Hi all
Sandra my arm does hurt when I put my hand over it. I have a nice wheat bag I think I will try that.
Welcome Jane, I hope Vicky joins us too. My se’s tend to kick in fully on day 3/4 and then very slowly- I mean very slowly improve after that, but I am rubbish with sickness. Dreadful morning sickness with both my children- they are 3 and 5. I accept all help in looking after them. As I would rather they were happy enjoying themselves with someone fit and active, than hang on to them to prove I can when I feel like poo.
Well I have a bar of galaxy looking at me. The question is will I actually enjoy it enough to put up with the calories. Hmmm debx
Hi Jane
Welcome, nice to hear from you again, we communicated on the 6 TAC thread. When you did you have your AC?. I am on TAC and after the first cycle each day started to get better for me after day 6. When I say better I mean I was able to do things with the kids, cook their tea, go out on walks with the dog. However mine are a lot older, 13 and 10 so don’t need much looking after. I started to drive one week later, up until then I felt too much in a daze to drive. Everyone is different though, after my 2nd TAC, although, I was really tired I didn’t feel like I was in a zombie state like on first TAC. I really hope you don’t get many symptons and you are able to look after your little one who is adorable, what a lovely photo.
Hello to everyone else, I think a few of you have had your chemo this week too and I hope you aren’t getting too many side effects. My chemo has been delayed this week due to me having palpitations from Tues onwards although I haven’t had one for a few hours today. I think it is known side effect but my normal oncologist is on holiday until Monday and the healthcare at home nurses are going to talk to him when he returns to see if he wants to carry on or do some tests on my heart. I was rather hoping to get number 3 under my belt, at least I would have been half way there but never mind, these things happen.
Try and have a good weekend everyone.
Amanda xx
Hello everyone
Its Day 3 after FEC 2 for me , well and truly chemo glowing in the face yesterday and today and real malfunctioning brain, felt almost drunk at times today. dropped a whole packet of crisps over the floor, no control ! tried Cyclozine (something like that) this time for sickness, well !! it knocked me out after about half an hour, the advice notes did say be careful about driving !!! did me good though, lovely sleep in the afternoon and headache and sickness gone when brutally awoken by the phone. Cant sleep all day and all night though - so took half a tablet next day, didnt do much for me, but taking a whole one at night means a lovely nights sleep. Today felt wretched, not nausea so much, but such a foul taste in mouth, and all in the head, dizziness, they dont seem to give you anything for that. Onc nurse said the chemo drugs work for about 72 hours, unless kidneys not working well then takes longer to leave the body. So … should feel better tomorrow. Last time icky feeling only gradually went, drinking lots helps I think and keeping the lower end working - have taken Movicol earlier this time. Wonderful stuff ! Hope you are all managing OK. Kirsty
Hi
Kirsty i tried cyclozine too. It doesn’t do much for my sickness but make me sleepy. Am going to see the onc on Monday as even emend has not worked for me. My energy levels are ok it is just the nausea.
Jane hope the se’s are still being kind to you.
Sandra I love you tortoise picture- have never got round to putting a pic up, should really
Sal - hope your arm is better
Have a nice weekend . Debx
My vein pain has reduced since finished fec and gone onto fec. Still there but getting better rather than worse. Debs, lots of my sock wad in my head but didn’t make it any easier. But as doom as have been on tax that has just shifted . Se of tax are not great but the absence of nausea has been great. Hope your onc app goes ok. Jane, after my fec the se were pretty much immediate for a week then wore off. After tax it took z few days to kick in. So different reactions for different people with different drugs. Not much help there for you!
Hi all
Just wondering how everyones hair is doing? I shaved mine off- well OH did. About day 19 after first fec. It is now day 11 after fec 2 ( the revenge) and I kind of expected to be shiny bald and pre pubescent by now but I’m not at all. All things still need shaving and tidying if you know what I mean and my head is full of prickly- slightly longer hair. I have heard that tax gets rid of a lot but as I am now convinced I will have an allergic reaction to tax and have to have fec anyway - just wondering about the hair. Sorry am rambling but have had my first alcoholic drink since dx in march so feel a bit smashed. Debx
Hi Deb,
Like you l still have prickly hair, shaved it off about day 20 of first fec, and now just had 3rd fec, my friend is 10 past her 1st TAX
she has never shaved it off, just had it cut very short, but she still has about the same as me, just longer!
