Hi Lavendersun and welcome to the February Valentines.
I’m another one due for Herceptin. Are you having a line fitted? 12 months of infusions sounds awful from a vein point of view, but I’d rather try to manage without if at all possible. I am also intending to ask for Emend, but am not holding my breath. Love your wig story. I hope to find one similar to my own hair and hope no-one notices!
xxx
Hi sarah and lola and all Valentines
Yes it will be very interesting and supportive swapping notes.
I have not had a line fitted YET! but could well believe I will have to asmy veins are rubbish!
I wore my new wig over my hair yesterday evening my kids came in and didn’t notice… hubby came in and asked if I’d been to hairdressers? Ok thats given me a little more confidence though don’t like the idea of it slipping around. Its very windy today note to self not yo wear my wig in a hurricane.
Anyway i,m getting more addicted to this site then facebook and housework not getting done.
Going to parents eve later I informed school what is going on at home now feel a little self concious about going in. Guess its not as bad as whem im a baldie lol !!!
Take care all. Will update soon
Lavendersun xxx
Thanks to Kevin for that lovely post! I’m so longing for that day to arrive when I feel like I can breath again without thought.
Thank you too Karen, for sharing your experience! So glad you are not doing too badly so far and I am willing it to stay that way for you! x
I have to confess I’m really not dealing with the wait very well at all and I feel so guilty about it as everyone else seems to be doing so well, even though some of you are having a hard time of it. I am in awe of you all! I really hope I can stop being such a wimp and can get my positivity back before the 8th. OH is taking me away for the weekend to give me a boost. We are off to one of my favourite places in the world, Snowdonia. Should get some mountain and beach walks done. Packing waterproofs and woolies! Hope to be in a better place by the time we get back.
Good luck to all Valentines who have appointments today! xx
Mandy, please do a list for us, it would be lovely to see who we are and where we are up to at a glance, I lost track a while ago!
Hugs to all
Elaine x
Going away for a break is an excellent plan. I got my diagnosis on 28th December and OH and I went off to a holiday cottage on the 29th for a week right over New Year. It was the best thing we did. It blew the cobwebs away, took our minds off everything at home, and did us both the world of good. When we came home we felt we could face what was to come with a clearer mind - and it has worked so far.
Elaine - it will be brilliant and I hope you have a wonderful time.
Lavendersun - thanks for making me laugh, and sod the housework!
xxx
Good luck for Friday Angie, and for Monday Jan. My goodness, things are really getting going now. I’ve got THE TALK tomorrow.
Kevin, thank you for sharing the good news about your wife. Gives us something to look forward to.
Had a letter from my chest physician to see if I want to do 2 weeks in hospital on IV anti biotics to give me a good start for chemo. NO I DO NOT, thank you very much. She’s requested my GP to put me on Azithromycin. One on Monday, one on Wednesday and one on Friday?!? Thing is, they are derivitives of Erithromycin which I am allergic to. They make me vomit, and that’s one of the main side effect to Azithromycin. Not started them yet. Going to take them with me tomorrow and see what they say. Hasn’t anyone told my chest person that chemo can make you vomit? 
Typing all those long words has made my fingers ache.
I need that list you’re making millymolly, already forgetting who’s who!!
Hugs to all. Kath xxx
Elaine – don’t think for a minute that your’re a wimp! I’m just before you, starting on the 6th. I managed to keep things out of my mind by keeping busy – until yesterday when I went into hospital to have my bloods done and tour the Chemo Suite. At that point the whole thing became very real. All of a sudden it stopped being a research project and started being something that was actually happening to me. I’ve not been quite right since. So believe me, I really understand just how you feel – we all do. Going to Snowdonia for the weekend sounds a very good idea!
In solidarity, Louise
Hi all,
Karen - It’s good to hear that you’re doing ok.
Debbie - hope all has gone ok today.
Lola - hope meeting with surgeon went well today and they have a plan for you
Lavendersun - I tried on a Rod Stewart wig too, hard to believe anyone actually buys that one…
Elaine - you’re not being a wimp, most of the time I’m managing to be quite positive, but I have my moments, usually in the early hours of the morning when I’ve woken up and can’t get back to sleep. I think the only reason I seem to be coping so well with everything most of the time is that it doesn’t seem real, I’m making all the preparations, and reading up on stuff, but I feel perfectly healthy so I don’t think I fully believe it’s really happening to me, even though I only have one boob instead of two nowadays… I don’t think it’ll really sink in that this is really happening until the first chemo actually goes in. Your weekend away sounds like a great idea.
My hair appointment is tomorrow morning, I’ve got a few photos of suggestions for the hairdresser. I’ve always had long hair, and I was dreading getting it cut as it’s like it’s part of my identity, short hair just isn’t me, but now I’ve found I’m almost excited about it, it’s quite liberating to think if I hate it who cares, it’s only going to be there for a few weeks and given me the opportunity to try a look that I otherwise would never consider.
Jo
Hi Lola,
I had my vaccinations before my op - on the day after diganosis I phoned up. I had sat at the doctors for so long a few weeks previously waiting for my appointment after finding the lump I got to read all the information flashed up on the telly screen. The flu jab was just one snippet. So when I was diagnosed I phoned up and got an appointment that day.
