Just waiving to you all to say cheerio for a bit - off to the North(umberland) - one of my favourite parts of the world… see you in a fortnight… radiotherapy starts almost as soon as I get back, so the buckets will be for moisturisers, not sand! Jane
Have a lovely time, Jane!
So, I’m walking on stewing steak, Trish has a spotty LG & cold toes and Rachel has wooden legs and feet - what an attractive picture we paint!
It seems (from an interweb search) that docs often prescribe Gabapentin for PN. Now, I’m already on that - I cut down to one a day in the evening to go with the summer weather, though TBH I didn’t usually have to take any in summer, pre-chemo. I’ll try adding an extra taglet in the mornings to see if it helps. I can take up to 900mg a day without referral to a quack.
The PN is currently just the steak-feet thing - the numb legs come and go up to the knees. Maybe that’s what Rachel calls her ‘wooden legs’?
Speaking of follicles waking up, my head hair is now <drum roll=“”> a whacking 6 (SIX) millimetres! It’s still pigment-free, OH calls me a Baby Bird.</drum>
Enjoy the North East, Jane. My family are from Northumberland and I love it too!
Ninja-my wooden legs do get better between treatments, but they feel heavy and they don’t seem to bend properly. I’m a bit like a puppet!! I have hair envy-6mm! Mine is best described as fluff-and so much of it is white. I look a bit like the ugly duckling-let’s hope I turn into a swan very soon.
Going to see oncy tomorrow so have written questions down so I don’t forget anything.
Hope everyone’s okay
Rachel x
Blimey, what a bunch we are. Have a great well deserved break Jane and try an forget about us for a while. So glad I’m not on Tax, can do without wooden legs to go with my wooden head. I finally bared my head to OH this morning. First time I’ve dared let him see it as I thought if he saw it we’d never have sex again. Havent had the sex yet so could be right, but it was only this morning so give the lad some time. I’ve a fine downy growth of hair coming back and it looks dark. I like to be blonde. Ah well, at least it’s hair.
The miracle of Emend continues, although I’ve taken the last one this morning, only gave me 3, and I’m normally nauseus for a week so watch this space.
Been busy planning house move today, from a quart to a tiny demi-tasse so lots to do and in a massive rush. Now lolling on bed with laptop. Still no sign of sex yet.
Hipchick-they say bald men are more sexy, so why not bald women? 
Praps that’s why I’m single. Don’t think any man will look at me again after all this-he’d have to be a very brave soul to take me on!!
Ha ha Rachel - I thought that after my 1989 lumpectomy that left me with one normal nip and one that was a bit boss-eyed/winking. Funny thing is, though, when I got together with OH, he didn’t even notice! I think that maybe men are just simple creatures…or grateful, perhaps ;o)
When I was measured up recently for a post-Mx bra, first of all she was trying one on me for size; it was thinly-lined but not with much structure, and it puckered over my winker. “Ah, that’s the side of the lumpectomy” she proclaimed. “Aye, that’s why I always buy slightly padded bras, even though I don’t need the extra” I replied.
Hips - you saying that OH had never seen your scalp? How have you kept it under wraps? Literally “under wraps”?!
Hi May ladies, just catching up with all your news. I’m back after two lovely weeks holiday in France - just in time to be poisoned on for the 5th time on Tuesday.
I have been reading your posts re Onc visits with interest as I have an appt with mine on Thurs, I haven’t seen him since just after my first cycle.
Sounds like there’s a mixed bag of tough s/e’s and good days going on so hugs to anyone who needs them.
Smiles xxx
Ninja, he’d never seen it until today. It was partly the sex thing and also a weapon held in reserve for a vital moment, not to be frittered away as I’m a nasty scheming woman. Suddenly feeling in need of exta nurturing, whip off the hat /scarf/hat/ bike helmet/wig/plant pot/tea towel. Delete as applicable. Always keep a bullet in reserve.
Has everyone seen the MacMillan report on getting exercise during treatment, as well as after? I just had an email from a well meaning friend who saw the same thing and has offered to go walking with me next week after I have feccing. I need to point out as nicely as possible I am not a dog who needs exercising. If I have that sort of energy, I will put into cleaning the kitchen or bathroom.
Jane, Have a good holiday up in Northumberland.
I haven’t had a spotty LG but I have had a couple of ingrowing hairs on my baldy head where some hair follicles have decided to get growing again between treatments.
Reading the side effects of tax, I am so glad I don’t have to deal with that. I am clumsy enough without stumbling over stewing steak feet.
Hipchick, I only get 3 Emend to take too. I think that is the satndard. Asked chemo nurse about it and she said you should have eliminated chemo drugs from your system at the end of 3 days. I still feel nauseous for a week after treatment too. I tried gaviscon and found that helped a bit.
Small SE’s to all.
