_ Col123 _ - loving your ditty!x
Dear Fellow Sparklers,
I hope you are feeling well today.
I had my first chemo on Friday and all went pretty smoothly (had a little cry as it went in but I think that’s it for now - loving _ Pestering Pixie’a _ analogy that it’s a magical liquid mopping up nasties - thank you for your encouragement and advice there!) Cold cap numbed after about 10 mins and all went pretty much without hitch. I left feeling a bit ‘fizzy’.
Started to feel like my head was heavy and a dimmer switch was switching me off so went to bed at 8.30pm. I was buzzing - literally, with tinnitus in my ears from 1am - and didn’t sleep again until 2pm! I had the most amazing energy and took my son on a two hour round drive to Brighton via Gatwick at 5am followed by cleaning the kitchen as never before! I had a sleep and then went off - still on the steroid buzz last night to collect my friend from the airport again. A semi-normal night’s sleep has followed.
_ Yvonne62 _ - water is the key! I drunk at least a two litre bottle the day before chemo, again the same on the day and again the same yesterday. I have had very slight nausea but only sporadically but do keep on the tabs they give. I know tomorrow when the steroids stop, I am due to come down again - but for now, I’m rather enjoying this tiny part of the ride - and a cleaner house!
Lots of love to you all, Sparklers and I hope you have a sweet Sunday.
Tatania xx
hi all lucypenny i have had a couple of glasses of baileys and i was fine took me over a week to feel like any. hope everyone has had a good weekend. day 12 for me and i am feeling great, still no hair loss. loving wearing lots of hats. xx
Thanks jelly. Glass of fizz on order with lunch! I’m starting to find quite a few lose hairs but choosing to ignore that today! Party dress on, heels on and ready to celebrate birthday:-)
wishing everyone a lovely day, strength and sparkles!!
xxxxx
Great news Tatania! I know what you mean about the buzzy head. My steriods are still high dosage cos of being so ill and my head is permanently buzzed up. I couldn’t drive so you’re doing really well!
Have a great day lucy - savour the bubbly!
Glad you liked my ditty - I’ll no doubt do some more as we could all do with a bit of light relief once in a while! Cant promise any quality poety but maybe a smile or two.
Have a good day all.
Love, Col x
Good afternoon sparklers,
Happy birthday Lucypenney, cheers from me and have a good day! 
x
Day 9 and I have woken up to a mouth full of ulcers! Oh well at least I can find out if the expensive mouthwash & cream works, thank you everyone who reccomended a vsit to the dentist I can action them now.
sparklers keep shining brightly x
Thank you col for the poem, its so clever, nice to think of someone else wide awake with the steroids, even tho someone said you had more, i took mine first thing in the morning, couldnt stay awake in the afternnon but late time it feels like im high on coke, the fizzy kind.
love to all
from a sapphire to the sparklers
anne xx
HAPPY BIRTHDAY Lucypenny
Hope youve managed to have a great day.
Glad to see all you sparklers are coping and carrying on.
love to you all xx
Hi Everyone
So good to read so many positive comments. I have been pretty tired most of the weekend but nothing like I was expecting. My mouth has been quite dry aswell but that’s probably quite good because it makes me drink more which is supposed to be good.
Hope you have had a good birthday Lucypenney.
Lots of hugs
xxx
Hi fellow Sparklers,
Day 18 , hair is finally starting to say goodbye in noticeable little dribs and drabs, 
head has been hurting soooo much over past few days, really sensitive head, if I can build up the courage might get hubbie to clipper it tonight. Is cut really short but not short enough obviously.
Glad to see you are coping OK _ Pascal 48 xxx _
Feel for you _ mummybear _, mouth ulcers are the pits. Hope the expensive treatments work for you. xxx
Big Hugs and love to all. Keep calm & sparkle on. CK xxx
Happy Birthday _ Lucypenny _, hope you had a lovely day & enjoyed your champers. 
Big hugs, Keep sparkling xxx
Oh dear
CK1 it is only antibacterial mouthwash (Chlorhexidine – dilute this with water if your mouth is
sore), I got it on perscription as reccommended on the October thread, sorry if I made it sound expensive the gel is very soothing too x
Oh dear
CK1 it is only antibacterial mouthwash (Chlorhexidine – dilute this with water if your mouth is
sore), I got it on perscription as reccommended on the October thread, sorry if I made it sound expensive the gel is very soothing too x
Thank you to everyone for birthday wishes my day has been incredible! (Managed a few glasses of fizz with no problems!)
