I’m going to put the xmas tree and decs up this weekend (still doesn’t feel like xmas does it) cos I have 3rd FEC on Tuesday so next week will be a washout for me and before I know it it’ll be the 14th Dec. I could happily wait until then but my youngest wants them up sooner (my OH is a real scrooge and doesn’t really like xmas) so for her I will try and get into the xmas spirit plus it’ll be nice for my son when he comes home next Friday.
Do you have to go to the hospital twice a week for each CMF? Thats a real pain! Do you have to have bloods before each one too? I have to go to the hosp to see my Onc and have bloods on the Monday (which usually takes 2 plus hours) and then back on the Tuesday for the FEC. Fortunately my friend gives me my G-CSF injection on the Weds or I would have to go back for that! I am beginning to hate hospitals and doctors. What with the kimo and every other day to GPs for back dressings I feel I have little time for life in between medical stuff!
I am not experiencing cravings and in fact my apetite really drops off in the “good” week which is annoying cos kimo week I feel awful but hungry due to the steroids and find I have to eat whatever I can lay my hands on to stop me feeling sick, week 2 my tongue is so sore that nothing tastes nice then anyway! I am still getting fatter though!
No baths allowed yet. Only waist high or a quick spin around in a shower. I am waiting to find out if my GP will pay for me to have honey (medical grade) for my back wound or if he will consider paying for the maggots if the honey doesn’t move things on. Should find out on Monday.
I either have kimo brain or didn’t ask you ever what your dx was. I was just wondering cos I keep getting stabbing pains the last 2 days in my recon boob and because I have yet to examine my good boob since my dx for fear of finding something else - I don’t think I could cope right now! - and wondered if anyone else had the pain and fear of self-examination?
Hi
I have pain in both boobs and in both arms as i have bad vein pain but i noticed i have more sort of shooting pains before my period which have not stoped
I like you i fear checking but now i do it in the shower its difficult when my rib hurt i panicked as i had 3 lymph nodes infected and thought it had spread but they think its scar tissue.If you are still unsure my BC nurse said she would check me out so maybe yours will for you.
Your right it doesn’t seem like xmas i think all i can think of is kimo finishes in april if no delays and i am focused on each kimo and knock them off the calender but on the day i am sure i will get in the spirit if i can kimo 19th so not my best week.
One of the girls on the kimo ward said she has a tread mill i don’t know about you but getting up and going upstairs for the toilet is a effort if i could i would have a stair lift may be i just using this tiredness as a excuse for been lazy may be i should try and take up the wii again lol
Well I started my period today (drat!) so that could explain the breast pain. I haven’t had one since I started day 1 of my first FEC and thought I may have no more, but, here I am 7 days before 3rd FEC and … *sigh* that was the one thing I wouldn’t have minded about this whole BC thing!
I am so sorry you are struggling so much with being tired. Hopefully its just the kimo effects and you’ll bounce back. Are they giving you anything for your anaemia? I didn’t suffer too bad at all with tiredness after 2nd FEC as my Onc arranged for me to have a G-CSF injection the day after to protect my back by boosting my WBC so maybe there is something they can do for you?
The effort for me is in that I am soooo bored its making me tired and lazy. I got off my butt and played on our Wii with my youngest today so can say I have played golf and tennis today, LOL!
Take care of yourself, if you are too tired then just rest otherwise you’ll never make it through, xxxx
Hi i feel much brighter today not like the weather we have so much snow i have always suffered with anaemia but just think its abit worse i think i am like you so bored i can wait for my son to come home and have some noise in the house even though people come and go and the blinking phone never stops its still not the same.
How many fec are you having as i am having 4 epi and 4cmf.
Well i going settle down bought myself a good book put some nice music on and made a nice milky coffee.
Take care i am sure once we ajusted to been at home as much we will be fine.
