How the hospital has resonded to the issues raised in my blog -
‘Matron knows best’: today’s post on chemonights.blogspot.co.uk/
Evening all. Havent been on the forum for a few days. My mother - in- law passed away on Wednesday.
Hope all of you experiecing se’s feel better soon.
QD x
Ad so sorry about MIL hope she didn’t suffer to much.
Big hugs
Wendy
No she didnt - it was vey quick but… if you die within 24 hours of being admitted to hospital the case is referred to the coroner who can request an inquest/post mortem. He is still making up his mind!!! As yet we do not have a death certtificate so cannot plan a funeral. Planning a funeral around chemo is - er interesting. Im in danger week this week so ideally would like it next week - which I dont think is feasible. So that means tht my next “good” week is the week of the Easter bank hol. Which means that its a long time to wait for my OH to gain closure. The other alternative is that I dont go to the funeral - but then I think he needs my support. aaargh!!! suggestions on a postcard please!
QD x
Speak to oncologist or Bcn when you have some idea of dates for funeral they may be able to delay chemo a week I know not ideal but don’t think it will have an adverse affect on treatment. How long are you usually poorly for after chemo ? If you feel ok after week one it would be ok to have funeral week 2 as long as you don’t sit anywhere anybody with a full blown cold I would think. I still do normal stuff in week 2 if I am able
Wendy x x
Hi to all,
I hate monday mornings, think cos hubby not here, some days go so slow waiting till he comes home then the weekend flys by why is that?
iv got my 5th chemo fri 8th march, started 14th dec, got mixed emotions today, 3rd chemo was my worse emotionaly i just couldnt cope and didnt want to be here, after 6days in bed and some tabs got through, 4th chemo hasnt seemed as bad apart from had lot more trouble with my eyes bluring and headache for last week, they lowered one of chemo drugs last time as my bloods came back to low, got 2 small blood clots in right arm and chemo has become quite painfull, just worried what this 5th one is going to bring, cant believe come this far, i can now see a near end to chemo, `
HAVE NEW WORRIES ABOUT RADIO THERAPY, WHEN WILL THIS EVER END, JUST WANT MY OLD LIFE BACK !
QD, sorry to hear about your MIL, you didn’t need that on top of everything else. I hope you manage to arrange something soon. There aren’t many good reasons to put it off but perhaps this is a good enough reason to delay chemo for a week; you’ll be with lots of people so you want you blood to be strong enough to protect you. Take care.
Sunshine, I haven’t heard of blood clots in chemo previously, just another horror to add to the ever increasing possible side effects. Do you have your chemo via a picc line or cannula?
Cress and Lolly, we haven’t heard from you for a bit, I know it’s really bad at the moment so I’ll send love and hugs in case you’re able to see this but not feeling up to posting.
I heard that Prince Harrys’ new girlfriend is called Cressida, is there something you haven’t told us?
Hamley, I keep looking on here to see if Cress has posted, because it’s really worrying not to have heard from her.
I’m thinking she must be in hospital, which is probably a good thing, as she was in such terrible pain, and at least it’ll mean she’s finally being properly looked after, but I wish she’d post! Of course, if she’s partying with Prince Harry, it’s probably just hangovers that are keeping her off the forum…
Cressida, if you’re reading this but not feeling up to posting, know that we’re all thinking of you, and wishing you a very speedy recovery from the latest nightmare - and you, Lolly xxxx
Big HUGS to everyone who is suffering from the horrros of chemo today xxx
In other news, I’ve had pain in my jaw fror the last few days, and was assuming it was coming from a hidden mouth ulcer, but am stating to think it may be actual toothache, so I’ve got an emergency appoinmtent at the dentist at 2pm t ohave it checked.
Am deeply hoping that this is psychosomatic, or an ulcer… a tooth infection is THE LAST THING I need right now…
Some online research re chemo and dental problems reveals that chemo can cause something called neurotoxicity, whereby you get severe tooth ache, but it’s caused by the chemo, not by anything wrong with your teeth.
On the other hand, this is getting more and painful, so it really feels as if there is something wrong inside my tooth.
Not sure which would be worse…
4th and final Tax done and dusted one happy bunny. Now just surgery and rads to come.
We will all get there eventually.
Hugs to all
Wendy x x
I am so f***ed.
just got back from dentist - not only is it real tooth ache, it is a big hole in the last tooth at the back, bottom right hand side of my jaw, and the nerve is irreversibly damaged and there is an infection.
