hello everyone, I haven’t posted for a while. I got a bit despondent for a while. Losing our lovely Helen (2catlady) and then Jackie Collins - also a friend I met when we were both diagnosed around the same time passed away at about the same time.
i should 't be because I was diagnosed three years ago and my scans have been stable since then (some of my mets don’t show anymore) and TMs fell steadily and now hover around the 35-40 mark. I am very happy about that and sometimes feel a bit guilty for worrying because my load is light compared to many others.
don’t want to come on here and whinge after an absence but I have a question regarding skull mets.
i have been looking for travel insurance for a holiday. They have asked me if I have skull mets, which I have…they then went on to ask me if they were on the inside or outside of my skull.
I assume that they mean between the skull and the skin or Between the skull and the brain. Or could the ‘outside’ be referring to my scalp.
i asked the BCN and she said thst she would ask the ONC if he will have a look at the scan but she won’t see him for a couple of weeks and I am not seeing him until January…
Just Wondering if this has happened to anyone else - and apologies for the whinge at the beginning…