Glad you are feeling brighter today and hope you enjoyed your book and coffee! We have had hailstones on and off today so I managed to nip out between them to get the shopping done. I couldn’t be bothered to put my hair on so went out in my kimo cap. Its strange, the longer I don’t have hair the less it bothers me. I only wear my wig for my daughter’s sake or going out in the evenings now.
I am having 6 FEC with my last being due 10th Feb!
I have spoken to one of my supervisors today and she has found me some work I can do on my NVQ that I have to pass to be signed off as a competent police officer so hopefully the week after next I am going to go down to the station and sit in a quiet office away from anyone with germs and do some work on it! Hooray! I am trying desparately not to let this delay me being signed off by too long (I am due to be signed off in March) by evidencing what I can from work I did prior to going sick and through professional discussions and also to give me something to do!! Housework just isn’t doing it for me!
I am so desparate to get back to work and will probably fall over cos I’ll rush back too soon or find myself wishing I had all this time on my hands!
Hi
I am glad you are going to be able to finish your NVQ it is important that we try to carry out our normal day to day llives adjusting things were need be.as long as you rest when you need to and if they are supportive they will understand if there is times when you need to be at home and resting.
When you finish your chemo are you having rads and any follow up treatment?
Well think i might finally get out today snow melting,Daughter coming over she fetching her pet rat for me to look after while shes away for a couple of days.
I would not mind just going partime as i think it would be different if i could just walk out the door instead of been so tired and dizzy i frighten to go out on my own.
Well back to the housework and then a quick walk with my daughter before she goes.
How are you today? Did you manage to get out in the snow? How’s the rat? Do you get better after your kimos before the next one or are you feeling tired and dizzy the whole time? Perhaps you should mention it to your Onc to see if he can give you anything to help? Are you taking anything for your anaemia, lots of iron might help.
When I finish kimo I am just having tamoxifen - no rads as I had a mx so nothing to zap! What about you?
Been a busy bunny the last few days enjoying myself before 3rd FEC on Tuesday. Went out for dinner with my work mates on Thursday (I haven’t seen most of them since I went off sick in September), went xmas and girlie shopping ALL day on Friday and was pooped and then one of my friends came over for dinner last night and my hubby cooked a lovely 3 course meal so I have a bit of a hangover today and am very tired - I am way too old to do 2 nights drinking in a row let alone throw a day’s shopping in the middle! Am about to slope off to the armchair to watch Merlin with daughter and hubby and then a DVD before I crawl up the stairs to bed with a horlicks.
I have done a bit myself not quite as energetic as you but for me it was, Onc said unless my tiredness get were i can not do anything they will not give ablood tranfusion i eat loads of brusel sprouts (yuch)and green veg.On my third week before i get my next one usual not to bad but was told epi kimo like that.
We sent out for chinese last night as OH has had a cold (man flu) and we watched x factor and comedy awards i like agood laugh.
The rat is fine she had 1 when she left home who is still here i look after now but hes old nearly 2 but he likes to have his tea and toast on a morning.
Well at least you going get your half way kimo before xmas so you should be feeling ok and you are geting your dinner made at your daughters on you so you will be nice and relaxed.
Is that one more Epi then before you move on to CMF? Is CMF better re tiredness? There are so many kimos out there I have no idea about any of them and why they prescribe one type to one person etc.
Are you serious that the rat has tea and toast in the mornings? Does he sit at the table? LOL!
I was so tired last night after my busy weekend I sat down and watched a movie with OH and youngest (Mummy III - rubbish!). Have had a lovely day today as took youngest to get her ears pierced as early xmas pressie and then went to church, did all my household stuff (ironing, washing, roast) etc before putting up the xmas decs with youngest, just watched Prince Caspian (good!) and am now getting read for bed before bloods and Onc tom and 2 x carol concerts with youngest. OH goes away tomorrow until Weds so wont be around for 3rd FEC so left overs and duvet for me and youngest for the next 2 days.
