Starting chemo in April 2012

Hello bunnies

It really is quiet in the warren, but as others have said hopefully this is due to the good weather and that we’re all sunning ourselves.

LittleChick I’ve been wondering all day how you have been getting on. You are in all of our thoughts. Let us know how you’ve got on.

Natalie, what did your chemo nurse say about the cystitis? I’m sure I’ve read somewhere that it is a recognised possible SE. There are so many possible SEs that I reckon anything can be put down to the effects of the chemo!! Hope it’s getting sorted out. Vanns, hope your granddad continues to improve. There’s been lots of talk about red wee - mine is only ever red for the first time of going then turns straw coloured. I guess we all metabolise differently.

Sara, I’ve been in stitches with your cat stories. We had two cats for many years, one died aged 18 and the other aged 19. The one that died aged 18 was a squirreller - he was a dab hand at catching them. He used to eat the whole lot apart from the tail and had a ‘trophy cupboard’ at the back of our garden that we discovered one day when gardening - a line up of about 20 tails. Sometimes be brought them into the house which was truly yukky. I’d be sitting relaxing after work and go to put a mug down on a glass top table and spot a tail through the glass, under the table! He was amazingly skilled at catching them. The other used to catch mice and most mornings there was a mouse stomach on the back door mat for me to get rid of. Mega yuk! Sometimes a head as well but never anything else. Bizarre. Every day I used to ask myself why I loved them both so much, but I did. The mouser was female and had a litter of kittens. She brought mice into the house when the kittens were only a few weeks old and would try and teach them how to catch the mice, chasing them up and down the room - until I got rid of them. The mice that is!!

Natalie, Coventry sounds good to me as a possible meeting place, but like you I’m happy to hear what other people suggest.

Well, I’m off for my blood test in the morning and see if my white cell count has come up after being too low for chemo last week. Assuming it’s back up I’ll be getting FEC3 on Wednesday. It’s amazing the difference the few extra days between blasts of sparkly stuff have made to how I feel. I feel so much better than I have for weeks. It’s horrid to know how I will be feeling in a couple of days time but at least this little respite has made me realise that when chemo is finished it won’t take long to start to feel ‘normal’ again. And then the rads will start … but I don’t think they will be anything like as bad as the chemo. I’m still obsessing about having the cannula inserted again - my hand still isn’t right after FEC2 (the revenge) - but I have been prescribed some Emla cream to anaesthetise the hand before the cannula goes in this time.

Thinking of everyone at whatever stage in their cycle they are at. Together we are getting through it.

Love to everyone. Sorry not to have responded to many of the things that have been raised by other bunnies.

Love, margieteexx

LittleChick you must have posted while I was typing out my message … so pleased all is ok with the liver scan and also that they are pulling out the stops. We’d all rather you didn’t have to have the surgery, but so pleased you don’t have to wait ages. GOOD LUCK for Thursday. Post again as soon as you are able to after surgery and let us all know how you are doing. It will all go well, I am sure. Take care - thinking of you lots.

Lots of love, margieteexxx

All the best Little Chick for surgery on Thursday, will be thinking of you.

Gaynor xx

Hi All

Assume everyone is still out enjoying the sunshine. I have spent the day working from home on the laptop, with the doors open & the birds singing. There are worse ways to work & I don’t have to worry about covering up my bald head. Agree with others going commando is quite liberating and I have ordered some organic false tan to sort out the blinding whiteness, which hopefully will make it slightly less scary to other people.

Little Chick I am so glad they have sorted your operation out, you will feel much better when you know it has been removed. I had a mx and full node clearance & it was a great relief to know the cancer had gone. I was out of hospital the next day & driving after 3 weeks so fingers crossed your op goes smoothly.

Hoping all bunnies are well & enjoying the sunshine the best they can.

