I was diagnosed last year, chemotherapy followed lumpectomy; then I found out I am BRCA+ so I had both ovaries and both breasts removed.
Millions of pounds have been gathered to combat cancer, and if it weren’t for all the fund raising, and awareness raising, I probably wouldn’t be here, and it’s quite certain that I wouldn’t have had the preventative surgery that I’ve undergone.
When I was first diagnosed I came to this website seeking information and reassurance and I got it. Here wasn’t the only resource I was able to access, and the support and treatment I received was tremendous.
I am grateful and I am happy to still be alive.
And despite all that, I too am sick to the back teeth of the “pink ribbon culture”. I’ve met women for whom – so it seems to me – breast cancer has been the only exciting thing to have happened to them in their lives. They live and breathe it… salivating over the last tiny details of the anti-sickness meds, or the radiotherapy burns. They wanted me to join their coven when I sat in my chair at the hospital, noxious chemotherapy dripping into my veins, eager to find out how big my lump had been, or how it had been discovered, and barely able to contain the most intimate details of how their own diagnoses had been given to them. “They suck the life and happiness out of you”, my friend told me as she sat with me unable to avoid overhearing two women near to us comparing their hormone receptors like kids playing Top Trumps.
For some people, their illness – any illness – defines them. It doesn’t just become a badge they wear, it’s a badge they are proud to wear. I’ll never be proud of having had cancer. It’s sh*t, and I don’t want it. I also don’t want a sh*t thing like cancer to define who I am, or what I do. If I can’t live my life free from cancer, I want to live whatever life I may have left free from having to think about it, or wearing pink ribbons, or discussing it with strangers who suddenly think we have so much in common.
I haven’t “beaten cancer’s butt” and I’m not a “survivor”. Those labels signify that cancer’s presence in my life is still meaningful for me; it isn’t. I am, however, still here, and at this moment it’s gone away, but it may still come back to get me and who knows, I may also get run over by a bus tomorrow but you can be sure it won’t be when I’m on my way to a bloody pink ribbon support group.
I give to cancer charities quietly and privately. I don’t want to march through the streets at 3am in my bra (not that I have any of those left any more), or ask for people to sponsor my pink ribbon cupcakes. I’m not saying those things are wrong… they are just wrong for me.
This message board on the forum is entitled “Living with breast cancer”. We all choose to live life (however long or short that may be) our own way, with different values, interests and hobbies. My cancer isn’t a hobby, or an interest, and I don’t want to waste one more second of my precious time than I have to thinking about it.
How we think and feel about difficult and upsetting things is very personal and subjective. Good luck to every woman - and man - who has to deal with breast cancer… either their own, or a loved one’s.