STARTING TAMOXIFEN and managing side effects

Hi Ali,
& hopefully your symptoms will improve as it all settles down & you’re out the other side of treatment.
Wishing you the very best with it all.
ann x

Hi Ali, just read your message, I thought wow that’s me! not sleeping properly then so tired in the morning, sleep an hour or so then can’t sleep at night, and the nightmares not always nightmares but really vivid dreams! Like yourself going through rads, I’m also off work I could cope with the tiredness and emotions of it all but hopefully next few months will get my life back on track cancer free! Also has anyone else had cold finger tips and toes? Then 10 mins later a hot Flush ?stay strong ladies!! X

I can’t believe how many of us had to tell our Drs you can’t have fluoxetine with Tamoxifen. Shouldn’t they know this? We get told not to Google but it’s a good job we do, lol.

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Hi
Anyone able to give me more information on mood swings due to tamoxifen.
My partners ex wife was prescribed these. Her symptoms were so severe that she would physically assault him, very badly at times.
He has spoken to other husbands who have hated the same experience and spoken to the oncologist who said yes, however this is something that the husbands don’t talk about. But she definitely recognised it herself.
He has had a terrible time and do was hoping I could gain a bit more knowledge of this drug to understand more myself.
Thanks

hello ladies i just wanted to ask if tamoxifen has effected there periods i had one period now its 35 days since i had the last one im 44 years old ,just interested if other people are haveing this im sure there is lots of you out there would be grateful for any replies ladies xxx little fairy

So, I have been taken Tamoxifen for about 6 months and I am experiencing just about all the side effects.  I am very restless, anxious, moody and the hot flashes are unbearable!  The weight gain is rediculous as I didn’t need to gain 1 more pound.  I am taking herbal black cohosh and am still sweating like a whore in church!  Any advice for me?  I’m just not sure that I am gonna be able to conquer this but am so worried about stopping the treatment.  I am just so miserable.

I’m with you, I ache all over and have hot sweats (not that I ever stopped having them after menopause!) they are just a lot worse now. 

Susan x

Hi Sam, 

Your symptoms seem extreme re swelling.  I would speak to your breast nurse initially and see what they say. 

Julie