Sand, I put on 10 lbs over 3 days after FEC 1. Then I had some strong constipation tablets and lost 8 lbs in one night if you see what I mean!!! I take a constipation tablet before the event now but the little weight increases are now mounting up!
Maire, we’ve got flurries of snow too, but they’re not settling I’m glad to say. It’s very peaceful watching them though.
Cress, it’s great to have you back. Sorry you’re still not up to par, but at least you’re home.
Cybele, my FEC 5 is next Wednesday, then one more to go. HOORAY. I’ve got the date for my mx on 24th Apr so that only allows the same 21 days for chemo recovery as we’re on at the moment. I hope nothing is delayed with chemo for the next two cycles otherwise my white blood cells might not be up to scratch for my mx, but I certainly couldn’t say they’ve kept me waiting which is all to the good. I think I’ll ask my onc for those injections she offered last time after all. I’ll have to go to my GPs nurse to inject them though; I’m such a chicken.
Hi ladies,
Read through a bit better this morning. Bear with me as I am still full of morphine and I can only type with one hand.
Hamley, Border Collies & Cybele - just wanted to congratulate you on having the new sfx of cold sores up the nose, I have been trying to organise in my mind how a game of cancer top trumps would work, but this would surely score pionts in ths sfx catagory.
QD - so sorry to heat about your MiL and the funeral difficulties. Thinking of you. x
Shellbelle - so sorry your treatment had to be stopped. I can def sympathise as mine is on hold.
Lolly - hope BT went OK.
Hamley and others wondering if I am Prince Harry’s girlfriend. Obvs I can neither confirm nor deny.
Maire - your escaping tit made me laugh so much the the morphine couldn’t stop it hurting.
Cybele - Boo to dentistry. Also - I can personally confirm that a chemo resistant tumour did not stop me having every sfx in the book, apart from cold sores up the nose, that is special. Hope you are feeling better, x
I’m off to have my bone scan, even though I am traumatised at the idea of walking into that hospital. Also, I can’t get my arm above my head like the lady in the picture and I doubt they will find a vein to put the radio active dye in after all the butchery I endured last week. Either way I hope to have lunch with my lovely friend, so as long as that is acheived, I will be happy,
xxx
Cress - lovely to hear from you - fingers crossed for today.
Cybele - hope all goes well for dentist tomorrow. Ive lost part of a filling but the dentist said that i had enough left and he didnt want to touch anything so have an appointment for may. Hope ill be able to have the appt cos its driving me nuts cos i keep getting stuff stuck in it. Still my tongue is getting a good work out!
Michelle - think positive. I know its hard but there are lots of different chemos out there. there is an alternative to tax - and your onc will find it.
Sending a hug to Lisa- men can be so childish sometimes when they are not the centre of attention.
hi to hamley Maire Sand Wendy Bordercollies Jayne and everyone else! If ive forgotten you its not intenional - its the chemo brain.
QD x
Oh and Cressida. Really hope your scan went ok and you had a nice lunch with your pal.
QD, talking of chemo brain, someone asked me how many more sessions of radiotherapy I had left. I said, “Well, I’ve had 6 and I’m getting 19 all together so that’s…left…eh…eh” I couldn’t do the maths. Just started laughing to cover embarrasment.
Hi everyone
Cybele - good luck for the dentist. I can’t believe how unlucky you’ve been with all the side effects and now your tooth - I really feel for you.
Cressida - pleased that you escaped from the hospital but sorry that you feel c***. Hope the bone scan went OK and that you had a good lunch.
QD - sorry to read your sad news.
Sand - hope you have are suffering none or very mild side effects after your TAX.
Hamley - good news about the cysts.
Shellebelle - the reaction sounds awful. Hope things get sorted at your appointment Wed.
Mandy - like you my last TAX was reduced but I’m still finding it tough. My 6th (& last!!) one is on the 22nd. I agree totally about the weight gain & will have a look at the 2 day diet.
Had 3 scans last week and am seeing oncologist and surgeon on Friday to discuss the surgery. Last time I saw the onc she said the lump had shrunk and might be WLE rather than mx. - at least if it’s shrunk it shows the chemo is doing what it’s supposed to! At this present moment in time I’ve got to try to hold on to that thought - not sure would continue otherwise. I really want my life back!
Take care everyone
Hilary x
Had the scan, had the lunch, now I am off to see the onc, wish me luck, xxx
Ditto Hilary!
On my way to hos now. picc line leaking! yuk! great fun at Queen Elizabeth hos this morning. Not a single telephione is working!!! Thank God someone actually picked up the emergency fone!
oh Lolly - you ok?
QD x
Cress/QD
Hope all goes ok thinking of you both
Wendy x x
hi to you all,
i did post yesterday but it has not shown up.
My blood transfusion went well didn’t feel any different for a couple of days, now i feel as normal as i can just ready for my FEC today at 11am, to be beaten up again for the next two weeks, but ONC is reducing my E so hopefully i should sail through this one, as i have no Picc line now to get infected or give me blood clots, i have extra medication for my mouth blisters so hopefully i wont get them this time. Saw ONC last Friday and because i am still huffing and puffing she is sending me for another ECG to make sure i have not been damaged with the FEC if that come ok i have to wait until i have finished chemo if i am still out of puff i will have to go for tests on my lungs, but i am feeling much better since blood trans so hopefully i am ok now. 
