Hi Girls
Hope you don’t mind me dipping in again?! I started to loosed my hair ( and I had lots and lots) just before my 2nd chemo. I never had it shaved just went shorter and shorter with my final cut 2 days after my 2nd chemo. So now have a very patchy crop cut. Its a bit monk like now with more missing at the top than anywhere else. My hair doesn’t fall out as much now - due forr 4th session in a week. But I do tend to pull at it when distracted which makes the loss worse. Hey Oh.
G X
Hi all
Well had 2nd kimo yesterday they give me extra anti sickness but like the first 6 hours after boy did i vomit for 7 hours could not even keep fluids down.
Got up this morning just have alittle queasy tummy but i am managing a little bit to eat and drink.Still in a bit fog but i know will lift in the next couple of days.
I hope you manage to over come your sleeping problems .Anne try not be to anxious as it make you feel worse and i know thats hard with your first kimo as its so frighten not known what to expect but you did right going to hospital to get sorted thats what the supports there for i was like you i had my period on my 1st and my blood sugar dropped with the sickness which made my head bang got told to eat rich tea biscuits even if they came back and that worked …
Hope everyone is feeling ok
take care Poppet
Hi
oh Poppet poor you, i hope you are managing to keep something down now, i found that ginger biscuits were the best for me, I had a lovely day out today, we went to Caernarfon very windy very wet and very cold, but it was lovely walking around the harbour, but the wind nearly took my Bandana with it, i found a lovely tight fitting hat that matched my shawl perfectly, but at £28 it was no steal, but it looks good, and if any of you lovely ladies make it to Caernarfon for a visit i can recommend a pub called The Black Boy, the food was fantastic and lots of it, and very reasonable, i had a steak n ale pie with real old fashioned home made chips n veg and only £7.95, OH had the Liver n Bacon, and the daughter went for the childrens chicken nuggets n chips, this was 4 pieces of breaded chicken pieces with chips and a nice side salad and it was huge, and only £4.25, the deserts were also very nice, I only wish we lived closer to this Inn, the sign outside read we do fresh food not fast food.
My hair was well on the way out by day 17, so OH shaved it to a No 1, but now the stubble is fast departing and i have a few shiny bits, but it is so itchy and i have some nasty spots on my head to. Oh the joys, my young great neices ( 11 n 14) were a bit upset to see me tonight without my hair, but they liked my wig when i shown it to them, they said it’s cool, so i think im in with the growd, ha ha
My nephew is down tomorrow from Scotland, his first visit since my dx, it will be lovely to see him,
have a nice Sunday all, keep smiling even when it’s hard, less frown lines
Shirl
Hi Ladies,
Hope you are feeling a bit better today Poppet and managing to eat something, x
Shirl your day sounds nice! I love the wind and rain (sometimes) - its good for blowing cobwebs from my mind I find (but hopefully not bandanas from my soon to be bald head - eek!)
I am over in Weston on the Mud - I dont know wales that much and can’t think how far Caernarfon is. I went to Aberystwyth in September and had a lovely Greek meal. Odd though to be sat in the window of a restaurant in Wales overlooking the sea eating Greek food!
Off to church in the morning and then ironing and roast dinner! Its my idea of a lovely family sunday and what we usually do when I am not working or, these days, ill! Well the ironing isn’t really my idea of a lovely day but its part of sunday afternoon for me and is usually made better by the Grand Prix, sadly not tomorrow!
Take care, O, x
Hi everyone
How are you doing Trojan having seen you post for a while hope every thing is ok? Ostrich picked post up on another thread not much been happen the fuzzy hair is on my head as down below is bald not a nice image to have in your head.
Going start the christmas shopping off the internet tomorrow thats so my brain hopefully will be clear of the chemo fog.
take care
Poppet
Hi Poppet
sorry for being negletful to the thread, i was admitted to the ward late Mon night with a temp of 38.6 and a hair folicle down under had became infected and turned into a very large cyst, making it it really hard to even sit down, they gave me antibiotics and let me home at 7pm on tues night, im glad to say things are now much better,
I had my third session yesterday, the nurse struggled a little getting a vein but managed in the end, she said she will give me some cream to numb my hand for the next one. But i came home and slept for 4 hours and have felt really good ever since, i think i really have been sooooooooooo lucky not to have very ill,
The daughter went out to a her boyfriends today, scary or what, so we went xmas shopping to Chester had a lovely day, then came home and i wrapped them all, Im going to meet a lad from work on Monday for coffee and cake so i might get some more presents then, I have my sisters 11 children to buy for next, plan to write all my cards next week,
The daughters boyfriend asked us if we would like to go to his sea cadets dance and presentation on the 28th but i told him i have chemo that day, he was so dissapointed i said Emma could go if his Mum will take her, he then said well its £3 a ticket, dont think i will encouage this relationship ha ha, But OH gave him the 3 quid, then Em said i will need a hair appointment and my nails doing please Mum, can you book me in at the salon, so its gonna cost me about 40 pound and im staying home.
