Have just found answer in radiotherapy thread which sounds promising, :
Hi
I delayed my rads by a month to go on holiday, both my oncs said it was ok as long as I started within 8/9 weeks of finishing chemo. The holiday was the best think I could have done, felt much better for the break after chemo & it meant I went into rads relaxed & stronger. Be warned though rads will leave you tired so don’t be shocked like I was if you feel knackered.
Hi Cybele, I have delayed my rads as going away. Finished chemo 3 weeks ago, rads 2nd April.
Hi Cybele - I had my steroids reduced gradually too - it certainly helped avoid the big dip so I hope it helps you too. One of my fellow chemo companions had her last chemo on 14th March and is off to Egpyt on the 9th April so has delayed her rads to have her holiday with her onc’s blessing.
Jayne x
Thanks Jayne, mz6507 - am feeling quite hopeful now about getting t o go away xx
Jayne - the difference with the extra steroids is HUGE. it’s day 5. FEC5, and usually I’m a howling banshee at this point in the cycle. Wish I’d got this sorted before…
Cybele,
I’m going away just after radiotherapy so may be suffering with sore skin but really need the break. It’s one of the reasons I’ve delayed tamoxifen as don’t want side effects kicking in on my holiday. I would def. ask for delay to radiotherapy. A holiday will do you the world of good. At the moment I’m looking into travel insurance. Bit of a mine field.
Maire - yeah, i think we ALL sorely need a break right now - I’ve had it UP TO HERE with cancer treatment.
Just so bl***y tired of it all now.
So sick of people DOING STUFF to me.
Extra steroids are really helping with side effects this cycle but it’s still day 5 and RUBBISH.
Did too much on steroid high yesterday and now so exhausted I can hardly do anything. And weeping a lot today…
Some time in the sun to rest and get strong before rads would be so good - also just to have the poison of chemo completely out of my system before nother assault on the body from the rads…
Cancer treatment is just so BRUTAL.
Sorry, am very whiney today.
And YAY for you delaying the Tamoxifen - I agree totally, get one poison over and done with before you have t ostart on another one…
Holiday to Rome now booked. Yippee. Just hope tit doesn’t fall off after radiotherapy. Off to see chemo nurse tomorrow and will prob. have to come clean about the fact I still haven’t popped the bad pills.
Heart scan on Thursday, Herceptin on Friday and final booster rads on 27th.
Hope all the crackers are coping.
Hi Ladies,
Well, the people who couldn’t spot my cellulitis now tell me it is cured. I have lost confidence. Unfortunaltly I have lost confidence in everyone so a second opinion probably wouldn’t help as I am now clinically paraniod and I don’t think anyone beleives me or is taking me seriously. They tried to convince me, they even called the palliative care consultant to review my pain treatment. He prescribed new drugs. A variety of controlled substances that you have to sign for. And some Lorezapam on top (small whoop).
Sat in the pub crying aftrerwards as poor hubby tried to calm me down. The only thing that slightly worked was promising me a week in Jersey in an overpriced hotel for my birthday next month. The paranioa demon (not sure if I borrowed him from Cybele or if there are just loads of them) tells me I won’t get to go as my temp will shoot up and I will be forced back into the hell hole they call hospital. I assume you don’t need health insurance to go to Jersey? It is the UK. Anyone know?
I am still in constant pain. I can’t get undressed by myself or have a proper wash. My husband has become my carer. I can’t drive or walk far enough to get anywhere. I have a bl**dy blue badge. What happened to my life? Has someone else got it? I WANT IT BACK.
oh Cress - youve gone through so much. Its not blumin fair. hug hug hug x
Cressida-You really have had rubbish luck. Well I say luck but you’ve been massively let down by those ‘in charge’. I keep coming across stories of people who ‘knew something was wrong’ but were dismissed by doctors. I just hope this time the docotrs are right and you start making progress. Please let the good days be on their way for you…we need you here!
I’m still off my face on steroids , and it’s day 7 and the chemo is still horrible even with the steroids.
Keep telling myself I’m giong to be feeling so much better in a couple of days.
Had another emergency trip to the dentist as temporary filling fell out and tooth twingeing again.
We have now agreed hat the root canal is too difficult without sending me to Guy’s for general anaesthetic and f*** that for a game of soldiers , so I will be having tooth extracted at end of April at end of last chemo cycle, thank God.
Good news is that oncologist has okayed trip to the Aegean, so I will be off to turkey from 7th-20th May, and I think that will do me a lot of good and save my sanity, which is feeling sorely tried right now.
JUST ONE MORE FEC, then I get my life back…
Am not too worried about the rads, it can’t be a hundredth as bad as the chemo has been…
Cress - yeah, I wouldn’t believe them either, incompetent t***ers…
You are constantly in my thoughts - hoping so much that things will get better for you soon.
I am simply not bothering with travel insurance, by the way. It’s a rip off at the best of times, and as a cancer patient, it’s just too ludicrous for words. There’s nothing cancer related likely to happen while I’m away -tumour gone, chemo done, so I will in theory be healthy.
If God chooses to strike me down with another thunderbolt, then so be it, but I 'm damned if i’m paying a fortune to some insurance company when medical treatment in Turkey is pretty cheap, anyway…
That’s me had my 15 radiotherapy sessions so just need to get the 4 boosts and that’ll be done and dusted. Had heart scan today too. Feel I should be glowing with radioactivity.
hi to all you Crackers,
Been on here daily to read all your news but have been feeling very Car sick when i read or type but tried to keep up with you all. seems a few of us are thinking about holidays i have just booked 10 days away to grand canaries in October i am hoping all these Side Effects of Chemo will be well and truly over by then, i am on day 9 Fec 4 i have not had such a good time again this FEC feeling quite sick all the time if i read, type, or knit so just been watching TV alot, today is a good day not to sickly so been able to do a bit of computer lurking.
Well thats my news hope you are all ok.
Lolly
xx
hugs to you all too ((())
Another failed chemo attempt. Looks like me and taxanes do not mix as allergic reaction even with pre meds and slow drip, so now going back to EC 90 for final 2 doses. Not quite as effective as if I had managed all 3 docetaxels but at least I got 1. Been told only makes 1-2% difference and risk of trying taxanes again is not worth it. Resume treatment Monday. . . . So, full of steroids, anti sickness drugs and antihistamines for nothing again.
Feel crappy, fed up and so very tired and emotional.
Shellebelle -that’s bloody wrotten. I feel for you.
Lolly - great to hear from you…not great that you’re feeling car sick all the time…
Although Ive had some pretty rough side effects and real trouble finding veins and getting blood. I had my final chemo session this morning. Ive been selected for the Suprimo trial and will be the 50% getting rads so start in 4 weeks. 15 sessions to chest wall and then reconstruction 6 months on from that…and Ive been excepted for gene testing so am just waiting for a date.
I took my kids to chemo today… i thought it would be nice to meet the chemo nurses…as there are only 2 at my hospital and i get one to one attention so i thought it would be nice… i also thought that it would dispel any myths as for me most of my sessions have actually been alright… it has just been once the steroids wear off.
Anyway they only stayed for 15 minutes gave the nurses an easter egg and said thank you for looking after me…for me it was mixed emotions. the nurses have been a crutch for me and i will miss them but actually i’m not sure i want to see them again. i think once i actually accept what has happened to me for real, i hope i will feel differently.
Im sorry im a bit behind on all the news…so love to everyone and we’re all nearly there…
Maire - well done you…xxxx