Aaahh. No im from Newcastle Em.
Just watched emerdale, phew crying my eyes out and nose is off again ha ha x
You girls have made me laugh with your posts!
Emmy im in the west mids too, in Dudley
My bedroom is also caked in damp tissues and cardigans flung around
The worst case scenario is my nose dripping onto one of my dear souls at work, whilst i’m leaning over them in sterile gloves. NOW that is too much for the imagination!!!
Hi truddles I am sort of between Worcs and Hereford, that’s done it I can just conjure up a picture of an old dear asking if it’s raining? It gets worse, sorry just sat here like a loon giggling!
The fatigue thing gets to me and so does “There are no S/E from Herceptin” apart from??? How many could tell different?
Not long got in and stuck coat in hall walked into kitchen and yes ran for the kitchen roll ughhh!!! Roll on the end of April when it’s finished mind reading that it takes 6 months to leave your body is an eye opener no one has told me that!!!
Sorry again with the picture bedroom askew with tissues and cardies I don’t know which is worse! But I used to think they were for old ladies now I am the old lady!!!
Take care Em xxx
Oh no, does it really take 6 months to get out of your system? I’ve got 5 more to go?
Another snotty one here, only it’s not really snotty is it? Am so with you on the cardy on, cardy off moments. This morning I left the house with a short sleeved top and a winter coat, forgetting my jacket for work. Had to return home to get it ( in fact I had to return home 3 times as forgot various things, but not sure that’s down to the Herceptin. My brain is very, I don’t now how to describe it, er maybe mushy is the word.
Lisa
Hi Lisa my memory is shot to bits and yes mushy! I put it down to chemo brain! I know what you mean it’s like a tap and sometimes just turns itself on ughhh! The cardigan girls now there’s an idea for a calendar tissues and cardys at the ready! Em x
p.s I have 4 to go!
Hi girls
My memory is shocking too, im trying to finish my third year at university and my concentration is shot too.
Hey the calendar idea is hilarious, can you imagine nana cardys and a bix of kleenex ha ha
You will all be finished before you know it :0)
x
I am sure with some discreetly placed tissues along with said cardy it could be quite tasteful! Sorry I think if I stripped off they would be running down the road screaming!!! I have laughed but I am sure it would work for comic effect! Poor you kimmie I had a terrible moment when I asked hubby to get something for me from that thing we eat off! Hubby getting used to this by now just says I think you mean dining table? Why? I remember the most peculiar things but everyday stuff can defeat me! some days are worse than others! So heaven knows how you are studying at uni! Bless you I hope you get through it after all if we got through all this c–p then we can do anything! what’s a few memory cells between friends!along with a few tissues! and not forgetting the humble nana cardy! Em xx
rolling onto the finish, next one next week! then down to 3! I would dance but I don’t have the energy!
Ha ha.
Oh im with you on the names of things, im sick of going into a room and then coming out not remembering what i waa going in for ha ha.
Thanks em im muddling my way through it but its very frustrating especially knowing im not doing as well as i was.
Im trying to help my boyfriend paint the bedroom at the minute and ive made a kitchen roll device to stick up my nose ha ha very attractive!!
Anyway im counting my blessings as a friend i met on here who is lovely, funny and beautiful is in a hospice living out her last few days. She has a liitle boy of five yrs old - heartbreaking. Puts my runny nose into perspective
Xxxxxxx
Agreed, so sad and yes does put things in perspective. Oh hell now got picture of you with tissue stuffed up your nose hmm another calendar moment! My youngest had hay fever and did the same so I took him to see GP who pointed out that at least he was keeping his shirt clean!
Good luck with the painting! Em xxx
I know bless her.
Well still have finished painting, really struggled with my arms were really achy after 5 mins!
Yes imy tissue contraption worked a treat, until I bent down to paint ha ha
Bless him, I get that two ooooh can you imagine me in the summer, yikes!!!
Better stock up on kleenex now.
Do you get achy? x
Yes but I am on Arimidex too so it’s really hard till I finish ‘H’ to know which is doing what! I have achy bones first thing sometimes I do a great upended turtle impression! and after sitting it takes time to get going again! I am on a phased return to work a couple of mornings and sit at a desk so look round first before getting up! I hope the painting went well? Em xxx
Oh nooo. Im sure its the herceptin.