I have been wearing the travel sickness bands for chemo week and they seem to work.
Hips: “whip off the hat /scarf/hat/ bike helmet/wig/plant pot/tea towel. Delete as applicable. Always keep a bullet in reserve”
Plant Pot???
.
.
.
…How do you find one to go with your complexion?
;o)
Plant pots come in many colours.
Didn’t feel nauseus this morning but took Ondansetron just in case. Won’t take any more unless it comes back. What an improvement. I’ll give the gaviscon a go if necessary as I have a monster bottle that I’ve never used. Thanks.
Yaaaay May Girls!!! I’ve missed you all so!
I’m back in the land of the living!!!Jeeeeeezuz,its been hard again and I have still not been allowed any emend!!! Saw the oncy last Monday and he said he’d give me more Odansetron and see how that goes, well it was a bit better but ‘not a lot’, in the words of one short magician!! I know if Choccie comes on and reads this she will get cross cos she TOLD ME to really lay it on, but obviously I failed…
Anyhoo, its been bad again and I am home but have had a really sh***y time and have only just stopped feeling sick. Hips so lovley to see you again and like CM says get the omeprazole down you.
Ninja, glad you are now in and hope you are not too knackered, rachel, hope you are not soo blue and cherryorchard, beverlie, angielav and everyone else who wished me well, it really means a lot.
Should be able to be a fully functioning May member for a couple of weeks now before FEC5. FEC5, it really is moving along now, had a rads chat with the oncy as well, mine prob won’t start till mid Oct,so I should be all through by mid Nov and just the old hormone therapy to dofor the next 5yrs.
Had a panic about new tumours a few weeks ago and my bcn got me in straight away this time to see a doc and had ultrasounds done on both sides and all was clear, just a great seroma on my surgery side which she drained. Such a relief all round and feel really happy with the care and speedy treatment from the ‘team’. Just wish I could get my post chemo drugs right.Maybe by the last one!!
Saw the exercise thing too, is anyone else a bit sick of cancer stories every single day!!!..
Missed you all, lovely to be back!
Wandyx
Lovely to see you too, Wandy
So glad you’re feeling better Wandy. Didn’t know about the panic but hope the seroma doesn’t return. I get panicy moments too. Any slight feeling around the area or armpit and minor panic. I expect this is the way it will be. Be vigilant.
I’m now beginning to feel a whole lot worse. The magic of Emend has now worn off and no more left. I feel as though I’ve just walked out of the hospital, nose all mustardy and feeling grim. What’s all this rubbish about chemo only hanging around for 3 days. Not in my body. Yeuch. Might just go and throw up. bleugh.
I totally sympathise hipchick. Its at least a week for me and sometimes 10 days. Just taken some more metroclop c**p myself cos I’m feeling nauseous…
Courage mon amie!!
Wandyx
Hi Wandy, Glad you made it home and are back with us.I get metclopromide too. I take it without fail for about 5 days but actually feel a bit better when I stop. Don’t know if that is a coincidence or not. In fairness to the nurse, I think she meant the drug can stay in your system for about 3 days not that the SEs would last 3 days.
I get bad stomach pain a few days into treatment which the onc thinks is my hyper active bowels. Not sure I agree with him. I feel bloated too and belch like a builder after a pint for about a week. The gaviscon seems to helps with the sicky, bloated feeling.
Just managed an hour and half in the garden and feeling quite pleasd with myself even though it has not made much of an impact.
Hi all
Nice to see you back on here, Wandy. Can’t believe they won’t let you have emend.
Cherryorchard-well done on the gardening. Mine looks like a set for Im a celebrity…it definitely needs some TLC.
Hipchick-I’m sending you a feel better hug x
Wish I could just wave a wand over all of us to lessen SEs.
Smiles-hope your appointment goes well.
Been to see onc today and he was fab! Took ages talking things through and he thinks I should have double mx and node clearance in September followed by radiotherapy to chest wall. I feel so much happier now I know the plan. He also said i was coping well with the chemo and that he wanted to do everything he could to make sure the cancer doesn’t come back. I feel very reassured and able to plan return to work etc, and see the end!
Rachel xx
Well it’s EC5 tomorrow … been in for bloods today and nurses looked at my new clippered hair … there’s still a lot of hair and some new growth … so we’ve decided to give the cold cap a go again. If it feels like torture I’ll pack it in … but it would be a shame to lose my new suede head! Paxman have suggested a paper surgical cap… heaven knows how this works?
Expecting a cruddy week of SEs … hope everyone is ok … and nice to have you back Wandy! xxx
Good news Rachel, so glad your appointment went well, I also like to have a plan of action and hate the waiting game.
Did you have a good list of questions?
I need to write some down or I’ll forget (chemo brain really kicking in)
Angielav - good luck tomorrow, I’ll be with joining you.
Hope everyone else is ok
Smiles xxx