Dear everyone
I know we dont have to, and some of us don’t want to, but I find it really interesting to know where everyone is…I’m in South West France which means my experience is going to be different to someone like Alanaa who I know is in the Arctic …sorry Scotland…MargaretMay appears to be in Devon and Gillyflower is just outside Paris …
Ermintrude goes to St.Thomas’s which could be the one on the Thames but might not be…
still waiting for Thursday
Mary M
PS welcome to audreytoo
Hi Mary M
Greetings from the Arctic. Just wondered if you come home from time to time or do you stay in France all year round?
The January Surgery Buddies are planning a meeting around July this year, so the logisticst will be interesting to say the least as wee are all over the country.
Hope all of you March Ladies are doing okay
Hugs from Alanaa and her Fat Cat xxxx
Evening all, i’m originally from Shropshire but ended up at Eurodisney, it would take forever to tell you why…saw the onc today, seemed ok but rushed. Not in favour of cream of any sort but then said i had “english” skin and would probably burn, so i’m getting out the aloe vera whatever she says! I shall be getting zapped until mid may, which seems a long way from here, but i’ll get there, as will we all. Got prescribed Ixprim for my pain, but can’t take it during the day as it makes me feel faint. A shame, because it works pretty well. The doc was surprised i was still suffering but confirmed it is nerves and quite common. Sleep well everybody, Gill
Hello everyone. First rads session today, only 14 more to go. Been quite apprehensive about it but now in the system trying to let it wash over me. What will be will be. I am attending the Freeman CC, Newcastle upon Tyne. Been told to use E45 twice a day and use simple soap for washing. As I have very dry skin anyway will probably just wash with water only. I had noted that a lot of people recommend Aloe Vera to use as well so need to check that out with the team. I understand it has to be 99% and Holland and Barret are recommended. Times are a bit all over the shop this week, some am and some late afternoon but after that they settle down. Good luck to everyone out there.
It’s all gone quiet! Hope everyone is ok, I’ve not got much to say as i’m waiting for monday to go for my planning session and scan. Had an obligatory meeting with the french version of the BCN, total waste of time, she kept telling me that if i put on weight i should contact the dietician, but apart from that it was all what i call psycohbabble about the effect cancer is having on me and my family. Didn’t get that 5 years ago with OH and certainly don’t need it now, or if i do i know who to contact. Any time i asked for practical help she just said, oh you’ll have to speak to your doc, your surgeon etc, so, as i said, waste of an hour. Anyway, that’s my rant over for today, think I’ll take the dogs out for a walk as for once the sun is shining! Love to all, Gill
Hope it’s going well for all those who have started rads. My planning is on Monday too, Gillyflower. Have heard drinking lots of water helps. I don’t know why, but easy enough to try.
Moya xx
I started my rads on Monday and all going fine so far… They are much shorter zaps I’m getting this time around… But hopefully they wil do the job.
Lulu x
First rads today …took 30 minutes …they have given me another tatoo.Same time tomorrow 3.40 which means the whole afternoon taken up …1 hour to get there…1 hour to get back. Young girl (could be a daughter) who is my radiotherapist says it will be shorter tomorrow…at most 20 mins.
Hey Ho!
Mary M
I think that’s what i’m most not looking forward to - the travelling, even if i’m only less than half an hour away! At least i get wednesdays and weekends off. Oh well, mustn’t grumble, i’ll just be glad to get going. Bonne soirée, G
Hiya all,
Cheered up a bit from my last posting sort of !!! Just got so down in the dumps oh well !
Anyway yes I am at St Thomas’s on the Thames so the view is good but the train journey is a mare - went for planning last week at 4pm didnt get home until 8pm ! Trying to keep alid on the tears but I also think the Tamoxifen is kicking in now !
I hope everybody gets on well with the meetings and zappings ! Now my laptops back up and runnig I will be back everyday with an honest hard hitting update !!!
