Sophie - and Ketchup-I’m feeling much the same as you- thinkI’ve done too good a job convincing everybody I’m fine!Been a misery all morning.
Going out for dinner with family so hope I’m more sociable later,
Big hugs- please send some back .
Lulu you can get hydracortisone1% cream over the counter thats what oncologist gave me for my spotty itchy boob xx or ring and ask your dr to px it as recommended by oncologist and i didnt have to see gp take youre final letter in with treatment recommendations for skin with you. X
Lulu you can get hydracortisone1% cream over the counter thats what oncologist gave me for my spotty itchy boob xx or ring and ask your dr to px it as recommended by oncologist and i didnt have to see gp take youre final letter in with treatment recommendations for skin with you. X
Lulu you can get hydracortisone1% cream over the counter thats what oncologist gave me for my spotty itchy boob xx or ring and ask your dr to px it as recommended by oncologist and i didnt have to see gp take youre final letter in with treatment recommendations for skin with you. X
Lulu you can get hydracortisone1% cream over the counter thats what oncologist gave me for my spotty itchy boob xx or ring and ask your dr to px it as recommended by oncologist and i didnt have to see gp take youre final letter in with treatment recommendations for skin with you.
X
Woops whats going on thought my ipad froze and posted this 4times haha just incase you didnt get the message …chemo brain strikes again
Evening:)
Back from being poisoned and filled up with blood. I actually feel warm for the first time in ages:)
Took hours, glad i took mu macbook and benidorm boxsets{-: kept laughing though especially when madge said 'beef curtains" lol. The nurses couldnt believe i needed blood, because i looked so well. Getting a bit cross with it all now, I AM ill, Looks are deceiving and all these people dont see me in my pj"s with no face on, no hair and crying. Hmmmmmmm.
Keep getting how positive and chirpy i am, think that says more about the other patients than me, lol:)
Taking boy to watch a load of blokes scrap over an egg shaped ball, at least will have my chemo glow to keep me warm. Roll on summer rugby.
Hugs to all that need them
kerry xxx
Julie and Margaret
I spoke to ONC about the lack of further tests as it really concerns me that they only do them if symptoms suggest the need. She said to see it as a good thing but that if i was really concerned that they would do them. Gave it thought and thought id ask for them but then spoke to BCN who obviously wasnt sure if this was a good idea and said to consider how you would live if the results found something and suggested that living in ignorance for a few years before symptoms showed was better!!! I said surely it was better to find something earlier to treat it and monitor it than leave it to be found later and she said that finding something earlier didnt necessarily mean a longer life expectancy!!!
Needless to say i came away from that conversation both sad and confused and thought id chat again to the ONC. The conclusion id come to was that knowing what was what would help me move on after this and now im not sure.
Deb XX
Hello all
Well finished a week of boost rads and its fine!!! no ill effects at all. None from the tamoxifen either 
am taking large doses of evening primrose with it and feel great!..long may it continue…thanks lulu for your advice!!
Very sureal having rads…you go in stripped to the waist, lie on this table boobs to the ceiling, whilst a couple of burly young blokes shove you hither and thither to line up the tats with the lasers all the while chatting about what you are doing today etc!!
You then are told to keep as still as possible whilst they all leave and it starts buzzing just like a microwave!!! Then they say cherio see you next week…its the most bizarre thing I have ever done!
Friend of mine does life moddelling…she is a nude model! I might take this up seeing I have bared my boobs for so many different people this week!!!
hi all
sorry not posted for a few days - been recovering but starting to feel the fog lift today.
called ONC secretary cos thought I should see ONC before day of next chemo as I have appt for 2 hrs before dose but no not a prob apparently so I suppose I have to trust that is OK. she did say she’d check & call if he did want to???I wouldn’t want to reduce dose anyway unless absolutely necessary but thought he might want to see me cos of hosp stay. I suppose for them this happens all the time but for us it is scary!! Oh well.
weena - a agree - it’s all very well for them to think ignorance is bliss but if worrying about NOT knowing is impacting then better to get scans. I am lucky & have had them - double now cos of the hosp stayso there can’t be too much of a risk as I’ve had double dose of all the Xray stuff!!
Deb…scans such as CT are the equivelent of 900 chest x rays so to be honest I personally would prefer not to have too many of them as they can cause problems themselves. I think that so long as you do your best to live a healthy lifestyle and be happy that is all one really can do…they soon reel you in if they or you have a serious concern later on.
Its hard to move forwards sometimes through fear, but fear can itself make us ill…can you get any help or even some counselling over your worries…? big hugs xxx
LiF thank you for your response. Think these things are on my mind a lot cause each chemo results in me feeling miserable and quetioning my own mortality. I do worry a lot about not being around to see my littlies grow up. But then on my good week i see light at the end of the tunnel and hope that once treatment ends i can get back to normal.
