Oyster, would love to reply to your pm but unless i’m being dense I can’t see a way of doing it (hee hee) - perhaps someone can point me in the right direction???
Hi cindersarah if you click on oysters picture by her post it will take you to her profile under oysters picture click on think it says send message and it goes to where you need to type and post x
Thanks for the help but i went to her profile and there was no sign so i’ve just looked again and no sign of the word message or anything similar. I just tried it on your profile Lols and there was nothing there either. Is there something I need to alter on my account as i’m new to this ??
Hi Pam, Herbgarden. I am seeing my onc there on 6th Sept so thought I’d ask him about it then. I don’t think I am allowed to name him , but he is young and tall! What mets do you have and was your oncologist positive about it? I have stable bone mets and (now) stable liver mets.laura xxx
Laura I have messaged you! Pam
Evening Ladies, can I join in? I do not live in Wales have my Dad is welsh and I have a very welsh name, does that count??? I was diagnosed with secondaries multiple bone mets on 1st August having only started this whole process end of May, so a whirlwind and am still struggling to come to terms with everything and it is humbling to hear so many positivities from some of you. I am still part of The Maisie’s Amazing August Group as was hoping to have chemo with all the ladies this month and unfortunately this is not to be but I hope I will be able to move on soon and accept where I am and hope and pray I can continue to draw from the inspirations of so many so Thank you for that. Xxx
HI Ladies, I’m from swansea but been having my treatmenI at velindre had a double masectomy tops op was in march finished chemo December only had 4 as I was very ill, starting to feel normal again (slowly) hair growing nut need to loose my chemo weight
Sorry for the spelling predicted text
Hi ladies i live in caerphilly and just joined on here today xx
Cinderssarah - Afraid I can’t help you in how to get a PM to me. Not sure why the message part has gone from under my photo. Maybe the mods could check that for you.
Kiz
Oyster,
I’ve tried messaging Lols too but its the same for her too so I think its likely to be something to do with me not you, I wonder if it maybe something to do with the new look forum.
What i was going to say to you was my treatment has been second to none and so unbelievably organised and I guess thats why I am like a fish out of water with a date for the oncologist - I am a person who likes to know whats what lol. I have decided I will give the BCN a ring tomorrow and ask when the appointment is likey to be and that will satisfy my anxieties. I think we are ucky to be treated in a great hospital with fabulous staff
Sarah
Hi Sarah
I have looked at your account and there was a slight problem which I have rectified, but as a new user the first few posts you make will be read and approved by a moderator before going live on the forums. We do this just to make sure new users are posting in the right place for the best support and to weed out any spam posters. So please don’t worry if there’s a time delay as us moderators work on a shift system.
Kind regards,
Jo, Moderator
Thanks Jo i’m not worried about the time delay of my posts, I appreciate the need for moderating. However I seem unable to private message anyone - can you help wth this?
Many thanks Sarah
Cinderssarah, I can only echo what you say about the care we received in a great hospital with brilliant staff.
You sound like me, as I like to know what’s what. I’m one off those matter of fact people.
Give your BCN a ring tomorrow and she what she says regarding your Onc’s appointment.
I’ll check tomorrow to see if you have been able to PM me.
Kiz
Hi Sarah
Until you are in unmoderated status the private messaging won’t work
Best wishes
Lucy
Thank you Lucy that explains it - I was beginning to think I was going mad lol
Sarah
i live 5 miles from Abergavenny in Monmouthshire :smileyvery-happy: am planning on attending the cardiff forum in a couple of weeks
Anyone from Blackwood area
Anyone nearby to Chepstow or Newport?
Got diagnosed yesterday and it still seems a bit unreal! Surgery in 2 weeks then chemo, but I feel a bit in limbo over what’s really coming after the surgery is done…
Lovely to meet you all, wish it was under better circumstances
Hi all,
I’m based just outside Cardiff. Was diagnosed July 2014 - had SNB, WLE, rads and am now on tamoxifen. Having major struggle with fatigue - caused partly by tamoxifen and partly by hysterectomy I ended up having because of tamoxifen SEs. I work pretty much full time as a primary teacher. I’ve been seeing a psychologist at Velindrre to help deal with the fatigue and she has suggested joining a support group as the fatigue is making me feel pretty isolated. I’ve looked into a fair few in the area but they all seem to meet during the day which I can’t do. Anyone know any groups that meet in the evening? I’m 45 so it would be good to meet with women of a similar age who are trying to work and cope with breast cancer fall out.
Thanks