I’m defo up for a meet up - that’d be lovely. I’m doing chemo first, then probably mx, rads and then Tamoxifen so summertime sounds good to me. Seems such a long way off though. I wondered where everybody lived. I’m in oxford if there’s anyone that way, we could meet up sooner?
Managed to get out of the house today and drive - hurray! I thought hat shopping but by the time I got there, I was knackered so pootled about and then drove home!! It’s all relative though and after bring so sick all week, I feel I’ve achieved something today. I might start thinking of Xmas coming early and getting the sparkly stuff out earlier aka jellymould as I’ve got a chemo on xmss eve - how rubbish is that! I’ve got a 5 year old whose xmas I don’t want to spoil. Hopefully, it’ll be ok.
Good to hear how everybody is.
Take care. Love, Col xxx
p.s. jellymould - i’m banking the ditties/titties with onc and bonk for now so thanks for that. Will come up with something!
im from north wales but willing to travel for a get together, would be nice to get away for a weekend and meet all you lovely ladies. xxx And col cant wait for your next brainwave ditty. lol
Love the poems, keep them coming!
Feeling good about this first round of FEC as now on day 15 and still feel so much better than I expected, although scalp clearly aware somethings not right!
It’s going to be so difficult for us sparklers to plan Christmas as we just don’t know how we’ll feel, I’m going to get started sooner than usual (I normally refuse to do anything til 2 weeks before) so that things are in place and I can just join in as and when I feel up to it. Fortunately my little lass is now 24 so will be fine if we have to delay by a day or so,and I think she quite fancies being in charge of the kitchen anyway. I really feel for those of you with younger kids - still as long as we are here and healthy this time next year, it will be worth it.
Hi - at the risk of sounding very pathetic. I would love to be a sparkler - but keep putting off chemo due to a previous trauma. any words of inspiration, brave, brave, sparkling ladies?
hi santas little helper, it is all scary before you go for your 1st one, but you know what its not as bad as it seems, i was fine, just make sure you drink plenty of water before, during and after take all the anti sickness meds. you will feel a bit run down and tired and feel some nausea but it only lasts a few days at most, we are all here for support and to help you through it but you know what the sooner you start the sooner it will be over and you will wonder what you waited for. hugs for you, you are brave too. xxx
Good afternoon sparklers,
day 12 my mouth ulcers are almost cleared up!! called my emailed my friends about my hair falling out yesterday, once came within minutes, hugs and coffee helped so much.
I would love to meet up for a weekend in the summer, yes pink carnations, pink sparklers and pink champagne would be in order I think don’t you.
I live in Northamptonshire so I am in the middle of the country, but can travel to meet.
keep sparkling x
welcome to new sparklers! Ask questions and find support here- this forum has made me feel like I am part of a special family and hope it does the same for you all.
agree a meet up would be great, in Surrey/London but can travel anywhere.
i am on day 14 now and feeling great still- since Thursday I have more or less felt completely ‘normal’. I currently have no s/e’s whatsoever apart from hair now falling quite a lot- think it will be gone in next few days. jelly- I am going for a scotch egg hair cut on Thursday. Also can eat and drink everything and put back on the weight I lost in first few days.
i am wondering if I have been ok as I didn’t have the ‘c’ drug when I had my treatment. I was rough as an old boot for the first week but have since been fine. soo next treatment may not be as easy as I will have this ‘c’ drug too.
i am not on any meds but waking up at 2am… Like now! Not sure why this is but hope it sorts itself out soon - nights awake are lonely and boring!
