Can anyone tell me how long they waited from finishing chemo before starting radiotherapy. I have rung my BCN a few days ago but not had a reply. I have a full timetable for chemo which finishes 4December. We would like to book a holiday in Feruary 2016. Thanks
Hi there
After my last chemo, it was two weeks for the planning meeting followed by radiotheraphy a week later. So in all, three weeks to start and then three weeks of treatment. I have also been sent an appointment at the breast clinic for two weeks after I finish.That was just me, so maybe each case is different.
Good luck
Sue
Thanks Sue.
I do have difficulty speaking to my BCN she is very busy I know. I am going to try again this morning. I am trying to get a wig sorted but I do not know if this is done through the Macmillian unit or if I do this myself. I have a week now before chemo starts so thought I would make good use of it.Regarding the cold cap I understood that with EC you will loose hair cold cap or not that is what my husband and I understood from my oncologist . I can not have it anyway because of another condition but asked the question.
Well it’s all change I received a telephone call at 8.30 this morning to tell me all treatment delayed due to something seen on my ct scan. We are very annoyed about this. I got an appointment for the ct scan for last Thursday 13.8 about weeks ago. In between I received a phone call from the oncologists secretary saying I had an appointment on the 11 August. I was out walking the dog at the time so just said yes as she there is a letter on its way. When I got home I realised my ct scan was on13 August so I rang the secretary and told her. She replied that’s ok. I thought how can we discuss treatment until they have this info.
well now it’s not ok having been given my results and treatment program they think I will need a biopsy on my pelvis which I was told by my BCN would be soon she was going to see the radiologist after speaking to me.
all day waited for the call which has not transpired.
apart from being a waste of time for the oncologist and BCN my husband and I who have just got used to the idea of the treatment are back where we started. In limbo. Rant over.
Hi ladies I’m reading through your posts and these all seem to be familiar to me too. Ct scan now I’m waiting on an ultra sound. I was supposed to start chemo on Monday but they have delayed till Wednesday no sign of a wig fitting not much communication with my BCN. I’m not normally one for complaining but this is pure torture for any lady or gent that is going through this. The waiting alone is a nightmare. I hope all these things come through for you. Xxxxxxxx
Hi SarahHD well I got a call 8.30 Monday to advise my scan showed something on my pelvis so I had to have an ultrasound and another biopsy. bCN said she would have a word with radiologist dept and get back to me. I waited all day Minday all day Tuesday so I decided to email her as I always have to leave a message if I ring…
i am not happy that I saw the oncologist before having the scan got a full treatment program and an appt for fitting the PICC line all before the scan all the treatment has now been delayed.
this morning 11am she rang biopsy 1pm Friday but they need to find me a bed to stay in for two hours after I said why are they putting me to sleep no she said you might bleed!! So then I said what was seen on the pelvis oh it’s not the pelvis it’s the stomach lining its thicker than normal so we are investigating. To say I am loosing the will to live is an understatement!!! I have not been told what type of biopsy it will be do I need to not eat or drink so I have emailed her again. Think sometimes she confuses me with another patient!!! To be continued. Hope you had better luck
Hi Hun that’s awful I would put a complaint in. That’s just not right. I have had a similar experience as you. I went to my gp to get me some tablets to calm me down as it just got too much also the lack of support that you are supposed to be offered. When you feel like that and they expect you to get out of bed in the morning to get to these scans is hard enough. Please let me know how you get on sending you big hugs xxxxxx
Hi Sarah changed my identity from Poniente to Val235. Poniente is part of the address for our second home in Spain think it will be a long time before I go there again. Today is the biopsy on my onmentum which I have established is the fat between pelvis and stomach. Needles to say I am terrified and have my Valium at the ready. Never taken it before but getting so anxious on a daily basis these days. Apparently after the biopsy I will be taken to the ward where I had my mastectomy I liked the nurses on that ward I am just going there to be monitored blood pressure etc and to make sure there is no excessive loss of blood. If my BCN had just explained this to me in the first place it would have been better. Hope he can get the needle in my stomach is in knots and has been for days!!!
we had a lovely day out in Grassington yesterday weather was a bit over caste but warm we walked the dog then had lunch at the Fountaine which was lovely. We have got to keep having treats to get us through this. Hope things are moving on for you
Just noticed the system has not changed I am still poniente ah well no patience this morning.
went for my 1pm ultrasound scan and biopsy. Have you got a full bladder I was asked no just emptied it did you get a letter telling you about this no my BCN rang me told me to be here for just before 1pm. I have to say there were two lovely ladies who explained everything to me. So we proceeded with the ultra sound they could not find anything on my onmentum so called in the consultant. He too could not find anything so he checked with ct dept to do it by ct they were full. So after taking Valium getting all worked up no biopsy. It was then explained because my bladder was empty they would have to do an internal scan. I joked I was too old for that they laughed but I agreed. Anyway nothing found on uterus could not find my ovaries had scarring on my pelvis. This is possibly from suffering inflammatory disease in the past… So bit of good news but now another wait which could be at least a week as ct scanners are very busy. Such is life on this journey. Rant over
Your not ranting Hun. Don’t worry. I’ve had so many scans and so far come back clear all of them but because of my tissue expander m.r.i won’t work so now I’m off for a pet scan to make triple sure there is nothing on my liver even though the radiologist said i cysts but probably had them since birth. I start chemo on weds and hoping it’s not as bad as I keep thinking it is. Hope you are ok today I’m sorry I didn’t reply till now ive only been here in little bits as I e had my grandson this weekend and he like all men the minute you reach for your phone he wants my attention xxxxxx