Starting Chemo in October

<<<<<<<< looky looky my new chemo heels, almost looking forward to next chemo so i can wear them (almost)

How are we all october girlies

I am in a chipper mood, felt great today apart from a bit of a headache that soon faded with some ibuprofen. Went for some retail therapy and bought my lovely shoes and some new hats. Also got a couple more crimbo bits. Thought i had a bit of a cold coming as keep sniffling and odd sneeze but no other symptoms, my chemo buddy tells me this is also a SE due to lack of nose hair so perhaps thats all it is phew!

I was round so many people today and im on day 9 so into my ‘low immune’ phase i used anti bac gel regularly and touched only what i needed to touch. I dont know if im playing with fire but i refuse to wrap myself up in cotton wool, this stoopid disease takes too bloody much and want to carry on with normal as much as i can. (hope i dont live to regret these words and end up in hosp but if i do well i do, ill just have to deal with it)

Jules - 3rd one done yay, glad you feel ok hope you continue to. I also get flushed face a bit the next day. If u are sad so am i, i love the xfactor hehe x

Teresa - glad you feeling a bit brighter, its nice to surface from the haze isnt it, hope you continue to feel bright x

Tiny1 - Aww i also sobbed when my hair came out and i really thought i was ok with it but wasnt, you will get used to it soon i promise and it takes so less time to get ready x

Scissors - thats good news that the mouth ulcers are improving for you, hopefully next time wont be as bad if they reducing dose x

Hugs to all
Clare x

Fab heels Clare, knock 'em dead!! :wink:

Get voting for JOhn Jo Kerr Xfactor fans!!!

Glad ur so well Jules, you are my barometer-so jealous of your hair!

Tiny1 , so sorry, i too am hoping i wont lose any but im starting to think that its going from the back of my head and creeping forward!!
Can i ask what regime you are on?

I love those shoes Clare where did you get them from??

Think i might treat myself to something after my no 3 on Monday.

Have treated the OH to tickets to see Rihanna, he soo deserves it i have taken soo many chunks out of him.

Good luck to all for next rounds!! xxx

Hi teecass I’m on fec

Tiny1

Thanks :slight_smile: they from new look x

Clare the shoes are fab… I try nit wrap myself up in cotton wool either although my family would love to wrap me in it lol. I also have a very runny nose and crusty and bleeding… Yuk! Due to lack of nose hairs too… Nose has never been tne same since last chemo two yrs ago though.

Hi tiny my hair is coming out loads too… Been coming out for 5 days and although its very thin it still looks fairly normal despite the moulting… Just feels like really fine baby hair but just thinned all over no obvious big bald spots yet… Not sure though for how much longer… Are you shaving it straight away or leaving it to come out?

Theresa i dont have a kindle but bought myself an ipad which is roughly the same size (although a lot more expensive) and can read books on it too and has a kindle app… I love it! Hope your feeling better now and can get your wig on tues.

Jules i had a reaction to tax so had a big red everything in the hosp and then a pink flushed face for a few days afterwards but then settled back down.

Teecass good luck on monday… My no 2 is on thursday… Its come around so quick will all be over in no time.

Love and hugs to the rest of the pj posse

Lulu xxxx

Hi lulu34

I am having my head shaved Tuesday when I have my wig fitted

Tiny1x

I’m up and about, but out of necessity, unfortunately and sadly my stepdad died yesterday and so funeral planning and executor of will is on my agenda for the next couple of weeks. Will catch up with the October PJ gang when I’ve got all this sorted, didn’t want you all thinking I was out for the count, best wishes to you all and tiny se’s, Simone xxx

Oh simone im so sorry hunny… Sending lots of love and hugs to you and your family xxxx

So sorry to hear your news Simone - I do hope you are coping OK with that on top of everything else. Thinking of you and your family xxx

Simone so sorry to hear of sad loss love to u and family x

Simone, really sorry to hear about your step dad. I’m thinking of you, Big hugs xx Lizzy

Simone, Sorry to hear about your step-dad. Lots of love.

Pat x

Sorry to hear your sad news Simone. Sending lots of (((hugs))) to you. Thinking of you and your family xx

Lots of love and hugs Simone, thinking of you all

Xxx

HI everyone,

Haven;t posted for a while - went to Prague last week then straight into chemo no 2 the next morning on Firday and slightly wiped out since then.

Simone - I’m so sorry to hear about your step father, that’s a lot to deal with at the best of times, even more difficult at the moment.

The ulcers sound awful - I"ve had a couple but nothing like that - touch wood.

But the last few days have been horrible - not sick but soooo tired and slightly nauseous all the time. But this evening feeling much better so hope tomorrow, day 4 after session, I’ll be able to actually leave the house. What was that woman doing telling Simone to make the effort to get dressed and get up - ?? Is she mad? There are some days when it’s all you can do to stumble to toilet.

I too have been in PJs - some I bought only just recently. Every now and then I think it would be a good idea to look for something a bit more glamourous to wear for these days, then I look at my Winceyette numbers that I"ve collected, mainly from TK MAxx and I just want to get into them and my big cardi. I might get dressed tomorrow.

I did the cold cap again for session 2 - I was prepared for how horrible it was going to be this time, and I took a couple of paracetemol beforehand. But it still made me feel sick and dizzy - took so many clothes with me this time, I was under a mountain of clothes and blankets by the time the two hours were up! But I don’t seem to have lost my hair so far. Mind you, I haven’t brushed it since Friday, and I’m going to wash it tomorrow so it may all come out!

On the washing front, I can’t bear to not shower at least once a day, because perhaps I;'m mistaken but I think I can smell the drugs coming out of my skin and I really really hate the smell. Is this just me? Or am I imagining it?

Love to all,

Hope you’re all managing. Prague was fab by the way - I really recommend it for a visit. But it’ll definitely be my last trip abroad before this is all over.

Alison xx

Someone mentioned bran cake for constipation? Any recipes? Im taking the tablets but they’re taking too long to work! As the did last time…and to be honest I’d rather try something to eat…

x

Hi Everyone

Simone, I’m so sorry to hear about your loss. Big hugs to you and your family.

Alison, Glad to hear Prague was fun. I hope you sort of the constipation as chemo poo is awful. I have the opposite problem this time. I go nearly every time I visit the toilet. I hope tomorrow is easier for you.

I also think my skin smells different and wish I had the energy to put some lovely smelling moisturiser on. At least my pjs smell good.

I had a heart scan today and the chemo hasn’t made it worse. See onc on Friday to confirm if I can have further chemo. If not, then hopefully I will get a new plan. I guess it will just be regular checks.

I hope everyone isn’t suffering too much from the ses.

Big hugs
xx

Hi ladies

Well the most awful day of my life so far today had all my hair shaved off today and I cried like a baby really wasn’t a nice thing but it’s all gone now and have had wig fitted so at least I have got some hair just not my own.
Hope everyone is ok?

Tiny1 x

Hi Tiny1

Sorry to hear that yesterday was so horrible for you. I just wanted to send you a hug and hope that today is a bit better for you.

Nats
x