Of course its only in my wildest dreams!
Happy April Fool’s Day!
Louise
I was given just the one injection to do the day after chemo day (Neulasta) to boost the white blood count. I don’t think I’ve had problems with mine. I did feel like I had a cold - runny nose and sore throat and just felt rubbish, but my temp never went higher than 37.3. The SE I had with that injection was more bone pain which wasn’t very nice. If anything I feel I’ve been left alone to fend for myself, like I should have had steroids the day before, but the first cycle I wasn’t given any.
This is a tribute to the hard working forum techies. I only mention gals in it, but I’m sure the guys on here would agree too.
Forum Techies
This place that we all come to,
once or twice each day,
brings peace into our lives,
and helps us to cope along the way
While friends we make along this road
and share our journey with,
all help to ease this heavy load
and to us, comfort give.
So thank you forum techies,
who live below the stairs,
for giving us this outlet
to share our joys and cares.
And so we all salute you,
our unknown, hidden pals
for your hard work and patience
with all we cancer gals.
Love Kath xxx
LOL Louise, if only eh. x
Fec T
Fec 3, day 12
Diane, I’ve just found your new photo, stunning.
Chris, you never said a truer word about my side effect being a bit of an arse, knife up the arse in actual fact. I think it’s inflammation. But it hurts like hell. 
Lisa, such a lovely photo of you and baby. Isn’t new life exciting.
Karen, good luck for tomorrow’s Tax. It’s like starting all over again isn’t it. Mine is next week - 11th.
Amber, well done for refusing nurse. It’s a bloody shame we are often put in this position at all.
Sandra, you can’t even drink tea - how will you manage? 
Louise, you had me going there, good April Fool joke. 
All those eating for England, I’m like that while having injections, it usually settles down afterwards.
Yuk alert - I’ve been pooing buckets over the last two days. Not diarrhea, just lots and lots of the stuff. Now I feel as though there are knives up there. 
No constipation, and no hemorrhoids, although I have used the Germoloids cream. Perhaps it’s the masses of peanuts I’ve been eating too. Unsalted of course.
Huge cuddly hugs to all.
Love Kath xxx
You’re not wrong Kath, it’s a friends little boy and he was just scrumptious. Sorry to hear you’ve been suffering a little in the toilet department. I took Senakot but thankfully never experienced pain you’re going through just a bit of bleeding. It’s got a lot to answer for this bloody thing hasn’t it?
FEC-T, FEC cycle 3, day 5
(Kent Oncology Centre - treatment at both Maidstone and Tunbridge Wells hospitals)
The sun has at last found Kent and a friend got me off my backside for a brisk walk this afternoon (brisk because it’s still cold in the wind)…. So home now and knackered.
Then Louise made my day! Congratulations on keeping the sense of humour….
Gill
Lisa, I have used sennacot when I did have constipation, don’t need it this time, and no bleeding. Just pain. I think it’s related to the injections as pain starts in rectum then spreads up into my spinal chord. I’m convinced it’s caused by inflammation, as it’s just like having a trapped nerve - but in my BUM??? Started on day of last injection, it usually only lasts the one day, but this is the third day now!! It can go and do one .
Sandra, Sorry to hear your having a rough time again. I hope all is sorted now and a good rest has done you the world of good!!!
Amber , I had my blood taken the morning of chemo 3 (or what was meant to be chemo 3, it got delayed by a week as I was neutropenic) they just used a different vein. I took from the crook of my arm and give chemo in my hand – I think as long as the vein they are using isn’t damaged, which could lead to leakage, they are fine.
Louise , Ha Ha Ha – in our dreams – I hope you get there one day though!!! Luxury spa (goes misty eyed).
