I thought I had got over the worrying results stage of my diagnosis but today proved BC is very unpredicatable.
I had results of my post op from my mx 12 days ago today. Grade 1, two tumours 16mm and 10mm, I had clear SNB (4 nodes) previously carried out week before my mx, but surgeon apparantly removed another lymph node during my mx and reconstruction and I found out today this had cancer in it.
I won’t be able to speak to oncologist for another week and my consultant is on holiday for another two weeks
I am now imagining everything including spread to other organs etc. I have not had any scans such as bone or MRI previously as there was thought to be no node involvement.
Originally my treatment plan was mx followed by hormone treatment only. Does the fact that there is one node involved mean I will need chemo?. If anyone has any experience of this I would be grateful of your input.
How worrying for you but also how good that they found the positive node. I haven’t really got any information for you - except that I believe that people with positive nodes are usually offered chemo - but then we are all different and given different treatment.
I had two positive nodes - one of 4 mm and one micrometastasis and was offered chemo which I accepted. My nodes were found when I had WLE and Axillary clearance at the same time. My tumour was 12mm and grade 3.
The fact that your tumours were grade 1 might make a difference but you will have to see what the oncologist says. I do hope the week passes as quickly as possible for you. I know it’s easy to say - but try not to worry too much. Chemo isn’t nice but - as people say a lot on this site - its’ very 'doable’and we all manage to get through it somehow. Let us know what happens.
this sounds very weird and very worrying. How did you get the news?? Is it possible you have misunderstood?? did you find out exactly what was found in the node?? Was it a tumour or a micro cancer?
Why dont you ring the breast nurse and ask for more info and see if she can cast light on the situation.They are allowed to give much more information out than you would think. They have access to your notes and special training. the helpline are very good too, but they will not know about your particular case.
Dont automatically think this is going to be chemo for you until you get more info. There are people on here that have one infected node and have not had the treatment, it depends on the stage and type of your main cancer. There is a post called ‘positive node-no chemo’ I will bump it for you.
I got the news from my BCN as my consultant is on holiday. I am going back to hospital for another check on my reconstruction wound tomorrow, so I think I will ask for some clarification then - I won’t leave until I get it!!
Don’t know if it was micro cancer in node, originally I was told I had three tumours slightly larger than they actually were. I have been reading everywehere regarding negative SNB but then a positive node found but can find very little to guide me. It is possible that I had more than one sentinal node. I had forgotton how bad the waiting room can be! My BCN did say it was unusual; perhaps it was a regional node in my breast and the cancer has not strayed from breast hence the negative SNB), but I do need a proper explanation at this point
Hi dizzycloud Just saw your thread and seems similar to me. I had mx with immediate implant 21/6 and 2 nodes taken. My tumour was 17mm, grade 2, oestrogen receptive and they found a micromet in one node. And apparently now in Leicester anyway chemo is recommended followed by surgery or radiotherapy so Iam now on chemo road, had my 2nd treatment 26/8. MY problem is deciding between further surgery or rad? Apparently both as effective, both a risk lymphdema, spoke to oncologist who said if chose rad would also recommend to chest wall which would damage my implant which he says can be replaced. All these decisions I find really hard. I hope this helps.