morning october ladies im back at last just had 2 weeks in hospital on iv antibiotics sailed through 2nd chemo with no vomiting to then have temp and seroma . now a pincushion and still rattling with pill shappy to be home until the heating broke down never felt so vunerable.still fixed now and looking foreward chemo should be friday but thats put back .
good luck for friday clairex
take care lovely ladies xxxx
Hi all - but this one is really for Lizzy who I’m guessing from the blue cag and scenic photo is an outdoor girl like me (or maybe the nearest pub is across some fields…?)
I was reading the FRA magazine (fell running) during my last chemo and was amazed to see an article about Nicki Spinks who had done all sorts of amazing endurance runs since her mastectomy in 2006. It was a real inspiration to me as she has come back really strongly. Admittedly her BC experience would have been less traumatic than those of us in this section of the forum as she had straight mastectomy and implant but no chemo/rads.
But she had her op on 4th July and then did 20 mile race in the Galloway Hills on 12th August - what an inspiration!
My chemo nurse just said “isn’t having chemo the best excuse for not going training?” - she doesn’t understand that runners like the misery of being out in all weathers and pitting themselves against the hills.
Maybe I’m on my own here - but any hill billies out there?
Sue
Hi Ladies, Kicking my own ass today and going to go watch local Crimbo lights being turned on, followed by hot choc with marshmallows on top, reality will be me wrapped up to the hilt, sweating my nose off then freezing again within minutes, will see hot choc and tummy will do small somersault and I will resort to a teabag!! But getting to spend time with my fabulous friends is always the same, an absolute hoot!!
Jules, sooooo jealous of the real fire, central heating whilst great it’s just not a real fire!! Not sure about the scans, I’ve been told am having scan on monday as I am at halfway mark, I’m such an ignoramus I couldn’t tell you what I’m having scanned, I didn’t really listen, I just rock up at clinic and do as I’m told, it’s less stressful though!!!
Gentle hugs Joy, keep snuggled up xxx
Hi Sue, read your comment and all that came out of my mouth was WOW! I’m not a runner anymore but I am like the ever ready bunny when it comes to walking and usually it’s the dark that makes me stop. Love being outdoors, whatever the weather, with fantastic views, even when misty, and all that fresh air and your butties and a flask in the rucksack, you can’t beat it! As well as Gloves, Cag, waterproofs, boots and tissues (just don’t suit a snotty nose!) on top of Yorkshire Dales = Me being happy!
Good luck with treatment sessions this week everyone, Simone xxx
Hi ladies
Had a bad night, far more sick this time than FEC no 1. Taking the anti sickenss drugs and now just have nausea so at least I’m not actually being sick!
Sue, yes I am very much an outdoory person. I was brought up in the Lakes but now live near Warrington. I’m a member of a runnning club and the FRA and didn’t know about Nicki Spinks but I’ve not read the latest mag. She sounds amazing. I did manage to get back to a bit of light running between chemo treatments and was delighted to run/walk up Cat Bells near Keswick last Sunday. I won’t be running for a couple of weeks but I will cherish the few days before my next treatment when I can go running. I’m going to my parents for christmas and as long as I don’t get ill I shold be on a good week (fingers crossed). My onc and BC nurse think I’m a bit mad!
Joy, sorry to hear you’re having a bad time. Big hugs x
Jules, I’m so cold I, thinking of lighting the fire but don’t have the energy to get the wood from the cellar!
Simone, enjoy the Chrimo lights and keep warm. I’m hoping to hit the Christmas markets in Manchester in a couple of weeks. Hopefully I can manange a mulled wine 
Take care all
Love Lizzyxx
Very cold here too… But snuggled under a cosy blanket on the sofa vegging out in front of the telly…
Im def not an out doorsy type… I did used to walk a mile to work and back pre dx but thats about it.
Xmas should be on my good week too… My family are all coming here as I have the biggest house and biggest oven but everybody is gonna help out… We are having a very scaled down Xmas… We have all agreed to put a limit on £20 each for pressies for sister, parents etc and a bit more for the kids, but they are 20 and 17 and I tend to just buy things they want throughout the year. W
So we will eat drink and be merry and play daft games and enjoy each others company… And we are planning on us all going away on holiday in June after treatment is all over so will have something nice to look forward to.
What is everybody else’s plans for Xmas and beyond?
XxxxxX
Hi all
We have a log burner and have had it going all evening, nice n toasty. My mouth is also on fire from lovely chinese food so having to cool it with ice cream hee hee
The out doors does not agree with me…ever since hubby and i decided to go for a ‘lovely woodland walk’ down in the welsh valleys, lost the trail, fell and sprained my ankle and then had to walk for 6 hours on it trying to find our way back to the caravan in the pouring rain… stupidly had no phone, water, food, compass or even a warm coat…doh!! I told hubby if i ever say ‘lets go for a walk’ in wales again to bash me over the head with something hard hehehe funny looking back now and i do get teased about it but omg thought we were going to be stuck in the woods all night and kept thinking of the film ‘wrong turn’
Hope that made u ladies chuckle x
Back from the Morley Crimbo lights switch on done by Harry Potter looky likey, it was hilarious. If only they’d tested them before hand, they would have realised quite a few weren’t working straight away, but it still got a big cheer when they came on and the fireworks were lit!!! lol!
