Hi MMM thank you for thinking of me. X FEC 3 went in OK but unfortunately I feel really rough tonight. I dont know what it is about FEC3 but my 2 chemo buddies that were with me today (also for FEC3) both feel crap also. All 3 of us have had really bad Nausea this time ( We havent suffered before on previous FECS) and unfortunately they have both been sick a few times tonight. Touch wood I havent yet.
I spoke to my Chemo nurse about my eyes and she said it because my eyelashes are going and there is not much to protect my eyes from dust and things that would normally get in to your eye. She couldnt give me anything but suggested I go to the chemist and get something called artificial tears or real tears?? cant remember what she said now lol
Ask you Dr for Omeprazole for your indigestion. It’s amazing stuff and knocks spots off Gaviston and really really works.
FEC2 day 7
Am typing this really quietly in case I wake any of yesterday’s victims ( hoping of course the sleep fairy is with them). Thanks for the advice re indigestion Funki , will ask him for some for next round. Sorry you feel so bad. Give ginger and sparkling water with a slice of lemon a go. If you haven’t got cordial send out for some root ginger and get someone to bash some up, add fizzy water and lemon ( sweeten if you like ) then drink, burp and fart all you can!
xx
Well slept on the sofa last night so OH could get a good nights kip… moaned at me for not going up to bed but he needs his sleep more than me as our foster child is back for the easter holidays…think he accepted my reason I can always cat nap throughout the day… felt ok while lying down but the minute I stood up the sickness and palpitations started… not a nice feeling!!!.. took all my tablets so enjoying a decent cup of tea… Linda… I have sent off for a medic alert bracelet thank you for the link and help… now Im wondering if the pain and aches Im getting in my right side are due to the nurses using that side…hmmmm
Funki… I have started to have sore eyes as well… and have noticed my eyelashes become quite tough… they told me the same as well at the hospital… eyebrows are quite rough to touch as well… hope you are not feeling too crappy today hun xx
Mandy… thank you for your kind words…the nurse told me that the palpitations should settle down soon… its down to the steroids they think… I get scared taking any bloody tablets now…lol… most horrible feeling in the world when the heart starts racing… anything else i can cope with but not that… but i had an echocardigram before starting chemo and heart was fine so at least I know its the chemo treatment doing it …
Chris…thanks hun… I never used to be one for stress even tho Im in a stressful work job… but since all this my anxiety levels have increased which I hate… but hoping it settles down as they told me… just dont want to go through this for the next 3 sessions tho xx
Hoping all valentines have a stress free and relaxing week withouth any severe SE’s xx
Morning Valentines FEC2/6 D.14 c/cx
Funki my hubby gets sore dry eyes and our friend recommended Viscotears Liquid Gel(carbomer) its about £5 over the counter my friend said ask for it on prescription.xxx
Love Chris xxx
Morning Valentines FEC2/6 D.14 c/cx
Funki my hubby gets sore dry eyes and our friend recommended Viscotears Liquid Gel(carbomer) its about £5 over the counter my friend said ask for it on prescription.xxx
Love Chris xxx
Morning Valentines FEC2/6 D.14 c/cx
Funki my hubby gets sore dry eyes and our friend recommended Viscotears Liquid Gel(carbomer) its about £5 over the counter my friend said ask for it on prescription.xxx
Love Chris xxx
Morning Valentines FEC2/6 D.14 c/cx
Funki my hubby gets sore dry eyes and our friend recommended Viscotears Liquid Gel(carbomer) its about £5 over the counter my friend said ask for it on prescription.xxx
Love Chris xxx
Morning Valentines – I think I need a wee rant!!! I’m just so sick of this all, why won’t it just stop?. I think that I’m feeling relatively alright and then I realize how different the way I am feeling is from how I usually feel, and then I realize its not alright at all. The only way I know how to stay positive is to be active and work hard, but the minute I try doing that I’m just so exhausted that I retreat to my trusty chair and slump into total depression. Now on Day 7, the late-onset nausea seems to be starting and if that follows the prior pattern, it will go on until Day 15. And then, although it is supposed to be my good week, I will be so busy with hospital appointments and other housekeeping activities that it will be lost. And then it starts all over again. I just pray that I do better on Docetaxel!
Sorry Ladies to be negative, we all know there’s no getting off the bus – but it sucks!!!
Oh Louise,I can hear it in you ,you are at a low ebb,try to give yourself a little treat,can you meet with a friend.Don’t try to do loads of work,your body is already working hard for you.I hope you feel better in yourself soon,take each day at a time,slow but sure steps.Massive HUGS to you (((((<3))))) xxxxChris
Mandy - you should have had an ECHO heart scan before you started FEC-T. Did they forget to send you?
Louise - I’m sorry you are feeling so depressed slumped in your chair. This weather is making it worse. You could be slumped in a chair in the garden, which would be much more fun. Hang on in there, have some short walks, get plenty of fresh air, and maybe meet up for coffee with a friend?
As for Omeprazole, I have been very lucky. I saw my GP the other day about a gammy knee. She gave me anti-inflamatory tablets to take, plus a packet of Omeprazole to counteract the side effects of these tablets. I haven’t used them. They are in my medicine box ready for chemo!
