Good luck today Jo / Polly
Been thinking who we haven’t heard from in a while - ang1969, margaret and mel. Not sure about anyone else. Anyone know if these ladies are ok?
Sj - I so love your t shirt in the pic think you should sell them.
Have a good day
Reeb xx
Hello pinkies!!!
Well done to the number 1 thread…do you think all those gossips about come dine with me helped? 
jo - good luck for today and congrats on finishing!! The only way is up (after a bit of a dip) now!
Polly - especially goood luck with your onc today, cross fingers for just 1 more! Know what you mean about needing to get back to work and sort things put, am so proud of my team though they cope with anything!
Sophie - hope you feel better soon!
Re work, my onc says take the time now because as soon as you go back, people will expect you to work as hard as you did pre BC and it takes a few months to get energy levels back. He says either not to work or do very gradual return to work for 3 months post chemo. He also said you can get chronic fatigue syndrome.
Had my first zapping yesterday and it was a piece of cake compared to chemo, it takes about 20min in total, tgey put on some music for me, moved me around, zapped then I was out the door! And another 7 people have seen my breasts, I feel my job title should now be ‘flasher’ lol
Then they offered a free parking pass too, thank goodness as it would have been £4 a day!
Big hugs to all you pinkies and thanks so much for the support through this and especially to Kaz for posting this thread and getting us together in the first place!
Cat xx
Hello lovely ladies
just back from 3 days in hospital- neutropenic fever. Great. Ive never had such a sore mouth. Anyway onwards and upwards. Definately dont want 2 more now!!!
Jo are you automatically getting SSP on top of your half pay or do you have to apply.
Number one slot is great!! Well deserved. Your all so lovely. Keep it up.
Deb XX
Hi Ladies…
Long time no speak, hope everyone is ok. It’s been ages since I was last on, long story but hubby and I have separated so things have taking over me for a bit but now I feel able to pick up things again!
I’ve now finished chemo and start 4 wks of rads next wed.
Quick question re hair growth? How long after chemo ends should I start to see it growing? To be fair I’ve always had bum fluff on it throughout chemo but I’m eager to see something more now I’m 3 wks post chemo? It’s also very patchy I look like my hair is receeding and ive got nothing at the sides?
Advise welcome:))
Sarah xx
Lovely to see you again, Sazzie, I was wondering where you’d disappeared to.
Afternoon NUMBER ONE lovelies:))))
How lovely that we are the number one thread:))) Thanks Kaz for bringing us all together:) I honestly think you lovely lot have made this rollercoaster much less bumpy, we have all gone through the same thing, we all understand what each other is going through. Thank you ladies:))) I’m glad the thread is still running, it went a bit quiet. I read everyday, and try to post, unless i am feeling particularly eeyore -like!
Today has been, dare i say it , normal. Been shopping, met my bf for a drink-non alcoholic:(, saw my friend who hasnt seen me since dx, him lovely and very naughty, now sat in garden with dogs sunning themselves:) Then tonight watching 26 blokes knock ten bells out of each other while chasing an egg:)))) All good stuff, normal life except with less alcohol…
Sazzie - good to see you again. My hair is coming back - on tax3, have 2 balder patches at the front where my wig rubs, i thought is was coming out again but it seems to be just the fluffy bits. Have a look on pp , lots of us have hair dairies:)
Weena - hope you feeling better now.
Jo and polly - hope the se’s are kind.
Cat - good luck with the rads:)
Kerry xxxx
*apologise for the over use of the word lovely*
Mrsbird - “lovely” should be used as much as possible. As it is a lovely day outside! 26 blokes and ten bells…what the?
Sazzie - sorry to hear about you and hubby, hope all goes smoothly. My hair took about 4 weeks to start growing, but the past 3 weeks it has grown at a rapid rate and have a covering all over! I keep rubbing it like a genie in the bottle in the hope it will grow more.
Am off to sit on our deck with a glass of wine followed by afternoon kippy!
xx
Yay, number one!!! Thanks Kaz for starting the thread and to all of you for being there, and being normal rather than the positive thinking saints we’re supposed to turn into as soon as BC strikes.
Sazzie, sorry to hear about your separation. Don’t know about hair growing, by Monday I will be 4 weeks post final FEC (I am a TAX avoider) and my hair is still coming out. I used the cold cap but from FEC 2 hair started coming out and it still is. MOST ANNOYING.
Someone (sorry forgotten who) was asking about how long before back to work. I think I’ll probably be going back early June (w/b 6th). I spoke to my boss this morning and he was wanting me to commit to a date. I was trying to avoid doing so and reminded him that originally I said I’d be back by Christmas (that was when they thought mx and RADs would be enough, but then they added chemo in). He also said, we’ll just give you 2 appointments a day, within a 20 mile radius and we’ll set them up for 3 or 4 days a week. I thought my phased return to work might start with a 2 day week but didn’t like to tell him that. We’ll see nearer the time.
Polly, hope it is your last TAX. If not, then find a harbour and throw tea in it - the Americans did when they thought they had too much TAX.
