Well I seem to have both, mustve been lucky.
Yes Mr Moderator some of your changes are not user friendly and really havent been thought through!
I’ve found this thread easily now, under ‘after treatment has finished’ on the left of the screen. I’ve now managed to find most of the threads I used to read, but it’s slower now, as they’re all over the place and have to be searched for, instead of together in saved discussions.
Hope you’re all having a great weekend. xx
Kimmie,
Thanks for trying to help, but when I click on “my posts” there is nothing there. GGGrrrrrrr!! So frustrating. i used to love to be able to log on, and see, top right, if there were any personal messages, and then click straight onto y saved discussions.
To be honest, now, I sometimes cant be bothered trawling through everything looking for the threads I had saved. And I dont like that, cos I need you girls!!! And I look forward to reading what you’ve all been up to.
PLEASE Mr Moderater, make it all much more straightforward to use. It was GREAT how it was.
Mandy xxxx
Kimmie,
Thanks for trying to help, but when I click on “my posts” there is nothing there. GGGrrrrrrr!! So frustrating. i used to love to be able to log on, and see, top right, if there were any personal messages, and then click straight onto my saved discussions.
To be honest, now, I sometimes cant be bothered trawling through everything looking for the threads I had saved. And I dont like that, cos I need you girls!!! And I look forward to reading what you’ve all been up to.
PLEASE Mr Moderater, make it all much more straightforward to use. It was GREAT how it was.
Mandy xxxx
Oh Mandy. Look under ‘after treatments finished’ and you will find this thread.
Do you have an iphone or do you go on your computer?
I just leave the page open on my iphone and just keep refreshing the page.
Hope your ok
Kim xxx
I’m with you on this one Mandy. The site is now so user unfriendly and I really can’t be doing with searching for all the discussions that I had taken part in. Even when you have found them there is no way that you can bookmark them as saved discussions like before - if you have found a way please let me know. I use a computer and don’t have an i-phone. My posts only contains half-a-dozen forums that I have posted on, but I think that they are only the ones I have started and don’t include the countless others I have joined. It will be interesting to see if things improve once the 'We’re very sorry to say we’re having problems following an update to our community. We are working to fix them as quickly as possible. In the meantime, please accept our sincere apologies if you have any problems with the website, and remember you can find us on Facebook for additional community support.’ message disappears and all it supposedly well. I have to say that they are taking a long time in getting their act together on this fiasco. I can see me not bothering with this site as playing ‘hunt the forum’ is beginning to get more painful than playing ‘hunt the vein’!!! 
Now for the stupid word verification before I post this - if I can deciper it that is as they could be U or H so here goes!!!
Oh girls dont leave
You are driving us away Mr Moderator and Kimmie needs us!
Lol. Have you been ok mazzalou?
x
I’m an ‘extra’ from sunny spain, just on number 11 herceptin, have found your comments really great & helpful, I think my onc over here, who is really lovely, thinks I’m imagining all the se’s that we’ve all been sharing, its good to feel you are not alone. Anyway reason for ‘emerging’ from shadows is that you can ‘add’ all your fav discussions to your pc’s ‘favorites box’ until hopefully this site gets sorted. An se I’ve noticed for me as its accumulating is on the 3rd or 4th day I feel really depressed, not usual for me. Keep on posting girls, good luck to you all. Sue x
Ola Sue
Glad you found us.
Thanks for the tip on how to add your fav discussions.
I have had spells of feeling low to, just thought it was part of the process, like you say its nice to know your not alone with how your feeling.
So hows life in spain, I bet the weathers glorious compared to wet and windy england at the moment.
Take Care.
Kim xx
Ola Sue
Glad you found us.
Thanks for the tip on how to add your fav discussions.
I have had spells of feeling low to, just thought it was part of the process, like you say its nice to know your not alone with how your feeling.
So hows life in spain, I bet the weathers glorious compared to wet and windy england at the moment.
Take Care.
Kim xx
Hola Kim, just back from Alicante hospital from having hercep number 11, all okay, they are much more relaxed here with regards to se’s, my onc insisted there wasn’t a potential heart problem only if taken with chemo, but I’d read McMillan report & I insisted on having echocardiagram only in Jan after starting in Oct. I also was communicating with ‘Blue eyed girl’ she was putting my mind at rest, I think she has finished the treatment. You just have to believe that your onc etc know whats what. hey ho, lets hope its doing the job, he told me today mine should be finished in September. Oh, by the way, sorry, very, very hot here at mo 28degrees!!!
