Alison , just read your post & laughed out loud , love the idea ! I’m going from long to a short pixie crop on Friday but think going purple would just be a step to far for me lol ! I showed my daughter a picture of the style I’ve chosen & she just said I would look stupid !! Great ! attitude from a 6 yr old , she changed her tune when she realised I was being serious , haven’t told her why yet that’s the next step.
See your still at work , do you intend to work through treatment if you can ?
Karen x
Millymolly
Understand perfectly. Who’d want to put it off, not me. Anyway, the sooner we’re started, the sooner we’re finished. Almost put that back to front. Must get some hats/scarves too, don’t think I could cope with a wig.
Honey, so sorry to hear of your news, but glad you are getting over surgery. All I can say is Let Battle Commence!!
Good luck everyone
pg xxx
Wishing you the best of luck for tomorrow millymolly, I agree, the waiting is awful and I just want to get on with it too so I know what you mean. I ended up having three surgeries on the bc side and they did some random biopsies on the other while I was under which, thankfully, came back clear but the waiting for those results was horrible.
Thinking of you and all of you that have results/appointments tomorrow. Xx
Hi Everyone,
i can’t believe how many have joined this thread so quickly, it saddens me but also im happy there’s people to chat to through this experience. Bumped into a few people I know over the weekend who completely avoided any mention of the c word or the fact that ive just had an op- I know they know as it was like an elephant was in the room- soooooo awkward!! Yesterday my little girl asked me when I’m going to start having my ‘medicine’, took the opportunity to explain about my hair falling out and that it will mean the medicines working, she replied “ok I will watch out for that” then asked me if it will be like her friends mum who sure enough is just recovering from breast cancer. Children are definitely more resilient than we give them credit for!!
Hope everyone’s appointments go well this week, also I feel humbled and lucky today after reading some of your posts- indeed let this battle commence! Onwards and upwards valentines!
Sarah x
BLuerose - I went to get the flu jab straight after diagnosis and got a pneumonia jab thrown in. So I had one in each arm!!! The flu jab was fine - but the pneumonia jab was a totally different story. I had to get people to help me in and out of my coat. It didn’t just hurt to move but to touch. Even the duvet touching it hurt it. I would recommend having it as a few days of hurt are better than getting pneumonia - but I would get it sooner rather than later as you don’t want to add that to your list of reasons to feel sorry for yourself. It was only sore for a short while and I had it in my left arm (I am right handed).
Karen - Don’t you just love kids!!! It’s really hard to image what short hair will look like until it’s done. Mine is thankfully already really short, but last hair cut I just got the clippers out as I couldn’t see the point of going to the hairdressers for a few weeks of style. I did a number 8 all over and trimmed round the ears. I am back at work, but have a project to work from home during my chemo. I will hopefully work 2/3 full time flexibly during the treatment and take 1/3 sick. I am not sure how this will happen and my boss is sorting it out now (it’s a lot of paper work).
Honey - HAPPY BIRTHDAY TO YOU!!! Have a great time and try to spend a least one day forgetting about what’s happening. I hope you are spoilt rotten!!!
Milly Molly - good luck tomorrow
Sorry if I forgot anyone - I have read all the posts but my memory isn’t what it once was.
Thanks Alison. Going to phone up my gp and try to arrange that soon.
Bought a couple of hats today. This all feels so weird - talking about starting chemotherapy - I mean it’s CHEMO! It just feels like this is happening to someone else, not to me. I can’t really believe it. I’m not too scared at the moment but maybe I am in denial? Such a strange feeling.
Hi Valentines!
I posted on page 1 of this thread post #20 I didnt get a single response or welcome does this mean my membership to the February Valentines has not been accepted?