Deb XX
Well that would be a nice new career for you LiF.
I’m not happy to know a CT scan is the equivalent of 900 chest x-rays. I had three scans (2700 xrays worth) between 24th Dec and 12th Feb - all appendix related.
Hey ho, what’s done is done so I’ll just keep taking life a day at a time, eating fairly healthily and exercising when I can- usually a fair bit, but just a walk each day at the moment. Fortunately I don’t tend to worry that much. Must say having bc brings a certain amount of paranoia.
Hope you feel less worried Deb.
Glad you’re feeling a bit better Jo
Stella xx
hey all, well done lif for doing your first week
mrs bird, kno wat u mean about people not seeing the real behind closed doors effect of bc.
jo glad fog lifting
sorry havent posted for few days, me and andy nearly split the other nite, he is really stressed over work, restructure and reappling for his own job, tests ect. and all this with me is doing his head in, we was only togther 5 months when i was diagnosed. and me pushing to live him, so it all exploded and he said it was all crap. so space needed, im goig to moms monday for the week and just stop with andy weekends.
last cemo next thur, cant wait.
we went out last night as girls with their mom this weekend, and it as like old days, so i thinks we ok now
Poppy well done on nearly reaching last chemo. Have a little break at your mums. Although all this is really hard on us it’s also c**p for everyone dealing with us and they need to let off steam too. Try and hold back a little bit with Andy and itll cone right in the end.
Lots of love to all.
Polly xxx
kaz-big hugs, you have nearly finished chemo, things will get easier, and maybe having it all out with Andy has cleared the air? This cancer crap just gets in the way, enjoy your time at your moms:)
Day2 tax 2, i feel crap:( no energy, feel cold, nervous incase i get bad se’s like last time. Hohum, keeping fingers crossed that its maybe lack of sleep and 6 hours in hospital yesterday.
Showed my friend my hair growth yesterday, she got all upset:/ thought i was going to be bald forever, lol!! Seriously considering ditching the wig, its becoming prickly:) and i cant bear the thought of wearing it when its starts to get warm. Kept looking at ladies with short hair, and wondering it it will suit me, not had short hair since i was 13/14 and used to have jason donavan style curtains!!!
Need to go clothes shopping too, but am assuming that my body shape will change after operation so see no point, might just buy new bag instead! Way to much time on my hands to think, lol!!!
Enjoy saturday:)
Kerry xx
Hi ladies,
Kaz, big hugs for you, things will come right with andy im sure, just be patient my girl 
xx
Kerry, snap, day2 tax2 for me 2 and i have started to feel crap, think the tax truck is arriving ;( have got 7 days worth of injections yesterday which start on weds, so hoping district nurse will do 1st then watch me do 2nd then im sure i will be fine…she says!!!
Lif, nice career change, let us know how it goes
Weena, i think you should do what you feel right doing, i know if it was me i would want to know instead of waiting for things to appear!!! its on my mind alot too,
Kathy, hope se are being kind to you
Hugs to anyone ive missed out, concentration gone out the window im afraid,
Jam xxx
kerry and jam, hope yoru se’s are kind and gone quick. xxxxxxxxxxxxxxxx than for my hugs, here are some back ()()()()()()
me and andy had a nice day, and we had his parents round for tea tonigt so that ws nice.
moms got her operation monday so we popped over to see her, she is stil in heaps of pain, so be glad when the kidney and tube is out.
have a nice sleeps pinkies. xxxxxx
Day 8 post tax2 still feel like c**p. Can’t eat. Fed up. Can’t sleep. Tried not to take sleeping tab but just had it now. Been totally drained today too. Hands starting to get bright red again and toes also this time. Hope it doesn’t get as bad as last time. Praying that onc says 3 tax is enough and doesn’t add another one.
Moan over.
Lots of hugs girls.
Polly xxx
Just in case I don’t get back on today big hugs to you all and I’ll be thinking of you whilst the site is down. I surpose I’ll really find out how much of an addict I am, I wonder if I’ll get the dt’s over the next couple of days.
Off to see the onc on Monday and if all is ok I’ll be having the LAST dose of poison on Wednesday.
Take care all
Reeb x
Good luck with last dose on Wednesday Reeb, Thursday week for last of mine. We’re nearly at the end of this part of the journey- hooray.
Polly, sorry you’re still suffering. I found I started to improve on day 9 this time, so hope you do too. Try the peas next time, it might help with hand and foot probs. I hope onc says you only need one more.
Kaz, glad you and Andy had a nice day.
Hugs to everyone. Stella xx