Like you l was expecting a shiny head by now, l thought someone mentioned the hair starts growing back on TAX! have l got that wrong?probably wishful thinking!
You saying you are convinced you will have an allergic reaction to TAX, guess what day my first TAX in on…Friday 13th!!
Love
Sandra xxx
PS. Wish l could fancy a drink, everything taste awful x
Hi Sandra
Friday the 13th. Brilliant!
I had a superstition about magpies.( you know 1 for sorrow etc) Everytime I go to the bl**dy hospital I always see one on it’s own. I used to try to avoid seeing them and even close my eyes til we got there. But now I go out of my way to see them. My OH thinks I am nutty because I sometimes even shout at them “bring it on”.
I am sure you will be fine, in fact it is the perfect day to have it because nothing could possibly go wrong. Just because people are predicting that it will. Sorry things still taste yuck. Debx
Hi All
been a while since I’ve been on the forum but nice to read every ones comments and that Im not going completely mad.
Ive got FEC3 on Wednesday and my arm is aching from the last session, so thanks to all of the posts relating to this.
Ended up having my bloods checked on Friday as i had a sore throat, I thought nothing of it but Ive come away with yet more pills and discusting tasting mouth wash!!!
I shaved my head about 2 weeks ago (well got my OH to do it) and expected to be very bald and shiny by now but it just looks really thin and patchy.
Is anyone feeling really bloated??? And putting on weight??? I dont know if its the lack of exercise or not watching what Im eating.
Wishing everyone a good weekend
Sarah xxx
Thanks for the welcome everyone.
Deb - salute those magpies!! Did make me laugh to think of you shouting bring it on.
Amanda - we’re having the same drugs, only you’re having the full works all in one go and I’m having AC first, then Tax after. How are you coping? That sounds like a really tough regimen as I’ve only heard bad things about Tax.
Sarah - hope your throat gets better quickly. At least you have plenty of time to recover before next cycle.
I’ve developed an awful cold, out of the blue. Treatment Thursday, Friday felt totally fine, Saturday woke up with horrible full-on cold and am feeling like death warmed up. Slept nearly all day yesterday and all night! Daughter coming back today so that’s the end of indulgence.
Also, has anyone else had horrible heartburn? Mine has been really bad the past 24hrs. Any tips?
xxx Jane
Hi All
I’ve been reading your posts for a few weeks now but not felt I could contribute really. Today I noticed that Jane said she’d tried to start a post for others starting treatment about now so I thought I’d join in properly instead of ‘lurking’.
I started FEC last Monday (19th) and have 5 more to do. I have felt really fine - so far! Had none of the sickness or anything I was led to expect might happen. The only thing I can say is that on the Monday night I didn’t sleep a wink and I have woken each night with a headache but that is soon sorted with a couple of paracetomols. I sometimes get a weird taste in my mouth but it’s not all the time and I managed a couple of glasses of wine last night which were bloody lovely!
I went back to work on Wednesday to finish the school year - I don’t think they were expecting me in! I kept getting comments like “what are you doing here?” and, “are you sure you’re well enough?” - but I decided I can’t sit around waiting for something to happen and as I work literally just two minutes drive away from home I can always just leave if I feel poorly.
I am on 6 weeks holidays now, and going to France next week with the Hubby for a week.
I know I have been really lucky compared to a lot of you with your SE’s and I am under no illusions that it may well catch up with me at some point - but at the moment I’m making the most of it. My FEC2 is on 11th Aug, two days after we get back from France.
I hope to get to know a lot of you a lot more and be able to share this thing that’s going on in our lives at the moment.
Karen
Hello
Yes ! Had awful heartburn last night (4th day after FEC 2). It came on suddenly after a coffee and ginger biscuit. Took a Lansoprazole (15mg) , by morning it was gone but woke several times in night and it was really bad , even started thinking it was my heart as bit of a tight feeling. scary.
