find that any drink that had ginger in, ginger ale, ginger beer and even occasionally a finger of Stone’s green ginger wine topped up with ice and ginger ale for a treat, really did help quell the nausea. On that subject, do take the prescribed anti-nausea meds even if you don’t feel nauseous, because by then it is too late.

As Fiona said, steroids can cause insomnia - I found I could only sleep 3 hours in 24 hrs, so the apartment got a good spring clean in the small hours.

The treatment does go quicker than you think - I was daunted by the thought of 4 months chemo, then hospitalised to get my Crohn’s sorted out, and 5 weeks of rads. It seems like a couple of months now when I look back. I’ve just had my 5 yrly review this week and no new tumours or mets.

Hope you do well, and take care of yourself - take whatever help is offered. Neighbours took me to the hospital occasionally, offered to do grocery shopping, and my best friend came over a few times to do the ironing.

Good luck.
Liz.

Hiya

I always carried a bottle of the antibacterial hand gel in my bag whenever I went out. I was told that you need to be careful about door handles and shopping trolleys, baskets etc., so used to squirt it on my hand before I went into Tesco and, again, when I came out.

Julie x

Hi

I would echo ginger for sickness. A friend bought me root ginger, peeled it, cut it into small cubes and froze it. That way I could just put a teaspoonful in a cup of bowling water - easy.

On the drinking water thing, I could never keep a track of how much I’d drunk so now keep a litre jug of water in the fridge so that I do know I’ve drunk the recommended two litres.Chilled water is so much nicer to drink. Also a pint glass of water my the bed at night is useful as you can get dehydrated at night.

So good to hear your good news Liz.

Pauline

Hi,

I was recommnded to take aloe juice twice a day and use aloe gel for skin both have been fantastic.

Look for brands with highest %age aloe and get as close to 100% as possible if you can.

dont use dental floss unless really necessary as it can make gums blled which is not good.

Also take a good probiotic drink according to my onc.

Hope this helps

Best wishes

Tracey x

Hi,

If the chemo gives you night sweats, a chillow is very useful (and for the hot flushes that come later). You can buy one online (Amazon sells them) for £25 or £30.

Fresh pineapple is good to eat if you get the Taxotere mouth.

A packet of Foxes Glacier mints to carry in your handbag - good to suck if feeling sick.

It’s not as bad as you think it’s going to be.

Best wishes

thanks very much everyone - fabulous tips! - it’s good to know I’m going to be as prepared as I can be

it’s so helpful to have all this support at this time - never mind “chemo head” - I’m having a bit of a pre-chemo whirl …

this morning was a bit dodgy - I started to feel sick and I haven’t even started yet!

we have 2 lovely four-legged furry friends - Fizzy and Biscuit - and when we go to the vet one of them shakes and the other one does something more embarassing and I have been empathising with them a lot more than I thought I ever could,…

this is even more scary than a driving test ! - never mind getting ready to walk down the ailse - and that’s saying something …

keep telling myself it’s not going to be that bad really - think it will be far better with one under the belt as everyone is saying - think I’m finding it so scary because I hate taking any medicines - ironically I really didn’t think most medicines are that good for the body - must be one of the quickest converts of all time!!! I have to say right now the only thing more scary than having chemo is NOT having chemo so deep down am really very grateful - it’s such a confusing thing this!

Lovely to hear from people who have been clear for some time - this whole site is so lovely - I’ve never “chatted” before on a site and it’s really rather strange how you get to know people without even meeting them! … but very nice though … not quite sure where I would be without it … (in the toilet probably!!!) … :slight_smile:

thanks again everyone - it’s so great to have you all there - hope other people find the shopping list helpful

just thought - perhaps we’ll call the next pet “ginger” … let’s hope it’s the right colour !

lots of love
thanks again
FizBix xxx

Gavescon liquid for heartburn, the tabs are gross!! Eyebrow pencil for if you lose your brows, I loved fresh oranges,

I note you put healthy food, thats ok, but I and many others had a graving for junk food, chips fried foods etc, stuff I hardly ever eat normally. I also really needed salt on my food.

TV, we subscribed to sky plus, brill for those sofa days.