There will have to be root canal work - my dentist is phoning my oncologist t oask if she is allowed tot ake the nerve out, and what antibiotics to give me. This would be horrible at anytime, but in the middle of the chemo cycle…
The one good point is that they gave me a Pegfilgastrim injection 10 days ago, to boost my white blood cells this cycle and stop me getting another infection - hah! - so presumably my neutrophils are a lot better than they would be otherwise. So hopefully the infection won’t actually kill me, but it’s getting worse by the minute, has been all day, and although they’ve put a temporary medicated filling in, it doesn’t seem to be making much difference…
i am really starting to feel cursed - I thought everything bad that could happen to me during chemo already had happened - it seems not.
Hi,
I am here, just a bit quite, had a good weekend, but thought for a short moment i was going back to A&E as temprature went up to 37.5 but held on for a couple of hours and it started to drop again so big sigh i was in the clear for once.
Just got to look forward to tomorrow for Blood transfusion dont know anyone who has had one, so dont know what to expect afterwards, any one know ??
hope you ok Cress and surgens was able to help you, sending big HUGS ((()))
sending hugs to you all and thanks for the well wishes you all sent
lolly
x
Hi me again,
I have heard from Cress and she is in hospital, she is in pain with her under arm, so been fed Anti biotics and morphine and was waiting to hear what surgeons had so say about it, so far they cant agree what is wrong so she is still on IV anti biotics which she says are finally starting to work and pain a bit better today.
will keep you informed if i can until she gets herself out.
lolly
x
Hug to Cybele Lolly and Cress and anyone else who needs one or wants one!!!
OH picking up the Death Cert today so hopefully we can book something! im due chemo 5 next friday so maybe just maybe they could squeeze us in for next thursday. Fingers crossed.
x
Oh dear, had a near miss today! Attended my daily radiotherapy appointment then quickly got dressed and headed back on the train to work (started back today on a very p/t basis). When I arrived at work I went into a cupboard to get changed whereupon I discovered tit hanging out of top. I didn’t wear a bra as I want to cut down on any areas that might rub against my skin while having rads. Not having any support, tit decided to make a break for freedom. Luckily I had my coat buttoned up otherwise I’d have flashed mutilated tit to everyone on train and at work. Be warned.
Cybele-sorry to hear about your toothache. That is just too cruel. I’d have another bout of chemo rather than have any dental work done. Too horrible.
Wendy-Doing a wee dance of celebration in front of laptop in your honour. Just need to get through the yukky side effects and you’ll be in your happy place. Even if the side effects are nasty, knowing it’s the last time you’ll experience them makes them much more bearable.
QD-Sad news about your mother in law. Hope you get the funeral arranged to suit.
Lilly-Try not to worry about Radiotherapy-it’s quite relaxed and pain free.
Hope everyone else is getting by and enduring.
Lolly-Thanks for the update on Cressida. Please tell her we miss her humour and hope she starts to feel better soon. Sorry you’re having to have a blood transfusion. From what I’ve heard it makes you feel much better.
Hi all.
It’s not going too well for us crackers is it?
QD - so sorry you have to deal with what you have on.
Lolly - good to hear from you and thanks for update on Cress. At least Cress is Getting some relief. I hope your transfusion goes ok.
Cybele - I don’t know what to say! Just when you thought weren’t going to have to deal with another bl**dy fight!
Maire - close shave! What’s it like being at work?
I’m sat waiting for husband to return with some more anti biotics as yet again my hands have flared up after the doxetaxol. I feel pretty rubbish although with the 20% reduction not as bad as last time. Still pretty groggy though.
Hugs to all.
Mx
Maire, you made me have a coughing fit with laughing. I’ll be sure to watch out for this potential problem with rads!
Mandy, have you tried using cotton golves to protect your poor hands? My MIL used to put prescription hand cream on at night with the golves over the top when she had probs and it helped a lot.
Wendy, congrats on finishing your chemo. Please help Maire shine the light to help guide us all back from the dark side.
Cybele, I can’t believe another nightmare scenario has come your way, you’ve had it so rough. It must be hard to bear, but stick with it, you’ll get there.
Lolly, thanks for letting us know about Cress, please send her love and hugs if you can. Good luck for the blood transfusion, let us know how it goes.
QD, I hope it goes ahead for Thursday and goes as well as can be expected.
Love and hugs to all, so many of us seem to need them at the moment.