So by the end of this month we will all have been through our first treatment, some of us 2. My next treatment is 28 nov. We are now all on our journey… I am calling mine ‘my gap year’!
sending all my love and support you everyone. keep sparkling
morning sparklers, going shopping today for a new dress for my daughter, as we have a wedding on sat. was gonna be outrageous and go with the red wig but i really want some nice family photos that doesn;t have cancer written all over them so might go with my nhs wig in the day and go red for the evening do. hope everyone has a good day. hugs xxx
Morning all and welcome to new sparklers! Hope we can help you through this awful time together. Glad to hear others SE’s aren’t too bad. Lucy i am up in the night too bet about 2-4/5am but I’m still on steroids. I feel for you - it drags doesn’t it. Work bought me a kindle so i end up sending messages to friends to keep me occupied! The only thing I’d say about the c drug is that i was told it was the stronger one for making you sick. I’ve read a lot more about anti sicknrss drugs this erek dince I had my nightmare reaction to 1st fec. All the advice seems to point to asking for Aprepitant (brand name Emend) as it has better results but is often not prescribed because of the cost. It’s top of my list for my appointment with onc next week as there’s no way I’m going through shat I did next time if there’s any chance of avoiding it. It’s up to you but I’d ask about it especially if you were sick without c drug last time.
Mummybear - am so pleased about your ulsers - im dreading that happening. I’m already waking up in the night with my tongue stuck to the top of my mouth and have to prise it off! ulsers are yuk.
yvonne - i cant help with the question as I’m doing chemo first with surgery to follow next year. I hope someone else can help you here.
cybele - I know what you mean about empathy. I do find it really annoying when people in our position aren’t always treated very well. Personally, I’ve got a brilliant team but I know lots of women who are not getting the informstion or care that they need.
shazza - how’s the new boob m’dear? not walking with a limp any more?
jellymould - i think thats a good plan. I know what you mean about pics without cancer all over them. Photos are funny things. I find it hard looking at our happy summer holiday snaps at the moment because I look my myself all smiley and think ‘you had cancer then but you just didn’t know it’. Anyway, we had a nice time so best to think of that than being all miserable. It’s stil difficult at times though.
I’m going on a look good feel better session at Maggies centre today and heard good things so am looking forward to it.
Good luck to anyone with appointments today. Hope everyone has a good day despite the weather!
Morning Sparklers
Just checking in to see how everyones doing, Yesterday was a rubbish day for me. I went for a CT scan yesterday and had an absolutely rubbish nurse who proceeded to tell me how rubbish the Oncology Deptment was and how she was going to sue them after her reconstuction on the 14th !!!she then messed up my canula so that I was left looking like a drug addict. This would be ok but tomorrow I have to have more bloods taken for my next preasessment, so ive been left with an extremely painful and bruised arm great !!
Anyway thats my gripe over!
Col123 I,m the same as you having my surgery in the new year followed by more chemo so your not alone when the others have finished I,m still gonna be doing it to
Jellymould make sure you post some pictures of your red wig
Welcome Santas little helper Its not as bad as you think were all here for you Its doable honest
Susann thanks for the nail tip mine feel really dry and brittle
Hope all you other sparklers are hanging in there sending you all lots of love and hugs
Stella xx
Hi my fellow sparklers Hope you all had a good weekend.
Wow so scared at the moment and I know it is silly because of all your tips and comments I kinda know what to expect but not looking forward to my first chemo on wednesday. I have just ordered my first head scarf to be on the safe side but still haven’t had the courage to cut my hair short yet,
I really enjoyed the poem and I hope we all have a good week without too many side effects
Hi sparklers,
Can’t believe how much of a difference a bit of weight in my bra has made. The new boobie is a success! Nearly passed out when I saw the box, it seemed huge. When I opened it there was a cute little hat box size case inside, which held theprothesis. When I picked it up it felt fairly light and popping it in my bra I was surprised how comfy it was. The big difference was apparent when I got dressed and looked at my silhoutte. They are in the same place again! As a bonus, it doesn’t try to crawl out of the top of my bra either, even when I move. I’ve spent the last couple of months ‘adjusting’ myself everytime I moved and pushing the softie back down into my bra. Just have to remember to stop now, or I will be getting arrested
Finished all my pills and potions now but still got some anti nausea, back up, tablets if I need them. Side effects are still mild so I’m not complaining. Been out shopping for an hour today and going to spend the rest of the day pottering around in the house. Hope everyone else is as well as possible.