I am aching all over today. Posting with a heavy heart as my friend passed away last night
Painting is still not finished just off to do some more now. Christ my nose is off already! Ha ha
X
So sorry to hear about your friend it’s such a b —h of a disease! Ido hope you managed to finish your painting without too much kitchen roll! I do hope I get to some kind of normal and the upended turtle impression goes after finishing ‘H’! I get so fed up with it all but am really grateful to be here thanks to the many who fought for this drug.It’s quite humbling as I don’t know if I could have been one of the first to trial it. Well good luck with the painting, my daughter does that for a living and has done our bathroom tiles as well! Take care Em xxx
Thanks Em x
Yes paintings finished for me, stephens finishing off tomorrow. My nose wasnt to bad today but boy am I aching!
Wow really. I got treated at the freeman hospital in newcastle and there lots of ladies and men there being treated makes you thankful to be treated doesnt it.
Oh hats off to your daughter Im walking like an old nana now x
Walking like a nana! I feel another kodak moment towards a calendar! glad you finished painting it’s one of those things that I start with great enthusiasm and halfway wonder why? I know what you mean re those you meet along the way,I have been involved with Kidderminster hospital (amazing staff!) Wolverhampton for rads and Worcs too! I have been humbled time and time again by some of the most funny,clever and dignified people I have ever met. Like this site so
many incredible people who despite whatever is going on in their lives take time to assure others with great support and advice. I have made friends with fantastic women who have kept me going through some c --p! EM xxx
I know, I quite enjoy it just hate doing all the cutting in. Its all done now yipeeee looks lovely.
Ah thats nice. Yes all the people ive met have been so nice, most are nurses and teachers. Its just grt to know people who understand what your going through.
Made friends with an 80 yr old lady poor woman having to deal with chemo at that age. She was so lovely. I just wanted to pick her up and put her in my pocket and take her home.
Where do you work Em x
For a fostering agency my job is to support parents who may have probs and specially children with special needs.It can be fun though heart breaking at times, I worked with adults with learning difficulties for 20 years. I also trained staff in sign language (my first language as parents were profoundly deaf and relied on signing ) so need energy but do so struggle! Hence the Herceptin thread grabbing my attention it is so hard sometimes! What are you studying at uni? Em x
Wow that must be so rewarding.
Aw bless you, I can imagine.
Im studying childhood studies, I was working voluntarily before my diagnosis for barnados with disadvantaged children it was grt. Feel like I have lost a lot of self confidence and havent been back. Sometimes I struggle socially, my mind goes blank and i forget what i was going to say and feel so stupid. Bloody chemo brain x
I agree on the confidence thing mine is bad just now and I double check myself! The memory thing is scary on a day to day level! Did have a rough time on return due to being given wrong info and ended up talking to union! I also got advice on here which was such support when I could not argue my corner due to bursting into tears and low self confidence! So you are not alone in this. You could go back as volunteer a morning once a week to help build your confidence? Would that be doable? It’s not easy I know and difficult to know what you can do specially when feeling so rubbish! Take care Em xxx
Hello everyone, I’m so glad that I found this - I’ve just had my second to last herceptin on Friday and it really tires me out, but other people I know have been fine so I thought it was just me being weak. It seems to have gotten gradually worse over the months. I’m constantly shattered, but I work full-time and I have a 3 year old so thought it must have been normal. To top it all, I have a new boss at work who is horrendous - I’m finding it really difficult to keep up and my concentration isn’t what it used to be, she keeps telling me that the work I do is not commensurate to the pay I get, which just makes me feel like a failure. I wish I could quit work and spend more time with my family as I have missed out on so much over the last 2 years, but we need the 2 incomes to pay the mortgage. I’m only 31 but I feel like I’m past it, I’ve put on weight and lost my confidence with the mastectomy. I’m finding that I can’t wait to have the reconstruction so that I can have some time off work - which is completely the wrong way to think about such a massive operation. I’m off work sick today as I’m so tired. Sorry to whine, I’m just not sure what else to do, I’m fed up of trying to be normal!