I hope you are okay and have been able to have some fun this weekend.
Several of you, sorry but I cannot remember exactly who due to there being sooooo many of us here, =( ask about the jabs. I am on a two weekly cycle so have gcsf for days 3-10. I did my first one this morning and it went in fine I think. It was a bit odd injecting myself but it is done now for the first time I guess!
I feel a bit achy, mainly in the small of my back this eve, and pretty clicky, my joints are clicking when I move about. I am just waiting to see how I am going to feel and find the wait horrid. My oh and I keep laughing at ‘taking each day/ taking each hour as it comes’! but it really is kind of like that.
SoC you are making my laff too! Please keep it up. Oh and happy birthday Jo. It must be wine o clock all day surely?!
Summer 20 - I had skin peeling off my lips the first week of chemo. My mouth was ok - I sucked ice lollies during.
I do think you ladies who’ve shaved your hair off are so brave - I can’t bring myself to. I’m just treating my hair very gently,and my scalp is really sore. Even the wind blowing through my hair is painful. The hair is comimg out faster today, but still looks reasonable.
FEC 2 on Wednesday. Going to see oncologist and for blood tests tomorrow.
Hello lovely ladies
Haven’t been on for a while and goodness me how this thread has grown! Well the ‘Tax truck’ finally hit me 4 days after my mammoth 8am-7pm chemo day a St James’s in Leeds (and I thought I was doing so well) It honestly felt like the worst tequila hangover I have ever had - serious diarrohea (which even impressed my nurse friends) sore lips and mouth and major taste changes. I still can’t eat dairy or drink tea without shuddering - urgh!!
The anti-nausea meds seemed to do their job though as very little sickness and I am also having neutrophil injections for 5 days after treatment. My next lot is on the 31st but I am having a portacath put in this week as it took 7 attempts to get a line in me - phew if you could see my hands I look like I have a serious drug problem!!!
The cold cap was ok I just tried to visualise myself on a mountain with a lovely après ski and that seemed to work for me and so far the hair is still here (forgot the hat for going home with wet, frozen hair and had to wear a gorgeous NHS white towel to the car - that elicited some strange looks
So bring on the ‘good’ week I have lots planned, including a day at work as I haven’t been in since the spinal surgery in November! Think I am ready for 2nd cycle, thankfully should be a lot quicker this time and I know what to avoid! Lemon hot water and Manuka honey here we come…
Lots of love to all the ladies continuing/starting this week - smile and the world smiles with you - even when you really want to poke it in the eye!
Kate xxxx
Kate wat a fantastic closing paragraph love it!
Kate Julie Jane minty and anyone else starting this week good luck Will be thinking of you and saying a prayer. X x x
Lol marina i no wat you mean about the legs.glad you had a good weekend. Just wat we need.
Lets hope this week is a good week x x
Wow! Just look at us! Some of us will start 2nd chemo next week? Time does fly when you are having fun, doesn’t it?
Please girls, we will need a full report back on how did it go - now that I’ve stopped obsessing over what it feel like to have my hair fall out (it speeded up some more - no doubt helped by my tugging. I had to put on a hat at the end to STOP IT!) next on my obsession list is: how will it feel to get the second juicing? A busy life of a hypochondriac cancer patient!
Wineoclock, hope you have enjoyed your birthday and did manage to drink some red wine!
Jules, thank you for your concern, yes, indeed, I can hold a wine glass. Tried some red wine heavily diluted with water (how Elizabethan!) and today it tasted fine! And the water made it go a long way, so had 2 glasses with the half cow that was left from Friday.
if i was you i would give it a try, if you don’t like it you can always take it off. many people find they can bear it so if you can you may aswell give it a shot.
Hello Kellc!!
Give the cold cap a go - it really wasn’t that bad! Take something to distract you though a book or mag!! It also adds about an hour on your treatment and don’t forget the hat to go home in as your hair will be sopping wet, frozen and covered in cheap NHS conditioner (attractive!!) It seems to have worked for me as other bits of fluff have started coming out (no waxing yay!!) but my blonde bob just feels the same as always (hope I don’t tempt fate there!)
You have nothing to lose so give it a go - imagine you are skiing with no hat on!! It is a bit like a jockey cap my OH called me Lester Piggot all day
Had a great Birthday and managed 3 glasses of red! such a chore lol
tingling top of head today and yup a small handfull came out when i tugged it - this is the start isnt it!
I too thought i was gonna be all cool with it, but im not going to be! will clipper it in a day or so to “sinead oconnor” style lmfao - i will not look beautiful like she did but hey!! i can play the game
right - best go or i’ll sit and bore the pants off you all with my waffle, something i excel in!!
good luck to everyone starting treatment this week and hope everyone whos started is feeling ok and good!
Kellc - i think it all depends on the individual. how healthy your hair is, the type of chemo your having etc etc i would most certainly give it a go (i did and am losing hair from other parts of the body but hair on my head seems to be staying put at the moment, not lost any more than i normally would) so best of luck if you decide to give it a go.