Hair nearly all gone on head but still got some down under, eyelashes and brows still intact,
Enjoy internet shopping, OH is just on the wogan togs site, i want a janet n john cd for his brother, already got grumpy old women for the sister in law, no pun intended she is great and never grumpy, Her sister has just been diagnosed on thur with a tumour under her lung and it is cancer, and her sister wont accept it yet.
enjoy sunday all
Shirl
Hi Trojan
i am pleased you are ok i was getting concerned when i could not see you had been on any threads.I have wrote a list of pressy i have to get and have started ordering some like you i have a big family of kids to buy for but i love.
I hope your daughter enjoys her night it cost a fortune for haircuts and nails but its worth it to see their face light up.
I had some friends over for coffee on friday but when they went i was so worn out had to have a lie down.
My sister came to see me its the first time since i lost my hair which i must add my grown up kids call me smeagol out of lord of the rings any way sister went in to fits of laughter its a good job i am a get on with it person and find the humor keeps me going.
Hope you enjoy your coffee and cake with friend and don’t over do the shopping.
Take care
Poppet
Hi Ladies,
Sorry haven’t posted much on this thread. Been enjoying my good week, lots!
Got a fab wig - my NHS one looked dreadful but I found one on ebay that looks great. Have tested it on good friends for honest opinion and worn it in front of small children who didn’t say “Look Mum, that lady is wearing a wig!!” so think it has passed the acid test. Its like how I wish my own hair could have been but I could never get it that little bit longer or to stay that nice looking. Have shaved off my head hair now as it was coming out in handfuls so now I have bald and stubbly bits but I wasn’t too horrified. Its quite liberating coming home and taking off my hair!
After all my fixation about having a bath once my wound has healed I got in to a shallow bath the other night, post shave, and thought - what will I have to do in my deep bath when I get it? There’s no hair to pamper, just skin to wash!
Been out with friends shopping, out for dinner with friends, celebrated my eldest’s 20th birthday and played on the Wii that my work brought me as a pressie (with all the gadgets extra such as Wii fit, controllers, games etc). I have been so spoilt!!!
Am off to do bloods and see onc tomorrow before 2nd FEC on Tuesday so might not be on for a bit.
Take care, xx
Hi all
Please you are feeling good ostrich the wig sounds great i have a good one i bought but at the momment just put my hat on its weird always had long curly thick hair people thought i got it permed because it was so curly but it does not bother me going out with no hair i frightened the postie the other day bless him.
Its strange how its the little things that cheer us up.I like the idea of the wii might get son to fetch his back home when he comes to visit i fancy doing the rock band just see me on the drums Phil Colins eat your heart out well i have the hair hehe.
I am on my 2nd week after chemo and feel good had a really weepy day on Friday just had to look at me and i was away had a good talk to myself told myself it was the drugs.
Hope every one next chemo goes well i have 2 weeks before 3rd epi and then only 1 epi left after that whoppie and then 4 cmf they are crossing of faster than i thought
Take Care hugs x
Hi girls
well they have cut down my steroids so now i am actually sleeping at night and it’s great, had a nice day today, coffee n cake then some retail therapy, Emma has a non uniform day on friday and has to go in her team colours so i had fun buying her a funky yellow top with black and bright yellow nail varnish, she is off tomorrow for parents day, report review at 4 pm then a talk with her year tutor, she is hopeful for a top up on her phone, and she has asked me to wear my wig to school, she isnt bothered at home but i dont think she wants the kids in school to tease her,
glad you are both happy with your wigs, and Ostrich what a fantastic prezzy a wii, i just love ours and mario cars is really a good game for a couple to play,
Bit of un settling news today, my friend Lynsdey at work was dx last oct had mx then chemo n rads, she came back to work just 2 weeks before i went off, because of her family history Mum n Sis both passed to BC she asked for a double mx but they wouldnt do it, and now 12 month on her mamogram has shown a lump she’s had 6 biops taken and will get results this friday, i am so worried for her she has 2 young boys and her hubby walked out just before her dx, I have offered all the support i can muster but i just feel gutted for her, doing this once is more than any of us should have to do.
Hugs n support to all
Shirl
Hi Ladies,
Glad to hear you are both feeling better.
I saw my Onc yesterday prior to today’s 2nd FEC and explained to him how awful I had felt emotionally following my first FEC from about day 5. He thinks it was due to the sudden stop of steriods and has promised to give me a slightly longer dose to taper off more slowly so hopefully I wont fall down that hole again or at least not so far. Perhaps you should ask your Onc about that too Poppet?
