Hi ladies
Welcome back Lily - glad you’re out of the grout phase!! And Carmel - you’re sounding perky!!
Hope anyone else is ok ish - some of you haven’t posted a while, so hope you’re feeling well. I’m coming out of the hole again - very sleepy with this one - or did I peak too early on the French trip?! Remind me it’s doing me good pls!! Thanks Lily for dairy comments - there seems to be so much contradictory evidence about milk, soya, different sorts of bc etc etc - I’m not sure it’s possisble to know which direction to go in. I’ve had a look at some past posts - they seem to say the same.
Sun’s shining so maybe some fresh air - big decision!!
xx
Sorry I haven’t posted much this last week, been getting on with normal things as much as possible. Discovered internet shopping in a big way, so Xmas might just happen pretty much as usual. Been shopping in local town and got a new sparkly top for Xmas lunch with work on 12 Dec, so hoping to feel up to it.
Had 2nd cmf yesterday, day 8. Had to go in for bloods before treatment, luckily the unit was fairly quiet and I was seen on time (1st time ever since initial appointment). Got experienced chemo nurse again who managed to get cannula in first time and was then sent away for an hour while bloods came back. They were fine, my neuts were 4 point something so quite good for day 8. Treatment was ok and so far I’m feeling good. I hope that the se’s stay the same as last week as I only had mild nausea and a little heartburn, oh and the tiredness of course. I find myself catnapping through loads of tv, even the things I’m usually addicted to. I have to record them now so that I can timeslip the bits I’ve missed LOL.
Carol glad that you’re now feeling ok. Only one more epi to go. I was the same as you, no.2 was the hard one, but the others weren’t too bad. Can’t remember but are you going onto tablets after the next one? If so I hope they suit you.
Well done Carmel, as I’ve said above to Carol you’ll soon be finished with your epi as well. It’s good to get it out of the way.
Mivvi I hope epi 4 was ok yesterday. Cmf seems to be treating me a bit better. None of the fuzzyheadedness that I had with epi, which is a great improvement.
I hope that your infections are now all cleared up Lalala and the onc sanctions your next treatment soon. I’ve also got treatment, which will be day 8 of my 2nd cmf on 22 Dec and we’re hoping that I will be ok to travel to my younger daughter’s for Xmas (this will be a 1st as everyone usually comes to us!). They live 2 hours away. Chemo nurse just said that I must make sure that I keep a special eye on my temp etc and carry their phone number with me at all times.
Lily glad to hear that you’re now beginning to see the last of your se’s from your last treatment. Can’t wait for that day! Good luck with your surgery next Wednesday.
To anyone else I’ve forgotten take care and thinking of you.
Hi,
just a quick post to say hope the next ones are not too bad but if they are please moan like hell. Like Jackie I found CMF so much better but not perfect, so hang in there and just let epi do its stuff. My op is next Monday now so off to my 2nd daughter’s graduation tomorrow for a bit of proud Mum and Dad action and then off for a nice lunch. Well nice lunch for 2 and chips for one. Just great to be around for these big days.
Hugs
Lily x
Glad to hear you are all trucking on, dealing with the side effects - and having a nearly normal life! I’ve had another few gruelling days. Four hours after my Hickman line was flushed on Mon I developed a really high temp - 38.8 - but felt cold and couldn’t stop shaking. When my fingers went white and numb I panicked a bit and got my OH to take me to hosp. They gave me antibiiotics again and paracetamol helped with the temp, but they also did an ultrasound of the Hickman to see if there was any problems. There didn’t seem to be, but the con has decided I have to have it out - so it’s back to the cannula fiasco again. He did let me have my chemo on Tue though, so am back on track, and my veins have had a couple of months rest so played the game … this time. I feel like I’m the only one with bad news on this link … sorry … I can’t wait to be able to post a really positive message.
Take care all, and keep away from those nasty germs. S x
Lalala - no, you should post what you feel like - that’s why we’re here! Hope it will be plain sailing for you from now on. My 3rd epi hasn’t been nice - but nothing compared to your probs. Take care
xx
Layla, don’t you be feeling bad about not being positive… Sounds like you’ve had a rotten time and it could be any one of us. So glad your veins played to game, despite a load of hassle getting to that point. Good to hear you are moving forward with the chemo. Things are bound to get better so look forward to that. In the mean time hope your SE aren’t too bad. Hi to everyone else. hope you are enjoying good days and not suffering too much if you are in a ditch. xxx carmel.
ps went out on a friends horse today- can’t ride so we just walked and trotted a bit. What a treat… the derbyshire hills were spectacular!!
Hi,
Lalala sorry to hear about that, it must have been scary. Shame you weren’t alongside chemo with me more, we could have taken turns for disaster stories!! Always let off steam when you need to. Sometimes you really help someone else who is sharing the problem and feeling alone, but not posting just reading the threads. So we are both off to have our tubing pulled out, when is yours? Mine is on Monday and I am a bit teeth chattering about it, as mine is in a hole in my chest and totally sealed in under the skin. I am contemplating arriving roaring drunk to have it done as I have to be awake this time! Let us know how you get on and just think how far you have got and if you feel this bad, what the heck do the little Cs feel like - totally done in we all hope. Carol hope number 3 is heading away now and just think one more epi and then that bit is done. Great news. Carmel the riding and scenery sounds so refreshing I can almost feel the breeze.