Hi ladies.
hope all of you that have been having a rough time of it lately are feeling alot better now.So many of us here now by the time i read & catch up over the last few days i can’t remember who’s posted what.
My hair is falling out really fast now,blocked the plughole 3 times this morn in the shower.I really admire you ladies that have shaved your hair for being so brave,i wish i had the nerve to go ahead & do mine.I have my wig but i don’t feel ready to wear it.
2nd chemo looming on weds,hope they have it made up ready for me this time & no hold ups so i can be home quicker,onc appointment tomorrow & bloods.
Good luck to everyone starting chemo this week & like me those who are in for their 2nd lot.
well i am shattered!! pelvic scan, internal and external - done - Nice - NOT!
Straight to pre chemo assessment, luckily bloods ok at mo and so is everything else so all good to go on weds. Absolutely cr*****g myself and shouting at kids and husband.
All questions that i remembered were answered, and yes drink lots water and go for walks.
Just worried about temp, if it goes to 37.6 i’ve got to go in, which is an hour away! I’ll be moving in i think!
How do other mums with young kids manage?? Advice appreciated please 'cause im panicking!
First day wigging it done. It must look good. Had 2 people complement me on how great my hair looked. Was tempted to rip off the wig with a “ta da” just to see their faces. Sooooooooo tempting! Wicked or what?!?
Tankgirl, well done! Don’t panick girl; baby steps, baby steps!
It is not inevitable that you will have a temperature - many of us didn’t. Can’t offer advice on how to cope with all of this, and small children but I am sure ladies in similar situation, like Martina, will be along in a minute to give you some support. It will not be as bad as you think it is…
Emotional, I am with you on the hair thing. It is awful now, everywhere I go I find hair but I just can’t bring myself to shave it or cut is to a number 2 or 3.
god you lot are so brave.was ready to go on 12 jan but with one thing and another infection etc next date 2 febx reading your threads has helped but to be honest lost my nerve were is that strong person wished i had started chemo because to ne honest im so scared now i have had lots of time to think because have been so ill and havent had chemo yet you lot are so brave love u all denisexxxxxxxxxxxxxxps think im having a pre chemo freak out would be grateful for advicex
Hi scaredofchemo,
OH mentioned grade 4 to me last night when he done his & my little mans but want to hold on as long as i can.
Tankgirl-I’m sure you will be ok,i have a 6yr & a 4yr old,i took each day as it came after my 1st chemo if i needed help i asked for it,luckily my SE’S were very small(hopefully be the same this time round)so coped quite well.
Tracey.x
Ah hun its perfectly normal to feel scared (just look at scared of chemo’s username - very apt for most, if not all of us!). In reality it really isnt as scary as your mind will have you believe. Are you able to go to the unit/ward before your 1st dose so you can allay some of your fears? Mine looks like something out of a star trek episode and I keep looking for Spock! It might help calm you abit. I took my daughter (11) there last week and she feels so much better about it now (I know its different when we are actually going through it, not just viewing it from a relative’s point of view).
I had my third dose of Taxol today - let the side effects commence: wind (SOC - you are hilarious, please keep it up), headaches and the return (yet again) of my period - oh and the overwhelming, crashing tiredness. Ooo oo I forgot the bit where I turn into the Human Dyson and hoover the kitchen cupboards & fridge!
I am another who shaved their head yesterday. It started falling out on Friday, I looked like chewbacca in the shower! It got worse and worse over the weekend to the point it was making me feel so low. Once I made the decision to shave it off I felt so much better. We went to the local Wig shop and bought “Lola” - my alter ego! She is gorgeous and I am happy again! Even my brother and his fiance were totally fooled yesterday - result…
Hope everyone had a good start to the week, now I must get on with my exercises or my physio will take away the Gold Star she awarded me this morning…
Hi ladies wat a terrible night i started feeling really cold about 10pm last night. Got to bed and was woken up Shivering and had to go to the loo anyway 4 bouts of diahorrea later and temp at 38.7 had to go to hospital. Veins have packed up was a nightmare to get blood i look like a smack head with loadsa needle marks. Had antibiotics via drip and eventually got home at 5pm. Not feeling 100% still. Apparently just a bug. Never been so scared. Now dreading 2nd chemo in case they can’t get vein to put in. Ah just feel so down this evening. X hope you’re all ok X
Feeling fed up
Saw my oncologist for the first time last Thursday at a different hospital from where I hade my lumpectomy on the 20th dec who asked me to come back to day and start my treatment on Wed.
Waited half and hour and then sent for blood tests finally got in to see the consultant an hour late (nearly hometime by now) who siad how are you feeling you have to sign this form and sorry you can not start your treatment. But I will send a nurse in and you can ask her any questions.
The nurse appeared and siad I will ring you tomorrow and let you know what time on Monday for your blood tests as I don’t have next weeks diary. She then went on to say you can get good info re the treatment off the macmillian web site.
Came home so stressed that I am itching all over with hives.