My Onc is also giving me some tablets to prevent me getting a cold sore again this time and is also arranging an injection for me tomorrow to boost my white blood cells so that I don’t pick up an infection in this darned back wound (which I have been told will take months to heal so am now thinking about begging for them to knock me out, clean it up and sew it rather than all this 2 daily dressing and de-gunking to be followed eventually by packing etc!).
Sorry to hear about your friend Trojan, its scary how many people have this darned disease. My best friend had it 18 months ago and then I met another woman on line last week who lives 3 streets away from me who has had it and then to top it all off I went to a neighbours for a dinner party on Saturday night and met her best friend who said she had had BC 18 months ago too. Everywhere I look there is someone with BC and scarily at least 2 of them are in their 40s! I hope your friend’s results are positive though I expect she is terrified given her history.
Love to you both, off to the hospital shortly so must go and drink more fluid for my veins, xx
Hi Ladies,
Had my 2nd FEC yesterday and came home with my additional drugs and yellow sharps box for syringe following injection which my nurse friend is going to do for me later when she comes over to do my dressings. She is lovely and wonderful and isn’t my practice nurse at all just a good friend who lives opposite and is saving me countless trips to the GP for dressings changing etc. She is also a tissue viability specialist nurse so an expert on wounds and my hospital are more than happy for her to help out.
Sadly my back wound has erupted again - 24 hours after my kimo! The same happened following my first FEC when everything had been going so well (although not 100% healed it was a thin red line with a bit of scab on the back and then FEC and then pow - big hole and dead tissue).
I am now sitting here having managed to stick an additional enormous dressing over the other one (which was due to be changed later) to stop it dripping down my pjs. Sounds horrid doesn’t it, sorry! Its like a tap and I now don’t know if (unlikely but I can hope) the explosing means the tissue they were trying to dissolve slowly has suddenly gone (yippee!) or that the healthy parts of the wound (probable knowing my luck) have been killed off my the kimo and my wound is in a worse state than before!
Sigh! Have asked my BCN about having surgery to get the wound moving and am waiting for her to call back but think she may say - no surgery whilst on kimo and no point as every kimo is going to cause some breakdown and may have to do after kimo. Or that she will say - possible but will have to stop kimo until healed - which is fine but if you stop for too long during kimo do you have to start again?
Hope you are both okay, think I am going to start a thread to try and work out what may happen with my wound, xx
Hi all
Ostrich so sorry to hear you are still having problems with your back i know i have a lot of pain in my scar and the bcn said it was the wound trying to heal but i have had no infection.
I have my next kimo next friday but after my 2nd one i don’t feel i can be bothered with anything i am so tired but i have heard that epi does this to you makes you glued to the couch i finding this very frustrating as i am always on the go.
Sat and wrote some christmas cards out today so i am a head for christmas as i get my last epi on the 19th dec i want to be well organised starting the new year with cmf.
Son just come back from paris he phoned to tell me than when he next comes up to see me (i am in co Durham and hes in London) he will bring wine yippe i had one glass full last sunday and it felt like i had just had my kimo fog head on.
Take care all xx
Hi,
Feeling better about the back wound now. My nurse friend came and changed my dressings and said that the tissue is still good and is in fact healing from the bottom up and may not be deep enough for them to consider surgery now, there is still some sluff but its coming off. Basically the kimo hasn’t had a distastrous effect on the last 3 weeks healing and it continues to heal! Yippee! Its brilliant to have her. She takes so much more time over my wound and talking to me about it than the practice nurses who just wip the old one off, pour the gel in and smack a new plaster over. She also gave me my G-CSF injection to save me doing it myself!
Still feeling very ucky after kimo Tuesday and am only off the sofa for a bit before need to go back as feel sick. Roll on the next few days when I wont feel so sick, just tired.
Enjoy your wine Poppet, hope you don’t have the kimo head. I managed a glass of wine about a week after my first FEC and didn’t look back until Monday night before the 2nd but maybe FEC aint so tough as EPI.
Take care, xxx
Hi
Pleased to hear your wound seems to be healing it nice to have someone who treats you like a human being and not like you are on the production line.
I think all kimo is tough it all has its momments with different side effects its just we want to be do more than what it will let us.
Got my Friday get together with work mates tomorrow so resting today as it takes it out of me.
Having chinese tonight and going put a good film on and snuggle up with OH i have no vistors tonight and both the kids are at their own places its sems ages since we had some time to our selfs its just hopitals feeling sick and a constent flow of people and phone calls i know they all mean well and i love them to bits but i am looking forward toi tonight i hope i don’t sound selfish.
