Jelly love the vid xxx
What a fantastic video!! I have posted the YouTube link on my facebook. I never normally post on facebook as some of my facebook friends don’t know (like my relatives in Italy), but that video was amazing! I love the bit when she twirls round and the tube gets caught behind her legs - that happens to me when I go to the toilet during chemo! I love her standing on it and pushing down the corridor like it’s a supermarket trolley! Stronger | Cancer music video - YouTube
Phil - I’m on Tamoxifen for 5 years when treatments are over too. My mum (who had breast cancer 26 years ago and was taking Tamoxfien when it was a new drug), is winding me up that I can’t have alcohol while taking it - yes you can apparently. My chemo is 3 x FEC and 3 x Tax. 5th treatment next Thursday. What number are you on?
Stellanbraska - bright light was the moon! That did make me laugh.
Spurschick - lovely to meet you today Kim. Look forward to seeing you again soon.
well morning sparklers, getting all geared up for the picc line tomorrow, not looking forward to it, only good thing is the hospital isn’t my usual and its along the coast to get there so nice scenery on our drive. dreading the fact that i cant lie in the bath with it love reading and chilling looks like its just gonna be quick showers for the next few weeks.
hugs to all xxx
I want a Cancer Sucks t shirt. Love the video x
Me too Pascal!!! It’s so cool…
http://www.zazzle.co.uk/cancer+sucks+tshirts
heres a link for cancer sucks t-shirts
Jelly I absolutely love that video. I wish I was doing chemo with you !!! far more entertaining x
Hi
Can only agree with the comments regarding T, I did not have too many se with FEC, but had a nightmare at the hospital on chemo day as I had to go to have ct scan first, they were late, then tried to put in a canula in arm joint and said they could use in chemo ward - I disagreed and asked them to ring ward but they would not, anyway they got it in but could not use it, by then late, had to eat and drink before chemo, so left to go back later. Chemo nurse was not happy with them as they could not use main vein in case it came out of the hole they had made!!! One very annoyed staff nurse on phone later.
They only took two goes to get canula in which is a record for me. When finished back down to CT scan, left hospital oer 6 hours later.
Thursday not bad, just not keeping any food in, coming out other end. Friday the T hit with a vengance and I was in bed for the next few days, as well as losing all my food. By Thursday contacted Cancer Nurse who asked me to come in Friday for bloods and it turned out that I had an infection as well. She said I could stay at home but if my temperature went up to go to A&E.
I am eventually feeling a normal person two weeks later, just in time to go in for next dose.
I have the red and sore hands and feet which is now starting to dry out, can’t win
Jen - was good to see you on Sunday and compare notes, have to get together again
Jelly - live the video. When my nephew broke his arm my sister managed to get an arm cover from boots so he could shower and bath without it getting wet.
Keep strong
kim
hi sparklers been for picc today and it was nothing like i expected all done with no pain or disscomfort in 15 mins but i have been told that i need to continue having my clexane injections for another 2 months not just the 6 weeks not happy
Hi, popped in from October pumpkins, and glad I did. I LOVE the video Jellymound, Made me smile.
Thank you for posting it
Susan x
well all off for chemo round 5 today. will be much easier now with the picc line in. had a cry last night, im so fed up and its making me sad, ive been so upbeat the whole ride so far but it all seems to be more real the last couple of weeks. my smile is slipping and i want it back. see you all later. xxx
Jelly I know exactly how you feel, I’ve tried to keep as upbeat as possible throughout apart from a few wobbles at the start but this last week has been really tough and I feel like all I do when I am on my own is cry. everyone keeps telling me I should be feeling positive as I’m over half way but I really don’t feel it.
Tax fooled me for the first few days, thought it was gonna be a breeze but since Sunday I feel like I have been hit by a truck! I thought nothing could be worse than fec but I was very wrong. Just want this all to be over now! I can’t cope anymore!
