Did ya miss me :P? Big solstice hugs all round…it gets brighter from here.
Cold cap…I think is worth it. My hair was thick to start with, quite a large all over shed of hair but still enough that no-one’s noticed. First was fine and tiny twinge over temple for a few minutes. Second (less hair) was less jolly, but no worse than going outside in this weather…lol. Don’t know how much more will come out but will have been more efficient as less hair IYKWIM.
Tips…wet hair and slaver on some conditioner and bed it on tight especially on top and above the ears. Lucky really as first “art hair” appointment was a wastes of time like yours Polly and the one today we may not make as the roads are scary (little one’s school closed for first time).
Welcome FormulaDJ - you’re not much behind some of us in treatment terms. I had my 2nd FEC yesterday and used the cold cap again as (touches all wood around) my hair on my head is still intact. It has started come out down below - but maybe TMI.
Millykins - sorry if it’s not you but I can’t go that far back now to check without losing my post. Rather than meds have you tried Sainsburys Taste The Difference apricots? - work well for me in a bowl of porridge. But I appreciate they may not be strong enough depending on how badly the meds affect you.
LiF glad you got there and back OK.
Good luck to all FECcers and TAXidermists for today.
I got my 2nd FEC yesterday after they had had 5 attempts at finding a suitable vein. I’m almost disappointed there are only 3 bruises from where they put the needle in and poked about. I was dreading a PICC for the herceptin but it may be better than this palaver every 3 weeks for a year. I had my steroid at 6 but went to bed at 7.30 as OH was going to get the Christmas groceries snd said I looked terrible and he wanted me to go to bed while he was still there in case I needed help. I must have been asleep by 8.45. I had a text message at 9.30, which failed to wake me even though my phone has the loudest ring tone. I also didn’t hear OH drive up or bring all the groceries in. Best of all I wasn’t sick. I didn’t get the raved-about Emend but they gave me onadestron this time, which I didn’t have for 1st FEC and although I still feel sick I haven’t been. Pinkrose (fellow Monday FECcer) - tell them how sick you were and they should give you something else next time. keep taking the anti-sickness tablets until you stop feeling sick. I’ve been up an hour and feel a bit wiped out already. Hoping to be loads better by Christmas though. Last time the sick feeling had gone 5 days after.
xx
jules, hope u did yoru shopping, did ours last nite, 2 hours!!
dima and summer, loved th cemo 12 days of xmas.
found another buff site, slightly cheaper that original site kitshack.com
wel i drove home frm andys this morning, how i havet a clue, as ive an mgf, and its rear wheel, but i did it , yehhhhhh im the stig.
staying at moms till friday, andys got nites out and is relaly tired so thought id give him a few days before staying over xmas.
his parents came back form holday yesterday and brought me some perfume for lookign after the dog, thats was lovely xx
cemo, i had hunger feelings, more so after fec1. think itwas the intergeston feeling.
hair, i felt beter for shaving before it even started to come out, as i was in charge , and i didnt have to go through the upset of seeing it come out.
still hate my wig, love my hats
Welcome newbies, sorry you’re here but hey, what can we do, got to make the best of it and this thread is just great for support, laughs, hugs
Didn’t do the cold cap, didn’t want any more unpleasantness than strictly necessary and sitting with a freezing bonce didn’t appeal at all (says she, bald, sat with a freezing bonce…actually am never without hat around the house)
The Hunger…am possibly consuming my own body weight in food on a daily basis, feed a chemo and stop a fever/vomming/infection/flu???
Bye for now, good luck to this week’s feccers, those already done and those still to go
xx
Morning all, Managed to have FEC3 yesterday despite all the snow. Had 20% reduced dose and so far side effects improved. Great to finally be able to say I’m now half way through after the delays. Thanks for the tip that they may want to increase the dose back again though [sorry slipped my mind already who that was!] BB
Ha ha thats really good and funny nottsgirl .well ive arrived back from food shopping in one piece god im so jeleous some one got there OH to do it and pack it away ( cant remember who and ive just this second read it ) anyway cannot look back cos ill loose my post but you know who you are . I came in and remembered i hadnt taken my blinking tablet this am ( xmas is far too busy to remember these trivial things ha ha )anyway ive swigged it with a pomegranite juice 1 of my 5 -a-day. hope you all feeling better today and the sick bowls have been put away again WOW girls some of you are 1/2 way next time woo hoo .I just thought id share i got a message on my answer machine yesterday it was OH rambling away at work to someone ( his phone had called home by accident and he didnt know ) he was telling them all about my suprise xmas present he has bought me, and what colour it was and even how much it cost, he’s bought me a new phone and i heard the lot ha ha bless him didnt have the heart to tell him i’ll just plead ignorant and look suprised bless him xx
Julie - so funny about pressie!! At least he’s got you something I suppose! I’ve been dropping hints to my OH but I know he’s yet to do any shopping!
