Hi ladies
I was given anti-sickness tablets ONDANSETRON to take for 2 days after chemo & METOCLOPRAMIED(take if needed).Lynzi84(or anyone else) i know you sed on your post you were prescribed these but do you mind me asking have you used them?I took 1 or 2 to start with then stopped & started getting mild heartburn so didnt know weth to continue with them.
Day 10 & still things are going ok & glad to see everyone else is coping quite well,keep checking my hair but nothing moving yet,clippers & wig on standby.
Tracey.x
Hi all
Havent been on for a while and amazed at how long the thread is now ( ive had a lot of catching up to do) Im glad all are progressing well. I went back for results yesterday. All nodes removed were clear. ( sigh of relief , i’d convinced myself it would be bad news). I will be having chemo followed by rads then tamoxifen. Im waiting for a start date, possibly end of jan, but may be beginning of feb. I’ve been offered a trial, waiting for info to arrive. It would mean I would get a bone scan and CT scan, that I wouldnt get otherwise. I thought these things were standard, but supposed it depends on area.
Depending on start date may join the next thread. Checking the post everyday, cant bare the waiting, wont to get on with it!!
Hi all
Havent been on for a while and amazed at how long the thread is now ( ive had a lot of catching up to do) Im glad all are progressing well. I went back for results yesterday. All nodes removed were clear. ( sigh of relief , i’d convinced myself it would be bad news). I will be having chemo followed by rads then tamoxifen. Im waiting for a start date, possibly end of jan, but may be beginning of feb. I’ve been offered a trial, waiting for info to arrive. It would mean I would get a bone scan and CT scan, that I wouldnt get otherwise. I thought these things were standard, but supposed it depends on area.
Depending on start date may join the next thread. Checking the post everyday, cant bare the waiting, wont to get on with it!!
Hello everyone!! 1 down 5 to go!! I’m not sure why i was so worried! needle going in hand was the worst bit - and that wasn’t bad!! cold cap was actually quite pleasant - maybe it’s my canadian roots coming through!! - i actually weirdly enjoyed it!! had a tansion headache before and it relieved it for me!!
Anyway - going to bed for nap before little ones come home!! didn’t sleep well last night!
Take care everyone!
Marina xx
Afternoon ladies
Well I’ve been out for lunch with OH and wandered around town for a bit 
must be feeling ok as I bought some thongs?( what a strange time to purchase something like that pmsl!)
Anyway, emotional - I was prescribed same anti sickness as you and I’ve taken them religiously( both lots lol)
Good news is I feel ok so
Looks like I’ll be off to London tonight to see my comedian after all :)))) how happy am I! OH quite pleased too
Hope everyone is feeling ok too, I’m going to finish hoovering then have a bath( with my limbo plastic sleeve ), not quite as nice as before but hey ho!!!
Take care ladies and speak soon
Xxx
Hi
Woo hoo! 1 down, 5 to go. Well done Marina, you are brave having chemo at home. It was a bit sore going in, well more freezing cold sensation. OH decided to go shopping when red stuff was go in; whimp lol. Had to wait longer for tablets and for them to find a sharps bin for me to take home, think district nurse usually uses her bin but I’m doing my own injection tomorrow.
Just slight dull headache but nothing else. Like previous posts I’m waiting for something to happen.
Hugs to everyone Anne xx
Wineoclock, enjoy your night out, thongs made me laugh.
Also been given odansatron for next 2 days, dexamethosome also for 2 days them metrocloprimide for as long as I think I need them. A nurse is going to phone me tonight and in morning to check on me.
Anne x
Evening ladies
Winelock - I’m on FEC 75. Not sure what that means, maybe it indicates the dose. Hope you’re enjoying your night out.
I’m on day 11, I think. Not sure if the day you have it is day 1, or the next day. I’m guessing my blood count will be down now, but still feel OK. Sometimes a bit whoozy or wobbly, but carrying on pretty normally. My ears are ringing a little bit. I checked my blood pressure today as my mum has a gadget at home and that was normal, which is reassuring. People keep telling me I still look disgusting well.
I’m going to give the yacht club a miss tonight as am feeling paranoid about being with people with germs. And it saves explaining to people that I’m not kissing anybody, not even on the cheek!
Have a lovely weekend everybody. It looks like it will be a nice sunny one.
Dawn XX
Hi Everyone
Just thought I’d let you know it’s Day 10 and I’m feeling really good!
I went back to work on Wednesday, which was a real effort and I felt very knackered by 3pm. But I felt a bit better yesterday and alot better today – 99% myself again. I had horrid heartburn and backache for a couple of days, but that’s gone.
It’s so good to feel well again! I’m going to have a nice restful weekend, as my immunity is low until next week, so will avoid crowds. We’ll hopefully go out for a walk, the weather is going to be bright and sunny.
I’ve still got hair - my scalp sometimes feels a bit tingly and itchy and I give my hair a tug, but it’s still there.
I’m glad to see that most people are doing really well.
Have a good weekend.
