Hi Anna & Pauline & everyone else.
Just wanted to say to Anna that what others have said is true, the more time that goes by the more you adapt and accept what has happened. My experience is your head does get better, I can remember being in a complete state of panic but no-one can stay that way for ever. give yourself some time and it will help.
Pauline - can only keep my fingers crossed for good news for you when you have your scans
Regards
Julie x
Dawn I can’t tell you how pleased I was to read your post. I have one small bone met (2-3mm), and although my onc has said lost of encouraging things about how treatable she thinks it is, I haven’t been able to bring myself to ask her what she thinks my statistical chances are. Posts like your allow me to think I might be around for a good while yet. Thanks so much. xx
Hello everyone
I couldn’t agree more with Dawn, Julie and Val. I was diagnosed with secondaries in October 2009 and was devastated, I never thought for a minute that this would happen to me, mind you I thought that the first time too! But, all the support on here is fantastic and reading about others surviving for many years has definitely given me hope that I will live for a good few years yet.
Certainly I am finding that the more time passes since my diagnosis the more confident I am feeling about the future. My new 10 year passport has arrived with my ‘miserable’ face photo as I didn’t see the point of getting one at the time the photo was taken! AND we ordered my new car on Sunday, not quite the red sports car I hoped for but a very nippy sporty little VW Golf that has a very comfy seat and back support, we were friends straight away so it must be the right thing for me!
I had my fourth chemo of 6 yesterday so I am now just over halfway through my treatment programme- hurrah! I am being optimistic that life will get back to normal by Easter and, like many of you, just need to pop some tablets - here’s hoping - hope all goes well/continues to go well for all, of you on this thread.
Sue xx
Hello everyone,
Being diagnosed with secondaries myself in October 2009 I was completely devestated and often browse the forums for a bit of inspiration/advice
Susie V - its fantastic that you have had positive news and thanks for sharing it with us, it really helps to boost moral.
I have just started back on the chemo road with my first Taxol last week, your post has cheered me up that there is light at the end of this tunnel. Enjoy the new car 
Wishing everyone well
Jax x
hi everyone
Sue I am a big VW fan myself I have a soft top beetle which is my pride and joy. Cant wait for the sunshine to come back so I can get out and about with the roof down. Might be my paranoia but have had some looks when I park in disabled spaces somehow the car doesnt seem to go with the blue badge in some peoples minds. So enjoy your little red golf, they are great fun to drive.
Anna O - you havent come back for a while and I know you were feeling miserable - hope you are still reading and are feeling a bit better about stuff.
I was diagnosed with primary BC and bone mets in July 2009 and have been lucky in escaping both surgery and chemo. six months on things are settling down and I am finding a new normal.
To everyone hope all are feeling well
Julie x
Hi everyone
I seem to have missed this thread! My story is primary dx in Oct 2003 and everything should have been fine. However secondary bone mets were found in April 2008 - I can still remember the shock, sadness and fear and really didn’t think I would last another day! However after chemo that year I have been on hormone tablets and generally do whatever I used to do before. All the positive stories on here really help me and although I know each of us is different there does seem to be a lot of treatments choices for most of us. I hope to keep going for a good time to come and the only ‘good’ thing about this is that I really do appreciate every single day and for everything I have in the way of family, friends and all the good times. Hope this helps with any of you starting on the secondaries road.
Nicky xx
ps Sue - wooo, get you, a bright red VW! Lucky you and something to look forward to driving
well ladies i’m not much wiser. got results yesterday from ct scan and bone scan.
Good news is CT scan was clear
Not so good is bone scan was inconclusive!!! the strange thing is an old CT scan and an xray showed a leasion on my arm but the latest bone scan didnt show anything.
The onc was convinced it was bone mets and ‘didnt want to get my hops up’ but radiologist ‘isnt convinced it s bone mets’ so they have now ordered an MRI of my arm…and a CT scan of my head as the bone scan and further xray did show something inside my eye socket!!!
I dont know what to think…
Yes i’m thrilled its not gone into my organs…
but why can one scan show something but then another doesnt??? and should i be worried about my head???
Any advice would be greatfully recieved
Another 2 or 3 weeks of not knowing ahead…
Very fed up, Pauline xxx
Oh Pauline - the time you are having to wait for something conclusive is dreadful. The positive side is that you could come out of this with no mets. Should you be worried about your head? Well given that worry will not help the outcome in anyway - try not to - although i suspect that is going to be virtually impossible.
Do whatever will help you get through the next few weeks - while the medics sort this one out.
You take care
Blimey Pauline, why cant it just be ALL good news! Still sooo glad the CT scan is clear - when they found my mets I was really scared it had hit the organs so I understand your partial relief. Will keep checking on here, so please post when you know more - even my eyes are crossed for ya x Debbie x
I think everyone knows how difficult the waiting is, so I just wanted say I’m thinking of you Pauline and hope you get good results and clear answers soon.
Paula x
Not forgot you all on here, still waiting to go for another CT scan on 12th feb and not had MRI date through yet so will still be a few weeks of not knowing. I didnt want you all to think i had forgot to keep you up to date after all the support you have given me.
I am managing not to worry at the min. The pain in my arm has vertually gone believe it or not so i think that will be ok and as for the head scan, well i don’t know what they are looking at there so until they tell me if there is something to worry about then i’m not going to. No point is there, hopefully will be nothing so no point getting in a state for about another 4 weeks.
i will let you all know as soon as i know anything, take care all of you, lots of luv to you all, pauline xxx
Hi hollymeg,
Hope you dont mind i’ve been keeping up with all you’re posts,i think it’s wrong you have to wait so long for these scans.Hope everything goes well and you get good results.love Lesley
thanks lesley, i am sick of tests and results now. got CT scan next friday so will be about a week and half after for results. Not even heard yet about MRI, good job i’m not worrying about the arm anymore isnt it.
Luv Pauline xxx
Hi I’m Helen
I have the best mum anybody could wish for, so when i found out my mum had cancer back in sep 2009 my world seemed to fall apart. My wonderful mum has a rare type of cancer: metastatic spindle cell carcinoma of the left breast which in Dec 2009 she had a musectomy then radiotherapy but was sadly told two days after treatment that the cancer had moved to both of her lungs! (multiple pulmonary deposit in the lungs) My mum and my family are so scared, please is there anybody who has been treated for the same cancer or can anybody give any advise. My mum starts chemo tomorrow but is petrified what happens after the course of chemo finishes.
Hi Helen,
So sorry to hear about your mum, it is devastating for you at the moment but things will settle down and you will get back to a “normal” life.
I was dx with mets in both lungs and lymph glands, so they can`t operate, That was a year ago ( less than six months after finishing treatment for my primary) I have had two courses of chemo. and feel absolutely great. The second chemo, Vinoralbine, had a very positive effect and has greatly reduced my tumours.I have had very few side effects with it.
I have a wonderful daughter and we never dwell on the negatives, we have a wonderful family life together, in fact it is a beautiful day and we are all just going out to play golf. Next week my husband and I are off to the Canaries, in fact we had loads of holidays last year, even when on chemo. so you see life does go on( I am hoping for a very long time yet!
Take care Helen,
Love,
Jan