Kath , I am with you there on the pooing front, although mine was due to the antibiotics (or so I am assuming). I am not sure where it all comes from?! I had a thrush infection which was like pooing razor blades. It made me sob each time I went loo. When this spread and it was out in the open I was diagnosed properly and given Fluconazole tablets with canisten cream too (canisten duo over the counter). It took over a week to diagnose this so I suffered for a while with no end in sight. I had infected split open wounds and they really hurt, it was a relief to take tablets to clear it up. However the antifungal didn’t mend the splits, just the infection, and it was still sore to go (and when you’re doing this 3-4 times daily and sometime more you sure feel it). I used anusol last week and it cleared the splits up. I am still slightly sore, but it’s not eye watering anymore. However, it hasn’t stopped the frequency – I am just getting back to my normal diet after a month from starting the antibiotics – for the first few weeks I was on low fibre and still going for England!! I hope you get something sorted, don’t let it get out of control!!
My boob has started to itch – the WLE one around the scar area. I can’t see anything on it, but it feels like something is scratching on it and irritating it (like scratchy material). I’ll keep an eye on it.
Hope you all had a lovely Easter weekend
Alison xxx
I think one or two of you might be teachers - or have I misunderstood - quite likely!! Anyway, this is just a bit of fun. Wrote it for a teacher I used to work with (I was a mid-day supervisor in a school for disabled children).
Untidy Classroom
There are crumbs scattered over the table
and orange squash spilled on the floor.
Somebody tore up some paper
and dropped it, just there, by the door.
The tin for the crayons is empty,
to find them - we’re all at a loss,
so no-one can draw a nice picture
and teacher is looking quite cross.
So you fetch the brush and the dustpan,
and I’ll fetch the waste paper bin.
Everyone search for the crayons,
and put them all back in the tin.
Let’s make our class clean and tidy,
keep it as nice as we can.
Clean up the mess and put things away,
so everywhere looks spick and span.
Love Kath xxx
Hi Ladies,
thanks to all who replied to my recent post regarding taking bloods from my affected arm, I’ll be having a word with my chemo nurse. We shouldn’t have to stand up for ourselves normally I wound have gone with a nurses decision but alarm bells were ringing.
love your posts, they are so helpful hope you all had a good Easter xxx
Definately gremlins Linda… all my posts have just showed up!!
Love the poem, Kath! I’m a teacher and reading this really cheered me up. I teach little ones and really miss the hurlyburly of classroom life. I can certainly relate to missing crayons although there is always one table which seems to have triple the amount of colours than the others. Rubbers also go missing on a regular basis, but nowadays they seem to be ornamental rather than functional, usually in the form of figures or animals. I remember once quickly grabbing a rubber sitting on a table to rub out an incorrect spelling. I’ll never forget the look of horror on the owner’s face when she realised her animal rubber now had a smudged bottom - I had committed the cardinal sin of actually using one of these expensive, decorative rubbers!
On the subject of bottoms, I’ve had a bit pile trouble too. I think I’m using one of the creams mentioned above, although not that eye watering device included for application. I might also have oral thrush - stinging, white coated tongue??? The on call oncologist suggested Fluconazole, which can only be obtained via prescription. I’m hoping it clears up on its on accord, but I guess I’ll just have to monitor it.
Apologies for no personal comments. I’ll try to get my a*se into gear in the next few days. My thoughts, though, are with everyone starting a new cycle this week, and especially with Linda - I’m not sure when you begin, but I hope anything you experience will be minimal.
Diane xx
Love your pic Diane! X
Kath , lovely tribute to the techies I’m sure they’ll appreciate it. You sound a bit brighter in spite of the poo! I too am going for England and have had to buy a tube of Drapolene, not used since I had babies.
Louise, I fell for it hook, line and sinker…
Gill , my fiends made me walk in Derbyshire today. Glad I did but was shattered by the time I got in.
Love the hair Diane!
Alison , it sounds as if you may have an internal stitch or a knot coming through. I had one and it was very itchy and sore for a few days. Eventually it worked its way far enough for me to see it properly. Keep an eye on it 'cos mine got infected. I treated it with Savlon and eventually gave it a sharp tug to pull it out. No pain as the area is still numb. It left a little scab-like hole but it healed up very quickly once the damn thing was out. Hd one under my arm from ANC too.
I have had a very strange thing happen today. Am going to start a general post about it tomorrow but will mention it to you all first. I’ve had a bruised feeling under my left boob for the past 2 or 3 days but have put it down to wearing more normal bras as I’m out and about more as I’m feeling better.