Just had a thought. 3 days past the anivarsary of my first fec in 2007 and I forgot, thats got to be good news hasn’t it?!

Good luck

Irene

I keep shouting ‘yes’ ‘yes’ to so many of those little tips.

Has anyone mentioned constipation. The hospital gave me Senna tablets. I don’t take any on the first night of chemo. But I take two on the second night just to make sure I have no problem. I don’t need them after that.

I grind up seeds in advance (sesame, linseed, sunfower and pumpkin) and add a table spoon to my porridge and a tablespoon to my smoothie every day. I also try to eat lots of fruit throughout the day. And it’s best to have lots of small meals. I think this all probably helps with the digestion.

Apparently smoothies with lots of red berries are supposed to be good for the veins.

Last cycle (I have just had FEC 3 on thursday) I felt I really needed iron and couldn’t stop eating water cress and fresh oranges together. It gave me a lovely boost.

Another tip I discovered is that at first I was leaving my main meal until the evening which involved pasta, potatoes or the main carbs of the day. This was a mistake. That was the only meal of the day that gave me energy and made me feel more awake and hapy. So now I am trying a baked potatoe at lunchtime or even a small bowl of pasta mid afternoon works wonders. Evening though I was feasting all day long on porridge, smoothy, soup, bit of bread and fruit etc I wasn’t doing the trick.

I too really notice the need for salt so am going with it. The junk food thing is really weird. I am all prepared to eat healthy but the urge for cheeseburgers and kebabs is overwhelming. I made my own healthy version of lamb kebabs in pitta and a kind of cheeseburger with loads of salad! I didn’t get chocolate urges with the first FEC and wondered what everyone was talking about, but now I buy myself plently of dark chocolates.

My chemo nurse told my on Wednesday that Almond oil is very good for your head. When your hair starts falling out it can get very sore. I had been putting E34 cream on my now very shaved head but have just started trying the almond oil.

To be honest the cravings change each time. My first FEC went well so I thought I would try the same food etc the next time but it doesn’t work like that. You just have to go with the flow and see what you feel like on the day.

One important thing is that when I wake up in the morning I feel a bit sicky and not at all like eating my porridge. But asa soon as i have eaten it I feel so much better. Eating food has always made me feel better and nothing has made me feel worse so far.

I can not really concentrate on books and newspapers but old films are working very well. Nothing too complicated.

I know what you mean about the medication. Before this diagnosis I rarely touched any medication apart from homeopathic stuff. I was really worried that my body would be too sensitive for strong chemo drugs and all the trimmings. Strangely though my body has coped OK with the anti-sickness and steroids, not to mention the chemo. I also take tablets to help calm me before the treatment (these are a godsend - they just make you feel slightly more chilled out) and to help me sleep for the first few nights.

Good luck
Love Lorna XXX

My treatment starts on Tuesday so I was interested to read your list of items.
I was recommended to use a good high factor sun lotion whenever I go out, so have just stocked up on factor 50!
I do a lot of walking and am hoping that I can at least keep up with some short walks.
Will pop out tomorrow for a few of the items on your lists.
Best wishes
Karon

I had my first chemo last tuesday…and it was good to read the tips here…problem with chemo brain tonight - couldnt remember how to turn off my calor gas heater - had to go and get neighbour to help , but reading this think im not drinking enough - feel more sick thna i thought i would. should i tak ethe ‘just in case’ tablets too or wait til things get worse? its hard to gauge this .
live in country so hard to get to chemist for laxatives - wish id been givne some from hospital…tried extra vit c but that just makes me feel more uncomfortable… hey ho - this yuckyness means its doing its job… main side effect its saving my life - just wish i didnt feel so yuk!!!
Sue

For suebeth

Take your anti sick meds right now! If you leave it until you feel really sick they probably won’t work. Senokot tabs are good for constipation. Feeling sick or not is no indicator of whether the chemo is working so I’d say take all the tabs you can to feel comfortable.

Had chemo on Tuesday myself so sympathise. (though not feeling sick…)

best wishes

Jane

Hello all

Just wanted to say what a brilliant thread. I am starting x6 cycles of FEC this Tuesday, the same as you Karon. My shopping list is getting longer…

Take care

Nadiya