Popped into a friends for coffee (she had the children for me whilst I went to have bloods done) and ended up walking home in her boots! Didn’t even realise until she phoned me to say she’d got my boots sitting on her door mat! That added to the fact that I went out the other day with my sons school blazer on without noticing must definately be chemo brain set in for good!
My update, feeling fairly proud of myself, as got up and drove myself to hospital for 9.30 appt with breast nurse for prosthesis fitting. Found one that looked ok, certainly I don’t think I’ve ever actually looked so balanced… sad news is that after losing big boob, I am now possibly a B cup…lmao… at least I’ll be able to nick my daughter’s bras!!! Anyhow, prosthesis is all warm and tucked up in its box upstairs, where I can see it remaining until weather gets warmer and clothes get more revealing…
Have also walked to local shop for Jelly Babies and Haribo as mouth feels like it has a layer of felt inside, yuk, nothing will shift it at mo. Had one sore patch on gum yesterday morning, but Bonjela seems to have dealt with that - woo hoo!
Spoke to breast care nurse about the dressing over my PICC (the dressing is sticking much too firmly, and OH ended up peeling skin off with it yesterday…) and bcn just gave me extra gauze and clean white fluffy tubigrip by the metre, and said not to bother using sticky patches. Then got home so OH could change dressing, and we ended up having to soak the edges in Savlon just to peel it off - think my skin was trying to permanently bond with it - have NEVER had any probs with plasters or medical tape before, wouldn’t you just know it? Anyhow, felt a bit faint but done now!!
Still not feeling right at all, but not desperately ill or anything, just fed up of being so feeble at mo… but it will get better…
Well done Sophie, love that - nice and seasonal. We sang that at a carol service at church on Sunday but they didn’t have your words. Mind you my wonderful hubby (he who got all the Christmas shopping done and put away whilst I was in a post-chemo sleep) didn’t take his glasses to the carol service and he likes to sing loudly. There’s a bit in one of the verses of Once In Royal David’s City that says ‘with the oxen standing by’, well he mis-read and sang ‘with the oven standing by’. His boss, who we’d gone with suggested they had the oven standing by for the turkey.
Julie, hilarious. I bet he’d be gutted if he knew he’s spoiled the surprise. If you’d done the same he’d have thought it was post-chemo brain.
Sophie, just seen your update. Hope you soon feel better and your skin stops trying to incorporate the sticky stuff.
Summer, glad to have cheered you up.
First verse of a different Christmas standard:
We FECkings of NHS are
You travel to us from afar
Our gift is cocktails for your inside
Flouracil, Epirubicin and Cyclophosamide
Will catch up with the posts in a bit, just wanted to let you all know im back from hospital from the 2nd Tax. No problems this time which is good and now sitting at home in front of the fire.
…The lull before the storm
Hope everyone is well and in good festive spirits?
hi girls - just a quickie as still feeling yuk. breathless & zero energy. love the carols - OH just taken sophie for flu jab booster & didn’t tell her where going so expecting tears & tantrums on return poor love - Hate not telling her but she’d kick & screamgetting in to car so not worth too much trouble.
hugs to all XXXXXXXXXX
pinkrose sorry to hear you were so sick big hug for you.
millykins sorry you are still not feeling well hug for you too!
I am off to see the specialist 2mora to see if they are going to increase my dose of fec to the full srenght for next wednesday.
I am looking forward to christmas I can even eat more food.
By the way after I have had my fec I am having tax what is the diffence anyone know? and will I have different SE?
Starting tax on thursday…deep joy…so will analyse the difference between FEC and TAX…and report back!
Had bloods back today and neutrophils need to be a smigeon higher so sliding back down for a retest tomorrow…how many more visits to the place!!!
Starting mega doses steriods at 6am tomorrow…more joy…
LiF - Good luck tomorrow and Thursday - I’ll be following your analysis closely.
Really impressed by everyone’s compositions - I’m totally rubbish at anything like that so I won’t even try and just wallow in all your creativity.
Getting really fed up with this cold weather went into town and had to wear three hats! Never thought I’d lose so much heat from my head. When I bought all these bandanas I was relying on it being reasonably warm. Having a wig fitting experiment on Thursday but feel inclined to take a sheep with me instead and get them to put it on my head.
Question girls - does anyone else’s wound/scar become really tight in the days post FEC and will it ever become comfortable?
julie xxx