Hi girls
Not much to report but we were about to be relegated to page two so couldn’t have that.Have appt with onc tomorrow just routine follow up I think so hopefully he can advise on sore joints.
Hope everyone is well
Pam
Have had the same conversation with my Onc this morning re. sore joints - he blames TAX!
Hello All,
Sandytoes, Glad sis is ok and you enjoyed your hols.
Sore joints … mm sounds familiar.
Have my Rads planning on Wednesday AM.
Sloshing all stopped now and healed well so ready for it .
Rexi , how are you doing do you have your appt for Rads yet ?
Hugs,
j.
Hi girls,
I have finally started RT last Wed, 29th Feb. The wound healed up the week before - so took about 8 weeks! In the end it was the Fucidin ointment that helped it along - seems like there were surface bacteria wouldn’t allow it to close properly - or it was coincidence, but after weeks of no change, it started closing within days of using the ointment
BB - have you started RT yet? Back at work? Full time?are you all healed up?
I am amazed - you had 3 operations and you are back. I had one, the infection and for weeks after I just lazed about ;). I finally went to the office for the odd half days. Now on RT, the occupational health officer only ‘allows’ me to go in for a couple of hours, no more than twice per week. It’s really not much and when I am in the office I am getting sucked right back in, thinking - ooh I should do this and that, but I will listen and I won’t overdo it. I have to promise this to myself!
I asked ages ago - how are you all doing with the phased return - what’s the average plan?
RT - it’s a 3h return journey, it will tire me out after a while and it’s tedious. At least it’s not first thing in the morning, so I have an easy start most mornings. It’s weird how one doesn’t feel anything during the treatment, but it deffo affects the skins shortly after, I already noticed. Aloe Vera and aqueous creme - lots of it…
One nice side effect hanging out at home: we have now got a company booked to do our loft conversion, starting in a few weeks. And today another company is pulling out all the carpet on the ground floor, replacing it with an oak floor. It’s easier to book and oversee work, when not working 40-50h weeks 
And - I finally booked our flights for our dream holiday - it’s in Dec, so a way to go yet, but it’s going to be for four weeks, children are allowed of school for that time - the welfare officers at their school immediately signed off as soon as they read my accompanying letter. It must have been good - my hubby read it and had tears in his eyes - I didn’t even make a big drama, just wrote facts.
Hope you are all well - write something!
Rexi xxx
Hello lovely ladies, it’s been a while, our lack of posts I hope means we are all busy getting back on with our normal lives!
Rexi - cant believe how long you’ve taken to heal- thank goodness you’ve started radiotherapy now. Your having it in Harley street aren’t you? Hopefully you can have a nice bit of retail therapy afterwards! Fab news re holiday what a thing to have to look forward to.
I am back to my normal 3 days a week at work - wish I could do 2 but financially need to do 3! Hard to juggle baby, house and work but so good to be back to my old normal and boring life!!
still have the occasional wobble - like I had a routine smear test last week and the nurse was talking through what they are looking for…cancer cells blah blah blah and I just burst out crying convinced myself I had cervical cancer and she had to calm me down!
I can’t believe It’s been a year next month since I first found my lump- I have decided to try and give something back and together with some of my closest friends we are doing the “sun walk” half marathon in July for breast cancer in battersea park. Hope to raise lots of money and started to train for it now which is hard work !!
Anyway how’s everyone else doing?
Be good to hear from you all
Katie xxx
Hello!
Our thread has been very quiet!
I have another heart scan tomorrow to see if it’s recovered at all as my Herceptin has been cancelled/put on hold. I hope it has, but don’t hold out too much hope as get out of breath SO easily. Hoping they’ll be able to give me something to help mend it though!
My boobs are now inflated to a C/D cup! So happy with that - but looking forward to when I can have my reconstruction and feel a bit more bosomy - at the moment they are really hard.
I’ve been doing bits and bobs working from home for a company I used to work for - just earning pocket money really. I quit my job before I was diagnosed and was meant to be finding a new job! So no phased return for me - I need to go to interviews and get a new job. I just don’t quite feel in the right frame of mind for that yet…and don’t know what I want to do. It’s so hard as this is a wake up call to not do anything boring or that I hate (HATED my last job!) but am also worried about the future with no guarantees so it is hard to get motivated. I would hate to do some boring job and spend all my time there and then have this come back - but on the other hand I don’t want to waste my life living as though the cancer’s going to come back and bite me on the bum - then it would have won.
