These steroids are just wonderful. Been organising the pages for the book. Need the quote, a reason why it’s stupid (after all we are dealing with idiots),may be ranking of hurtfulness, categories (like boob related, health advice) and a cartoon illustration. Think I might start a collection in the small hours.
House has a funny smell but otherwise seems ok- must be attention seeking
Jo -that was a technical explanation you had me worried for a moment, there’s me talking about drains and you come out with big time science, couldn’t understand a word but if no zzzzzzz’ appear soon might start looking it up. Sounds like Sophie will have a fantastic time.
Lif not much to do then in your spare time then. Thank god you’re not lambing yet!
6 o’clock and still no sign of the zzzzzzz’ kicking in. Can only lie on my back as anything else makes me feel sick. Going to start feeling sorry for myself soon. There are only so many games of solitaire I can play!
Jo - lol thanks for that, may need to pull out the old chemistry books hehe. Hope SEs go ok for you this time and the sick bowl stays in the cupboard! Good that sophie will have a good time.
Reeb - am guessing counting lifs sheep didn’t work? Hope you get sone zzzz soon, sounds like an afternoon nap may be required.
hi
taking sophie to nursery in a min & may have to face manager who made the wig comment - so am being silly but have decided to wear a different one today just for the sheer hell of it. If I wear a different one every time I go she can’t possibly comment on every one can she??? - or am I settingmyself up for a fall - we’ll see
@Janvis: sorry, obviously confused you with my late night ramblings:
My original FEC1 was 12mg total day 1 then 8mg total day 2 though 12 was prescribed; FEC2 he agreed to 6mg Day 1 then 6mg Day 2 but I only took 4mg day 2; then this cycle FEC3 took 6mg day 1 and nothing day 2 as I rebelled…baaad person.
The neuropathy side…with FEC1 was first section of fingers (not thumbs) and my lips. Lips stopped quite quickly but tingly fingers more of less throughout. FEC2…went right down the two fingers nearest the infusion site. Got my onc nurse to phone the consultant about pyridoxine (vit B6)which I’d read might help and he okd 100mg a day over the phone and then at my review prescribed 150mg a day (split in three) and another lot has just arrived with my FEC3 prescription pack. It may help. I’d say that’s worth discussing rather than reducing FEC unless your symptoms are worse than mine. Raised forearm on a cushion for FEC3…fingers higher than elbow and kept them higher for a couple of hours after. Same creaky first finger tips but no worse as yet, so will see when the tingling starts.
morning:))))Just been to see my gp about a flu injection. I was told before chemo that i didnt need one, onc told me at last review that i do. No flu vaccines at gp surgery, have to collect a script and find a pharmacy with stock, then make appointment for nurse to give it to me!! Also made appointment for bloods, gp concerned about my b12 levels-usually have injection every 3 months-thinks that might be the cause of my fumbly fingers and not the chemo. Sat in the waiting room with people all sniffly, flinching when someone sneezed-paranoid??? moi???
York sounds good:))))
Liking the idea of a bad comments book, the illustrations will be interesting:))
Hope all bodies ok:)))
K xxx
Had so many pages to catch up on, it’s like reading a novel. SE’s, work probs, poopy bath tubs, sheep? I can’t remember who has what!
I’m going to be self indulgent for a moment and say that i still feel shite! I haven’t had a good day since the last cocktail and the next is due tomorrow. Really dreading it and wonder if i’m gonna have it. See how the bloods go i guess. I had the same as LIF, neutropenic sepsis. I was let out on New years eve, after complaining that i need to be out. Fed up listening to patients who all have cancer, some really poorly and some loving every minute of being ill! The last straw for me was an 80+year old, who was having conversations with her drip stand! “do you have to keep standing there?” time to leave me thinks!
Came home to piles of washing and an empty fridge. Lost the plot completely and shouted, no, screamed at the 3 of them. Out of hosp they think = well enough to look after them??? I hope they have taken note, but i’m still not sure.
Rant over.