Hope yous are all on the up
Hugs x
Hi Poppet,
Sounds like you have a lovely evening planned. I totally understand what you mean about a merry-go-round of visitors, texts, phone calls etc combined with hospitals etc. What with my visits to a nurse every 2 days, 40 mile round trip to see surgeon every week or 2 and kimo plus my onc wants to see me the day before each kimo I am starting to think I will develop a medical dependancy and feel bereft when I don’t have to go so much! Time with your OH is crucial. Mine is keeping himself so busy (work as he has to as has lots going on and home doing a new DIY project each kimo - house will be great after 6th FEC) that its hard to find the time just to be with him. Throw a kid or two into it and where is the you time? Enjoy it!! Oh, and enjoy your Friday get together!
My son is home from college tomorrow so am looking forward to seeing him. My mum and her dog have been to visit today and ended up staying from 11 till 4 so I am officially pooped now and will probably only make it until about 8 before I fall into a shallow bath and bed to save my energy for tomorrow when I am determined to get dressed and walk to the shop!
Love to all, xx
Hi all
Hope everyone is ok
Had alovely night last night the only thing my OH decided when we paused the film to have a coffee to stick the thermoter at me saying you seem hot my reply was well we having a cuddle lol
Today has been nice but i am soooooooo tired. started at 9 this morning my sister came until dinner time then friends came until 3 and then the in laws at the finish i had said to them look i am shaking with tiredness i am lying on the couch talk amongst yourselfs woke up no one there and the pizza man had been i think i will try that one again. Feeling very restless tonight think i had to much excitment in one day.
Hope you managed you walk to the shops . I am going out at weekend but thats if it stops snowing its my Dad 80th birthday bless him and i really want and go see him he sat when i lost my hair and rubbed my head with tears in his eyes i felt like i was little again not 45.
Well i hope everyone has a good weekend
hugs
poppet x
Hi Ladies,
Hope you are ok. Hope you enjoyed your Dad’s birthday Poppet. We haven’t had snow down here, just lots of rain and a bit of hail. Where are you?
Trojan, did your friend find out her results? Have you had a good weekend?
Didn’t walk to the shops on Saturday but just pottered around as I have all weekend. Just normal Ostrich household life. Visits from family, friends, dinner, ferrying kids to activities, church, sunday dinner etc, nice!
Felt much better Saturday and am now beginning to figure out a pattern for my chemo.
Chemo Tuesday, ucky foggy poisioned me until Saturday morning, feel okay Saturday with now slightly pro-longed steriod dose, sore eyes and white horrid soon to be bright pink tongue and horrid taste from Saturday on but do-able. Waiting to see how I will be today as no steriods today so may hit a wall a bit later with tiredness but as I didn’t crash into horrid emotional hole yesterday after only 1 steriod and managed to keep going doing sunday dinner and ironing etc up until 11 last night am hopeful that the worst is over.
Time to get on with the xmas shopping and send son (kicking and screaming) back to college for another 3 weeks, xxx
Hi all
Did not have a bad weekend dad had alovely birthday. I am in CO Durham not Durham it self about 12 mile out. Trying to sort myself out for xmas as got chemo on friday and the next ones the 19th Dec but they said they would discuss the times later not sure if they are going to delay it are not don’t know if they do that.
I am pleased you managed to keep going i find i can cope with the 7 hours of been sick the fog but about aweek after the crying starts and the black thoughts i can not cope with as i am a very upbeat person and try to find the positive in everything and everybody.
My sons just bought his train tickets to come home for christmas 15th Dec and daughter coming home on the 20th so i am looking forward to that got cards wrote out and tree and dec out of loft ready just haver no prezies.
Take care x
Hi Poppet,
Glad you had a good time with your Dad.
I am quite lucky in terms of xmas with my chemo, have next one on the 9th Dec so will be fine for xmas, one after that is the 30th Dec so will be a very quiet new years eve for me!
I know what you mean re the black thoughts and crying. Last time I fell down a hole on the Sunday (last night) and was a mess for 3 or 4 days. Spoke to my Onc before 2nd FEC and he gave me a slightly longer dose of steroids so I went from 4 x steroids whilst having chemo to 2 x 4 tabs Weds and Thurs, to 2 x 2 tabs Fri and 2 x 1 tab Sat and 1 tab on Sunday. So far so good - its Monday and I am still happy! Have you talked to your Onc about it? I found it horrendous and was on the verge of getting prozac as I too am normally a half full person and my glass was completely drained.
OH has suddenly announced he is taking next 2 days off so that he can be with me (and whilst he’s at it floor the loft tomorrow and Weds come to see my surgeon with me and continue flooring the loft) so that may change!!!
xxx