Hi Troodles,
love the hats.personally rather the hats without scarf(they shout chemo to me).Just a personal thought when I was looking for hats I couldn’t find one to fit me (small head). It might be something to concider. There are women out there with very small heads!! I wear childrens size frames on my glasses.
Keep up the good work on the hats
Hey Trudi - I will go and have a look at the website and let you know my thoughts.
Christine - I would imagine if you didnt shave you head you would be patchy as the hair on your head is at different phases of growing and some will be in a resting phase.
I guess if Chemo No 1 didnt take it all, it would do somewhere between chemo 2 and 3. I feel most people do the full shave due to the tender and sore scalp - the only way to stop it is to shave it. Some of my hair has started to regrow but it started to get tender again so I shave it clean every couple of days.
My blocked and runny nose seems to be getting worse and im beginning to get a tickle in my throat making me cough a bit. BUGGER! I hope they dont postpone my 3rd chemo. Has anyone got any quick cold cures! Im killing the manuka honey in hope and breathing in copiuos amounts of Olbas Oil in an effort to help me unblock me nose …i have 3 days to fight it off.
Helllllllllllllllllllpppppppp!
HI libralady was wondering if you have had your scan results back as saw you on anouther thread ?
Also anyone feeling that thay just cant sleep have been awake all night ,this seems to happen to me 3 or 4 days after chemo onc said its the steriods but im what my daughter says mum your buzzing i laugh and say i need sleep … aaaahhhhh anyone eles have any problems sleeping ? please help xx josie
Well my life just gets more pants. The meal was lovely, the wig was a pain didn’t feel comfortable at all and then i got a really bad head again. I was the nominated driver and hubby said he would drive (stupid I know as we were only approx 2 miles away, yes you guessed it we got pulled, hubby slightly over the limit) No excuse I know, but we never do it as a rule we both have clean licenses. Now worried re hosp appts we are very rural, he is self employed as well… not looking for sympathy as no excuses we were totally stupid…this is soooooo frustrating feel like everything in our lives have gone so totally wrong , rant over
From a very sad and contrite Shelley xx
Hospice123 - So sorry about your night out, if there is ever a time to play the card, do it now!
Trudi
Yes. Shelley, play it now! Tell them you were the designated driver but you got one of your dreadful headaches and was feeling nauseous. Hubby had had a couple, you were getting quite distressed, didn’t want to wait for a taxi, so OH felt he could drive home. It would be a completely different scenario if there had been an accident, but there wasn’t, thankfully.
I’m off for round 2 tomorrow. I started with a sore throat last night so have been using Difflam spray and Corsody. I feel perfectly fine - so don’t know whether it’s a sore throat or ulcers down there?
Had my Picc line put in on Friday. The first attempt at it really really really hurt (when nurse was feeding the introduced in)!!! Me not like it! But 2nd time around, and a different vein, it worked ok, phew!!!
Washed my hair last night and was quite horrified at the amount of hair falling out. But when I showed my district nurse this morning (she was changing dressing on Picc line), she said it was a very small amount, that it wasn’t actually coming out on clumps like it would do otherwise. So I’ll give the cold cap another go tomorrow (Gill, very nice pic!), and see how I go. If I start looking like Rab C Nesbitt with his sweep over, then it will be time to call it a day with the cc.
Getting paranoid because I can feel a little lump very near where my SLNB scar is. All that area has felt a little sore and tender all last week, but I think it’s because it is less numb now. I have to massage the area to ‘break down’ the layers, so leaving it all flat eventually and less lumpy. Is the lump more cancer? I had a clear CT and bone scan. And even if it is - well, the chemo will sort it out, won’t it?! Like I say, paranoid.
Kym x
What a heavy bummer Shelly! Did you show them your swede at the time and burst into floods of tears?! Hows about visiting your local Oinky Station to play the CC and plead your case. Explain your man was only stressed and anxious about you and your malady.
I got caught out in Lidl last week. I couldn’t remember my PIN then found an old £20 note that had recently been given me by a relation! Of course, stupid puppet on till refused it and I had to rush home to meet boys from school then drive back, change the £20 in a bank in order to collect the shopping!
