Starting Chemo in February 2013: February Valentines

Diclofenac is much better. Even ibuprofen + didnt touch the sides. x

Thanks funki, I may ask for diclofenac aswell x

My pleasure X

Fec T
Fec 2, day 18

Busy week ahead. Oncologist on Tuesday and all being well, Fec 3 on Thursday. I see the weather is going to be cold with the possibility of snow - ugh, WHERE’S SPRING?!?

I don’t actually use Word, but if that tip works well, I may well start to, so thanks for that.

Sandra, glad you’re home - I hope you don’t have to go in again.

Lisa, don’t know what day you’re on, but sore scalp usually means hair is threatening to leave home.

Chris, what a b****r that you’re suffering this time round. Hope you pick up soon.

Mandy, glad you enjoyed the canal trip. We live near to the Erewash Canal and I used to love to watch them going through the locks. Bit of a walk though, so don’t manage to get down there now.

Angie, glad you had a good holiday too. My youngest daughter would be dead jealous of you, she loves Rick Stein but when she went to his restaurant, he wasn’t there.

Sarah, glad my sleep fairy poem helps you little boy sleep better. Only wish she did as good a job for everyone else.

Hope all begin to feel more ‘with it’ soon. It’ll be my turn next weekend probably. Right, I’m off to look for a nice poem to cheer everyone up - don’t all groan at once!

Love Kath xxx

You wont hear anyone groaning in this thread Kath. Your poems are wonderful X

I’ve got two lined up for today. This one is my way of ranting about people who treat disabled or elderly people as though they are 2nd class citizens. And I used Word, yippee, it works.

Anthem

Pretend you don’t see,
that’s right - look away
as you pass by her wheelchair
every day.
You with your laptop
and mobile phone
so much in a hurry
on your way home.
Just stop and think
as you rush for the train
and remember this -
she has a brain.

At sixteen she read Tolstoy
and Chekov too,
understood every word.
How about you?
At twenty she starred
in an Ibsen play.
Brought the house down -
“Who’s Ibsen?” you say,
as you vacantly stare
through the evening rain.
Remember this -
she has a brain.

She belongs to Mensa
and CND
camped out at Greenham
in '83.
She fought for freedom
in her youth;
said “Ain’t I a woman?”
like Sojourner Truth.
Take a deep breath,
look back again
and remember this -
she has a brain.

She had seven children,
strong girls and boys
who lived in a house
full of love and noise.
She taught them to care
for their fellow man
and make a difference
wherever they can.
Look into her eyes
so full of pain
and remember this -
she has a brain.

Don’t know why, but it put the 2nd one before the 1st

Wow Kath, that is an amazing poem and has brought tears to my eyes. I have copied it. Thank you xxx

Linda, don’t put ideas into my head
Sandra, next cycle, halfway through. As Karen said, Bish Bash Bosh. I don’t think any of us can wait until we can say ‘all done’. Take care.
Kath xxx

And I don’t know why my post now appears after all 3 of yours, Kath! I posted after the Anthem poem. Ah well, maybe you should write one about the forum and gremlins!

Oh no, now my message to Sandra comes above hers *&!***

Thanks Kath… 2nd time in hospital and Im sure hoping this isnt going to be a regular thing… repacked my hospital bag just in case :-(((…see my onc on the 25th as 3rd round of chemo is on the 26th… docs were talking that I might need more than 5 injections… apparently it can go up to 14!!. At least I got my old room at the hospital :slight_smile:
One side effect of the injections that I have noticed is ankle pain and really bad cramp!!!
Mouth is still sore and cracked corners of my mouth now… grrrr… cant wait for this jouney to be over and done with
Love to all Valentines xx

Thanks for the ‘Anthem’ poem Kath.

Hi Lisa, imon same and last time wa relly bad. pharmaist said do injection just bedore bed. seemsto have made huge difference, sleeping through most offilgrastim se`s.xx

I have also found it better to do my injections just before I get in to bed.