S x

Thank you ladies for all the good wishes. I am feeling remarkably positive, please keep your fingers crossed that my bloods are good enough for surgery on Thursday (coagulation factors & liver function particularly). Onc told me to ring up after I get home and get back on her list, they’ll sort something put for me, so I guess I have more chemo of some sort to look forward to. Guess the delays are more acceptable for adjuvant chemo. Hubby asked me if I could still be an Easter bunny then, and I said there were some ladies getting herceptin who should be around for a good while so I reckon it would be ok. Would rather stay with you lot if that’s ok! Just have to think of the surgery as a holiday lol!
Glad to hear from the test of you, not convinced anyone should be climbing ladders after naughty kitties, watch out for those claws ;-))

Good luck LittleChick, you will be fine. I had MX and full node clearance back in March along with immediate recon and recovery went well. I will be having my portacath procedure on Thursday, not as important as yours but still another GA. I will be holding your hand whilst on the operating table.
As for being a bunny still…you will always be a bunny and we will all be here for you throughout all the treatment no matter how long it takes.

Ladies, regarding the cystitis, I woke this morning and it had gone, so no need to call the chemo nurse but I will let her know when I go in for my bloods next week. I did speak to the district nurse about it this morning and she said Lemon Barley Water is good which was exactly what Maryland suggested on here yesterday.

Not sure about you bunnies, but we have just had a rain shower and I think I can smell a storm in the air.

Hope you are all doing well

Will hop back later

Natalie xxx

Good luck Little Chick am sure it will all be fine. We’ll have our ears and paws crossed.

Had a lovely surprise my daughter is home from uni for a week so had a family dinner in the garden catching the last of the sunshine.

Feeling tired still but did a bit of work this morning only to hear that my company wants to reduce my hours and pay to only 25% of my normal salary. Just what I need especially when am so low this week. Am going to speak to the McMillan help tomorrow to see what I can do.

Why does everything have to be so tough?

Still ears up and onwards!!
Sarabee xxx

Oh and I’m now getting an email when everyone posts too but can’t turn it off on my profile. This website is still myxi!!!

I to am getting the emails Sarabee. It is really annoying and I can’t work out how to turn it off either :frowning:

Margietee - cats can be infuriating, but it’s amazing what you’ll put up with isn’t it? Hope your hand gets better soon. Fortunately because I haven’t had an op yet they can use either side - so nurse recommended I have my blood tests on opposite side so that they can swap hands for TAX and give my veins a rest as they are a bit sore.

Sarabee - that’s not good news about your work - hope McMillan can be of help - not good to have money worries on top of everything else. I have some issues with my pension that are out of my control - they’ve been going on for months and are causing me anxiety - I have to try not to think about it too much.

LittleChick - I’m so glad they are sorting things out quickly for you. Will be keeping fingers crossed that your pre-op tests go OK and will be thinking about you on Thursday.

Re the notification emails - I started to get them too, but clicked on the ‘unsubscribe’ option in one of them and after a short delay it seemed to work.

It’s still a lovely evening here. I was talking to someone from the east side of the country though and they’d been to Lakeside, Thurrock today and had been caught in a really violent thunderstorm apparently - so that might be on its way to some of you.

Hope everyone else is doing well. Sara

Thanks for the Unsubscribe tip. Have done that and hope it works! Just started of it’s own accord this afternoon. Bizarre!

Good evening bunnies!

Just spent a lovely hour reading the 101 posts that have been entered on the forum these last 6 days. Goodness, what a roller coaster we are all on.

Little chick, all my love and positive vibes are with you, and don’t even think of leaving the warren, you belong to the easter gang.

Well, I limped off to the Isle of Wight last Tuesday, still on anti-biotics and the most stinking cold ever. By Thursday morning I felt absolutely fantastic. We have had the most glorious weather and such a lovely time. I am as brown as a berry so pleased none of the chemo nurses said anything about avoiding the sun.

I never wore ont of the wigs all week, far too hot. instead, I have discovered I have quite a knack with scarves and can tie them in all sorts of stylish ways - I even worked out how to thread 2 together in twists and coils. Now regretting spending as much as i did on the blooming wigs, but realise that at the time, the idea of being bald overwhelmed me. Now i rather like it. So easy to get ready, can match scarves to my other clothes and it seems to make my eyes look as big as saucers, no idea why I have hid under a long fringe these last 40 years -giggles.