Also, one for you Gill – since my last report I’ve had my small boy being sick on the hour all day Friday and eldest being sick last night. Eldest took bowl to bed and managed to keep it contained. Small boy sicked once on sofa so I had to wash all cushion covers. Otherwise he kept me running up and down to the loo all day emptying the bowl and I forgot to wear my Marigolds. We’ve since managed to get shot of sicked-on-sofa on freecycle and bought a better sofa for £50 on e-bay – result!
Libralady - you could try the 1000mg soluble vitamin C tabs and other immune booster supplements…
Troodles - I’ll check out your hats.
Lizzy - well done on the walking; love it!
Judes - I reckon our wee thing is due to chemo getting rid of our bad cells and the good ones are coming to the fore so we are starting to function better… We just have to keep everything crossed the bad ones don’t return. Isn’t lower better re temp.?
Hey, everyone – the stranger I mentioned to you all a few pages back came over for a strong coffee. We showed one another our false boobie and it was a LARF! As promised I will now pass on her sentiments to you. She went through breast cancer nine years ago. She now lives with bad lymphodema and has to wear a tight ‘sleeve’ type bandage. Despite this she is SO inspirational and one feisty lady. She said, when we are individually ready, we need to decide how to carry our cancer. We MUST NOT allow it to rule us. We are all BIGGER than our cancer and we must PUT OUR CANCER IN ITS PLACE and LIVE OUR LIFE. Sorry to shout this at you but I wanted to pass on the positive message. I’m personally determined to attempt to work on it.
Good luck to you all this week. I may not clock in much as I got myself into a megga anxious state reading posts right before chemo so I’ve decided not to read anything that freaks me out this time! Also, after this third session I’m off to a remote location for Christmas – and there’s no internet there! x
Hi All
Slept all night and most of last evening yet I have been really exhausted all day and have been unable to do hardly anything. Nevermind, I am really looking forward to Christmas and all the family coming home.
Troodles - liked the hats. I too am not keen on wearing scarves because Ifeel that they symbolise that I have cancer. I have a couple of scarves that I wear in the house but I wouldn’t go out in them. As well as wearing my wig, I wear felt hats and other hats dressed up with scarves. I just want to be different. I wouldn’t know what to tell you to charge. Just an idea but I had an appointment with Headstrong run by BCC and the lady volunteers let me try on hats and scarves, you could perhaps take a few examples to either Headstrong at your hospital or to your cancer unit for them to have a look at. I would have liked to have been able to buy some of my hats at the hospital. Good luck with it all.
Good luck to everyone who is having treatment tomorrow. Not sure where we are up to now.
A
Troodles I actually really like the scarf… I think cos it’s pink! But I wea scarves quite a lot… And I don’t really care if I look like I’m having Chemo… I am!
I wear has, scarves or wigs just depends where I’m going and how cold it is outside… In the house I usually just go comando or wear buffs… They are especially good at night when my head seems to get freezing in these Baltic nights.
Shelle sorry to hear about your predicament… Hopefully you can get it resolved as I’m sure this s tge last thing you need.
Pleasant1 you should have asked o speak to the manager… Sure what difference does it make whether it’s you or lidl that take the note to the bank? Anyway glad you got your shopping, but sorry your kids have been poorly.
Kym and gill I’m loving the cold cap pics.,… Sounds like it’s working for you both.
Kym good luck tomorrow… I’m sure you will fine it much easier now you have the PICC line… It’s common to get lumpy scar tissue under scars… They would have made sure your margins were clear when you had surgery and cancer wouldn’t grow into a palpable lump so quickly but do get it checked out.
Christine I havent shaved my head… The pain only lasts for a few days when the majority is shedding… Whatever it does to the follicles it only does it once… My hair is very sparse now… Most of it came out day 12 of cycle 1 since then it’s just slowly come out… Still got a few wisps and even a few wisp in the old lady garden too… But you might find you lose it all anyway even if you didn’t shave it but depends if you can be bothered with your hair falling out everywhere after about 4-5 days it slows down… But I don’t think Monday will be too early to have it shaved… It’s just what ever is easiest for you.
