<waves to=“” wandy=“”> where are you?<br>
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Mango - I had long lashes before but rapid L made them curl more easily so they look better. </waves>
Lovely to hear from you all. Wandy, happy to hear you made it over safely (despite offing nearly cut off). Rachel, hope you’re still on the mend and talking it easy. Cherry, sorry to hear you’re having such a hard time with family and money stuff, in my experience it can be a horrible combination, but hope things are nearly sorted. Mandy - you’re looking great and sounds like you’re enjoying being back at work. Jane and Ninja, looks like you might have to budge up on the problems down below bench, I’ve just been referred by my GP after a string of UTIs. Not really looking forward to that, but v interested to hear how you are getting on. Am definitely coming back as a bloke next time! But generally doing fine, lots going on as we are moving house and - more importantly - second grandchild due this week. Am so glad to be here to see it.
love to all you lovely May girls and sorry to thois I haven’t mentioned. Have a great weekend everyone, am looking forward to watching lots of brawny men wrestling each other up and down the rugby pitch.
Jude x
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Yay! Welcome back Wandy! In every sense of the word. Great to hear from you, and welcome back to the uk…
Ninja, I am SOOOOOO envious of your lashes! You really think Rapidlash was the cause? Never had fab lashes, but always wanted them! Mind you, I rarely wear any make up during the week…
Just think, two years ago, we were just beginning this journey that brought us all together…
Hope you’re doing ok Rachel …
And everyone else…
Love Jane xx
I am hesitant about using rapid lash. I had episcleritis about 5 years ago (part of the “whole auto-immune thing you have going on”, said the rheumotologist) and don’t want to trigger another episode. But I would like some decent eyelashes. Mine are weak and fall out easily. I am a little put off by the price too. Especially if I have to stop using it after just one or two applictaions. Has anyone tried anything else?
I hope they are able to give you an answer to why you are having so many UTI’s, Una. It must be draining to have so many repeat infections.
Updated my profile pic. View from the Shard which I visited on Tuesday. Despite the £25 ticket, it was worth the visit. London looked stunning from that height.
Hope everyone is well.
Cherry
Wow Cherry, your picture is amazing. You’re right, London looks fabulous from that height.
I’ve not invested in Rapidlash. I just trying plain old fashioned Vaseline onmy lashes every night when I get in bed. Not sure if it will work but its worth a try. I know people say rubbing oil in cuticles helps nails to grow, so just hoping the same principle applies here; rubbing something oily into lash bases will make them grow! Here’s hoping!
Mandy xx
Hello-sorry I haven’t been on here for a while-I have been having trouble getting onto the site! Path report was clear so i am very relieved. Also my bladder is so much better since the op as it had been stuck to my womb and is now presumably flating alone inside me. All I know is I’m not up and down to the loo every five minutes anymore which is rather lovely. Feeling fine now and still being spoiled rotten. I am really enjoying this time at home and determined to make the most of it.
Lots of love to you all
Rach x
Hi Rachel , good to hear you are doing well… presumably you’re off till Easter? As you say, make the most of it! The bulbs are poking through. I love the spring. I picked a couple of hellebores today, with some heathers and green &white leaves… Look very pretty on the kitchen table.
how is everyone?
we’ve all gone very quiet…
love Jane
Jane, I love hellebores but I can’t seem to grow them. The weather is lovely here too and we took some daffodils to my Dad’s grave today. They looked so lovely and I really felt that Spring was coming. Hope so-I am fed up of the rain now! I went into school to see the children yesterday but not going back to work until the last week of term. It’s a 4 day week and i thought I would break myself in gently rather than go back at the beginning of the Summer term. Enjoy the sunshine everyone
Rachel x
Glad to hear you’re feeling better Rachel - and that you are having time off to recover. Lovely weather here in Norfolk too today, spring does seem round the corner (probably means the ground elder will start taking over my garden again!) All celebrations here as my daughter had her second baby last week - a beautiful little girl, Charlotte Lucy, 9lb 2oz and doing fine. Have been having lots of cuddles! Hope everyone is keeping well and enjoying life, lots of love, Jude.
Hello All
Sorry its been a long time, just really busy.
Rach i was shocked to read your posts, but very glad to read further along that all is fine, stressing time for you. Hope you finally enjoyed your birthday x
I had my MRI sacn and all was fine, only found a cist on my ovary which i will have a scan to check again next week to make sure its fine. Also having mammogram etc next week 2nd yearly screening. Cant believe so much time has passed since all the treatment.
I have been getting regular problems down below, just come off a course of antibiotics for UTI bloody painful, never had one before, took me by suprise. tablets sorted it though.
Wandy welcome back, glad the move went well.
