Hi everyone hope all things are progressing well and lifes being kind.
Has anyone had/got or heard of spinal compression? Im going in for emergency radiotheraphy on Monday as I seem to have spinal compression. Ive done exactly what we shouldnt do and look at morbidity rates and that gives me about2 weeks!!! I know I shouldnt have done this as so many stories on here prove you cant go by statistics but I would like to hear from anyone who has this prob too so I can see how/what treatments are and how they are doing.
Many thanks love Ann B
Hi Ann B,
Sorry you’re having to go through this worrying time. I know a lady who had spinal compression a few years ago. She had an operation to the spine and is doing quite well at the moment. She doesn’t come on website very often now, but if she sees it, I’m sure she’ll reply.
Hope that help to calm a few nerves.
Take care
xx
Hi AnnB,
I had spinal cord compression, caused by a fractured vertebra, which in turn was due to spread to my spine. I had to have spinal surgery, whereby they put in metal pins, in order to stabilize my spine. This was last November and 6 weeks after the operation, I had radiotherapy to the affected area.
Initially, I walked with sticks, but am now able to get around without these, although feel a little wobbly at times. Before my diagnosis of the compression, I was showing neurological signs, which were brushed off by one of my GP’s as me being too sedentary and was not true, as I was exercising and doing all sorts of things, which could have made matters worse.
I now feel really well, my Oncologist is happy with my progress and I have just come back from a 2 week holiday in the States, where incidentally, I got married!
If you want to ask me more, please do. I hope also, that I have not frightened you unnecessarily, but please also be reassured, that I am now really well.
Isobel.
AnnB
Spinal cord compression is caused by pressure on the spinal cord ,with bny mets its most likely caused by collapse of a vertebral body which pushes out into the cord a bit like a slipped disc.But unlike a slipped disc it won’t sort itself.Most cases are treated like yours with radiotherapy but some require surgery to stabilise the spine.
Two weeks is extremely pessimistic!!!
Good luck
xxx
Firstly many congrats on your wedding Isobel thats lovely news.
Thanks for your replies which I can tell you I was so glad to receive. I know I have multiple tumours S1/2 and L5 it was after reading some websites that were more or less saying little to offer even in way of pallative treatment that put me on a downer.
I am having my radiotherpy on Monday and have been warned to expext pain so hopefully when that dies down I will have some improvement in the neuro symptoms and then can take whatever is offered, although I dont want to wish it on anyone else its nice not to feel alone.
Many thanks for your replies again Ann B xx