This will be my 4 FEC so only 2 more to go before my Rads of three weeks still seems a life time away but we will all get there, ready for our summer party
take care one and all, HUGS to you all.
lolly
x
Morning everyone , cress glad you feeling abit better and hope you enjoy your lunch with not a diet food in sight , cybelle , thinking of you today and your tooth , shellebelle sorry about the reaction that’s sounds so horrible and traumatic , hi lolly hope you feeling better after your transfusion , lung problems too!!! Good god , is there anything that chemo doesn’t mess with , love to everybody I’m on day 6 post 4 th tax and C so not feeling too great so sorry if I’ve forgotten anyone .
Whats with the bowels as well , wish they could make there mind up , can’t go to wont stop to now extremely painful piles!!! Sorry ladies , I’ve been up all night with them , why can’t they knock us out for the duration of chemo again ?
Weight gain , I’ve put on about 7 lbs , so I’ll also be giving the diet ago after this is done with , I hadn’t lost my baby weight and that was 3 yrs ago so I wasn’t happy with my expanding tum beforehand , can’t even think about it at moment xxxxx
“Curiouser and curiouser”, said Alice. The nurse removes my dressing. it is brown, crusty and yukky - particularly where the picc line is anchored. she smells it - clear. the picc line entry site - clear! so she swabbed it and redressed it. Possible reason? - my body is rejecting the picc line. nooooo! its got to withstand another 2 chemos then we can all reject it!!!
we leave the ward (6th floor) and the lifts are out of order - fire alarm. so we end up walking down 6 flights. Could’ve been worse - couldve been up. Good job Mairie wasnt with us - she’d have got really confused after 1 flight!!! Lol only joking! have you worked out the maths yet? !!!
lIsa - i was given proctesedyl for my piles. wonderful! cleared up within 3 days and this morning was a breeze!
QD x
Well - I’m finished with poison for a bit - just had FECx6 - so that’s me done and dusted!
Felt a bit strange leaving the chemo room armed with usual goody bag of meds but no further appointment. However my nurse was quite emphatic that they are not abandoning me. They are always at the end of the phone for whatever problem might crop up and my next appointment at the hospital will be to see oncologist as soon as rads are finished.
Pre-assessment for rads next wednesday and start them in exactly three weeks (for three weeks). I never thought I’d get to this point when I nervously presented myself for my first FEC on 28th November. It’s not been a pleasant experience but it has gone a lot faster than I expected. Mustn’t get too excited as I’ve still got all the side effects from FEC6 to endure but it’s nice to know it’s the last.
I hope anyone from this thread with chemos still to go manage to get through them and remain sane … soooo looking forward to the chemo fog lifting sometime after 3 weeks. Good luck with the root canal Cybele - had those - NOT nice, and Cressida I truly hope they are doing something positive for you, you’ve endured so much. Now all I have to do is offer up a prayer to the hair fairy in which I will plead for quick regrowth and less shedding!!! Having said that it has been wonderful never to have had to wear a wig or scarf making me feel and look normal so in retrospect perhaps my prayer should cut out the whinges and say “thank God I have hair!”
Good wishes to you all.
,
Just read my post. Now I’m thinking OMG I’ve jinxed myself. I may have had the last f"""ing FEC but there’s still time for the hair fairy to say “don’t speak too soon” and my remaining hair could literally disappear down the plughole! Noooooo!!!
Border Collies-Big big congratulations. Enduring 6 fecs is no mean feat! I hope the se’s aren’t too bad this time. At least you know each day is a day closer to freedom and not fec7!!!
Lolly-glad you’re feeling a wee bit better. Fingers crossed re lungs.
Cressida-Thinking of you and your onc appt. Really hope all is ok.
Cybele-Can’t remember what day you’re getting root canal work done. Can’t go back a page or I’ll lose post. I think root canal treatment calls for most flavoursome alcohol as a reward.
Lisalouw-Bowel issues continue post chemo for me. Think bowel is mighty confused.
QD-I’m trying to rest brain. Mental arithmetic too stressful! Sounds like you had a real fun day at hospital.
I’ve now had 9 radiotherapy sessions. Absolutely no reaction as yet. I’m not expecting skin to react until the end but so far, so good. I actually find it almost therapeutic. It’s a relief to get that pesky area blasted!
Tiredness getting better too. Still not opened Tamoxifen box yet. I am going to get such a row from nurse/doc/onc (whoever’s the boss at the moment).
Marie and border collies , it must be the best feeling knowing chemo over with , ive 2 more to go then surgery 4 wk after then rads, not sure how long they wait after surgery and rads , I’m sure I was told but I havnt processed that bit , QD can they just use your arm for the last 2 instead of picc, I hope it gets sorted and I’ll ask for that for the bum episode , I never realised that every movement you make contracts your behind , so sore , ouch , the delights of chemo , what would Pollyanna say to piles ?? Xxxxx
Cress, I’m now assuming that you ARE Prince Harrys’ latest squeeze, I’ve seen a picture of you and you’re a stunner!
Lolly, I hope FEC 4 has gone well for you, good luck with the SEs. I found FEC 4 a little less harrowing than the previous 3, I hope you do too.
Cybele, well done for getting so far with the root canal, at least you won’t have to worry about it for a little while now. Good luck with FEC 5 on Thursday.
Lisalou, I think even Pollyanna might consider piles a step too far to be glad about.
Maire, when will you start tam? I can understand why you want to delay it.
Bordercollies, congrats on completing FEC 6, you know now that this will be the last of the SEs and when you start to feel better you’ll stay better and won’t have to dread the darkness again.
QD, hopefully the stair exercise will have contributed to weight loss!!!
I had my bloods done today for FEC 5 tomorrow. I’m dreading it big time. Still, only one more after this and I’m sure that the whole tub of Ben and Jerrys Cookie Dough icecream that I’ve just eaten will help me through it. Where are those anti emetics I had, I think I need them now!