I am now full on working for the next 3 days and then Friday its FEC 2, 16 days behing schedule, so know how you feel Margie, its a bugger when the chemo gets in the feccing way of our plans. I have work booked in based on my original schedule so after Friday, i will have to go more rhan 3weeks before FEC 3.

I read with interest about how many people have made major life changes. I have already done that some years ago and got myself a life beyond my wildest dreams, one day, i will share my story with the warren, it’s one to curl your ears i promise you. However, oh amd i are planning another change once my treatment is all done, we are going to up sticks and make the move to the isle of wight, stop management lecturing and start a new venture as a nutritional therapist and life coach.

It is so important to have goals and dreams and for me, to make a positive out of whatever life throws. I was devastated when my lasy shemo was cancelled, however, i now see that was Gods way of giving me some quality down time with my oh, to get myself really well, to learn to take life at a slower pace.

So i am back in the warren, my ears are as perky as a pot of mustard and its just so encouraging to see we are now a band of regulars, that trust is developing and that we can offer such support. Love is an action, posting on this forum is just such an action.

Much love

Pixie xxxx

Please excuse typos, can’t find me glasses and using ipad keyboard!

Evening bunnies,
Good to catch up with all the posts and as most of you suspected its the weather keeping me away from the warren in the daytime. I tend to check in at night when the insomnia strikes. It’s great to hear that everyone is also quite perky at the moment and I was especially pleased to hear little chick is in for her surgery so soon. Sounds like they are really looking after you.
I have spent a lovely day with my brother and his wife and our 3 yr old nephew ( who had a stroke of my head) seeing them all keeps me so positive and happy. I have had a few dark thoughts for the first time today and if I didn’t know better I would say I’m about to come on my period. Is this right ? I thought they were meant to stop. Has anyone else had a period after 2 FECs?
On a different topic I emailed Mike from BCC about the update emails. I tried to unsubscribe but it didn’t work for me. I will let you all know if I get any joy.
Pixie, welcome home. Glad your feeling better, must be all the mustard poultices !!!
Good luck little chick. Come back soon xx
BFN
Vanns x

Vanns,
My periods haven’t stopped after two fec’s. How come the good side effects are the ones we don’t get?

Looks like I’m going to be made redundant pretty soon, feeling a bit sorry for myself. Still, I won’t need to buy any make-up for a good long time as I went to LGFB yesterday, lovely.

Rach xx

Sara,
I can vouch for the thunderstorm in Thurrock yesterday, I got soaked, had to hang my hair up to dry when I got in!

Little chick, good luck for Thursday, will be thinking of you

Vanns, I am not having FEC but TAC. I had 2nd dose on the 18th May, my period was due today although I am normally earlier than 28 days and I have no sign of it arriving :frowning: I also had a Mirena coil fitted yesterday for contraceptive reasons. GP wrote to onc and he said it was all ok. It may sound strange for me to do it as we lose our cycles during chemo and hormone therapy but I wanted a back up plan. I am paranoid I will get pregnant again during all this treatment and I just can’t do it all again. I am a strong bunny, but not that strong. The doctor said that around the time the onc thinks my fertility should return, they can give me a blood test to check my hormone levels as the coil stops your periods as well. Sorry to blurt all this out but who else will understand other than my fellow bunnies.

Rach, how was the LGFB workshop? I am off to mine on the 19th June.

Hope you all have a lovely day and it is nice to have you home Pixie.

Natalie xxx

Pixie, glad you enjoyed your break - you had perfect weather for it. So lovely to be near water when it’s hot. Your future plans sound exciting too.

Vanns - sounds like you had a good day despite your ‘dark thoughts’. Distraction seems to be the best medicine, doesn’t it?

Rachel, redundancy is coming at the wrong time isn’t it - who needs additional uncertainty right now. Hope that if it does happen that it opens a new chapter for you… it often can do I think.

