Hi,I have stage 4 breast cancer (liver mets). I was diagnosed last september, i had 4 x FEC75 chemo then weekly taxol for 12 weeks with herceptin every 3 weeks. I am still having herceptin. After completion of chemo the liver mets are undetectable and still are!! I would love someone to talk to in a similar situation!!!
xxx
Just bumping!
Hi jenhen, sorry no-one has replied to you so far - I tend to only pop onto the boards every few days. I’ve had bone mets for nearly three years and in August was diagnosed with ‘multiple’ liver mets - but apparently they are all quite small. I’m a third of the way through 6 x Taxotere and had a scan yesterday to see what’s going on - hopefully lots of regression!
It’s really good news that your liver mets are undetectable - that’s where we’d all like to be - let’s hope you stay that way for a very, very long time. I’m hoping that even if I don’t quite reach the same level as you when I get my results on Tuesday, there will be a reduction so will keep you posted.
I know of someone on the US forums who had liver mets which stayed stable/NED for about seven years and has only recently had progression but I think somewhere other than the liver . There’s another lady on there who has had liver mets since 1998. Gives us all hope!
Lesley xx
Hi jenhen
There are a lot of us with liver mets who post to the “Living with Secondary Breast Cancer” sections of the forum - you might like to have a look at this thread: bit.ly/s8AyJW. I have been living with liver & bone mets for over 8 years (both stable for the past six years or so), and have had great support from Breast Cancer Care, through their workshops, helpline and the Forums. Do have a look around at some of the threads here, and I hope you’ll find the support and information you need! Marilyn x
Hi Jenhen
I hope that very soon I will be in the same situation as you! I have had some liver mets since last December (and bone mets since April 2010) Unfortunately 4 different AIs didn’t work and I now have lots of liver mets, although they’re very small scattered over the liver.
I have been on xeloda since August and am hoping for some success this time…I have had 4 failures…think it’s my turn for some success too,It is great that your liver mets are now undectable, that gives many of us on here some hope!
Feel free to contact me at any time,
Take care xx
hi jenhen
Another stage 4 here diagnosed after routine scan in June with liver lung and spinal mets. Have had progression after FEC x3 and just had second of 3 TAX. Hoping to meet NED sometime soon! There are lots of positive stories out there and hope you continue to be one of them!
Laurie x
Hi Jenhen,
I was diagnosed with bone and liver mets in 2008. I had FEC and tax. I am now on herceptin, tamoxifen and pamidronate and have been stable since I finished chemo nearly 3 years ago. Other ladies on her have been stable for a lot longer.
I have found that there is life after a stage IV diagnosis its just different to how I imagined things would be pre-diagnosis.
AlexD
Hi everyone, thanks so much for your responses it has helped me so much!! Its taken me ages to pluck up the courage to join one of these forums and i am so pleased now that i have!! I have joined the thread that Marilyn sugested, thanks so much!!!
Jenny xxxxxxxxxx
Hi Jenny,
As well as the good support you’re getting from your fellow forum members here, I’ve put you the link to the area of this website where there are links to services especially designed for people with a secondary diagnosis.
breastcancercare.org.uk/secondaries
As well as the above, if you haven’t already joined in there is Secondary Live Chat every Tuesday evening between 8.30 and 9.30 p.m., just follow the links from the forums to join in.
I hope this helps. Take care,
Jo, Facilitator
Hi Jenhen,
I was dx’ed with liver mets last April and had 6 x FEC (my 2nd chemo). My liver mets have been undetectable ever since the completion of that chemo. Even though I had another re-occurrence this July and is now on Xeloda, my liver mets have remained undetectable.
Hope yours remain undetectable too for a long time to come.
Take care xxx
Hi I have just been diagnosed with secondary breast cancer to the lungs and whilst I am still in shock and devastated, reading the blogs on this site really gives me hope!!
I hope everyone continues to have good results to treatment and a long and happy life.
Take care, All of you
Hi Zola
Sorry you have had to join us, but welcome. I am glad you have found the posts reassuring. We are all here for you to answer any questions and give you support. Don’t forget that you can ask anything - no question appears silly to us.
I can’t help with lungs advice as mine are bones and liver, but many on here can. Lots of us have turned our thinking to ‘living with secondary cancer’ rather than ‘dying of cancer’. It is now treated as a chronic disease rather than a death sentence and many people have lived with secondaries for many years! I hope that this gives you reassurance.
Take care and stay strong xx
hi zola sorry to hear your news i also have lung mets in both lungs am tn i was dx in march ihave had 5 lots of chemo which worked very well and shrunk my mets loads we are all at a horrible plc but must not give up hope there are a few of us on here im sure there is a thread here under lung mets pls pop on and join us where are u at moe have u got a treatment plan etc tc hugs laura x
Hi zola
I am sorry to read that you are having such a difficult time, I am posting a couple of links to some information about further support from BCC and also the secondaries publications which you may find useful:
www2.breastcancercare.org.uk/publications/secondary-breast-cancer
breastcancercare.org.uk/secondaries
Our helpliners are here to offer you further support and information so please call if you need to, the lines are open 9-5 in the week and 9-2 on Saturdays on 0808 800 6000
Take care
Lucy
Hi Zola,
Sorry you have had to join our lung mets club, as laura64 mentioned below I’ve put links to our lung mets thread and too a inspirational story, you will get a lot of support encouragement on there we are all going through the same thing and understand, please feel free to pm (private message me) sending you lots of love and light
sarahlousie xx
here’s some links share.breastcancercare.org.uk/forum/viewtopic.php?f=10&t=31556
and this one is really inspirational share.breastcancercare.org.uk/forum/viewtopic.php?f=170&t=27144
hope this helps xxx
i was inspired to read everyones comments on liver mets. being a nurse i only saw the down side of these in the payients i cred for. i was diagnosed with secondaries in the lymph nodes in my neck, and small spots in my liver about six weeks ago. im now undergoing more chemo which hopefully will shrink the tumpurs. after being very down this morning i read your stories and it made me feel much more optimistic. thankyou xx
Hello chrisjenks
Welcome to the forums, you’ve come to the right place for support as the users of this site have a wealth of experience and knowledge between them.
You may also find it helpful to talk to a member of our helpline staff who are there to offer emotional and practical information. To contact the free helpline on 0808 800 6000, opening hours are Monday to Friday 9.00 – 5.00 and Saturday 9.00 – 2.00.
Best wishes
June, moderator