Hi
i hope your kimo goes well and you are not under duvet for long.
yeah i have one more epi on the 19th and then 4 CMF which i have been told is better watch this space.
Going to metrocentre xmas shopping the last time tonight as its open until 10 and usually quiter then, thats if OH has not had a busy day bless him he was up all night with me tossing and turning could not get comfortable with this rib pain going to the Dr today for sicknote going to mentioned it to him.
Hope your shopping went okay and OH is recovering from his manflu. Did it go okay at the doctors yesterday re your rib?
Back is healing slowly and am now on honey therapy but awaiting major leakage about lunchtime as happened same time after both previous FECs!
Had my 3rd FEC yesterday and a nightmare with my veins! I have had darkened sore inner arm after FEC 2 and hoped they would be ok, even sat with a microwaveable teddy bear on my arm before going in. Veins have gone hard and thinned and muscle around them wont let them get the cannula in. Eventually got a cannula in halfway up my arm towards my elbow and then, OUCH, sudden horrid pain. Chemo nurse went off to get a wheat bag whilst I sat with toes curled. She came back and decided that my vein had collapsed and leaked but that she didn’t think any of the E had gone into the tissue only saline! After discussion with head chemo nurse and me saying I didn’t want them to use my operation arm they tried again after sticking my hand in a bowl of hot water but no go. I had to let them have a go on my operation arm which did play ball except for the last 15 mins it really started to hurt and the chemo nurse said she could see it narrowing and hardening! Great!
They are hoping that by 4th FEC my “good” arm’s veins will have relaxed enough to have chemo and given me some steriod cream to massage my arm with and that my “bad” arm’s veins wont have decided not to play otherwise I will be looking at a pic line!
Sigh! Have had to take 8 tablets this morning to combat SEs and feel cra**py. My mum is coming over in an hour to check on me as hubby has been away since Monday and not due back till late tonight, I really don’t feel up to company and her lovely dog keeps pi**ing and cra**ping on my floor.
Hi
Dr was waste of time just ended up getting sick note and out the DR i seen was the one who said she did not think i need to go to breast clinic last year how wrong was she so i have not a lot of time for her mentioned ribs she said speak to onc mentioned veins said tell onc.
I spoke to my BC nurse and she said it very common after having the nerve cut at back of arm as it runs behind the rib so i will take that.
So sorry you are having a bad time my veins are like that i dont know which arm hurts the most feel i have to lie on my back in bed as its so painful i am hoping they will last out as i have another 8 chemos to get 4x4 cmf and last epi hurray next friday.
Just think you are half way there and will be well finished when i am still doing the fog, and then 6 weeks of rads yuk i had not thought of how long it will be but when i finish my nephews new baby will be born so something to look forward to.
Do you get bad eyes about fornight after kimo as i do they are sore and i can not focus its happened every time after kimo.
Its horrid when you don’t trust or have faith in your GP and end up walking out thinking - “thanks for nothing”. I felt like that after speaking to the local BCN. Glad your BCN was able to give you some reassurance on your rib though.
Do you actually still have 8 chemos to get through? You poor thing!!! I feel bad for winging now! I will keep my fingers crossed for you that your veins hold up for next Friday. From what I’ve heard having a PICC line isn’t too bad and as you can have bloods taken from it as well as chemo in it seems it will save a lot of larking around if we end up with one.
I am not having Rads either so feel I am getting off rather luckily!
Will you be having tamoxifen or herceptin or were you triple neg?
My eyes do tend to get dry and itchy about then but its not so bad and I haven’t mentioned it to my Onc as I keep forgetting about it. For me the tongue is the worst and I am hoping the extra tablets they gave me this time will stop it getting so bad. That said (another moan) I have the most horrendous pain in my knees and lower legs and have done since Tuesday evening. I had similar which started in my back and worked its way down about a week after chemo last time and I thought it was a delayed reaction to the G-CSF injection but this time it started in my lower legs the day before the injection (which was yesterday) so not sure about that one!