Funki x
Hi Funkilala,
Sorry you haven’t had any replies, but welcome to the BCC discussion forums, you’ve come to the right place for some good, honest support from the many informed users of this site. Anything you need to know just ask, there’s always someone around to answer your questions. To compliment this BCC’s helpline service is just a free phone call away where the staff are only too happy to talk to you, what ever the question. 0808 800 6000. Lines open Mon-Fri 9-5 and Sat 10-2
Take care,
Jo, Facilitator
So sorry Funki you never had a personal reply , your post was lovely too , very positive
Funki … Most of that last post didn’t print, not sure why ??? So second apology to you ! Of course you are welcome on this thread we are all here to support each other & there are no " clicks" , there wasnt many of us at the start perhaps that’s why ? & I don’t post too often cos I don’t want everyone thinking " not her again !! " lol …anyway I hope you stay with us xx
Hello Funki
Sorry you were not felt welcomi, of course you are! And all the others that have joined so far.
As far as I can work out in our group so far we have Karen, Alison, Blue Rose, Sarah, Zuzu, Poemsgalore, Jennifer, Yankee, Blue Sky, Dawn, Honey, Milly Molly, Yourself and me! We all find ourselves having to go through this through no choice of our own and we have all come here to support each other so everyone is welcome and I’m very happy to virtually know you all
If I have missed anyone please , please do not feel it is because you are not welcome it is because there are so many of us and hard to keep up sometimes with all the new names. Maybe just give us a nudge and remind us you are there.
I’m off to see oncologist today so should have my start date later. Was having a bit of a wobble yesterday, think my imagination was running away a bit! Hard not to at this stage as none of us knows what to expext or how we willl react to chemo. Sure it won’t seem so bad once we know :-/
Take care, hugs to all
Elaine x
Funki - I am not sure how you slipped through the net and can only appologise.
Good luck tomorrow at the oncologist. I have my appointment this afternoon and am keeping myself busy. I have decided not to go to work for each hospital appointment. I did on the first one (diagnosis), shouted at a colleague, threw something at him and then cried. Poor bloke - full on menopausal women in his face. He was being an arse though!!! From then on I have taken each one off. I have an opticians appointment this morning then I am going food shopping then to the hospital. I think we are all mostly worried about how ill we will be - stepping into the unknown. And we will all react differently too (or may do). It’s such a strange place to be (for a control freak like me).
I’ll let you know what happens today so you can be prepared for tomorrow.
A xx
I feel bad now as I was only teasing hence the winking smily.
Thank you for the welcome and replies, I feel like one of the gang now.
Good luck to Elago and Cucumber12 and anyone else that has an Oncologist or any other kind of appointment today. I shall be thinking of you. I would love to know how it goes today Cucumber12 so I can be prepared for mine tomorrow.
Looking forward to getting to know all of you
Funki x
Good luck Elaine & Alison for your appointment today x …and to anyone else who is going if Ive missed you …Im off for physio today dont know what to expect but Im hoping it will help my arm after my ANC… I see my ONC on Thursday
A few of us have commented on what a strange place we are in & I totally agree , it is like a rollercoaster with the ups & downs & some bits of the ride are ok & other days are like when you are chugging upwards to the top of the ride & the anticipation is scary, however the biggest feeling Ive had can only be compared to when you get on a ride & you want to get off but you cant !! , thats how I feel …so Ive just got to close my eyes & hope it will be over soon oh yeah & try not to be sick lol !
Scream if ya wanna go faster !!!
Karen x
Hi ladies, how great to find some valentine friends to share thismall with. I was diagnosed in September after I found a lump myself. The process was so quick but sadly they found two lumps during the WLI and more in the SNB. Still second op found no more cancer in the axillary clearance.
ive really suffered with severe muscle spasms in my back and six weeks after my second op I got a severe infection and cellulitis in my wound. Christmas and new year consisted of yoghurt and tinned peaches!!!
anyway, I hope to join you valentine girls and and just waiting for my first chemo session date. I’ve heard so much from everyone I guess I just want to get on with it now…
looking forward to having friends to share this with and get back on my motorbike and be free again of this bubble I’m living in!
wishing you all the best x
Sorry that you are having problems with your arm Karen, mine is still not back to its full range of movement 3 weeks post op but getting there. My main problem is the sunburn and being rubbed with sandpaper feeling I have down the back of my arm. All of the medication I have tried including patches impregnated with local anesthetic havent touched the sides.