I have been coaching Oxford University netball and we have the Oxford v Cambridge Varsity match this weekend, bit nervous and want to win my first Varsity. Fingers crossed.xx I love my Oxford Uni jumper i am not intelligent enough to earn one with my brain, expecially after BC. But my netball brain is still intact thank god. Coaching keeps me sane!
Glad we are still talking and sending hugs on here. Didnt realise how much i miss the chats on here until i started reading posts.
Love and hugs to you all
Tricia x
Great to hear from you Tricia! Ive also got my 2 year mammogram next week. 25th February. Feeling quite twitchy about it. Plus I have to go back to the place where I was diagnosed to have it done, which brings it all back to me again. Unlike the day I was diagnosed, they don’t tell you the result of the mammogram there and then. Got to wait 10-14 days for results. Just to prolong the agony!
im sure most of us are approaching our 2 year cancerversary round about now.
Im sending everyone lots of love and hugs. And positive vibes.
love to all
Mandy xxxxx
Hi Mandy
Mine is on the 28th, not sure if i will get results straight away, didnt think to ask! At the one year check i was fine, maybe because very soon after all treatment. I feel really quite nervous for this one and even feel a bit emotional this week, not sure if its because the test is due or the UTI infection making me feel low.
Weather has been so nice today though and always makes you fell better if there is some sunshine around. Just wish the sun would heat us up a bit more, so cold this morning at 6 am scraping the car.
Tricia x
Hi Mandy
Mine is on the 28th, not sure if i will get results straight away, didnt think to ask! At the one year check i was fine, maybe because very soon after all treatment. I feel really quite nervous for this one and even feel a bit emotional this week, not sure if its because the test is due or the UTI infection making me feel low.
Weather has been so nice today though and always makes you fell better if there is some sunshine around. Just wish the sun would heat us up a bit more, so cold this morning at 6 am scraping the car.
Tricia x
Well, just back from my 2 year mammogram. Got to wait upto 3 weeks for the results!!
Just going to try not to think about it in the meantime. Easier said than done!!
hope everyone’s ok
love Mandy xx
Hello all my May girls,
Sorry not to have been on for a bit, just seem to have endless things to sort with settling in to the new home/life etc. My darling OH and my Mum and myself have all been doing the health rounds, new GP’s, new dentists, referrals for surgery for my Mum and my OHJ (who needs a new hip) etc…etc!! Hadn’t realised how much we had all fallen apart!!
I had a full bone scan a few weeks ago. I had been really worried about potential bone mets, but last week I got the all clear. All my probs are joint related and therefore Letrozole related, normal wear and tear and just got to get on with it!! I am in constant pain with my joints and could weep some days. Am alright when up and moving but its the getting up and going which is the problem…Hey ho…I have the option to give the Letrozole up but have decided not to as I feel its a real security blanket. Just going to have to taken more paracetomol! It is the sad legacy of breast cancer which they don’t tell you about and because we don’t have recurrence or secondaries it gets rather forgotten, but from 48 hours after starting Letrozole which is now 17 months ago I have had continuous pain.
Sorry this is not really a whinge, as I am thrilled I haven’t got bone mets and I am actually very well otherwise and am really getting on with our lovely new life here in Cumbria which I am soooooo happy to be enjoying. It is beautiful here and every day my OH and I go for a different beautiful fell walk and I feel blessed to be alive and thankful to be able to enjoy all this.
Lovely to see you Trish and glad your netball is going so well. Rach, I’m glad youare still able to enjoy pampering and are improving. Fingers crossed Mandy for your results, keep us posted.
It feels a bit spring like here on some days and on some of our walks we have seen some spring lambs, but we are still quite wintry as well. Yesterday we went for a walk on the tops near the Tan Hill Inn (Englands highest pub!, had to call in an have a warming drop after the walk as well!!), but we had to call the walk a bit short because we were in a white out and there was snow everywhere and it was - 4 degrees!!
Anyway, am starting to get more organised and will try and come on more regularly. It is still important to me to be in touch with you all.
Take care all, GI Jane, Una, Cherryorchard, Ninja, Rach, Mandy, Trishk and others.
Love and hugs
Wandyxx
Hi Wandy - good to hear from you! I’m delighted you are enjoying being back in cold, damp, snowy England! Could do with some of the Turkey heat right now!! I sympathise about the joints (though I’m not as bad as you). Do you take Glucosamine & Chondroitin? I find I’m worse without that… and I’ve just ordered some Q10 enzyme, as it’s supposed to help the joint/muscle problems Statins cause… and give you energy … and boost the imune system… and… I’ll let you know if it helps!!