Unfortunately Lulu, I’m having swamp juice on 22nd December so I’ll be watching everyone else’s dinner with envy as I roll a solitary roast spud and and a bit of chicken round a plate contemplating eating it but daren’t because it might come flying back up, however last couple of sessions have been good and not been physically sick!!! my 2 eccentric fabulous aunts have decided to take me for my christmas dinner on the 19th, bless em.
Clare, that walk story was funny, bless you, please don’t tell me you had your killer heels on and that’s why there was a sprained ankle involved!!! Don’t feel like you’re in a club of one, I’ve been for walks before and seen some very lobster looking folk with some very odd clothing and footwear who think they’re just out for a stroll on the moors!!! Unfortunately for them I go into maternal mode and ask if they’re ok and can I offer them a bit of factor 50!!! hahaha!
Wishing everyone a comfy restful night, Simone xxx
Hehe no Simone i wasnt wearing my heels, i was wearing trainers which i thought was sensible shoes for walking but still managed to trip, i am quite a clumsy person and trip over my own feet a lot but i trip more when im wearing flat shoes, even my mother in law says i walk better in heels go figure! lol Glad you enjoyed ur crimbo light switch on (eventually) and bless your eccentric aunts for taking you for an early crimbo dinner, thats sweet, hope you wear your santa hat x
I had my 3rd FEC today and oh my what a silly mess i was, im starting to annoy myself now with the weepyness! The lady next to me had her friend visit her who is very heavily pregnant so they were cooing and aaaring not what i needed to hear this week but what can you do! My fave nurse had a day off today and she normally sits with me, she is so gentle and always makes me feel at ease. All the nurses are lovely but ann is my comfort blanket and was with me from the very start. The nurse today couldnt get the canula in so had to try another vein and it really hurt (it doesnt normally) so that set me off again. Feeling a bit pathetic and am going to have a proper word with myself cos i seriously need to snap out of it, enough with the tears!!
The nurse was very lovely with me though and gave me a card for a macmillan counsellor so she must think im a right mess. Oh dear! Dont understand why i seem to have hit a wall this week, have been pretty strong and upbeat up until now (apart from the odd moment)
Sorry ive rambled on now but it does help to get it out on here, tried to talk to motherinlaw earlier and just sobbed again.
Hope everyone else is ok and in a better place
Clare x
Hugs Clare
Don’t be too hard on yourself sweetie… It’s not a breeze for everybody and it’s surprising the things that can set you off… Be good to yourself and allow yourself to have a good old howl and get it out your system.
Maybe speaking to the counsellor or you gp would also be helpful.
Glad no 3 is over with… Hope you dont suffer too much over the weekend
Lulu xxxx
Be careful Clare and give yourself a break or before you know it you’ll be falling out with packets of crisps!!! The parts where the melt downs occur for me seem to coincide with the steroids when I get the biggest feeling to kick my own ass or fall out with the most inanimate objects!!! Lulu makes a good point about the counsellor, you never know it just may help, and if you find it doesn’t, hey ho get yourself a quick fix, buy shares in kleenex and some more killer heels until you feel stronger and able. Seriously go easy on yourself and when that teary moment is upon you, go with the flow, ((hug)) Simone xxx
Just popping in from the Sept thread to say hi and hope all is going well for you!
Claire - just to let you know I too had a rough FEC3, low newts (I know the spellings wrong but to me they are little newts now!), my veins said enough and I had to have a picc line too. From what I have read from the September girls who have moved on to 4 or 5 for some reason 3 was tough and it does get better - so hang on in there!
Sending you all big hugs and I hope the SEs are small!
Axx
Maybe it’s a 3 thing. I had tac3 weds and am feeling really grim and fed up today, allowed myself luxury of a quick weep on dh’s shoulder when he came home from work. Am totally hacked off! I thought half way through would be a good feeling!
Thank god we all have each other for support
Teresa xxxx
I am back into my chemo sessions at last!. I had first chemo session at the beginning of october. Then just as I was about to have my second session my back seroma wound broke down and burst. A week later the seroma burst again. I went for my wound check on Tuesday this week and BCN said another week, but I begged her to start my chemo again and she said yes!!
I have just had my second session today. My parents came with me which was nice, and they are going to come with me to next sessions if they are fit and well wnough to. Session went smoothly but only after a hunt for the vein contest. The first nurse failed miserably, then they got a vein finding machine out and finally triumphed thank goodness. I have been given a fact sheet for pic line fitting - are they trying to tell me something?!
I promise to post more frequently from now on. I really havn’t had much to say while I have been waiting for go ahead to re-start chemo and I have took the time to de-stress and totally get away from the Cancer word (hope that makes sense).