CK - be brave and do what you feel needs to be done, we will all be with you soon. You are not alone, we are all in this together
Good night sparklers.
xxxxx
Ck. i can remember this point, as more comes out the pain does goes off so bare with it, i have kept thin bits all over and am now on chemo no3. but yes do what you have to do, i kept touching it and that didnt help, so sit on your hands!
am still ready to shave it though once it is in patches,
anne xx
Hello Sparklers, sorry that I have been away for a while. First FEC on Thursday last week and feeling Ok having taken all the anti sickness meds and the steriods. Tomorrow I start the immune boosting injections which I am going to ask a nurse friend to administer as I am too chicken. Feel like I am rattling with so many tablets though.
Col 123 - loved your poem.
Lucypenny - glad you had a good birthday. I managed a couple of glasses of wine today, although I have no taste buds left.
My funny tasting mouth is my worse se so far and I am on day 3. Wake during the night and feel quesy so have some dry biscuits by my bed.
Got my NHS wig yesterday but need a hat or scarf for in the house.
Keep smiling everyone!
Love from Jen x
Happy Birthday, _ LucyPenney _! Glad you have had a good day. xx
_ CK1 _ - we are with you and remember, not long until it comes back - and thicker and lusher I am told! (I have been recommended Silica Hair tablets for this too, by a professional source - avail from Holland & Barrett but hey, where do you stop?!)
_ Mummybear _ - I hope today and the mouthwash has worked well so you’re now all soooothed.
Sweet dreams and love to you all, sparklers!xx
Hi sparklers!
Oh the irony. Had a long soak in the bath tonight and after spending so much of the last few weeks worrying about hairloss, promptly started to shave legs and generally defuzz. Why am I bothering? 
Sorry to here your head is hurting CK1, my heads a bit itchy but thats probably cos I’m washing my hair less at the moment.
Happy birthday Lucypenny, glad you enjoyed your day
Jenny12m, I’ve got a bit of a funny mouth too. Not sore yet and no major problems with taste but can only describe it as a bit ‘thick’. Been brushing my teeth more which helps for as short time
Apart from the funny mouth [and the lunacy of shaving] I’m still doing ok. Took last of steroids today so see what tomorrow brings.
Keep strong and carry on sparkling!
Shazza x
Hi,
I guess I must be a sparkler too.
This is all new to me. I was diagnosed on Friday 2nd November and started chemo on Nov 6th. I’ve been told 5 months of chemo then surgery then radiotherapy if all goes to plan. Feeling very strange about everything imaginable so far and my head is only just catching up with what is going on but I thought it would be a good idea to join this forum and talk with people going through the same thing.
Coped well with my first chemo. Very very tired and low level nausea but the steroids did there job despite sending me a bit hyper. Then the low that followed was quite difficult. But into week 3 now so feel much better and am hoping to have a good week before it all starts again on the 27th.
One thing is my skin on my face felt very strange… very sensitive and almost painful to touch as if I was going to have a huge outbreak of acne but no acne appeared and this does seem to have settled down.
Anyway feeling quite anxious, nervous and that the world is quite a surreal place at the moment but am hoping support from here will help to sort me out a little so thank you in anticipation…
Mummybear - so sorry about the ulsers. I’m prone to them anyway so am pretty worried about this SE
and I really feel for you as, for such little things, they can be so sore! Which gel are you using? My lips have started peeling but I thiink that was because I’ve been sick so much (bile burns!!) and have been using an E45 lip balm which is helping. Hope your mouth improves.
CK1 - hope you’re ok. I’m only 6 days after fec and I can see my hair is getting brittle. I have a habit of fiddling with it anyway and have noticed it breaking off more. Much more of it in bottom of shower this morning too 
I think the hairloss thing is going to be a really emotionaly-charged one for us all to get our heads around (excuse the pun!) and I know everybody out there who have gone through this before us tells us ut grows back (and thanks for top hair tips Tatania - any other advice from your prifessional sourse most welcome! - and its a small price to pay to get better, etc and I know all that’s true but I’m sure I’m going to be sad when mine’s gone and that’s only human isnt it? I’ve always had really good thick long hair and I haven’t had it cut either as my wig’s very similar to my own. I’m quite worried that I’m not preparing myself well enough for it coming out but Im not sure how best to do it. I’m being a wuss I know. Anyway, hope your head pain eases off. This bc lark really pees me off sometimes to see what it’s doing to all you lovely people makes me so mad!
Pascal and Jenny - glad you’re getting through it all. The taste thing is starting to kick in with me too. I’m a total chocoholic and coffee girl and haven’t fancied choc at all and my coffee now tastes weird. I’m drinking loads of milk which is odd for me.
shazza - I know what you mean about your legs. I’ve read in a few places that its the last to go from there. Typical isn’t it!!
Anyway, you’ll see from the time that I’m still struggling to sleep. If I ws feeling more cheerful, I’d get up and di us all another ditty but I fear it might be too miserable. Mind you ‘onc’ and ‘bonk’ has given me an idea 
.
Hope you’re all sleeping well sparklers.
Love, Col xxxxx