Lily x
Thanks ladies, am still feeling a bit low but the se from chemo have been ok, almost ‘normal’. Still not heard when I have the tubing removed Lily. I had hoped it would be before now, but hey you have to wait for the wheels to turn. I will be thinking of you on Monday - hope it isn’t as bad as you fear!
Hi,
thanks for your kind wishes. Insomnia has set in tonight, thinking about it so will blogg for a while to wear myself out. Good luck to everyone going in this week.
Lily x
Hi Lilly, hope all has gone well/goes well. Thinking of you and other sufferers!!
Shocking cold today… hope it clears up a bit by tomorrow (bloods) and thurs (epi NUMBER 4!!! half way point)
xx Carmel
Hi Carmel
Hope you get no. 4 out of the way - I’m just behind you - should have no. 4 on the 11th! Yippee - half way!!! My veins are so sore may need to call the unit tomorrow - anyone having similar probs? Hope bloods good for you for Thurs
xx
Hi,
thanks back home safely but it feels a bit sore like a grazed knee, sort of stinging all the time. I had to be wide awake through the op so no ‘make it easy tablets, you won’t remember a thing’. I wouldn’t be scared if I had to have it again though and I really wanted to look over the top of the drapes to watch it, but couldn’t. Had a great chat about chemo all the way through it and staff were lovely. The cleaning in the ward was amazing, they went through twice in the same day. Carmel I hope you are well enough to get your last epi - can you believe you have got so far, congratulations and I hope you fing CMF much better. Carol you probably should check out the veins just in case. Many people say to massage the veins all the time with arnica or vit E cream right through chemo and especially after each dose for a few weeks. If it gets too bad they will suggest a central line or port, especially if they find it hard to get in the veins. Hoping this is a little blip and they can sort it out. Fingers crossed it improves for you.
Hope everyone else is ok. Off to take a big painkiller to knock me out for the night, so I can sleep through this stinging.
Take care
Lily x
Hi there, a bit better today… carol sorry about veins, Im having similar problem and hoping tenderness has subsided enough for vein assault tomorrow. There is a new thread on this topic started by IRINA, maybe have a look at it. Some people seem to be having alot of problems. Some of those who have finished treatment have experienced a more or less full recovery after similar probs so hopefully that will be the case for you. xxcarmel
Hi
Thanks for the advice ladies I’ll have a look at the thread. Lily glad the op is over and hope you feel better tomorrow. Off to try to get warm!!
xx
Hi,
feeling fine this morning and any minute now I will rip off the bandage to see if he did a neat job with the stitches. I have to have it checked later this week, not sure why as tiny. It calmed down really fast but personally I prefer a bit of oooh aaahh to a befuddled brain on painkillers, just reminds me of being on epi. Carmel and anyone else diving down the dark hole this week,big hugs and hope it is kind this time. Just wondering how you are Lalala, hope improving streadily.
take care,
Lily x
Hi all,
Glad to hear the op went ok for you Lily, and that you are recovering well. Mine is to be removed next Mon - I can’t wait now! My chemo yesterday was postponed AGAIN cos my bloods are dangerously low AGAIN - aargh!!! Con has decided to change my regime to the ‘Scottish method’ - which is having a CMF every 3 weeks like Epi, but that means my treatment will now finish at the end of January. On the positive side I should be feeling OK over Christmas as I was scheduled for 23rd and 30th Dec. Also it may mean my veins will recover enough between doses too. I still have lots of vein pain from the Epi doses Carol and Carmel, but it has become gradually less painful over the months. I’ve tried massaging but find that keeping it warm helps most. Good luck for tomorrow Carmel, and next week Carol!
hi there… I detect a slightly up beat mood… glad ops went well and the delays layla have some silver lining re christmas. It will be nice to be able to enjoy it when you were expecting to be wiped out. Can you feel your stats are low? I mean to you feel very bad in yourself? If so hope you feel bettter and stronger with time.
Im still a bit bogged down with cold but did manage a cycle round the block which has picked me up a bit. They stabbed me to death yesterday in search of blood, eventually got a drizzle then clotted it in transport rendering it unfit for analysis. Repeat fiasco, or so i thought. I pushed to have a heat blanket work its magic while i saw the team. Low and behold in and out of phleb back room in a jiffy: full vile of blood. Its baffling. Bloody bruised arms today which i hate the kids seeing because it looks so brutal even tho it doesn’t hurt. Wierd isn’t it the visable signs of cancer can be so upsetting even tho they don’t actually cause pain.
On a brighter note, I’m willing myself to manage this fourth and final epi like a storm trooper!!!
Let you know how i get on. Remember no news will be bad news!!!
xxx to all
carmel
Hi
Lalala don’t forget I had a port which was buried in my chest and not visible at all, so not the same. Wishing you lots of luck with your hickman line coming out. I think that is a simpler op as mine had tubes going up my neck and into my heart as well as the port itself. Big hugs for that as I know anything new is scary. Your doc will probably give you some happy tablets if you are really worried
Lily x