Sue x
Oh Girls, I think my brain has finally had it! I thought I was doing so well and felt bright and alert, but now I feel so dopey;If someone said I’d been drugged up I think I’d believe them!
I’m in trouble at work for forgetting to pass on a mega-important message 
I’ve got to see manager next week about it.
After a recent night shift, I couldnt get my words out to handover to the day staff. Felt I was talking all slurry.
And I feel full of cotton wool, with pressure behind my eyes and forehead. My eyes dont like to focus as well, yet the optician said they were fine!
Do these effects worsen the longer we take tamoxifen? I certainly cant blame the herceptin.
I’m not expecting any answers, I hope it is the tamoxifen and not anything more sinister.
And last night, my son was not impressed when I’d dished up spag bol,—my intention was to put grated cheese and mayo on mine, but for some reason I put cheese on mine and mayo on his (he hates both) --the worse thing was, I didnt even realise I d done it until he came down to get his, I’d already started mine and hadnt noticed the mayo was missing!!
Stupid little things on a daily basis 
Truddles
Truddles
Oh bless you, your having a right time if it and sounds all to familiar.
I hope work are leinient with you given what youve been through!
Chemo affects the brain for a long time apparently. It is the cognitive function like memory and focus/concentration it affects. I often have conversations and then forget what im talking about mid sentence.
I dont take tamoxifen so cant advise if thats a contributing factor too. All the girls I know suffer poor cognitive function too and struggle at work so your definetly not the only one.
I know when im tired, my head has that cotton wool feeling.
Im sure it wil get better with time. it has too!!!
Chin up
Is the site down again, this is my third attempt at posting.
Yes, I agree, Chin up!
No good looking down at my feet, I might get a drippy nose attack.
Roll on Monday in the manager’s office, Whereas my mistake at work hurts like hell, I’m not letting myself get worried, not after what I coped with last year, nothing can compare to that
Truddles
I know exactly what you mean!! I too forget stuff. CONSTANTLY!! It does genuinely upset me, as I used to be so sharp before all this. Now I forget sooooo much. So I can understand how you feel. But as you say, after what we all faced last year, and went through, nothing will ever seem as bad.
Interesting to hear you have the “cotton wool” head. Ever since I had my first FEC ive had a peculiar fuzzy, cotton wool like feeling in my head. And I dont mean fuzzy as in forgetful, I mean literally. Full/woolly. Like a pressure on each temple, and sometimes around/in my head. My head just doesnt feel it has that clarity I used to have. No pain or headache as such. And it comes and goes. but even when it “goes” its always vaguely there.
I was so embarrassed today at work. I was sitting at the desk talking to a doctor (colleague) and a big splash fell from my nose onto the desk!!! He didnt say anything but I wanted the ground to open up and swallow me!!!
For some reason, my nose is in full throttle today!!! Permenant dew drop waiting to SPLASH!!! Andthats 2 weeks after my 15th Herceptin!!!
Oh well, good luck next week with your manager Truddles.
Lots of love
Mandy xx
Mandy
I know its upsetting isnt it. Im sure in time things will get better.
I get that wooly feeling in my head, like you not a headache just feels fuzzy.
I went to asda yesterday, had two shopping bags in one hand and my brolly im my other hand. By the time I got home i was aching and tired, I dropped the bags on the floor and burst into tears saying ‘I just want to feel like I used to’!!
Mandy im 11 weeks post treatment and my nose is still dripping. Some days its worse than others but ive got to have tissues at hand at all times.
Oh the joys eh girls. Heres hoping things will get better, it has to!
Yes good luck truddles on Monday, let us know how you get on
Take Care all
Love and hugs
Kim xxx
Yes, it’s not a headache but a fuzzy wuzzy full feeling!
My lovely GP has asked for a routine follow up appt, so I’ll ask her about it when I go. I dont like to mention such ‘trivial’ things to the oncologist because they see far worse, of course, so these little gripes don’t mean much.
Anyone else get blocked up ears too?
Truddles xx
No truddles I dont get blocked up ears, ask your doctor.
Im going to the doctors on monday as im still really achy and am getting paranoid its something else :0(
Kim xxx