Love and hugs
Lulu xxxx
Hi Ladies
Can I ask,at what point did you decide to go for the shave if you did? Day 18, head been v tender since friday, coming out in handfuls tonight. I look like a cross between my Dad and Max Wall! Did you go for a number one, and did it hurt whilst your head was so tender?
Thank you for advice
xx
Shelle, play the cc - think most of us have had the moment when we think have I had 1 too many or will I be OK? and under the circumstances! xx
Good morning
I’m up early today to have some prune juice and fruit lol then going for a walk as I feel so sluggish!
also to wish Kym all the best for FEC number 2 today, hope all goes well, love the cold cap picture!
Shelle - sorry to hear your night out ended with a bit of disaster, hope all gets sorted out.
I went to my brothers open house party Saturday, didn’t really feel up to going, was tired and not much appetite due to full feeling. I was quite nervous I was going to pick up a bug as there were about 30 people there, when anybody tried to kiss me I backed off, put my hand up and just said I can’t ‘chemo’ lol. I had some food but was careful not to have anything risky.
Troodles, I like your hats, I worry a bit about mine blowing off, as I’ve not much hair left there’s nothing much to hold it on. I use a ‘halo’ of hair when wearing a hat, it looks really nice and keeps my neck warm! I guess about £10 would be about right, from others than I’ve seen, have you thought about donating a percentage to cancer research?
For anybody wondering about shaving their hair off - I didn’t bother, I had it cut short the week before my 1st chemo. My scalp was only a little bit sore on day 14 of 1st FEC, then everyday when I combed my hair quite a lot came out, and during the course of 7-10 days nearly all of it was combed out, by doing it this way I didn’t experienced any scalp soreness at all, although there are only a few whispy bits left now, the wig fits better!
Have a good day everybody and those having 2nd and 3rd chemos this week, hoping your se’s are little ones.
Paula xx
Hiya all
How’s Judes? haven’t seen her post for while?!
Hair coming out big deal now, scalp is tender, will have a shave off at 12.00 as my longish hair is everywhere, can’t wash and brush it without loosing 1/4 as it seems LOL.
In a hurry just now, speak later,
love from Christine xx
Hi everyone
I chose to cut my hair very short about 1-2 cm long, which was fine but I got so fed up with hair keep falling in food that I got the razor out on Day 11 and shaved it off, needs shaving again as very bristly now but have lots of small smooth bald spots over head.
I haven’t lost any eyelashes or eyebrows yet, still have quite a lot of bristles over head and only half of LG gone and I am due to have no. 3 on thurs.
I have no doubt it will all be gone soon though.
Shelle so sorry to hear of your disaster, it certainly won’t make it any worse to play the CC, give it a go.
Good luck to everyone else having treatment this week.
Jean xxx
My hair started to fall out after about day 10 so my best friend shaved it off to a no 3 a couple of days later (handy having a best friend who is a haridresser!). By the end of that week it was really itchy so shaved the whole lot. I have a little bit of patchy hair but expect that will go now No2 FEC well out of the way.
Glad everyone likes the hats, we are thinking about donating to BC, just not sure how to do it on the website, too techno for me but I will get Su to sort that out.
Have to say, omg am I craving crisps, can’t get enough of them!
Good luck to anyone having chemo today and hope only minimal se’s.
xx
Afternoon everyone,
Had number 2 chemo this morning. Quarter way through. yay. Only 6 more to go 
My reaction to tue cold cap wasn’t too bad this time, maybe because I was expecting it. Still, 10 mins, and I was fine.
Troodles, love the hats and scarves on your site, and I rather like the scarf with lace, very pretty. I would agree that £10 for the hats sounds about right, going off other sites. But should imagine that as you are making each by hand that that would barely cover your basic costs?
Paula, so glad you got out at the weekend. You’ve been quiet for a while, hope you are ok?! Thanks for comment as re my new pic - not the most flattering in the world especially as the nursed jams it right down so my face is all squished!