Love to all
xxxxxxx
Hi Ermintrude, nice to see you in a better frame of mind, it seems to me that everyone has a “meltdown” moment at some time during this experience, and they seem to creep up on you when you least expect them. I see you’ve already got the Tamoxifen, I’ve got to wait until the end of rads for mine (not that i’m complaining!) I’ve heard so much, mainly bad, things about it that i’m not looking forward to it at all, but i’m sure it’s because we never hear of all the women who take it without any SE at all. Oh well, I’ll cross that bridge…I’ve got a bit of a habit of getting ahead of myself, i should learn to live in the moment, i’d probably be a lot happier. Have a good day, love G
Well, Tuesday I had my scan, my tattoos, given my appointments for three weeks rads starting 26th March and my final dose of chemo. All done and dusted and on the way home(with my bucket) by 12.00 noon! Feeling a bit overwhelmed with it all at the moment especially as I’d been summoned to my breast clinic on Monday morning after I’d telephoned on friday to ask for exercise advice as I’ve been getting increasingly bad shoulder and neck pain on the side I had my mastectomy. Thought it was nothing but my goodness they were thorough, saw the doctor, full examination, series of x rays and got increasingly worried during the morning that they were thinking it was more cancer. Result - looks like I have degenerative osteoporosis, so off soon for a bone density scan.Almost skipped out of the hospital, never thought I’d be so chuffed with receiving that one, but I am! Brought back down to earth with a horrible bump yesterday when my very good friend, diagnosed just a couple of months after me, rang on the way back from her onc appointment to tell me they’ve told her she has mets in both lungs now as well as bones. It’s so b…y unfair.
Hi
I start Radio tues 13th march should of been wed just gone . Been a bit messed about with when I start radio so annoying just want to get on with my life. Finished chemo 8 wks ago now got to 18 sessions of radio . Hoping to go away just have to see how i feel after radio got to be careful in the sun and no swimming for about 4wks after .
Gillyflowers iv been on tamox off and on since 2006 and not had any real problems with it since first started it
LTL sorry to hear about your friend… Isnt it a sad state when we are actually pleased to have osteoporosis!
Angeljo I almost wish I’d had a break after chemo as mine was just three weeks after and been really tired all week… Wish I’d got back on my feet a bit before hand.
Anyway I’m one week down and three weeks to go.
Lulu
Hello All
LTF -sorry about your friend. I and on Letrozole andbecause one of its side effects can be osteoporosis I am also taking calcium tablets.I have got an appointment for a DEXA scan (bone scan) next month. I have been sent a medical questionnaire to complete and take to my appointment.
Have had 7 rads - 8 to go.
Best wishes to all
A
Went to Montauban today for rads number 3.
Was not my usual ‘girls’ but two strapping young men …I found it a bit weird …dont know why …
HELLO TO YOU ALL
Mary how are you getting on with your rads so far? I have app on the 27th with Onc to start the ball rolling. My wound is doing really well and I am hopefull that nothing else will crop up. Just wish it was all over and done with.
Hug to all of you from
Alanaa and Fat Cat xx
This is a quiet thread! Is everyone finding their rads are going ok? I had my planning session today - waited over an hour to see the onc who said she wasn’t sure that my skin would hold up (wounds only closed up last week after re-opening during infection) but to start and we will see. Not full of confidence right now! Anyway, scan and tattoos done and all ready to go on 23rd.
Moya xx
Had bone density scan today because of letrozole. Apparently can cause osteoporosis so will await that one with interest. Probably another tablet to take.
I have to say I can’t fault the appointment system. They saw me promptly and then I went for rads. There should have been an hour delay between the two appointments but rads saw me within 20 minutes. Treatment going ok so far, have a review tomorrow. My understanding is that it is towards the end that you have the problems. I cannot believe that I used to worry that the dentist was “over” x-raying me when I think what has gone into my body now. Only trust that it is all for the best. Hope everyone else is coping all right. Mo x
Hiya,
I am on countdown now !!! Starting rads on Wednesday really need to get on with it now the sleepless nights are driving me mad !!!
Hope everybody is Ok or as well as can be expected- its nice to come on here to see other women going through the same thing although none of us want to be here… its a great support.
Thank you all.
xx