Dear Valentines All --Like Funkilala I’m hoping that I’m officially part of your group. Not that I am accusing you all of not wanting me, but rather that I’m such a computer illiterate that I wonder if I have done the right things to post my message! I’m finding the wait between surgery and chemo almost unbearable, are any of the rest of you experiencing the same thing?
My second lot of surgery was on 27th December and at least it is beginning to be less uncomfortable, but almost every week since they have decided to do some new test. I think that I’m glad that they are doing them all, as it would be good news to know everything that’s going on, but since I don’t get any of the results until I see the Oncologist again on 29 January, I’m imagining all sorts of horrors! I also feel – no, I certainly feel – bring on the FEC-T! no matter how hard it is!
with regards, Yankee (actually, my name is Louise)
Hi MotoGirl - yogurt and peaches for Christmas - sounds dismal. You’ll have to make up for that when you feel like it and have a big blow out meal (and put the Christmas weight on).
I have had a bad back too - but assumed it was coincidental - I do suffer with my back, but it’s been good for so long now. It’s worse than it’s ever been at the moment and I walk like an old lady (the ice isn’t helping). I put it down to not exercising as much as I usually do (I cycle to work 2-3 time a week which is a 13 mile route) - but the bad weather and a bout of ‘i can’t be bothered’ means I haven’t cycled in a few weeks now. How does you back feel? Mine feels like my pelvis has been put on back to front. It twinges loads and sends shooting pains down my spine. The pain is lower back, just above the pelvis. Perhaps I’ll tell the oncologist today.
ALison
Hi all,
Wwelcome Funki and motogirl.
I’m off to see my surgeon (1 hour 50mins and counting). The waiting is dreadful. I hope she’ll be able to give me some idea of when I’ll get to see an oncologist.
ANC arm hurting like mad today, think its gone bad and am having horrid visions of what it’ll be like when they take the dressing off. I hardly slept at all last night. Feel like a kid before exams I’ve not revised for!
M
x
Welcome Motogirl but sorry you’ve found yourself in the position to need to join us. Nice to know your name, Louise and glad you were not really offended Funki but you were right to pull us up as it’s nice to be welcomed when you join
Hope every thing going alright today Millymolly, sounds like you’re getting it a bit rough at the moment, sending gentle hug!
Alison, thanks for the “purple hair” story, that made me smile
Seen ONC no appointments yet but signed my life away to 6 treatments of chemo every 3 weeks, I’m starting on 3 of FEC then going onto 3 of Docetaxel and carboplatin, (not sure why I’m on this as not sure if anyone else here is going on the same?). I’m then on a break for 6 weeks before starting radiotherapy to breast and arm pit, 15 treatments over a 3week period. Start hormone tablets sometime between chemo and rads.
Should be getting appointment through post to start in a couple of weeks and will be invited to a group session to the chemo unit to have a look around before I start.
The other interesting thing was that I asked about pneumonia jab and ONC had to check if needed and confirmed it was recommended, (think this is a new thing so not everyone is aware!). Have booked into GP to have mine this Friday, I went last Friday for flu jab and GP didn’t mention pneumococcal jab then either so best to check!
I’ve had a fair ammount of back pain too, Put it down to not enough exercise / spending a lot more time laying or sitting down and having to sleep on back due to surgeries (most unatural position for me.). Hoping Yoga will help when I can start back in a couple of weeks.
Karen, don’t be afaid of posting too much otherwise I will be overtaking the thread with my posts! It appears I talk to much even with my fingers ;-D
Hope everyones appointments go well today, let us know how you all get on
Wishing all Valentines some chill out time today, even if you can only manage a few minutes!
Hugs
Elaine x