Lulu, I rang my BCN this morning. She said if it was an inflamed lymph node that they wouldn’t put a needle in it anyway, and if it was something sinister, that I am being treated anyway (which is what I thought), but that my both my CT and bone scans were clear. It’s not under my SLNB scar, which is healing great, but about 2 inches away. She told me to keep an eye on it and only feeling it about once a week and to let them know if it was doing anything odd. Not to keep poking it - which is what I have been doing!! I haven’t had surgery yet - I’ll be having a mx and node clearance after chemo, and then radiotherapy.
Good luck to anyone else having chemo this week, and may everybody’s SE’s be little teeny tiny titchy ones!
Kym xxx
Had the review with onc this morning. She thought there was a definite improvement from when she examined me before I started chemo, especially reduced swelling at the lymph nodes, which I suppose is where I most want it. She reckoned the radiologist was less encouraging because there was a gap of a month between first ultrasound and starting chemo, and the swelling had increased over this perid, so the radiologist is comparing things with an earlier base.
She did say it was still classed as inoperable and will definitely be going for 8 rather than 6 cycles of chemo. At least I’ll get a better idea of how my SEs might go on TAX with so many November ladies on FEC-T about to switch before me. Plus I get to wait till later in the spring before I have to have my Mx, so might get some decent weather for recovery.
Sorry I have not posted recently - I was a bit high after 2nd chemo. I had 3rd chemo on Thursday so half-way and everything was going so well until I had a minor reaction to piritin. They sent me home in a taxi and I caught up with most of your posts in the eve. I was fine on Friday in spite of having had no sleep again and my son took me to get the Christmas food shopping and tree.
Been busy decorating tree and wrapping presents - so glad it is done as I feel pretty cr*p today. Have had the runs but taken the pills and - fingers crossed- it has stopped; my mouth is sore so have gargled with Difflam and my energy levels have plummeted - I just can’t be bothered doing anything and fell asleep this afternoon.
Didn’t mean this to sound like a moan - sorry! I’m finding this ‘feeling under the weather’ difficult as I usually feel so well. But it won’t last forever - onwards and upwards!
Hope all you lovely ladies are not suffering too much and that we are all feeling better by the weekend.
Take care all, love Liz, x
PS Have had a craving for cheese and have gone right off fruit.
Good Evening Ladies,
Been reading all the posts, Love the website Troodles, well done you,
Hope everyone is nearly ready for Xmas, have got friends coming to stay and really looking forward to it. Tree decorated…most stuff done.
Chemo no3 coming up on Tuesday, cant wait to get past the half way point, just scraped in with the blood results, but so far so good, at least as it goes on you kind of know what to expect,
Work Xmas party on Friday, just hope I am well enough to enjoy it. Have got the most “Fab” shocking pink tights and shoes to wear in honour of all us Ladies, at last got a wig even though very itchy, How do you get used to wearing it and not feeling so like everyone is staring at it especially as they know your bald,
Hairdresser told me her client had her works do and arrived dressed in killer heels,sexy frock, new wig,boyfriend spent all evening saying how fab she looked, got up to make speech, cufflink caught in wig, dragged it with him, whole room didnt know wether to laugh or cry.
Wishing me luck on all fronts, Big Hugs to you all x x
Good luck to all of you on chemo this week. Mine’s scheduled for Friday – if the cell counts are OK. I’ve got my pre-treatment meeting tomorrow so lots of Q’s this time… Also meeting the hairdresser about a wig.
GBgirl good luck for no 3 today.
butterfly i hope your feeling better after you reaction, but sounds like you having a tough time SE wise… just take it easy.
gail i saw my onc too… good that its looking smaller but sorry you have to have 8 but it will hopefully shrink the tumour enough to operate… i might be getting my dose reduced as my onc thinks the weakness and feeling faint, dizzy and short of breath side effects are a bit too extreme… gonna get no 4 as a full dose, but may reduce 5 and 6.
hope everybody else is coping ok and good luck with any upcoming chemo.
hopefully gonna get a wee bit of shopping done tomorrow and then i can just relax.
lulu xxx