Have another holiday coming up (as long as my heart function is OK!). Another freebie to the Maldives - but this time with my husband - he was very grumpy to be left at home last time! Then next month I’m going out to the States to do some work contracting hotels for a tour operator - so have a great trip including San Francisco, Lake Tahoe and Vegas! Earning money too! Hooray! I still worry about looking forward to things though - in case something comes up…
Am hopefully going to meet Rexi for a drink near Harley Street if our appointments overlap…!
xx
Sandytoes - how fantastic that you are getting to travel so much. We did San Francisco and Vegas two years ago for our 25th wedding anniversary. I take it you haven’t had any problems getting travel insurance?
BB - good to read that you are healing now. The seroma thing is horrible isn’t it. I felt like I had a hot water bottle attached to my chest. How many Rads do you have to have? I had 15 and had my last one 7 days ago. Apparently we continue to cook from the inside out for 14 days after the last zapping. I have to be careful what kind of top I wear as my neck nodes were done and the zapped area is quite a dark brown/red colour.
I started a phased return to work this week - to a new job! I was offered it out of the blue. I am only doing an hour a day this week and will gradually build up to the hours offered which is 22 per week spread over four days. Feels strange to be back behind a desk and trying to learn a new job too!
Hello strangers
Isn’t it great that we are all busy and getting back to normal , was a dream last year that I didn’t think I would ever realise . Commented to my friend this week that i feel well physically and getting their in my head, …I never was very normal to begin with.
Week 5 at work and working 4 full days and so far so good , built up to it and no pressure to go to full time at the moment , so all good.
No hospital appointments now till June , eeek, I asked onco how I would know if the tamoxifen was working , his reply was that if the cancer doesnt return it’s working, so I am trying to just move on and forget , mmmm, and that’s getting easier.
Hope ure rads are straight forward rexi, carry on lunching.x
Sandybtoes , u are a lucky lady
Katie , how are the kids doing , the wee one will be getting big
Super trouper , gret that u have a new job, I hope u like it
Everyone else, update please
Lorna xx
C’mon other guys , update please
Hello All,
Started Rads on Thursday 8th March.12 sessions Mon, Wed, Fri.
Had second one today but had to get off the bed after 3 of the 4 fields. Cramp down one side of my back … ouch…
Rexi - I realy wanted to finish rads before the easter school holidays so I have been calling regularly to start. Had to wait for Seroma to go down but was lucky re infection. Good to hear you have also started RADS
Work, I am already Part time 3 days a week. They have given me a few bits to do but not much.
Lorna - good to hear your are getting back to work. enjoy the next few months before the next appointment … no one prodding and poking you for a while.
SuperT - finished Rads , congrads on the new job, 22hours a week sounds just perfect.
Sandytoes - Hope the Scan goes well and your heart is recovering. Must be a bit scary. Another holiday, great news, lots of relaxation and chilled times for you and your hubby.
Worthks - Trying to get back to my life but still so tired, lots to do that I have not done for a year, our paperwork is in a mess and most of my clothes I can no longer wear !
Thats my update done !
Hugs to all.
BerthaB
Hello,
Had an appointment with a cardiologist on Harley St yesterday who’s given me some medication to protect and improve my heart so I can complete my Herceptin course. Hurrah!
Was also fun as Rexi was having her rads on Harley St so we met up for a couple of drinks and a naughty Danish and a good natter. Lovely to meet you Rexi!
Hope everyone’s doing OK with work or rads etc.
x
hi everyone …update from the last time i was on here…well i have had my mx 31 january went home with one drainage had that in for few days then had it out. had drainage twice since, wearing a softie was awful i couldnt seem to let it stay in place. well my 6wks now had i just got my breast foam getting used to iit now at least i feel even. now im waiting on my radiothery.be back soon
one love to all xx
Hello all,
How did you get on Sandytoes with your appointment. Hope all went well ?
I have only 2 Rads to go then finished.
V Tired but ok other than that.
Hope you are all doing well and getting back to your lives …
Hugs
BB
Hello Everyone
Well i can say i have now had my first scare since treatment finished , thankfully ok .
I constantly have pain in my affected side shoulder which was getting worse instead of better , add extreme tiredness and i came up with secondaries obvously !!!After bloods and x rays it is calcification within the rotator cuff which expalins the pain , prob to get cortisone injections but i have opted for stronger anti inflamotories first as i believe these can be sore . lol .
Hopefully i will now really pick up and get a better sleep pain free. The relief is fantastic.
Its good to see we are all not posting but get online and give us all a happy apdate please
Love
Me xxxx