Linda, good luck for tomorrow honey, we are all rooting for you, and will be with you all the way. xxxx
Really bad acid today despite prescript, don`t know what to try next.
have a good night all, xxx

Love the poem Kath. I have often been astounded, when pushing pupils or my friend in a wheelchair how often people will address me as the pusher rather than the person in the chair. It embarrasses shop assistants when I point out to them that actually I’m not the customer.
I feel so lucky not to have any of the horrid bone aches described by so many of you. some research suggests that the one off pegfilgrastim (Neulasta) may have less bone pain associated with it than the multi jab filgrastim (Neupogen). Or maybe I’m not getting a strong enough chemo dose (oh! ohh! I can feel a panic coming on because I feel well!)
Digging a bit deeper the two regimes seem to be the subject of much discussion re cost effectiveness. This link is a bit scientific but interesting. How many of you have had 14 the max injections and are your levels tested daily until the (quote from research) ‘neutrophil counts are restored to the target absolute neutrophil count (ANC) of greater than or equal to 10,000/mm<sup>3</sup>.’ ?

Hope Jo and Sandra are on the mend.
My hair’s nearly gone. Am going to shave the scratty remains off tomorrow morning before I go to a work meeting. Have been summoned to HR at the Civic to discuss my sickness record as I have .“met the predetermined sickness triggers operated by the council” _ and they need to **“determine what further action/support is required under the Councils Procedure for Improving Attendance.”_**
I am assured they only want to know what they can do to help me return to work asap. I think I may be wicked and go with no head cover on and assure them that all they need to do is discover a quick and painless cure for cancer!
Go get 'em Linda xxx
Keep well, sleep sound.
Hugs to all,
Mandy
xx

Sent last post from PC and words ‘address’ and ‘bone pain’ seem to have gone to a stupid ad link. Hope this hasn’t happened for you all.
We really must be nicer to the techie gnomes under the stairs at BCC so they’ll swat a few more gremlins for us!

Evening ladies hope everyones SE are at a minimum,hairs thining nicely,grr,went out with close friends last night 1 was diagnosed with leukaemia in November and her treatments not worked so is waiting to see whats next everyone had a weep and a hug and my bloody hair was going everywhere bet the cleaner at the pub wondered what the hell had gone on in my seat, danced the night away was in bed for 12 and slept till 6 but god ive ached today.Kath love the poem and can so relate to it im often out with my uncle who has learning difficulties and cant believe the amount of people who stop say hello but ignore John same when Gran was in a wheelchair people would over look her,soooooo bloody ignorant…!!! Postie came to the door yesterday with some knitted beanies i ordered of ebay (couldnt remember ordering them) made in china £1,39 each not the greatest of quality but lovely pattern and colours and very soft so ive ordered a few more,good luck to Linda and i hope everyone has a comfortable evening…Paula…xx

Hello everybody,
Hope you are all doing ok tonight. I don’t post very often but I am thinking of you all.
Jo and Lucy, I am 33 and also concerned about fertility - I am having monthly Zoladex injections to try and preserve it. I’m not sure if I definately want children but I just hope that the choice will be there for me when this is over. There is so much to think about now and in the future. My periods have stopped already after two injections and one FEC so I hope that this is because of the injections and they will come back after treatment. I feel for both of you and am sending lots of love.
Well, tomorrow I’m going for my bloods, then 2nd FEC on Tuesday - it seems almost worse this time around due to knowing how ill I felt after the first one.
Linda, I am having Herceptin too and my onc mentioned a portacath the very first time I saw her but it hasn’t been mentioned since - going to ask about it on Tuesday, I don’t want a PICC (I don’t want that outside of my arm for the next 14 months, I love my baths and want to be able to swim and I don’t think you can with a PICC? And although my viens are good now, I’m not sure what they’ll be like after all the chemo. I haven’t heard of many others that have them though? Why is that do you think? Is it just different in different hospitals?
I am having my chemo in Portsmouth - is anybody else?
I am trying the cold cap - It’s day 20 and I have just noticed a few strands coming out on one side above my ear. I’ve already had my hair cut short (I donated it to the Little Princess Trust) but I think that if it starts coming out a lot then I’ll bite the bullet and shave it off - I am scared though, it’s easy to talk about it now but if/when it happens I know it’s going to be traumatic :frowning:
My niece is having her hair cut off in sympathy, well, really to donate it too and she is getting sponsered to do it, so far she has raised over 700 pounds, I am so touched by her doing this. (I have posted about this before on a different thread (I think!) so sorry if I am repeating myself!)
Anyway, love to all of you. Stay strong. Xxx