Natalie - your coil sounds a good plan. Far better to be in control of things and to be fit and well when your fertility eventually gets back to normal. I went to a LGFB last month. Lots of goodies - some from good brands eg Clinique and Clarins, some more basic stuff eg Boots, L’Oreal - but very generous of all the companies to donate the stuff - and also to donate the time of their beauticians from Debenhams, Boots etc etc. At mine the make-up lesson was pretty basic, but that wasn’t really the point for me. It was a pleasant distraction, plus I met some lovely ladies there - we went off for coffee afterwards and promised to meet up again in a while, so it made it a very agreeable outing. Hope you enjoy your LGFB too.

It’s cloudy and a lot cooler here today - but I’m quite enjoying the respite from the heat.

Sara

Good afternoon bunnies
Beautiful day here on the Suffolk border, sun shining down on us again.
Have worked all morning but am home again now - first thing I did when I got through the door was take my blooming wig off, gosh they do make me hot and bothered.
Natalie - i also have a Mirena. had it fitted before all this mightmare started and onc said he didn’t see any reason to take it out as the dose of progesterone is very low and localised.
My portacath is giving me a bit of trouble today - the catheter down the vein seems rather raised and a bit swollen and it feels tight when I move my neck. OH suggested maybe you have frazzled it with all the sunshine you have been sitting in. Looks like I have a big angry dark red boil under the skin on my chest… off for chemo on Friday and expect a telling off for not looking after NHS property properly!
Rach - sorry to hear the cloud of redundancy is hovering over you, its certainly a worry you could do without but generally, most things turn out just as they should do so try not to project too negatively.
hearing lots of positive things about the LGFB sessions and looking forward to mine on the 19th of June - Natalie and i can talk ears, portacaths, mirenas… giggles!
My mother - she and her sister live 200 miles further north than me so any visit has to include wynciette nighties, hairnets and bed socks. I know they have been worrying about me so I asked them if they would like to come down tomorrow - look after me after my next chemo and perhaps enjoy the Jubilee celebrations that are being held in our village. (I live in a chocolate box village and lots of things are going on this weekend). Humpf! Mother said the local club are putting on a big do and its free for the over 65’s, Auntie Rose and Uncle Bill are having a diamond wedding party on the Sunday and they would rather come down when I have my last one as then it will all be over. So there you go… giggles
Hope all in the warren have perky ears, thoughts stilling being sent Little Chicks way… please let us know how you are getting on.
Much love
Pixie xxx

Hi Everyone, Really good to have you back with us, Pixie- it has been quiet without you! Lovely to hear that you have been making all those life-changing decisions… hope the portacath settles down.
Littlechick- you must know by now that we are all rooting for your speedy recovery, and you must keep us up to date with everything. Wishing you all the very best of luck with the operation, and look forward to hearing from you as you get better.
Sorry to hear about the job, Rachel- if they do make you redundant, make sure you get the best package you can- can you involve a union?
I have just had the phone call to say that my bloods are ok to go ahead with FEC 3 tomorrow. Apparently, the neutrophils need to be above 1.0 to go ahead ( ideally they should be 1.5) Mine are 1.33 ( lower than last time’s 1.7) I do find all this stuff really interesting- I asked what I can do to raise the level, but he said nothing specific- tomorrow they might be up to 1.5! It gets me really cimpetitive with myself- need to beat my last score! Is this normal or am I a bit sad?
Just off for a walk in the afternoon sunshine with OH. Tryign not to think about tomorrow. Good luck to all of us going for the sparkly stuff- think there are a few of us in the chair tomorrow.
Love, Lee x
PS am also recieving all the emails- rally annoying that this has happened suddenly without me doing anything to change settings etc.

Sorry about all the typos and spelling mistakes- trying to type too fast! Oh, and now you will all get a stupid email!
xxx

Hi Bunnies
I am loosing the will to live with all these emails… it seems any thread I have ever commented on is now sending me automatic email updates, and you know me, a bunny that hops about a bit. I signed up with my business email and after a weeks holiday my inbox is bursting with these daft update notifications.

Seems that there is another myxi in the system and I do hope they get it fixed soon. i for one, can find my own way back to the warren - even in the dark, comes from sucking on all those carrots. (used to nibble on them until the chemo fecced me teeth up!)

Goodluck sameelee for tomorrow and anyone else sitting in the sparkly chair - my turn Friday!

much love

Pixie xxx