Day 13I had a restless night sleep but feel ok today, relaxing and watching tv.
Good luck to everyone who is having treatment in the next couple of days
Yvonne fellow sparkler keep your chin up you can do this, we are all here for you no matter how you feel we will listen and send all our best wishes your way. All the luck in the world is sent your way from me and everyone x J
Shazzaboro I am so happy for you, look in the mirror with pride and smile hun x
Stellanbraska we will be there for you we are all on our journeys together and supporting you and everyone every step of the way. Stay strong
Jellymould you go girl good luck with the shopping and the wigs sound perfect and wil look amazing in the photographs. Did you manage to get your tree decorated and lights sparkling? If you did enjoy
Pascal how are things going, I hope you are comfortable and not suffering many SEs.
CK, Susann, Lucypenny and Col big hugs and I hope you are having a peaceful and restful day x
Dealbeach we should all plan when we can for Christmas if that is what we decide it is what we want to do, enjoy the preparations, rest ourselves and everything else is a bonus. x
Santas little helper welcome, we are all here to share our experiences and support each other the very best we can, we are all on a similar journey, we will listen when you need us. I send you a big hug x
Hi Sparklers. Like you Yvonne62 bit nervous for my first chemo tomorrow. Hoping side effects are not to bad.
Got my wig and headgear sorted and hair cut short so let’s get on with it.
Shazzaboro had my prothesis fitted yesterday feels good but strange to have boobie that doesn’t want to go under my chin! I was surprised how heavy it was must remember to take it out if I ever go to weight watchers again!
Hi sparklers,
day 13 for me today , been feeling good about my self , shaved my head yesterday as did not want to see it fall and my head seamed very sensitive , quite liberating really , already got a wig and had been out in it when I had hair , had to go and get it refitted today and the woman is fab , she got her needle and cotton and out and made it fit , (I do love my wig look , I don’t mind my egg head look as well ) don’t think I’m brave enough to go out like that , plus its blooming cold ,
just been reading the newspaper on line and read about the Nolan who’s cancer has come back , it’s knocked me a bit again , I was doing really well and I have been mega positive even with every thing ihave been through with this diagnosis.
Just needed some virtual positive ness , itv any of you can spare it
p.s I’m in Cheshire , xxxx
hi SLM, where in cheshire are you i live just outside of chester, little village called penymynydd. how near are you to me ? hugs hun and stay positive bernie nolan is still positive was watching her on morning tv.
Hi my sparklers,
Curlytop I hope your first session went ok I had mine today wasn’t at all bad as I thought ok the freezer cap wasn’t nice but it felt like heaven when they took it off.
Thank you for all the support and I hope I don’t get too many side effects but got my headscarf sorted in case. I have a bone scan on the 30th nov and a couple of CT scans on the 4th dec and my next chemo is the 12th of dec.
I feel worn out so going to get some rest I wish you all a goodnight and I hope we all have a good week,
Stay strongxx
Hi sparklers
I saw Bernie on itv back in October and again this morning she is so brave & an inspiration and so are all of us, we are all on our journey together. We need to find all our inner strength, support each as we are doing now, we are sparklers & we are brave!
Thank you everyone of you, reading about your experiences gets me through the day.
A big hug to you all x
Oh my god Curlytop, never even thought about that, thanks for the tip about weight watchers Wont be able to use it as an excuse every week though!
Yvonne, its not silly, I was terrified before I went for my first chemo. Its really just fear of the unknown. But in the words of the book ‘Feal the Fear and Do It Anyway’. Glad all went well for you, just relax and take it easy for a couple of days, thats what I did.
SLM, hope I’m as brave as you and can shave it before it gets too bad. Really not looking forward to that bit. Its a girl thing.
Wont be able to use it as an excuse every week though!