Have a peaceful day everyone, and good luck to anyone having treatment today, lots of hugs, Linda xxx
Hope those who had chemo yesterday aren’t suffering too badly. My appointment for FEC3 isn’t till mid afternoon, so I’ve been keeping myself busy this morning to try and stop myself worrying about it, so far, after dropping my son at nursery, I’ve been to Sainsburys for a few bits, cleaned and tidied the kitchen and mopped the floor, tidied and hoovered the rest of downstairs, stripped the beds, and have a simnel cake in the oven! Still need to walk the dogs and put sheets back on the beds, but I think I might do those after lunch before heading to the hospital.
I need to talk to them about getting different/extra anti-emetics this time, last cycle the 1st 18hrs or so were horrible, I didn’t actually vomit, but thought I was going to several times, so if this cycle is as much worse again it’s going to be hidious.
Good luck to the others getting poisoned today, and hope everyone’s SE’s are behaving
MMM I make my own ginger drink with San Pellegrino and juice the root ginger in my juicer. I also drink juice carrot, apple and ginger too as my first morning drink. x
Thanks Chris , I will be going to the chemist today x
Thanks Sandra. I feel better this morning day 2. Hope your palpitations go when you stop the steroids. Be prepared for them to stop the steroids next cycle wont you? X
Fec 3 day 2 cc
Jo I was given cyclizine antiemetic to take last night as I suffered more nausea after second poison and it’s working a treat. Even got up at 2am this morning for cornflakes which were delicious.
Louise I really feel for you, I tried to make dinner 2 days ago and could not stand for more than 5 mins, it took the whole day to finish with all my stop/starting and it was only a Shepards pie.
Buddy xx
Hi all x day 16 I think Fec 3
Been to see my onc today to discuss round 4 wahoo , going onto Tax , she confirmed u can still get nausea so still been given Emend but it’s more bone / joint pain , nothing I can do to help other than painkillers however all of us suffering with sore arms due to burnt veins she told me I must try & keep my arm straight , this really hurts but she said its really important , I didn’t realise but I do keep it bent , she said it can remain bent if u don’t keep straightening it .
sorry to louise & those who are feeling low , this journey will soon pass over & major housework , keeping / getting fit etc can wait until your stronger but it is frustrating , I want to spring clean big style & go for a run but I’m not up to it yet , I find walks are the best for clearing the mind but in this weather it’s just a no go !
I had a lovely day yesterday went to mam & dads to cold for a walk so played scrabble instead , I love it we always played since childhood , then my niece & nephew called round as back from uni , today I’m taking my daughter to swim lessons , my parents normally do this ( since I mentioned I couldn’t go swimming they don’t even want me to go near the pool bless them !) but they are off to see Alfie Beau in concert so im at swimming & scarlett is soooo excited to show me how good she is , i really appreciate the little things now that perhaps were taken for granted before .
thanks Alison for research on ER + , i mentioned being 4/8 & nice to know tamoxifen will still have a benefit
mandy , Sandra & Funki hope your feeling better , my oh let out a few smelly rippers in my car the other day & seemed to find it funny but all I said was give it another week & I will get my own back , never been so windy !! Also Mandy i get that whooshing in my head , usually at night fir first few days after chemo I hate it !! Never had a heart scan either infact haven’t had ANY scans !
take care everyone x
Hi All
Felling a bit rubbish and didn’t get up until 11.00. Not sure if the following makes sense as my fingers as well as my brain don’t tend to work in the first week - but here goes…
am146 - Really sorry for your situation and the amount of stress this is causing; lack of communication while you are on chemo is so unfair. Like you, I’m wondering if I’ve been given a strong enough cocktail due to the high possibility that I have the BRCA1 gene. I hope you get answers as soon as possible.
Cherabel - Good news that your tumour is shrinking.
Interesting info on arms. I was an emergency admission a few weeks ago. The a and e nurse could not take blood from my good arm. Eventually an oncall oncologist came and took blood from the surgery arm as well as injecting two differenet meds. I questioned this, seeing as I had had 10 lymph nodes removed - he just said I would be fine as it wasn’t chemo. What the…? Something else to worry about, I guess.
Chris - Your postings about day to day life are always so uplifting and jolly - wish i could be so positive.
MillyMolly - Indigestion/acid reflux have been major problems for me. You can try omeprazole, as others have said - I take one in the morning and one at night. Lansoprazole is another option which I also tried.
Funki - Hope your nausea subsides soon. I’ve had problems with my eyes too - watery and gummed up at night. Unpeeling them in the morning is rather unpleasant but then looking at myself in the mirror makes me think I should have left them sealed up!
Sandra - Hope those tablets worked this morning. I tried some tea myself and could only taste hot fizzy, milky water.
Yankee - Sorry you’re feeling so bad - I hope you fare better on docetaxel as there should be no nausea.
Lola65 - ‘Chemo Guru’ - I can’t believe how much you know. I read a lot but don’t take much in, except the negative aspects.
Jo80 - Yes, this is my last chemo treatment but a double mastectomy will follow soon. Hope your treatment goes smoothly.
In case anyone is interested, here are my docetaxel side effects:
heavy legs (I tend to shuffle around for a few days), mild aches, mild jaw pain, tingling teeth, tingling in fingers and less fine motor skill control ( I find texting/typing quite hard), twitchy muscles, sore nails - although keeping the nail varnish on seems to alleviate this a bit, very dry skin and rough patches in the mouth.
I didn’t really have bone pain but the oncologist said to take painkillers before any pain starts, and then to take them regularly.
By week 2, most of these side effects had subsided, with the exception of fatigue.
I can always cat nap throughout the day… felt ok while lying down but the minute I stood up the sickness and palpitations started… not a nice feeling!!!.. took all my tablets so enjoying a decent cup of tea…