If it wasn’t for this forum and hearing from others dealing with this rubbish too id feel completely alone in all this x
I also thought that hitting the halfway mark would be a great feeling - knowing I was on countdown etc. Bizzarely enough, I have felt the opposite!! I am going in tomorrow for my 4th session and I am dreading it. Knowing what is coming with the cold cap on the day and then the nausea/vommiting and pure exhaustion for 3+ days is hard to handle. I now want this whole thing to be over; the days and weeks seem to be dragging on endlessly and I AM SO FED UP OF IT ALL. I just cannot wait to get back to a normal routine and life, but I guess we need to just grin and bear it. X
Hi sparklers,
not been on for a while, and after reading the last few posts nice to know the way im feeling im not on my own!! today has been the best day ive had since my last treatment, and guess what - ive got next one tomorrow!!! i honestly didnt expect the TAX to be worse then the FEC - totally different and definetly worse, never felt sooooooo tired in my whole life and that was after the pains wore off, but ive also9 had very sensitive teeth this time which i never had before in my life, also my nails hurt!!!
I know everyone means well when they say that its nearly all over now and that there are only two left to go, but as you all know that is no consulation at all. Why is it so difficult to explain to people how the SE’s feel? you can tell them it hurts, or what hurts, how tired you are etc etc., but it doesnt come anywhere close to explaining how you really feel. because i have been so tired up till today (think im only better cos of starting steroids today) i thought my red blood cells may be low and that i may have a touch of ameania, but ive had blood test today and they6 havent phoned me so must be ok for treatment tomorrow - was really hoping it may have been put off for a few days, no such luck
The way i feel at the moment think i may be in tears when i get to hospital tomorrow.
GOOD LUCK to everyone who is having treatment this week, fingers crossed for all of us that it is a little easier this time round. xxxxxxxx
Hi everyone
I am having 2nd TAX tomorrow aswell. This time tomorrow we will only have one left. My main SE from TAX was horrendously sore mouth, felt my tongue was swollen, catching on my back teeth whenever I talked or ate and that the top layer of my tongue had come off. I saw the onc last weekand she gave me some sachets to use 3 times a day,hope they work.
Bit worried about them getting in cannula as they have struggled past 2 times, hopefully ok.
Good luck and hugs xxx
Jelly, I remembered your post the other day about missing a good soak in the bath once your pick line is in and today I brought something for myself because I’ve Really missed that too. It’s a completely watertight sleeve that is sold for people with casts or dressings that need to be kept dry, it comes right up to the shoulder. it’s pretty unsightly and still not the same as a normal bath but compared to the last 9 weeks of showers or quick baths with arm hanging over the edge it’s heaven. I got mine from a health care shop that sells mostly items for people who have mobility issues but you can also get them online. Just thought I’d share incase its something you or anyone else with a picc is interested in x
thanks MRSR will look into it, off for chemo today as they lost my prescription yesterday, feel like i spend more time in the hospital than at home these days .xx
5th cycle done, can’t believe it. One more to go then on to poxyfen. Yesterday I noticed that some of my hair is growing too, sadly most of it is on my legs! Too cruel
Good luck to everyone with next cycle, hope the SE’s after minimal, keep strong and carry on sparkling!
Shazza xx
Shazza hairy legs coming through is just Sod’s Law isn’t it. Why does that happen? I’m coldcapping so have got a good head covering (at the moment - don’t like to jinx myself) but my eyebrows and eyelashes although still there are very sparse and “odd” looking. Still have a light dusting of hairs on arms and as for legs, well I’m still shaving them, albeit only every 4th night instead of every night. I’m inbetween FEC 4 and 5.
Today I got my Rads planning appointment together with a complete list of all fifteen rad sessions and I’ve already been down to the Chartwell Suite at Maidstone for a chat with the Big Cheese down there. They don’t hang about, do they. I start my rads exactly 21 days after 6th FEC. I start on a Wednesday and end up on a Tuesday. I thought you had to do a c omplete week at a time.
Jelly - good luck with your next chemo - hope it goes better than the last one!
Hiya everyone
I haven’t been in here for a while, it has been so good catching up on everyone, most of us are coming towards the end of chemo, fec 6 in two weeks, I wanted to send you all a virtual hug. I have missed you all, keep sparkling
love mummybear x