I had SNB and all was clear - so I can’t help you on the jab and node clearance. I would just phone your doctor up and ask - they should know what is best.
Alison
Here’s to getting drunk in a years time!!! Thanks Kevin!!!
I also found this website and thought it may be useful to us:
http://www.chemosolutions.com/how-to-tie-head-scarves/
_ Lavendersun _, welcome to the Valentines.
_ Elaine _, I don’t think any of us are dealing with the wait very well. Enjoy your trip to Snowdonia, but KEEP WARM.
_ Louise _, Thinking of you for 6th.
_ Jo _, Don’t get too used to short hair, you won’t have it for long… 
Hope I have some news for you after tomorrow.
Hugs Kath xxx
Hi again everyone,
Bad news for me today.
My surgeon confirmed the good news that she removed my invasive lump with good clear margins and there is no node involvement. PHEW.
However, there is some DCIS within the IDC tumour and this extends into the margin at one side - with only 0.5mm clearance. This is too narrow a margin - they like to see 2mm - so she has booked me in for a second op. She will go in through the same excision place and shave off a couple more millimeters from one side of the cavity where the tumour was. At least there will be no armpit surgery and no wire insertion, and thank God all the invasive stuff has gone. Just feeling like I’m back at square 1 and have to wait now until 22nd Feb for this second op. so no chance of any February chemo for me … may have to leave all you lovely ladies.
Good luck tomorrow everyone. xxxxxxxxxxxxxxxx
Oh Lola, don’t leave us, we all want to know how you get on. Is it too early to wish you good luck for your op. What a crock, having to wait until 22nd. 
Just when you thought you were moving on to the next stage. You’ll always be a valentine to us lola .
Hugs Kath xxx
Hi Kath, and thank-you! I won’t leave you - I don’t want to cock up Mandy’s list! 
Sorry Alison, I should have said before - thanks for your reply.
Just a bit shellshocked (again) at the moment!
Hello Valentines,
i am still on track to start chemo on Friday. Not anxious - it really helps reading what others have been through. before that I have a MUGA scan tomorrow which involves being injected with some sort of blue dye and a radioactive tracer. This will happen in the Nuclear Medicine Department. This is almost cool! I am having my hair cut short after that. Do you find that - apart from Judi Dench - it is impossible to find photos on hairstyle websites of any short cuts on women over 30? I will feel awkward pointing at pictures of Keira or Carey at my age. I have stocked up today on moisturising creams and massage oil. My lovely friends bought me a goodie bag of sweeties and magazines to amuse me in boring moments.
Angie x
Good luck for tomorrow Angie. I go nuclear on Tuesday pre SNB mark 2 (other side)
Lola - Don’t you dare leave us - This list is permanent! Silly thing 'though, I missed myself off it!
Hope this works. Have gone down the thread in order of posting (except myself 'cos I left me off at first - duuuh!) - If I have missed anyone off PLEASE forgive me I’ve used post names although I do have real names for those who have posted them. I’m not sure how to send private messages to each other. Have tried to add all as friends but nothing seems to happen. I’m probably being very stupid. If we can find a way of private messaging we could let each other have more info if we wanted to. Think on and we’ll see how it goes.
M xx
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tittlemouse! How are you? Hope you’re not feeling too bad.
Alison - thanks for the link to the scarf tying video. Went out and bout some today - very cheap at our church charity shop. Got them washed and dried and had a go…I think I may need more practise (and my arms ache!)
Hugs,
M x
hi all, i to will be starting treatment in feb and would like 2 find some new friends who know how im feeeling my cancer is her2 positive and also of the mucinous type??? all very bewildering, got to meet onc next week for first time 2 discuss treatment plan, would be greatfull 2 chat , feels kinda hard 2 get my head round right now. x x
Good luck too millymolly_m.
Hi all!
Had my appointment with oncologist today. Am having 3xFEC and 3xTaxotere. Due to start that in about two weeks. Having pneumonia jab tomorrow (had flu jab last week and nurse wanted me to check with oncologist about pneumonia, she said it was a good idea so am having it done in the morning). Going to try the cold cap and see how it goes but if I don’t get on with it then am going to bite the bullet and shave it all off!
Have been told that I can start Herceptin on the 4th chemo (as it is compatible with Taxotere but not FEC) so that’s good news as thought I would have to wait till after rads to start that. Got bloods and a heart echo to do in about ten days.
And that’s about it. The ball is officially rolling… 
Hello Valentines!
Im sorry if this seems a bit of a me me me post but my head is all over the place tonight…
Prior to today I was in the “waiting room” Surgery all done and dusted just waiting for my chemo start date. This morning 5 appointments all came through at once. 
I am delighted to finally get my start date so I can crack on and start and I’m not worried at all about chemo or it’s side effects however…ever since I had the most horrendous time having my core biopsy I seem to have developed a fear of needles. The pain I suffered during this procedure was the worst pain I have ever encountered in my entire life. I would rather give birth or have my tooth pulled with no anesthetic than go through that again.
I am getting myself in such a state about the PICC insertion. I know it’s ridiculous and if you knew me you would be laughing as I’m tough as old boots normally. When I told my husband tonight when he came in from work he said " You are joking right? after all you have been through in the last 3 months and you are worried about this?"
Has anyone had this done yet?
Funki X