Yes ! I am SO bloated too, Sarah, feel like a beached whale ! think it is combination, virtually no exercise, eating wrong things, slow digestion system in the lower regions though one sachet of Movicol has kept things moving easily which is really good, not drinking enough - really try but so hard while feeling sickly and everything tastes so foul - discovered apples are lush. grapes(kept in the frig nice and cold) and fresh pineapple too. Yesterday nearly half a stone heavier, today not - thats crazy - i feel crazy in the head anyway, cant seem to read even, have to say one word at a time , taken paracetemol but nothing seems to touch this headache. Any tips ?
Felt likethnis last time and it did go , and had a week more or less normal on 3rd week, Hope that wil be case this time as have booked to go away. Sorry to be a moaner today . Hope everyone feeling better than me today, hubbie is out for the day, he needs a break , but looking forward to him getting back. xx
Hi
Kirsty I got a really bad headache both cycles I have had so far. They lasted for two days then just went. I tried cocodamol but it didn’t work.
I get mildish indigestion and have large bottle of gaviscon by the bed. I also have a swig after most meals on bad days. In fact a new big bottle came on the shopping today to top me up. I still have the morning sickness feeling, but at least it is not the gaping black hole in the stomach feeling. I have managed to put on 4 lbs since I started chemo.the kids have gone to Scotland with grandma so yippee freeeeedom! Debx
Feel like shitey shit. Not enough swear words. Tax is ***********+*++**><<>€~~# and I hate it.
Hi,
Well we all seem to be in the same miserable decline, some worse than others, having had my third fec on friday, today has been the start of my tearful days, not sure why that happens, but it has each time! three days of feeling sick, one day of headache and 3/7 days of tears! dread to think what TAX will bring me!
Love and better days to you all
Sandra xxx
PS. Welcome Karen, pleased you are doing well! hope you have a lovely holiday x
Welcome, Karen-no excuse for “lurking”
I had FECno. 3 last Thursday and was at my worst yesterday, felt sick and v. tired. I do hope your SE’s stay mild.we are all slightly mad on here, but we do help each other out if we can
Carolxx
Vicky, why don’t you say what you really mean!! that swear box must be pretty full by now!!
Carolxx
Hi Ladies,
i am day 12 of 4th FEC, i have been a little more tired than usual, nothing major though, i am not as bloated this cycle as i was not given steroids with lasy cycle as i was really bloated, looked like a beetroot and was really agitated, so onc said i could try leaving out the steroids from 3rd cycle on, so i didn’t feel as bloated. or as agitated. Sandra i must admit, i am what i consider, a tough old bird, ha ha, but i do feel like you sometimes, it could be something really silly that makes me tearful, i don’t even know when it’s going to happen either, an example, my teenage daughter had a bit of a sulk co’s her work trousers were not washed, she really pi**ed me off, i thought what a mieserable bitch, if that’s all she has to worry about! normally i would have given her what for, but i just felt myself welling up inside, without her even realising she had annoyed me, little b**ch! ha ha.
To all you other ladies, hope this week brings some better days, Take care to everyone
Sandrae x x x
Hi Karen
You’re a couple of days ahead of me - am very impressed you made it into work two days after chemotherapy! I think I’d be fine if it weren’t for this horrible cold I’ve got… well, not exactly fine, but coping. Hope you have a lovely week in France and feel up to enjoying it.
Vickie, the tax sounds dreadful. Are you taking a tonne of steroids with it? I read it was double the dose for FEC or AC at 16mg a day! What drugs do you get for SEs? What symptoms have you got??
Sorry to hear everyone’s on a bit of a downer. Has anyone else had palpitations on doxorubicin? I’ve never had them before but last night and this evening I feel like there’s a second baby kicking in my chest! It’s scary. xxxx Jane
Hi all
Welcome Karen - are you a teacher? I am. I abandoned ship some time ago. Well done for going in.
Jane am not on that chemo but have def had palpitations. Big thuds.
Well I have had a lovely evening. I forced OH to go to see Eclipse then out for dinner as the kids are away. Very nice and chilled. Sickness is not so bad so I even enjoyed my food. So am hopeful for a good week with any luck before fec 3.
Vickie sorry it is so bad. Big hugs- am still team Jacob though. Those muscles. Debx
I’ve just read the last couple of pages on this thread. I start my chemotherapy on 16th August and I can’t tell you how scared I am.You’re all so upbeat about it all and I don’t know how I’m going to deal with all the things that your all going through. You’re all so brave.
I hope that you’re all feeling better soon.
xxx