Hey Dizzy, so glad you are back, I was wondering where you had gone. Brilliant that you have finally been able start chemo again, hopefully it will go smoothly from here.
Clare, like I said before, I reckon weepiness is a physical se of the poisons just like nausea or whatever, not just a psychological se of the journey we are on. You are a very strong and upbeat person, that is obvious from your postings, just be gentle with yourself, no 3 done now, yay.
Simone, can I come for lunch with your aunts? I am due FEC 4 on 23 dec and know that I will probably spend crimbo feeling rubbish. Am actually secretly hoping that I will be delayed a week for some reason.
Hope everyone else is doing ok
Love and hugs
Jules
Xx
Thanks ladies, this site really is such a help, just getting out whats in ur head to people who understand is such a release x
Simone I remember crispgate hehe havnt shouted at any objects yet (apart from the odd growl at my wig when I walk past it) but give me time x
Have had more tears tonight but had several chats with dad, stepmum and hubby and feel bit brighter but cant bloody sleep. Ive decided my aim this weekend is to LAUGH! Goin to go thru my dvds but I know I have a lee evans and billy connolly which seems like a good place to start
Dizzy welcome back, hope ur timeout from the horrible word helped a bit. Glad u back on the chemo train…well not glad but u know what I mean x
Annie, lovely of you to pop in from Sept, hope all the gals on your thread are doing well too xx
Teresa, hope you’re feeling a little better, big (((hugs))) xx
Dizzy, good to hear your treatment is back on track, little bit of begging never hurts does it, did the same myself when my liver and kidneys decided to stage a protest about chemotherapy, I stopped just short of throwing myself on the floor and flailing the arms and legs, fortunately I didn’t have to resort to that as Onc decided I could continue!!! You post when you feel like it xx
Jules, more the merrier, if you live anywhere near Tong in Bradford, The Greyhound pub is the place to be, their food is fab. There will be exceptionally good company, i.e. 2 barking mad women and a bald one, there will be nothing but giggling and innappropriate moments where at least one of us will nearly wet ourselves from uncontrollable laughter!!! I go to see my Onc on Monday for scans and stuff as I’m half way through treatment, and have considered asking if I can delay for a week, I’m suspecting that will be a NO! Can try for nothing though!! xx
Clare, hope you have a fab dvd weekend. Hot Fuzz always good for a giggle. I do like Billy Connolly though, especially the one where he talks about incontinence pants on the dancefloor, and Lee Evans when he talks about mums shopping, bag it I’ll have it!!! lol! xx
Have a good weekend all, and hope we can keep the se’s to a minimum, Simone xxx
Hi all,
good to hear all your news - and share the bad bits.
Lizzy - amazed that you are up to running - well done you! - my reconstruction is inflated to the max right now and whilst I can walk around unsupported I think the oscillation if I try running might be sufficient to set off an earthquake/tsunami/hurricane - but realistically can only summon the energy for a wander, not even a brisk walk - roll on Spring everything might be different than!
Clare don’t blame you for giving up on the walking - nothing worse than not knowing where you are, which way to go and how long it will be before you get home - bit of an analogy for our BC journey - or is that just cringeworthy???
Went to GPs for blood test yesterday - saw the nurse who was chaperone for me when I went to docs with The Lump. She asked me how I was coping… I’m so used to people saying “how are you” and me saying “fine, all things considered…” that the “coping” word really threw me and I promptly cried - I think we just get on with coping and analysing things is a step to far - no idea why I took the question so literally either. Back to stiff upper lip mode today.
Christmas shopping awaits - online - any tips for stroppy teenage boys or is money the answer?
Sue
Hi Girls…
Just jumping in from September…
I am due FEC 5 on the 20th of December, I spoke to the nurse about the possibility of putting it off until after xmas, and she said it would be no problem at all, lots of people do it if they have a wedding or something, she said it wont make any difference in how the treatment works, so thats what I am doing, it will be worth finishing a bit later to me…
Hope you are all doing ok…
Enjoy the rest of your weekend…
Jay X
ooooh, thanks for that Jay, might be popping in a little request!!! The lengths I’ll go to for a yummy christmas dinner, heehee!!
Seriously, is there nothing this flipping (wanted to use another word) disease doesn’t want to claim. Got up this morning with no toenail on my big toe, aaaaaarrrrggghhh!! Good job it was strip the bed down day, eeewww! Mind you, can’t imagine what the neighbours thought as I was having a bit of a blub and shouting into thin air about nothing being effing sacred, especially as they know I live by myself, lol! Go figure, this time I’ve fallen out with myself instead of the crisps!! Sorry, rant over!!
Off to Onc appointment tomorrow, if she’s got any sense she’ll leave me until last and not ask how I’m doing, or I might just keep the toe nail show it to her whilst pointing at my now one remaining eyebrow and tell her to take a wild guess!!! Hey ho could be worse!
Hope you’ve all had a good weekend, Simone xxx