One for the comment book… what’s with the hat, it’s not that cold in here!! Oooo, self control. Should have taken it off.
Hope all’s well SE wise and good luck for all having more this week. x
Big big hugs Minny…I really do know EXACTLY how you feel…I have same problem with those at home…I did 3 loads of washing!!!
Think we need to write a small leaflet for isolation wards on how to keep people from insanity!!..yes I also have seen someone talking to a drip stand…d’you think they need glasses or men in white coats?
Am online worling from home…well supposed to take it easy so I am!!!
This book idea is a runner I think as there is nothing like it…a cartoon type thing bit like Thellwell would be amazing.
All the cancer type books and autobiogs are great to a point but still don’t help people either face cancer head on nor know what to say when they do, and since soooo many people are affected at some time in their lives it would be ground breaking!
Needs to be jolly and not like a help manual…
Think this could go from virtual to real v quickly …well done those who suggested it
Feeling a bit down today woke up feeling not to bad and then had a funny turn getting ready. Just watching tv feeling sorry for myself.
Does anyone else have low days when you just sit doing nothing how do you rally yourself. I admire those having the energy to work especially you lif x
Kimmie I’m a bit of a list person so I’ve made a list of things to do each day. There is a day 1 to day10 list which doesn’t have as many or times are shorter and then a longer list for the other days helps to keep me focused and determined to do something and especially adds some routine into life.
Re comments book there might be a privacy issue regarding comments made on this site so could probably do with a way of you emailing me directly but dodgy IT skills. Is there someone who I could give an email address to that can distribute? Always knew my PHD might come in useful one day but never thought of this!
Minny…neupogen…this week’s mantra on here: it’s on the recs list for the NHS after an admission.
And joining you on the cr*p list today. Can’t type without spellchecker, can’t read as brain mush and eyes still very light sensitive, back and neck aching, wobbly legs, slightly swollen fingers, still unexplored gut, period, no energy, anti-pill swallowing, not hungry, zero SOH. Quite up for a conversation with an inanimate object.
Reeb you can message anyone by email and get emails from anyone on PP…they see your email address if you email them or you can just message like you can on here.
Hello all
what a lot of insomniacs and natterers we are…so much to catch up on in such a short time. My post FEC3 curry and wine extravaganza was enjoyable but day 2 yesterday felt groggy and queasy so just slept and read in bed all day with the cat curled up next to me.
Today at work for the first time since before Christmas and good to get a bit of routine and normality back, well as routine and normal as teaching teenagers can be, they do make me laugh…haven’t told them about the BC, some have said ‘ooh miss I like your hair’ and I just left it at that
For the book, I have reasonable drawing skills and could do some cartoons but there may well be someone else amongst you talented lot who is a lot better…happy to oblige if needed
Ok then girls comments via my email address on PP - just joined that. Let’s take it from the word go and I’ll keep collecting right up until we return fully to work ie after all this treatment phase has finished as I suspect there will be a right load then as well.
Well girls. Me again.
Just went for blood results and to see the onc. No chemo for me tomorrow as White cells too low!
Have to wait another week and the have t injections from next time.
Am disappointed as I wanted to have it done s couple of weeks before my sons 18th birthday. They also want me to have a liver scan. Also are going to do the breast ultrasound this time rather than after #3 as u have a sort of type of cording under the breast and they haven’t seem that before.
Feel that I ought to go to work next week but I know a lot of my patients will have coughs n colds etc so it’s probably best to stay away. Hope everyone else goin for bloods today got on better than me.
Bad luck Polly but with a low white cell count it’s best if frustrating and certainly a reason not to go to work. Interesting about the cording. Hope the liver scan is ok I know when they told me I needed one my heart took a downer but the scan was ok just have a liver that for some reason isn’t functioning right.
Thanks polly just find it hard some days and sitting around just isnt me but dont have a lot of energy to want todo anything. Just asked the bc nurse when my hair will start growing as it isbecoming an issue for me. Just having a bad day and need a hug x sorry re your bloods x