Going to the sofa now as feeling sore legs and icky today!
Hi
sorry i have not been on for a couple of days just had really sore eyes,if its not one thing its another.
Hope you are coming out your fog and are feeling a lot better.
Well got the son coming home on monday morning so it will be hetic as he is full of energy and has such a happy go lucky attuide so that will help me get over my last epi on friday.
I have got all my prezzies wrapped all my cards done as well i have never been so organised for xmas ordered shopping off internet and OH and daughter going to pick the turkey up on the monday before xmas now all i want is to be out my kimo fog.
I have hormones for five year, what about you?
well thats all i can type as arms ache and my eyes are given in role on April.
Sorry I haven’t been around. I had to go 300 miles to my husband’s xmas do yesterday and was chemo fogged until yesterday pm and then had to sit and look pretty in my wig whilst sweating from steroids and nothing tasting nice. Husband has man flu so he was worse than me. A right pair we made! Just got back and he’s already on the sofa whilst I am trying to get the washing done and a roast cooked.
My son came home on Friday and didn’t even stop in, he went straight to a party! I got all the kids’ pressies wrapped on Friday afternoon in case they went rumaging whilst we were away so hope to get the rest done next week. Eldest daughter is cooking xmas dinner at her place (I have never not done xmas dinner) so I don’t need to source food particularly but am going to attack Tescos for some nice stuff to eat xmas week before 4th FEC on the 30th when taste buds depart again!
Hope your eyes are feeling a bit better and you are feeling a bit better so that you can enjoy next week before facing your last epi (yay!)
I have hormones for 5 years after the chemo so roll on March for me. Its my 40th in March so I am going to be celebrating that birthday for sure!!!
Hi
I don’t know how you managed to travel all that way and still came back and did a roast dinner.
My son came home today the house is full of noise music thumping from the floor boards upstairs and stuff everywhere brought all his dirty washing home but he made the tea and chucked the throw over when i fell a sleep bless.
Decide to try and conserve some energy for xmas and not do to much this week like i usual do like you i try cram as much in to my god week.
Sorry I haven’t posted and left you alone for a couple of days.
I have been on an emotional rollercoaster having picked up my husband’s cold on Sunday I felt emotional on Monday and quite ill. By Tuesday I was ok and then yesterday I found I was just crying and sobbing lots, then okay, then crying and sobbing lots. I phoned the doctors yesterday to get the results of my swab from my back wound to find that I have 2 bugs growing in it and have had to start a course of 2 anti-biotics. All in a week that included chemo last Tuesday.
My eyes are very sore today and I think thats partly chemo and partly the crying. I was just so fed up with it all. I could cope with the chemo but I find it doubly hard to cope with still having this hole in my back 3 months on.
Feeling a bit better today, still a bit emotional but determined to carry on and sort xmas out and have a nice one! My anti-biotics finish on the 23rd so I should be able to have a glass of something on Xmas Eve!
I was thinking about how small our little thread is now. Its nice but I wonder whether when I’m not on and you want someone to chat to whether you’d like to join another chemo thread I chat on with some ladies that had their first FEC on 2nd October, some are still on FEC and some are now moving to Taxatore.
Sorry i have not posted for a while i have been poorly kidney infection and then got chemo and have inflamation in my veins so on antibiotics which are making me sick.
Hope you are well and have a nice xmas.
I might try other thread.
Have a nice xmas and i hope all goes well for the rest of your treatment
Sorry to hear about how poorly you have been, what a shame. Sending you hugs ((((((((((()))))))))))))) and hoping that you are able to enjoy xmas. Did you veins not like the chemo you just had? Are they going to hold up? Its horrid when you feel ill on top of chemo.
Please write back and let me know how you are, xxxx
If I don’t speak to you before I truly hope you have a lovely xmas despite being poorly and hope that you get better soon xxx