Hi to all… glad the 2 year checks are all going OK … I had mine, but without the mamo, as that’s not till July (I got out of sync by demanding one during chemo to check out a lump they were being blase about) They seem quite happy…
I must say though, when I was diagnosed, I VERY naively thought that I would have surgery and “a few difficult months” and then be back to normal. Well, the few difficult months turned out to be a heck of alot longer than I expected, and I am not back to how I was, and probably never will be! I have dear Lyn Fedema for company, get up from a chair like an old lady, have thinner/finer hair than before… I went to Dancing on Ice yesterday with DD, and went to the loo (mistake - they were Portaloos!) and looked in the mirror, and this old hag looked back at me! Grim!
Stil, as Wandy says, we’re alive, and definitely kicking! My BCN looked at me the other week as we chatted in the corridor, and said “you’ve got your mojo back”… not sure what one of them is, but she’s right!
love and hugs too, hope you’re all keeping warm and enjoying the spring flowers (lambs in your case Wandy!)
Jane xx
Hello all
Great to hear from you Wandy, must have been such a relief with good news from the bone scan, but I’m sorry to hear you’re having a lot of pain with the Letrozole. I know what you mean about the safety blanket feeling though. The fell walks etc sound fantastic. Jane - glad to hear about your mojo!!! (even if we can’t always remember what it is!). Trish, I’m so impressed by the coaching, and you sound so upbeat. Mandy, meant to say before your pic looks very glam, I had serious hair envy. ( And don’t get me started on the lashes …) Rachel, hope you’re still on the mend.
i’m doing ok, seem to have a lot more energy the last few weeks so work feeling manageable and can enjoy our little grand-daughters - am completely smitten and so glad to be here with them. My youngest daughter has got us tickets to see the Spice Girls musical next week. She was mad about them when she was little so it should be a real laugh. Now just have to decide whether to go as Posh or Sporty …
good luck to everyone with mammos and check-ups, here’s to quick and clear results. Love to Cherry, Ninja and anyone I haven’t mentioned, Jude x
Just got back from my two year check. I am very lucky that I get the results on the day. Mammos were NED but breasts are nodular (first time they have said that) and the US I had to check my seroma was OK, too. It hasn’t changed size so the consultant feels it is going to a permanent fixture. I am not complaining as it partly fills the hole left by the surgery, even if it is painful from time to time. With the seroma there, the breast lympho is probably going to be permanent, too. I have had a cough and a tight sensation in my chest for about 8 weeks which I discussed at my appt. I was sent around for a chest X-ray which was also clear. The consultant says the X-ray isn’t a guarantee there is nothing on my lungs but it makes it far less likely. He suggested I might be a bit asthmatic and has written to my GP so I will have to make an appt at my surgery. I have been discharged to once a year check ups, too.
Trish, Welcome back. Nice to hear from you again. Congrats on the Oxford netball success (I did search to find the result).
I am sorry you are having such a hard time on letrozole Wandy but you are right - it is a security blanket. If I recall correctly you were ER +++, so it is probably doing you a lot of good even if the SEs are so unpleasant. I have a bit of pain (nothing like yours) from my anastrozole but the doctor recommended I take ibruprofen not paracetamol. I am jealous that you have the Lakes on your doorstep now. It would be so nice to go for a walk in the fells whenever the sun comes out.
Jane, It’s just the lighting in those portaloos. It isn’t flattering. Don’t use them again unless you are desperate or they have “By appointment, etc” on them.
Jude, Congrats on the new grand daughter!
Feeling absolutely drained at the moment. I think was more wound up than I realised about the check up today. I wanted to get outside because the weather was so nice but all I could manage was to make a cup of tea and sit down.
I will keep my fingers crossed for Mandy and anyone else waiting for the results of their mammos.
Love, Cherry xx
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Helloooo May Buddies! I’m a month off my two-year mammo yet. There is no way I can catch up with all your news so I will just wave to GI Jane, Una, Cherryorchard, Rach, Wandy, Mandy, Trishk and anyone I have missed.
I am 3 weeks off my second cancerversary and no recurrence yet so I will be able to have more surgery now. They wanted to hang fire because any recurrence would have come as priority 1. Booby two will be coming off as risk-reducing and I’ll try to get some smaller boobettes made.
I’ve had awful bladder/prolapse probs thanks to the Tamoxifen/Exemestane. My bladder is now ulcerated (combo of FMS and chemo) and there is no cure but I’m on three more taglets to try to stabilise it. I’ll be having a hysterical-rectum (hysterectomy!) shortly and because I’m ER++ and the cells were very aggressive, he is going to fetch out the tubes and ovaries, too. So I’ll end up with little to get cancer in.
Soooo, my summer is going to be all major surgery and recuperation in the sunshine.
Hope the rest of you have some news that doesn’t involve surgery lol
Just to let all my May buddies know, that I have just received my mammogram results. “Very satisfactory”!!!
Yippee!!!
Amd they’ve arrived on try 2 year anniversary date! 7th March!!
Mandy xxxxx