Hugs for everyone xx
Extra cool thread - now 400 pages :0)
HI chaps
back from chemo after another all dayer - 3 nurses on instead of 6!!! also VERY pi**ed off & stressed. ONC said I don’t automatically qualify for RADS - noone has mentioned this before - it has alwys been chemo then rads but apparently if you have an MX you get it if you have over 4cm lump or 4 or more nodes affected. I had 2 lumps - 3cm & 1cm and 3 nodes. He said there is already evidence from an analysis of previous peoplke that it is beneficial but think our NHS being mean want a formal study done to rubber stamp it. anyway he has put through a referral to the rads guy & I will DEMAND it - it’s my only form of treatment left as TN so even if it’s a matter of a few percent better chance I want everything. he mentioned the supremo trial as someone else on here mentioned but no way am I taking a chance on not getting it & then having a delay - christ if it comes to it as a last resort I will pay privately. the main thing is I now feel very anxious & stressed & it’s all the waiting again to know what’s happening - I DON’T NEED THIS. I was so happy this AM as booked my centerparcs trip - this has taken away all that positive stuff & left me worried. NOT FAIR
I am sure it will get sorted but I’m not happy esp as I have to still get through the SEs from this yet.
sorry to moan but I need to get it off my chest
XXXXXXXXXXXXXX Jo XXXXXXXXXXXXXXX
Hi all pinks. Sazzie sorry about u and your husband.
Cat good to hear from u. Deb sorry Uve been in hosp. Hope u r feeling a bit better.
Hi to all others. Looked back twice to check names I want to mention but each time I get back to this page I’ve gone a blank!! Just back from Tax and guess what it was THE LAST ONE. Yay!!! Only marred by having to wait hours on end for stuff to come up from pharmacy. Anyway home now.
All you girls thinking about work. Take your time. We’ve been through such a lot and like someone else said once we’re back people think we are fully back to normal.
Lots of love to you all and thanks for all the help and support and shoulders to cry on over the last months. Couldn’t do it without you.
Polly xxxxxxxxxx
Jo our posts crossed. Sorry u had such a bad day. Can’t believe their quibbling about rads. Make sure u stick to your guns and speak to everyone you can about it.
Big hug.
Polly. Xxxxx
Hi all
Glad this was your last one polly, you must of been so relieved
Milly it was me that said about the supremo trial, i didnt have rads ax had mx and my lump was 2cm, i did put myself forward for trial but didnt get picked,
Have been to dr`s today as have a lump come up in my wrist and its very red and painful, got anti biotics as dr thinks it could be infected, seems to be 1 thing after another!!!
Sazzie sorry to hear about you and your oh (hugs)
Hugs to all of you
jam xxx
Hi all - great to see we are number one. Could not have coped in the last few months without you all
Sazzie - sorry to hear about you and your OH
Milikins - I had RADs - did not have mx or node involvement and lump was 2cm. I was told it was more important to have RADs than to have the chemo!! Keep on pressing them
Deb - sorry to hear you have been in hospital - I know how you feel. Hope you are feeling better
Re - work I was told by Occ Health dr this week that it will be a few months before I am fit to go back on a phased return. I cant return on phase as my job has just been made redundant so not sure what will happen. Have just finished RADs this week - Hurrah!! Although a little scary not having to go to hospital everyday - seem to be a little institutionalised.
Sarah - Hair just started to grow - a little. I am now 6 weeks post FEC.
Janette
Congratulations folks for getting to page 400 and being number I.
I didn’t join you because I could not cope with two threads, as I started number 2 thread.
I hope everyone is as well as they can be. All the very best to you. Take care of yourselves.
Cyber Hugs, Maria xx
yehhhhhhhhhhhhh number one, well done pinkies, gosh we can talk eh.
just want to thank you all, you have all made the road more bearable, and its also been a laff at times we should have been crying,lol
im 3 weeks after cemo finished and hair is comming back, but quite fuzzy and heads a bit sore.
had 2 rads, started yesterday, its ok, just takes time to set you up. .
started tamoxefon today and i have to say i nearly never did. im scared stiff of getting the side effects, ive been full of anxiety last night and today about it. 5 years is ages, im scared of hot flushes, ive had a few from cemo and they scare me, as years ago if i got hot i felt i was going to pass out and would then have a panic attack,so flushes make me think the same, any tips for dealing with them. .
going to try and do exercise if i feel awake enuff and eat better, from tommorow, lol hoping to keep weight off.
see your all doing ok, and i hope the last few se’s dont linger.
xxxx
Hi Ladies
Just hopping in to say “Congrats” to all you all for being top of the charts!
Well done to all you No1’s from a No2 Lass xxx
Darn it, i know i should be polite and benevolent, but curses on you pinkies for stealing the numberone spot…
That said, i felt exactly the same re tamoxifen poppy but 6 months down the line i can say its not been too bad at all. Most people tolerate it well apparently.
Vickie
ps. A reluctant well done ladies i s’pose!
Morning:))
Jo- cant believe they dont want to give you rads, this bc thing baffles me, sorry you had such a crappy day. hugs xx
Polly - last one .YAY. :)))))))
Jam - hope the wrist clears up.
Kaz - hope the rads and tamoxifen goes ok.
Well, this is the weekend before my last tax. Went to rugby last night, Hull fc actually won!!! After watching that we went to back to my friends to wait for husbands to come back, had wine, rang for taxi. Taxi driver commented on how well behaved my dog was!!! It was my hair, that i had taken off because it was getting uncomfortable:)))) Muchly funny:)
Kerry xxx