Jane
hello all well been to hosptial today still got a infection and drain in got to go back wed to see consultant and the oncologist to see if can start chemo on thurs but consultant say it will be unlikley so want to get on with it as i feel in limbo.feeling drained any way enough of the self pity so glad to hear everyone is getting on well love to you all denisexxxx
Maryc - told my onc i was on multi vitamins and iron and he said ok?! i will check again when i get an appt though to be sure.
Got my wig today, i quite like it, husband not sure and my 2 yr ols loves it!!!(on him that is!!)
spent out in the Monsoon sale to cheer myself up!!!
I am probalbly looking at end Jan now to start, hate the waiting!!!
thinking of you all:)
Tank girl - thanks for that my bcn rang and i told her she is to check with onc and call me monday. glad u enjoyed your day tho!! made me giggle about ur 2 yr old wearing ur wig!! ine has finally arrived still not collected tho.
wineoclock hope your night out is going well!! woohoo thongs hey!! have fun!!
denise so sorry chic u must be devastated, ur a tough cookie tho and will get thru this. x x
Jane loved reading your post i’m so happy you feel well good on ya to get back to work.
Dawn & Debbie glad your ok too!
Anne this is exactly what i was given seems to have done the trick not taken the metroclomprimide as yet tho! Glad it went ok for u x x
tracey i took initial anti sickness tabs as advised and feel totally fine not taken metroclomprimide yet.
this morning felt nauseaous and headachey, touch wood this has now passed just feel tired and most ridiculous SE i have is my left arm, hand and index finger is soooooo sore it’s the hand where drugs went in, it is so uncomfortable. In the scheme of things could be much worse but i just feel abit depressed and weepy this evening, maybe because couldn’t give the kids their bath OH did that, just don’t feel like i have any energy.
Dont want to put a downer on anyone so will message another time wen abit more positive. mary c x
Hi Mary C
jumping in with a bit if advice. try using a warm wheat bag on your hand and arm. i had problems with the same and it helped. just a thought it might work for you
Maj x
Hi again everyone
Meeting with onc went well. I have my first chemo at 11am on monday morning! Soooooo pleased, nervous and a little scared all at the same time. But reading how amazingly all you ladies that have started already are doing reassures me heaps!!!
Was told to buy digital thermometer by onc that was it as far as preparation. Any suggestions of anything else I should buy before monday?
Hope you all have a good weekend.
Nicola xx
Hi everyone, well I’m still alive too after my first FEC yesterday. It was a very long day, we got there at 10 and didn’t leave until 5.15 but we did have a couple of hours off so went into town for lunch.
The actual chemo only took about an hour, I had the cold cap, it was very uncomfortable when it first went on but after 5 minutes it was fine. I was told to wash my hair only once a week (I usually wash it every day so this will be difficult) and to use a PH neutral shampoo – any recommendations?
Had a bit of dinner last night but then started to feel really sick despite all the drugs (I was given Emend which the nurse was very surprised about for a first treatment as it’s very expensive). Went to bed early and slept ok, got up once for a red wee! This morning I feel like I’ve got a hangover, a bit queasy and a headache so will take it easy today. Managed a Weetabix and I am sipping ginger cordial.
Apart from Emend I have been given Ondansetron for 3 days, Dexamethasone for 3 days and Domperidone if required. Have borrowed one of those boxes from mother-in-law so I take the right drugs at the right time!
Has anyone else been offered a trial drug called Denosumab? I signed up for this so I also have to take a daily Calcium and Vitamin D tablet. The trial drug or placebo is injected prior to my chemo. For someone who only takes the occasional painkiller and never has a day off work all this is a shock to the system!
Hope you all have a good weekend.
Clare x
Thanks maj Will try this. All SE’s at bay but finger still sore. Feeling abit more positive today fingers crossed can only look to get better now! X have a good weekend all X
Clare simple shampoo is ph balanced i got the baby simple shampoo as use that one on my little ones. I Also have simple conditioner too as I’m curly and frizzy and with no products and straighteners thought needed the conditioner! Glad you’re ok. My nauseaous feeling lasted only a day and a half but still no appetite. Just eat wat you can wen you can. X
nicola good luck for Monday wishing it all goes ok and SE’s are small.
Hi All
MaryC I just wanted to say that I got my appetite back by about day 5 and Clare my hangover feeling lasted for about 4 days. I felt really rough and was more worried that I was going to feel that way for the whole of my treatment. My first FEC was 5th Jan so I guess I am about day 9 and i have felt really well since Wednesday.
Hope this helps
Debbie xx
Hi All
MaryC I just wanted to say that I got my appetite back by about day 5 and Clare my hangover feeling lasted for about 4 days. I felt really rough and was more worried that I was going to feel that way for the whole of my treatment. My first FEC was 5th Jan so I guess I am about day 9 and i have felt really well since Wednesday.
Hope this helps
Debbie xx
I’m curious about what drugs people having FEC have been given to come home with. It looks like they may be different, which surprises me.
I was given Dexamethasone for 3 days (a steroid for anti sickness, metoclopramide if I steel felt sick. And I was given Lansoprazole to prevent acid reflux. This reduces the amount of acid your stomache produces. Has anybody else been prescribed this?
Hope you’re all OK this morning.
Dawn XX