Hi for all of us “Essex girls” there is a new thread that Tracey started on Undergoing Treatment so we don’t hijack other threads!.
Hope you are all well I am ok although quite tearful yesterday at times. But I keep thinking to myself this time next week 1 session over
Love Sharon xx
Hi ,
thanks Sharon, sorry to hear you have been feeling a bit low. I am not surprised I shed tears along the way, you can’t always stay on top of everything. I thought you were coping amazingly when I met you and so it is probably all starting to become more real now. Don’t be too scared, the thought of going for the first one is the worst part and then you just get on with it the best you can
try to forget it over the weekend and do something better
Lily x
Hello there you gorgeous girlies,
Tracey - yes I’m pretty sure they meant you at the Helen Rollason breast cancer meeting last week, they said that you come on this forum - so I presumed it was you?
Rebecca - how is the radiotherapy going? I’ve just had no.16 out of 25 and I’m starting to get a little burnt now. My appointment is at 9.40am on Thursday. When’s yours?
Sharon - don’t be ashamed to cry! You are doing fantastically. You are so brave and courageous, you should give yourself a pat on the back. It’s only natural to have a few tears along the way. I hope you’re feeling a little better today.
Lily - how’s the sleepness nights? Any better?
How is everyone else getting on? Btw, I’m going to the next Look Good Feel Better if anyone else is going?
Much love, Suzi xxx
Hi all
Had a few low days, no particular reason. Just sodding fed up with it all now…
Suzi, I am 10.40 Thursday so will miss you! Shame. Actually it is all going OK. Just the faff of driving from work to there and home again. And, as I said before, I feel so young there (which I am not!), so makes me feel sorry for myself! You are over half way there!!! I am just over a fifth there…
Did any of you hear or read about the latest - the length, birth weight and head circumference of a new born girl may dictate if she is going to have BC. What a load of b----cks. OK, even if that is true, there is nothing you can do to change that. Babies are born as they are. Put the money elsewhere in research please…
Very rebellious. I have drunk a whole bottle of wine tonight and feel totally sober. And working tomorrow. How come I am still sober after months of being relatively careful??!!
Bye all - lots of love
Rebecca xx
Hi
Rebecca you enjoy your wine. I still can’t believe you are already back teaching and all the stress and extra work at home that entails and doing rads, don’t let yourself get to meltdown will yuo. I read on the booklet from Colchester that the fatigue has a bit of a delay so might be starting to get you. Baby story sound crazy.
Someone on one of the threads mentioned that the number of rads mightbrelate to the size of your breasts. I had a chat with the macmillan radio nurse at Colch today,( who is lovely if you have any queries) and asked her. She says this is false and it depends on various factors such as the grade, size, etc of the tumour as to how many you have or whether you need booster rads. They cannot decide whether they can fry me with the port in or whether I need surgery first and then can’t be fried with a new surgical wound. Looks like more delays and more time with no pay. I have just been told I will have to go on to incapacity benefit as my statutory sick pay is ending and it has made me feel like a wreck. Also had a really dodgy tummy that won’;t settle so can’ t comfort eat either.
Suzi thanks the sleep is back again until the next one, got 2 weeks of fun now so making the most of it while I can. You are down to single figures for the rads now, well done.
Jen I am hoping every day you will post that you have a date for rads. We are meeting at The Fox and Raven at Chelmer village at 12 tomorrow (wed) if you want some company. Very low key and casual and everyone is lovely and wasy going.
Everyone/anyone is invited by the way.
take care everyone
Lily x
hi everyone!!!
I would love to meet up with everyone but I actually live in Southend so becomes difficult to arrange.But please have a drink on me ha! ha!
Thought I would update you on my situation.Well! I had a phone call on Monday from the Prof’s PA,lovely lady.She actually doesn’t deal with the medical side of things but managed to find out that a referral letter for my rads was sent on the 19th Sept. So at least I know the prof had done his part…hmmmmm. Yesterday I had an appointment at Broomfield with a research nurse to discuss the Herceptin clinical trial.Whilst there I explaind EVERYTHING to her and how upset I felt,well I got a phone call from Southend hosp today! I have my assessment with them Monday with a possible start on the 20th! So at least now I feel things are moving!!
As for the trial,I’ve signed up for it after lots of deliberating. It’s for a new drug called Tyverb.It’s meant to be as good as Herceptin or even better.Four arms to the trial and I don’t know which I will get.
All of you on rads-I will be looking to you for advice! Especially Lily,I have a portacath so hopefully it won’t be a problem too!
Lily- as for pay I’ve been quite lucky my employer has been paying me - full pay 15 weeks and 15 half pay.After that I have to apply for Income support if I want to as I am not eligible for IB.Hopefully I’ll be back at work by then though.
Rebecca keep going girl-you are doing great! A whole bottle of wine?? Wow I couldn’t manage that before this,if I tried it now I would be the lady in the corner asleep,dribbling and with her wig on the wonk!!! As my son says,“don’t go there”
As for all this research about what causes BC,well I was a 6lb baby,never smoked or drunk-well lots anyway,taken drugs and it’s not in the family-so what does that mean hmm??
going now kids are arguing - grrrr I can’t wait for the half term ha! ha! Jen x