This morning in the shower I reached up to scrub under my arm as you do and felt a dreadful stabbing pain. I could feel what I can only describe as a tendon UNDER my boob stretching right down to below my ribs. With my arm up it was tight and obvious, with my arm down it just felt like a bruise.
Keeping my arm up I massaged it gently with body lotion which seemed to ease it. As I was doing it I felt a twang, like an elastic band going and the thing disappeared along with the pain. Weird or what?
I broke a cardinal sin and Googled and it sounds like cording. Anyone got any experience? Am planning on ringing the hospital ASAP tomorrow all the same. I feel fine but still…
Hope you all sleep well.
Big hugs,
Mandy
FEC-T; FEC3, day 6
I seem to have found this cycle harder than the previous 2 so far, the first 24 hours were much improved with Emend, but since then I just feel like I’m not getting anywhere. I suspect in part it may be because it’s been the bank holiday weekend, so there have been people around me all the time, on easter sunday I managed to stay up all day and had a nice roast dinner with visiting family, but paid for that yesterday and pretty much couldn’t get out of bed. I still feel sick, exhausted, achey from the neulasta, and I have piles!!! OK rant over…
Good luck for Tax 1 today Karen.
Kath, “The day that cancer came” really says it all, spot on.
Mandy, I would say go for it with the hickman, it’s annoying at times, but overall I’m learning to love mine, and no sore arm!
Jo
x
Good Luck Karen. X
Karen - hope all goes well today. My first tax is next week so keen to hear that your experience is reasonably positive!
Angie xx
TCH CYCLE 3 DAY 6
Morning Valentines
I hope you all had a lovely Easter Break. I,ve been skimmimg over all your posts but please forgive me if I,ve become a little lost.
Well had cycle 3 last Thursday and this time it really knocked me unlike the last 2 cycles. I have slept for about 4 days on and off just totally exhausted! Food tastes really weird too which hasn’t happened before I guess i’ve had it easy.
Getting a little stresed about avoiding hospital again. So far been in for both cycles and usually on day 7-8 of cycle which starts tomorrow. I started my injections a day earlier hope this helps. Its my birthday on Saturday and dont relish the thought of spending it in isolation in hospital over the weekend. My family are actually well this cycle (touch wood) so hope to avoid getting ill.
On Easter monday I was getting cabin fever so hubby suggested a short drive in the country…off we went and on our journey we saw a sign for Brighton 25 miles so went onto the seaside on a whim…we know how to live!!! We had such a great time the sun came out as we arrived there. We only spent 2 hours at the seafront but that was loads. We went on the beach with the dog such fun she barks at the waves we laughed so much. It was really cold but we were wrapped up well. The fresh air, the sun and the seagulls made me feel normal for the first time in ages. We had chips on the beach and visited art shops/galleries dotted along the seafront. I went on the large carousel much to my teenagers embarrasment it was such fun and life felt good. Bl***y cancer still always in the back of my mind but still had fun. I slept all the way home in the car and spent the evening on the sofa but felt happy to enjoy some fun family time. Like many of us I feel like a recluse recently. We were invited to some social events for Easter but I,m too scared of catching something!
Wore my new wig to Asda the other day just to try it out. I still have about 30% ? of my hair due to CC and it felt really slippy. Hubby said it looked fine but I just didn’t feel right and was expecting it to ping off any minuite. After about 20 mins I slipped off to the loo and changed into a hat…phew…much more comfy!
LOLA I am on TCH too but for me due to heart problems. I know there are others on this regime too on this site.
LOUISE loved your post re holiday treatment congratulations PLEASE take me with you?? XXXX
Well the suns shining here and I,m sitting up in bed with a cuppa decided on a very lazy morning. I have a 12 oclock telephone appointment with Occupational Health wondering how that will go.
Take care my lovely Valentines
J xxxxxxxxxxxxxxxxxxxxxxxxx
Hi Vals
Just a quick question re eyebrows. Wondered how you are all doing?
I am on TCH cycle 3 day 6 so far have thick eyrbrows ans lashes wondered what yours are like?
Hugs
J xxxxx